Chiari Malformation Community
This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.
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By soccero 3 hours
I know we've done this before but just for fun who wants to do it again ? I'll start
U no u have Chiari when u hit u...
1
By Lifesvr7 3 hours
I get random chills and goosebumps on one body part at a time (like just my left leg). Sometime it can rapidly switch...
By Viva001 12 hours
I am 11 months post-op, and for some reason (maybe the tick fever),I am experiencing unmanageable head pain. I have ...
Hello...I have chiari 1 and all chiari expert says I am not surgical. However I will go months with my head only hurt...
By selmaS
May 09, 2013
May 09, 2013
Hi ALL...wondering....
What do u feel is the biggest CHANGE to u since ur DX?
7
By nsalem656 May 20, 2013
While in the ER for extreme neck pain (still post op less than a year out) when I was trying to relieve my pain by ke...
By selmaS Nov 27, 2012
Nov 27, 2012
Hi All here is a new thread for listing surgery dates that fall in the New year. I ask u all post on this thread ur d...
By mickma2 11 hours
Hi everyone! I'm 30 and recently was diagnosed with Chiari malformation type 1, 7mm ext. I hit my head pretty hard...
3
By lookingforanswers_2013 15 hours
I have my first appointment with a Chiari specialist next week. I do not have a diagnosis yet this will be my first a...
cminor512 hours
1
By cminor5 12 hours
Hey I canceled my surgery date for 6-13-13. I will let you know if I re-schedule. Waiting to have Cine MRI to see if ...
14
By GavinsMom83 May 14, 2013
Hi Everyone!
I am 30 years old and just found out TODAY through MRI results that I have Chiari Malformation and it ...
By popeye8j May 18, 2013
Is my CSF flow blocked? I am awaiting the radiologist report. Thanks!
frankie_rush17 hours
2
By Ransomnote May 22, 2013
Im 2mths post-op today & have been going to physical therapy for 1mth. Can anyone recommend ANYTHING to do about the...
11
By soulmeetsbody May 14, 2013
I was diagnosed with cm1 in June 2012. I had a baby in November 2011, and symptoms began at the end of my pregnancy. ...
5
By Deulley87 May 20, 2013
Hi everyone, just checking in to say hello and give an update. I'm currently 1 month post op, doing well with the hea...
By MLShelly May 22, 2013
Does anyone have any thoughts or experience with fusion surgery in a young child? What should we anticipate during ...
By cminor5 May 22, 2013
I am scheduled for 2 MRI's within the same week, a day apart. Can you tell me if this is not good to have done, as th...
1
By rmlyonsfamily May 21, 2013
Some of you may remember my husband had surgery August 1st, 9 months ago, when we lived in North Carolina. We recent...
Chiari Malformation Community Resources
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