Detail Sourcebook Listing
Title:PROMM (Proximal Myotonic Myopathy)
Description:An e-mail discussion group for people with proximal myotonic myopathy (aka myotonic dystrophy type 2), a rare form of muscular dystrophy. Also open to families, friends and professionals. Discussion centered around symptomology, adaptation, and variant manifestation.
Scope:Online
Number Groups:80 members
Founded:2001
Email:kilil247@yahoo.com
Web Address:http://groups.yahoo.com/group/PROMM

 

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Updated: 02/2005