| Detail Sourcebook Listing | |
| Title: | Aicardi Syndrome Newsletter, Inc. |
| Description: | Support for families with daughters with Aicardi syndrome, a rare seizure disorder that affects only females and is characterized by retinal lesions. Information and referrals, resources, research projects. Biennial conferences, phone support network, research group, newsletters. Dues $25/year. |
| Scope: | International network |
| Number Groups: | 5 Regional Chapters |
| Founded: | 1983 |
| Address: | c/o Denise Park Parsons 1510 Polo Fields Ct. Louisville, Kentucky, 40245 United States |
| Telephone: | (502) 244-9152 |
| Fax: | (502)244-9152 |
| Email: | aicnews@aol.com |
| Web Address: | http://www.aicardisyndrome.org |
This information has been generously provided by The American Self Help Clearinghouse and hosted by Med Help International. Please send corrections/updates to admin@selfhelpgroups.org. | |