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This patient support community is for discussions relating to Amyotrophic Lateral Sclerosis (ALS).
Please be advised that answers are given as general health information, not intended guide your specific treatment. MedHelp physicians can comment on treatment options in general, not specific to your case, so it helps to ask the quesion in such a way: 'If someone had headache, stiff neck, tongue & whole body muscle twitching for 2 months... what could this represent and what can they expect from a neurologist's care?'
This forum is not intended to give advice for diagnosis or treatment of your symptoms. It's intended for general information not specific to a single patient. Please see your doctor for your concerns about your pain and twitching. There's a lot more that can be done to look into your symptoms.
When patients complain to me of headache, stiff neck, tongue & whole body muscle twitching, ALS is not the first disease that comes to mind. Amyotrophic lateral sclerosis is a combination of upper motor neuron and lower motor neuron degeneration. The upper motor neuron degeneration leads to weakness, overresponsive reflexes, and spasticity. The lower motor neuron degeneration leads to weakness, twitching, and shrinkage of muscles. Other than the twitching, you haven't described any of these other symptoms. Yes, it's posisble, but you need to be examined for the other signs.
Please see your regular doctor, and ask for the neurology visit to be bumped up if you're getting worse.
Enoch Choi, MD
This, however, is not my greatest concern. My neck has always been fairly thin and shoulders (trapezius--neck to shoulder group) has been mostly non-exisitent--perhaps due to my poor posture. Anyway, since last year, my neck has become progessively weaker and stiff. It also seems that the muscles have become atrophied--ligaments have become more pronounced. In addition to the weakness, it feels like it needs to be popped/cracked. I do this fairly often when it stiffens-up.
Finally, on occasion, I have some muscle twitching. I have been in a few minor car wrecks, too. Should I be concerned about ALS?
My uncle is suffering from serious Motor Neuron Disease in New Zealand and was told that there is no cure.
He is unable to move, talk, or eat for over 6 months. I am desparate in looking for information that can give us hope in healing him. Would you be able to point me to the right direction?
Are there any treatments available to cure this? Thank you very much.
Connie
There are not many treatments for ALS. You can try antioxidants (vitamins) and there is one approved drug, but it's not very effective.
Sorry, we cannot help further.
I went to the doctor and have had two muscle tests done by blood, not sure what they were. The Dr. called me yesterday and wants me to come in and do another test, that both tests have come back a little high (not sure what that means either).
I am very scared that I have ALS. Has anyone ever experienced this with BFS? I am hoping that is what I have.
It is very easy to see atrophy where it is not there when you are worried, our bodies are not symetrical, but a neurologist would not be able to mistake true atrophy or weakness.
You need to see a neurologist to reassure yourself
I have been there myself with the worry and come out the other side.
Pain is not a symptom of ALS
The thing is, my brother had the same dx for seven years. Two years ago he was dx with ALS. Its horroble. I am seeing a new Doc. nesx week that studies underlying Neurpmuscular disorders. Good luck to you! I hope it is BFS.
With BFS the twitches could happen anywhere in your body. Thats a good sign.
Get him to do EMG and NVC test.
For one yes there is a possible cure if not a drug