| Detail Sourcebook Listing | |
| Title: | Alagille Syndrome Alliance |
| Description: | Support network for anyone who cares about people with Alagille syndrome, a rare, multi-symptom, genetic disorder. Disseminates information. Aims to increase awareness in health professionals. Newsletter, phone support, information and referrals, medical advisory board. |
| Scope: | National network |
| Founded: | 1993 |
| Address: | c/o Cindy L. Hahn 10500 S.W. Starr Drive Tualatin, Oregon, 97062 United States |
| Telephone: | (503) 885-0455 |
| Email: | alagille@earthlink.net |
| Web Address: | http://www.alagille.org |
This information has been generously provided by The American Self Help Clearinghouse and hosted by Med Help International. Please send corrections/updates to admin@selfhelpgroups.org. | |