| Detail Sourcebook Listing | |
| Title: | Joubert Syndrome Foundation & Related Cerebellar Disorders |
| Description: | Mutual support and sharing of knowledge for parents of children with Joubert syndrome and related cerebellar disorders. Aims to educate physicians and support team. Information, family registry, quarterly newsletter, family networking, research registry, and biennial conference. |
| Scope: | International network |
| Founded: | 1992 |
| Address: | 6931 South Carlinda Ave Columbia, Maryland, 21046 United States |
| Telephone: | 410-997-8084 |
| Fax: | 412-997-8184 |
| Email: | joubert@joubertsyndrome.org |
| Web Address: | http://www.joubertsyndrome.org |
This information has been generously provided by The American Self Help Clearinghouse and hosted by Med Help International. Please send corrections/updates to admin@selfhelpgroups.org. | |