Member Comments are provided by individuals and reflect their personal opinions only. Under NO circumstances should you act on any advice or opinion posted in this forum. ALWAYS check with your personal physician before taking any action regarding your health! MedHelp International and our partners, sponsors and affiliates have no obligation to monitor any comments posted on this site, or the content and/or accuracy of such exchanges. MedHelp International does not endorse the views of any user.
For me, I just really need to live life with this condition and make the best of it. What else can I do? It's there, it's never going away, so I work with it/aroundn it.
Hope my info helps, but really - 396SS's comments say it all! Best to you......
thank you both for your responses - it feels so good to get this type of feedback - i almost cried! I understand what you are saying, and the logical side of me agrees with you totally. I have to let it go! Easier said than done! It was so nice of you to respond to me. I appreciate the time you have taken. It's funny that strangers understand me and support me, and my familyBirth control and family planning Choosing a primary care provider Ewing’s sarcoma Family troubles - resources just doesn't get it. Thanks
It's very hard for familyBirth control and family planning Choosing a primary care provider Ewing’s sarcoma Family troubles - resources/friends to understand this disease totally unless they have it; it gets very tiring listening to someone complain constantly about this and that and I don't blame them. I thiink my husband is finally understanding all of it, as am I more now than ever and accepting it as well; when this happens it really makes a difference and you're more able to let it go.
thanks for the comment, and i do agree with you. When I am in the midst of uncertainty and fearFears and phobias, I guess I need to have some reassurance from someone who has been there. My familyBirth control and family planning Choosing a primary care provider Ewing’s sarcoma Family troubles - resources has not 'been there', and I am thankful that they have not had the same experiences as I. That's the great thing about this forum. I am really, really trying to let it go, but then another strange thing will pop up, and set me off again. I am not sure what it will take to finally put the fearFears and phobias of a serious illness to bed. Does time just ease it all?
So to my point - in Aug. 06 I was having a stressful time and my toes started feeling funny, creepy crawly, numb and then burning. Then my feet would burn in Nov./Dec. and then my calves started burning and getting weak. I became depressed from the chronic pain. I have the twitching too. The burning was worse at night. I went to the Dr. when I couldn't push the brake pedal on my car without great effort and a jumpy, weak leg. I got the entire MS scare also. That is how I found this forum - through the neurology forum. They ran every test for MS - MRI, lumbar puncture, visual evoked potentials, and every blood test known to man. Nothing but a small spot in my brain that is common in people who have migraines (but scared the ever loving hell out of me of course) and they found a small immunological "blip" in my blood test. They said it was just a small variation and was nothing. Well, my neurologist labeled me with fibromyalgia and then gave up on me by sending me to a pain clinic, which I haven't been to. Needless to say, I got a second opionion from another neurologist. He said the MRI is completely fine, and with the lumbar puncture being negative for MS - my chances of having it are about .00000001%. In other words, I don't have it. (Still, I worry of course - that's what I do). He ordered a blood test to look for viruses - like epstein-barr, cmv, hsv-1, hsv-2, hhv6 and etc. I had some definite immune responses to hsv-1 (cold sore virus), cmv and hhv-6. I have never had a cold sore. He said that research is very limited on the subject, but in chronic fatigue/fibromyalgia patients, they have had some success in treating these patients with anti-virals, like Famvir. Sooooo, I am taking Famvir to see if it is the viruses manifesting in nerves they shouldn't and causing my neurological symptoms.
Sorry so long, but it takes some info to explain. My neuro says it's a virus, my psych says anxiety. I am going to listen to both for now, since I am in pain and have nothing to lose at this point by trying the antiviral and then the counseling/meds from my psych. Take care of yourself - exercise, eat right and make sure you are getting tested for B12 levels and thyroid (low B12 can cause these symptoms - mine was fine). STOP WORRYING ABOUT MS DEAR. You can't have MS without lesions (although they say in very rare cases it has "silent" lesions, but they are not even sure). You can trust that I have researched the entire stinking internet about MS by this point and know way more than I ever want to know about it. So, trust that anxiety can cause this, but so can some other minor health probs. They go straight to MS because it is a diagnosis that has to be ruled out (they honestly don't understand it completely yet). I can tell you this as well, I have now read many posts about funny feelings like we have and people have no answers. If you have a clear MRI, I would search other avenues. I chose to get the lumbar puncture to ease my mind. It was scary but it didn't hurt, and your doc may not want to order such an invasive procedure if you don't even have one lesion on MRI.
Anyhoo, better get back to work! Hope this helped:)
I've been through all the MS testing as well along with test for everything else - this was about 20 years ago. Most recently had a brain MRI for an acute headache, but the MRI was fine!
You don't have MS or probably any other major illness. Anxiety can and does wreak havoc on our systems.
I really don't know the answer to resolving the physical symptoms that come with anxiety b/c so many people experience them. For myself, I have just come to the realization that I will have physical ailments, but they are not serious. Now this is only my opinion of myself: If I should develop a serious heart/brain or whatever condition, oh, well. I have to let it go or I'd drive myself and my family crazy with worrying about every little thing. And I think by having this attitude, my physical symptoms have subsided a bit. Now, it's kind of like funny (not really, though) that every time I complain of something, it's just like Oh, well, I'm old and falling apart (I'm 42 but have been dealing with the physical symptoms of anxiety for over 20 years).
For me, I just really need to live life with this condition and make the best of it. What else can I do? It's there, it's never going away, so I work with it/aroundn it.
Hope my info helps, but really - 396SS's comments say it all! Best to you......
Best to you.......