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ALS Community

This patient support community is for discussions relating to Amyotrophic Lateral Sclerosis (ALS).

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Is this ALS? Dear all, My mom has been experiencing weakness in her right arm in a sudden (twice or thrice in a month). And waking up in the middle of the night because of spasms. I know there might be a symptoms of ALS because she...
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Avatar universal
Dear All, I have been going through a tough time for the past 4 months, my journey downwards started when i got a eye infection twice in a span of 1 month and my eye doctor suggested that i might have an auto immune disorder due to wh...
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Avatar universal
I'm going to go straight ti the point. On Aug 25th, I had 2 stressful days at work and ever since then I haven't been the same. My fear had kept from living life, and I'd interfering with my work and family. Symptoms: -twitching: my ...
  Posted
Avatar universal
Hello 18 monts ago I had twitches, saw two neuro over 8 months or so, they did the usual tests Bloods, nerve test, mri, erg etc. I was told all ok. Now I twitch a lot more, have constant saliva build up and phlegm at back of my throa...
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Avatar universal
I will try and make this as short as I possibly can. June 2013: Woke up with severe back pain. First in my life. Pain lasted about 3 days. Everything went back to normal afterwards. November 2013: Muscle twitching begins in lef...
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Avatar universal
My husband has High Cholesterol. They put him on Zocor four years ago. Before the Zocor there was NOTHING wrong with him but the cholesterol. He has now tested positive for kidney failure three years in a row and it has been getting w...
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Hi, my name is Don I am 20 years old African American I am a college student and I'm in the National Guard with a pregnant girlfriend . Just this past Wednesday (5 days ago) the front muscle of my arm started twitching along with some m...
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hello my name is kirk, in 2009 i started to have muscle atrophy in my right hand..it deteriorated the muscles but i managed to continue to play sports, write and make the best out of it...Besides that i felt very good for the past 5 year...
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Avatar universal
what use is there for a product called dmso in als patients? and how is it used?
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Avatar universal
Hey guys. My name's Gabriel and for three months or so I've noticed fasciculations all over my body, although it started in my left thigh. I feel a weird kind of weakness in my left leg, there's nothing I can do but I wake up with it fee...
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Avatar universal
Hi i'm a 24 year old woman. For the past 3 weeks my index finger has been twitching after i use it. (mostly if i pick up something heavy, etc).. I started noticing it after an incident with my phone where the top button wasnt working so ...
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Avatar universal
4 weeks ago I started to aid in the care of my aunt (age 66) who was diagnosed with ALS in May. She will be the 6th person in my family to have been diagnosed with ALS. She and a cousin will be the only two living of the 6 and my aunt un...
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Avatar universal
Worried about ALS. Have sporadic tongue twitches (meaning one or two twitches per month). Is this normal? 1. Are twitches in ALS constant from the beginning? 2. Can one have benign twitches in tongue?
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Hi My name is Dennis and I am 27 years of age. I have always been physically active through gym workouts and soccer. About a couple of weeks ago I came back from a trip to Texas and started feeling lightheaded and minor headaches (po...
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Avatar universal
This is for my friend whose mother died in 2001 due to motor neuron disease. As this disease is heridetary, he is worried that he will also get the disease. He has muscle twitching frequently and believes that it is a symptom. Due to thi...
  Posted
Avatar universal
Hi All for the past month and a half, I have been having speech problems that i've never had before and trouble coming up with certain words. I also have a twitching all over my body. But I should point out that I have had anxiety all ...
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Avatar universal
Hi! For the past 2 months I've been having sporadic twitches in my tongue. They come and go with weeks apart, and last just a couple of seconds. About a month after the twitching started I had an EMG of my tongue and that was normal. ...
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Avatar universal
hi my name is jon i am 16 and i am worried that i might have als. it is september 6th and i started having symptoms in probs late august. my hands have been twitching I sometimes have a weird feeling on my arms or legs. I can pick my arm...
  Posted
Avatar universal
Hello. I am a 36 year old white American male. 5’7”, 187 lb. only pre-existent health problem is sleep apnea, which I was diagnosed with this spring but probably had for quite some time before that. (I now wear a cpap for it.) don’t...
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Avatar universal
At 18 years old, with no previous family history, I realise that the likelihood of me having ALS is extremely low. Yet over the past 4 weeks, the progression of symptoms that I am experiencing is undeniable and frankly terrifying. It all...
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