Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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pepsidoodles15 minutes
pepsidoodles12 hours
3
By pepsidoodles
Hello, I have ch/sm, spinal stanosis, syrinx from C-6 to T-2 9mm dia, just had ACDF 3 level fusion C 3&4 4&5 5&6 do...
620923_tn?1416285879
ASumrall2 hours
selmaSBlankDec 10
ASumrallDec 10
selmaSBlankNov 25
44
By selmaSBlank
Hi....today lets post so wishes for yourself, family, friends...whomever you want to share a wish for.... It ...
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S_Chaney4 hours
sheryl1085 hours
S_Chaney5 hours
3
By sheryl108
I hit my head a couple days ago, thinking nothing of it, took my ultram, put ice on it and, laid down. I am 8 months ...
7489440_tn?1392096009
S_Chaney4 hours
JumongDec 19
4
By kwalker0004
I decided to go back to college to finish up my two degrees. Radiologist and Vet Tech. The only reason I had to let t...
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S_Chaney5 hours
selmaSBlankDec 19
Mika_37Dec 19
selmaSBlankDec 02
5
By Mika_37
Two weeks ago I was diagnosed with chiari 1 malformation due to an injury of some sort. I was told that surgery is my...
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S_Chaney5 hours
ReneeA377 hours
selmaSBlankDec 16
8
By ReneeA37
Just diagnosed with Chiari and wondering what symptoms people initially had when diagnosed and what they become over ...
10169340_tn?1415849761
2
By Nellan12
This is Nella' husband Chris. I am giving update on Nella's surgery. Surgery started an hour later than expected. ...
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2
By Jaclynr926
Hi I was told I have a chari 1 malformation years ago and told it was fine. Now at the age of 36 I am sick every day,...
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selmaSBlankDec 19
selmaSBlankDec 19
3
By Daugter123
Hi, Does anyone have any alternative medicine, tips or tricks on how to deal with leg pain caused from never damage?...
11509747_tn?1418868111
5
By Supermanluvsme
Hi, I am a 44 year old woman whos had Chiari I for most of my life, I've learned to deal with my headaches and all th...
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selmaSBlankDec 15
selmaSBlankDec 11
4
By annelie1980
Hi Up until March 2013 I was pretty healthy then bam! I have been struggling since and have racked up quite a comple...
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By lisasbitsnpieces
Hi, I am new to this forum.I just got diagnosed 2 months ago. Seen chairi yesterday. Dr. Payner at IU Methodist in In...
1584499_tn?1304452147
WkmichalDec 18
selmaSBlankMar 16
selmaSBlankJun 26, 2013
jonlynJun 25, 2013
46
By 10Ebtrfly Blank
I'm a patient who's been on a 6 yr journey of trying to find out what's wrong with me. So many drs have given their ...
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3
By Daugter123
​Hello, My mother has chiari malformation type 1. My mother was misdiagnosed for ten years. Through years an...
620923_tn?1416285879
selmaSBlankNov 06
selmaSBlankSep 29
selmaSBlankSep 10
selmaSBlankAug 28
95
By selmaSBlank Blank
This list is not a complete list of possible Specialists - This thread is here so Please continue to add your Drs n...
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ReneeA37Dec 15
selmaSBlankDec 14
4
By 1stTimeChiari
Hi, was curious, I tend to be getting panic attacks with my chiari. I was diagnosed less than a week ago but it's pre...
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Arya83Dec 18
Nellan12Dec 15
selmaSBlankDec 15
Arya83Dec 12
selmaSBlankDec 12
5
By Arya83
I have read through so many of the questions and answers, and appreciate everyone's time and information. I too have...
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By Rgargac
My 16 year old began having headaches which neuro diagnosed as migranes after he had hand surgery Oct 2013. Last Thu...
620923_tn?1416285879
selmaSBlankDec 17
SarahNewDec 17
selmaSBlankNov 05
manda2866Nov 05
selmaSBlankApr 25
200
By selmaSBlank Blank
Ok...we know what most Drs will accept as a chiari symptom...but, we also know we have many more symptoms that r chia...
620923_tn?1416285879
selmaSBlankDec 17
2
By selmaSBlank
Hi all Please wear purple tomorrow Weds, Dec. 16th to help raise awareness for Chiari and show support for our f...
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Dec 19
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Dec 19 by lisasbitsnpieces
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first appontment with Chairi specia...
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Charlotte, NC
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Nellan12
Berlin, CT
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kwalker0004
Pocomoke, MD
Chiari Malformation Community Resources
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Abdominal Aortic Aneurysm-treatable... Blank
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selmaS
Allentown, PA
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Elisaandbucky
Charlotte, NC
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Ball123
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baccalynnwv
WV
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Nellan12
Berlin, CT
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kwalker0004
Pocomoke, MD