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Anxiety Community

This patient support community is for discussions relating to generalized anxiety, anxiety and eating, anxiety and sleeping, mood swings, and phobias.
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Muscle Twitching and Perceived Weakness

by tarrigo, Dec 20, 2006 12:00AM
I am a 25 yr. old male who has been experiencing muscles twitching and perceived weakness since September 7, 2006.  Three years ago I experienced the same symptoms.  My fear was ALS back in 2003 and that is my fear now.  In Jan. 0f 2003 I had an EMG/NCV done which was fine.  I was put on paxil for a condition my doctor described as hypochondriasis.  My symptoms completed dissipated and returned in September of this year.  I was getting married and had just started grad school before the onset of symptoms.  However, I did not feel stressed.  



My fear of ALS has consumed my life.  On Nov. 9th I had another EMG done, which was totally clean.  My neurologist gave me a diagnosis of Benign Fasiculation Syndrome, just like in 2003.  I have had an MRI of my brain and Cervical Spine, numerous blood tests.  All are fine.  I am still worried about ALS even though my tests were fine.  I am taking Lexapro right now and supplementing it with Klonopin as needed.  I have been on Lexapro for about 2 months now, and I am still worrying almost all the time.  My muscles are still twitching and I do feel weak in my right arm and right leg.  I still go to the gym and run and do pushups, etc.  My GP and neurologist, who are both great individuals, both think it is anxiety related.



After almost 4 months of symptoms, I am sure if it was ALS that I would be in worse shape, but cannot seem to trust my doctors.  Is it possible that my anxiety over the disease is causing somatic symptoms?  I am thinking about changing from Lexapro to something else, because I am gaining weight and am still worrying a lot.  Do you think I should change to another SSRI?  One final question…Do you believe my symptoms are anxiety / somatic or is it ALS?



Thanks,



Tony

Member Comments (12)

by suzi-q, Dec 20, 2006 12:00AM
To: Tony
It is amazing what stress and anxiety can do to your body!  All your tests are fine..YOU are fine!  From what I learned from therapy is that when you are in this "mental state" you grasp on to things and you "awfulize" them until they actually appear true.  When I started my battle with anxiety and depression about 10 years ago, I was convinced I had a brain tumor, then AIDS  (I was not even sexually active!)  then Lupus, then MS.  None were true.  It was a long battle and with the help of meds I am much better now.  You don't have to feel stress to have anxiety.  It is all in your mind!  I would suggest seeing a therapist and have your medication changed or the dosage regulated.  I know right now you don't believe anything I am saying but give it a shot!  You will feel better!  Best to you!

by suzi-q, Dec 20, 2006 12:00AM
To: Tony
Also, read through some of the posts in this forum!  Many people who suffer from anxiety grasp onto illnesses to put all of the fear into.

by tarrigo, Dec 20, 2006 12:00AM
This fear has consumed my life, but my symptoms are real!  I swear!  I just called my neurologist, because I can't accept my EMG results, and am going to the University of Pittsburgh neurology office on the 28th to express my symptoms and fears there!



I am so scared...I don't want ALS!

by suzi-q, Dec 20, 2006 12:00AM
You don't have ALS....does your doctor think there is a chance or is he just sending you there to ease your mind.  Please read through the posts...look at all the symptoms that anxiety can cause!  It is your mind that is focusing on it and making it real!  I think it is good that you are going to get checked again for your own peace of mind.  But after that, if this fear persists, please see someone and ajust your meds!  It is a shame that you have to live with this terrible fear.  I will pray for your peace of mind.  I know how hard it can be!

by tarrigo, Dec 20, 2006 12:00AM
My EMG report and exam were unremarkable.  I called him because I was worrying and he gave me the number of another neurologist for peace of mind.



I hate this!  I just want this to be over.

by Jenny Wren, Dec 20, 2006 12:00AM
To: tarrigo
Do you live near Pittsburgh?  I live 30 miles south of Pitts. I am going to a well known neurologist named Dr. Susan Basser, she doctors out of Allegheny General.  You might want to try her.  I doubt that you have ALS, my neighbor had this, he only lasted 3 years after disgnosed.  Its a fast developing disease.  I know its hard to tell someone else when they feel like you do, because I am going through the MS scare myself.  Good Luck!!!

by tarrigo, Dec 20, 2006 12:00AM
Jenn,



I am going to a neurologist next thursday at the University of Pittsburgh.  My neuro gave me his number because I was worrying and he is doing it for piece of mind.



Where south of Pitt do you live?



Maybe we could email!



Tony

by suzi-q, Dec 20, 2006 12:00AM
To: Jenny
You have the MS thing going on too?  I went through that with all the other phobias I have had!  IT FEELS SO GOOD NOT TO BE ALONE WITH THESE FEELINGS!!



PS:  TONY...YOU DO NOT HAVE ALS!!!!

by chcnme, Dec 20, 2006 12:00AM
Hi Tony.  Since the EMG was OK, I would try my best to get my mind off ALS.  What's going on (twitching) sounds typical of chronic anxiety.  Lexapro is an SSRI and can aggravate anxiety.  It can also make you very sleepy and lethargic.  As an antianxiety, it's just not very effective in my opinion.  



If you have not known how your symptoms are OFF the SSRIs, then I think you deserve to know. If you aren't depressed, there is no reason (in most cases) for an antidepressant Adding then can, in fact, create more problems because the patient will sometimes start having "symptoms" (side effects) they never had,  or the symptoms they are complaining of can get worse on AntiDs.



I'd ask the doc to take me off the Lexapro  (but do NOT stop this drug suddenly or you could experience withdraw syndrome, very unpleasant if you DO experience it.)  Taper it.  If the doc doesn't give you a tapering dose, then tell the doc to taper.  And then go find another doc :)



Best of luck.

by Jenny Wren, Dec 20, 2006 12:00AM
To: tarrigo
I live in Belle Vernon, Pa.

by tarrigo, Dec 21, 2006 12:00AM
Jenny,



I am very familiar with Belle Vernon.  Hope all is well down there.



Tony

by perjaka, Dec 24, 2006 12:00AM
I had an ALS scare in 2003 as well. The gave me the Dx of BFS. It went away and came back after my HIV scare. I therefore attributed this to anxiety and know I do not have either. The post BFS Dx, according to my psychologist, was post traumatic stress disorder brought on by 9/11. I worked for FDNY at the time and it caused me to quit my job in NYC. So yes, anxiety is a very strong problem in itself that can manifest itself in many ways.
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