| Detail Sourcebook Listing | |
| Title: | International Society for Mannosidosis and Related Diseases, Inc. |
| Description: | Provides emotional support for families affected by any oligosaccharide disorders of lysosomal storage. Offers educational resources for medical community. Promotes research to develop treatments. Phone support, literature, pen pals, information and referrals, newsletter, advocacy. Online message boards, chat rooms and e-mail discussions. |
| Scope: | International network |
| Founded: | 1999 |
| Address: | 3210 Batania Ave. Baltimore, Maryland, 21214 United States |
| Telephone: | (410)254-4903 |
| Email: | info@mannosidosis.org |
| Web Address: | http://www.mannosidosis.org |
This information has been generously provided by The American Self Help Clearinghouse and hosted by Med Help International. Please send corrections/updates to admin@selfhelpgroups.org. | |