Detail Sourcebook Listing
Title:Dubowitz Syndrome Information & Parent Support
Description:Provides support, understanding and information to families affected by Dubowitz syndrome, a rare genetic disorder defined by growth retardation, microcephaly, and a characteristic facial appearance. Literature, information and referrals, phone support, pen pal program.
Scope:International network
Founded:1998
Telephone:309-665-0041
Email:bobbiep@dubowitz.org
Web Address:http://www.dubowitz.org

 

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Updated: 02/2005