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Rena705 Female, 45 years Edmonton - AB Member since Nov 2007
Mood: Rena705 is having a wicked pain in her head today...things were going TOO good? Journal Entry: "I am feeling unwell today and I wonder if..." [Read]
I have created a support group for sun sensitive people.
Our website is at Website: http://sun1.awardspace.com/index.html
Our forum is at http://groups.yahoo.com/group/sun1/
To join, you need to join yahoo, then join our group. Please come by and say hi.
We are a support group for people who suffer from sun sensitivities such as solar urticaria, lupus, porphyria sun hives, photosensitivity, sun allergy, rheumatoid arthritis, actinic prurigo, hydroa vacciniforme, chronic actinic dermatitis, albinism, and more. We share our experiences and ways of coping and living with sun sensitivity such as sunscreens, clothing, hats, sunglasses and the effectiveness of medical treatments. Sun sensitivity shows usually shows up as a bad sunburn in a very short amount of time. Sun sensitivity can be due to drugs or medications, plants, phototoxicity, genetics and diseases.
See you there,
Accents
Moderators: We are a rare group, so we have a tough time finding each other. So I would appreciate you letting me post this message.
What is going on?
ME
***@****
Nina
What did the dermatologist and neurologist advise?
This appears to be a phenomenon called Solar Urticaria. However, an allergy specialist would be to give you a clear diagnosis.
The migraines could be one of the symptoms of the allergic reaction to light or sun, and not a separate disease entity.
In the meantime he may try to restrict his day time exposure to sun, using a sun block and some OTC anti-allergics for your condition. You could ask your doctor for pain releif medications for his symptoms.
Do let us know if you have any other queries.
Best regards.