Detail Sourcebook Listing
Title:CFC International
Description:Mutual support for parents of children with Cardio-Facio-Cutaneous syndrome. Strives to find and disseminate information on CFC syndrome. Offers newsletter, information and referrals, computer listserv and phone support. Medical advisors. International clinic and family conferences every two years.
Scope:International network
Founded:1999
Address:c/o Brenda Conger
183 Brown Rd.
Vestal, New York, 13850
United States
Telephone:(607)772-9666 (eve)
Email:bconger@cfcsyndrome.org
Web Address:http://www.cfcsyndrome.org

 

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Updated: 02/2005