| Detail Sourcebook Listing | |
| Title: | Nemaline Myopathy Newsletter |
| Description: | Grassroots group that offers newsletter that networks families affected by pediatric/adolescent nemaline myopathy for support and information. Pen pals, literature, phone support, information and referrals. |
| Scope: | National network |
| Founded: | 1991 |
| Address: | c/o Krystyn Orlicki 12408 W. 120th St. Overland Park, Kansas, 66213-4863 United States |
| Telephone: | (913)768-7767 |
| Email: | davidmcd@hotmail.com |
| Web Address: | http://www.davidmcd.btinternet.co.uk/ |
This information has been generously provided by The American Self Help Clearinghouse and hosted by Med Help International. Please send corrections/updates to admin@selfhelpgroups.org. | |