[last updated 10 Feb 2005]
The UK group started developing literature in 1993 when the group (which was started in 1988) was formalised. This includes a factsheet/brochure (in several languages) and a journal/newsletter (approx. 3 per year since 1995).
Note: You need to have a PDF Reader on your PC in order to access PDF files. See About this Site page for more info.
You can look at the UK version and the N. American version of our AISSG factsheet/brochure in PDF format. We advise that you photocopy the two pages onto a single sheet, double-sided, then fold it in two places forming a brochure to give to relatives, friends and doctors. It is also available in other languages.
Please note that AISSG UK holds the copyright and the text should not be reproduced, in whole or in part, in other publications without permission (and if granted, AISSG UK should be given accreditation).
ALIAS (Looking At AIS) contains articles on issues relevant to affected families/individuals and to doctors, psychologists etc.
Recent issues of ALIAS are available as individual paper copies and ALIAS Nos. 1-19 are available on a CD-ROM. On the CD-ROM the illustrations are in colour and the contents list of each ALIAS has hotlinks that take you direct to the relevant page. You can also search the text for any word/phrase using the Find option in Acrobat Reader. The CD also includes a title page, an introduction (AIS factsheet) and an overall table of contents for all the 19 issues. See 'Ordering Procedure' below.
In 1997 we collaborated with two other support groups, within a small consortium under the guidance of the UKs Genetic Interest Group, to produce a Genetic Disorder Leaflet titled Does your child have a genetic disorder? It aims to guide parents on what questions to ask of their childs specialist (paediatric endocrinologist, geneticist etc.).
We can supply a professionally printed hardcopy version for doctors, e.g. GPs/psychologists, to hand to patients prior to a hospital specialist appointment.
A professionally published 28-page parent/patient booklet on AIS is also available (written by paediatric endocrinologist Dr. Garry Warne with help from the UK support group). See 'Ordering Procedure' below.
Caroline Hawkridge's book, The Menopause, HRT and You, (Penguin, ISBN 0-14-027261-5, recommended retail price GBP 7.99) is billed as "an up-to-date and practical guide for women of all ages".
The publishers wanted the word 'menopause' in the title in order to attract the traditional market of older women, but Caroline was determined to give women in our situation a high profile in the book. Three of the twelve chapters are for younger women needing HRT. In particular, Chapter 6 explains how conditions such as AIS, Swyer's, Turner syndrome, etc. come about and why these women are prescribed HRT. It contains a useful chart showing how the various conditions arise. It ends with six personal stories from women who have faced these problems. Information about support groups is given at the back. Caroline, a UK-based health education specialist and writer, worked with support groups, including AISSG, to develop this chapter. The book is just as useful in explaining intersex conditions as it is in explaining HRT!
The first run of 6000 copies has now almost sold out in the shops and Penguin will not reprint it because their health lines are being discontinued. The UK support group still has some copies available. See 'Ordering Procedure' below.
To order copies of the above literature (AIS factsheet/brochure, GIG leaflet, ALIAS newsletter, Dr. Garry Warne's AIS booklet, Caroline Hawkridge's HRT book) and/or to register with the UK group (in order to join our online newsgroup service; and receive UK meeting details and any ALIAS's published this year), please print off the 4-page Basic Info Document (please ask if you need Word version).
If you are outside the UK, you will need to send a bank or post office (e.g. Girobank) cheque, international money order, banker's draft or eurocheque in pounds sterling when ordering literature or registering. Please do not send foreign currency banknotes or cheques drawn in foreign currencies (our bank will charge us a large fee to convert them to pounds).
See Announcements for details of an educational film called Gender Trouble, made in association with the UK group and available on video or DVD.
For information, with illustrations, on some recently published books relevant to AIS and other intersex conditions, please download the Recommended Books Document (188 KB). Printouts of this document can also be sent to doctors to increase awareness and to let them know about relevant books.