Detail Sourcebook Listing
Title:Purine Research Society
Description:Support for persons affected by purine metabolic disorders caused by a defective gene resulting in the production of an enzyme with too little to too much catalytic activity. Purine metabolic diseases include gout, purine autism, Lesch-Nyhan syndrome, ADA deficiency, and others. Funds research to find the defective enzyme responsible for purine autism, the largest single sub-group of autism, and treatment methods including newborn screening. Information on purine restricted diet, referrals.
Scope:Model
Founded:1986
Address:c/o Tahma Metz
5424 Beech Ave.
Bethesda, Maryland, 20814
United States
Telephone:Tahma Metz (301)530-0354
Fax:(301)564-9597
Email:purine@erols.com
Web Address:http://www.purineresearchsociety.org

 

This information has been generously provided by The American Self Help Clearinghouse and hosted by Med Help International. Please send corrections/updates to admin@selfhelpgroups.org.
Updated: 02/2005