| Detail Sourcebook Listing | |
| Title: | DEBRA of America (Dystrophic Epidermolysis Bullosa Research Association) |
| Description: | Support and information for families affected by dystrophic epidermolysis bullosa. Promotes research, provides education for patients, families and professionals, pen pals, phone network, information and referrals, newsletter, regional conferences. |
| Scope: | National network |
| Number Groups: | 14 chapters |
| Founded: | 1980 |
| Address: | 5 West 36th Street Suite 404 New York, New York, 10018-7179 United States |
| Telephone: | 1-866-332-7276 or (212)868-1573 |
| Fax: | (212)868-9296 |
| Email: | staff@debra.org |
| Web Address: | http://www.debra.org |
This information has been generously provided by The American Self Help Clearinghouse and hosted by Med Help International. Please send corrections/updates to admin@selfhelpgroups.org. | |