| Detail Sourcebook Listing | |
| Title: | Robinow Syndrome Foundation |
| Description: | Aim is to locate, educate and support persons affected by Robinow syndrome, (also known as fetal face syndrome) a very rare genetic dwarfing syndrome. Support and newsletter, bi-annual conventions, family networking. |
| Scope: | National network |
| Founded: | 1991 |
| Address: | c/o Karla Kruger P.O. Box 1072 Anoka, Minnesota, 55303 United States |
| Telephone: | (763)434-1152 (Karla Kruger) |
| Fax: | (763)434-1152 (must call first) |
| Email: | kmkruger@comcast.net |
| Web Address: | http://www.robinow.org |
This information has been generously provided by The American Self Help Clearinghouse and hosted by Med Help International. Please send corrections/updates to admin@selfhelpgroups.org. | |