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| Title: | DeBarsy Syndrome National Network | | Description: | Support and information sharing for parents of children with DeBarsy syndrome, a rare disorder. Pen pals, phone support, peer support and counseling. | | Scope: | National network | | Founded: | 1997 | | Address: | c/o Cheryl Dinnell, Family Ties of Nevada
PO Box 50815
Sparks, Nevada, 89435
United States | | Telephone: | (775)823-9500 | | Email: | dcdinnell@mindspring.com |
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Updated: 05/2004 |
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