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Arachnoiditis Sufferers User Group
About This Group:

Arachnoiditis is a rare chronic neuropathic disease that has no cure. If you are looking for others who have this disease, you have found the right place. Take a moment to tell your story. Together we can help each other in our journey with Arachnoiditis.

Founded by mummy3too on July 30, 2010
26 members
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ceanothusAug 04, 2012
Tildy88Oct 24, 2011
bbavierJun 11, 2011
adventurer53Feb 19, 2011
mummy3tooAug 18, 2010
7
By mummy3too Blank
Welcome to the Arachnoiditis Sufferers group. What is your story? How were you diagnosed? Have you even found one doc...
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By Carlar0306
Has anybody else besides myself been the unfortunate soul to have gotten arachnoiditis strictly from ESI injections, ...
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By momma2494 Blank
Hi all, Not sure if anyone is still on here and reading but I would love to chat with someone that has arachnoiditis...
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ceanothusFeb 14, 2013
bstrowdFeb 14, 2013
ceanothusFeb 13, 2013
ChrisBinhFeb 07, 2013
bstrowdFeb 02, 2013
6
By bstrowd Blank
I was happy to have found a group of people with arachnoiditis but it appears that no one has been to this site for o...
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ceanothusFeb 13, 2013
1
By juju714 Blank
Idk if I have adhesive arachnoiditis but I have a good idea that I do. I have systemic lupus and have 9 nerve entrap...
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trina99Aug 19, 2011
clarasgrammy42664Oct 01, 2010
mummy3tooSep 07, 2010
clarasgrammy42664Sep 07, 2010
4
By mummy3too Blank
Anyone else have a buzzing feeling? I really mean buzzing, not tingling... it almost feels as if electricity is in my...
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trina99Aug 18, 2011
scooter6016Feb 20, 2011
mummy3tooJan 29, 2011
3
By scooter6016 Blank
I have suffered with this since 2000. Has anyone had good success with these?
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trina99Aug 18, 2011
scooter6016Feb 21, 2011
mummy3tooJan 29, 2011
3
By rpayton Blank
Have any of you fellow sufferers of this crazy disease had, or had a dr. recommend a stimulator implant for arachnoid...
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trina99Aug 18, 2011
1
By wichery Blank
Hallo - I have had arachnoiditis since early 1991 because of the failure to diagnose and treat spinal fractures and a...
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mummy3tooSep 12, 2010
mummy3tooSep 12, 2010
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By clarasgrammy42664 Blank
Does anyone know of any GOOD and COMPETENT Specialist's somewhere in the western USA States? I've had this disease s...
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