| Detail Sourcebook Listing | |
| Title: | Myotubular Myopathy Resource Group |
| Description: | Information for patients, parents and doctors regarding myotubular myopathy, a family of three rare muscle disorders usually causing low muscle tone and diminished respiratory capacity. Exchanging of successes with other affected families. Phone support, information and referrals, newsletter, literature. |
| Scope: | International network |
| Founded: | 1993 |
| Address: | c/o Pam Scoggin 2602 Quaker Dr. Texas City, Texas, 77590 United States |
| Telephone: | (409)945-8569 |
| Email: | gscoggin@aol.com |
| Web Address: | http://www.mtmrg.org |
This information has been generously provided by The American Self Help Clearinghouse and hosted by Med Help International. Please send corrections/updates to admin@selfhelpgroups.org. | |