Chiari Malformation Community
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Sort by:
Last Post
Date Started
Background:
Blank
Blank
Blank
Avatar_f_tn
MaLuisa634 minutes
selmaSBlankAug 24
MaLuisa63Aug 23
selmaSBlankNov 19, 2009
Lindad1966Nov 19, 2009
9
By Lindad1966 Blank
I was decompressed in 2003 with numerous csf leaks and then repairs. Finally had vp shunt place, had stroke, re did ...
Avatar_m_tn
selmaSBlank4 hours
Tom35037 hours
selmaSBlankAug 29
4
By Tom3503
My 36 year old daughter had decompression surgery on 2/6/15 at Johns Hopkins. She did not have the typical pain asso...
620923_tn?1439824912
selmaSBlank4 hours
lasel2211 hours
selmaSBlankAug 27
selmaSBlankAug 23
selmaSBlankAug 10
61
By selmaSBlank Blank
Hi All, in order to post a Prayer Thread for you, please post your date here on this thread so we know u would lik...
620923_tn?1439824912
selmaSBlank4 hours
KerriC111 hours
2
By selmaSBlank
Hi All please wear your purple all month long and let everyone you know what Chiari is and how it affects those of us...
620923_tn?1439824912
selmaSBlank14 hours
KerriC1Aug 28
selmaSBlankAug 27
RheaAnnAug 27
4
By selmaSBlank
Hi all please wear your purple tomorrow Aug 28th to help gain awareness for Chiari and support our friend s he heads ...
Avatar_f_tn
lasel22Aug 27
selmaSBlankAug 27
3
By RachelChiari
Hi! I just joined this forum and I have to say I am a lot more nervous than I was yesterday reading about peoples pro...
15486591_tn?1440890339
selmaSBlankAug 29
Bye_alexAug 29
Bye_alexAug 29
4
By Bye_alex
my insurace has paid over $250,000 worth of medical bills over the past 4 years mainly concerning 1 troublesome sympt...
Avatar_m_tn
selmaSBlankAug 30
selmaSBlankAug 30
5
By musiknotes
sorry for making a double post but I was wondering why lifting something heavy can cause problems, and what problem...
Avatar_m_tn
Lynnrae64Aug 29
selmaSBlankAug 28
sherimomAug 28
3
By charlene9869
I have been DENIED yet again for my disability, this time by the appeals council, this makes the 3rd time. 1st by...
620923_tn?1439824912
selmaSBlankAug 28
selmaSBlankApr 15
selmaSBlankFeb 07
selmaSBlankJan 26
selmaSBlankOct 15, 2014
25
By selmaSBlank Blank
Applying for social security disability and SSI benefits, with or without an advocate can be difficult due to how lon...
707040_tn?1440531483
selmaSBlankAug 28
1
By sherimom
Question for everyone: After decompression surgery, has anyone had to have second surgery due to scar tissue causing...
Avatar_m_tn
selmaSBlankAug 27
RheaAnnAug 27
9
By musiknotes
I have chiari malformation type 1 shown on an MRI but when I went to the neuro he asked if i had headaches and I dont...
Avatar_f_tn
selmaSBlankAug 27
1
By Renak
where I can find the list of all the Chiari doctors in USA ?
3060676_tn?1440706544
selmaSBlankAug 27
1
By RheaAnn
http://www.thepainrelieffoundation.com/conditions/eds-functional-somatic/ Here's an article worth reading about ED...
3060676_tn?1440706544
selmaSBlankAug 27
RheaAnnAug 27
selmaSBlankAug 27
3
By RheaAnn
Hi all! I know it's been a long time since I've been on here. I first off want to thank Selma with all my heart for n...
Avatar_m_tn
selmaSBlankAug 27
1
By meg525va
Hi~ My daughter, 16, was just diagnosed with Chiari malformation; we are at the initial stages of our research. Our N...
Avatar_n_tn
lasel22Aug 23
lasel22Aug 22
8
By delta74dawn
I started having dizzy spells in March of 2015 and they have progressively gotten worse. ENT doctor has ruled out an...
Avatar_f_tn
selmaSBlankAug 27
RoydmAug 27
RoydmAug 27
SexybareOct 16, 2012
SexybareOct 16, 2012
14
By kaykay1331 Blank
Hi everyone. I need to vent a little here and then ask for any and all advice. My 21 yr old daughter has had lots of ...
Avatar_f_tn
selmaSBlankAug 27
1
By Jordy36
Can you please advise if there are any Chiari Specialists in Melbourne Australia?
620923_tn?1439824912
selmaSBlankAug 27
selmaSBlankMay 16
SarahNewDec 28, 2014
selmaSBlankDec 23, 2014
206
By selmaSBlank Blank
Ok...we know what most Drs will accept as a chiari symptom...but, we also know we have many more symptoms that r chia...
Recent Activity
Avatar_n_tn
Blank
AlissiaBreitenstein commented on 7 Tips to Breathe Bet...
3 hrs ago
620923_tn?1439824912
Blank
selmaS September is Chiari Awarene... Comment
14 hrs ago
620923_tn?1439824912
Blank
selmaS commented on soccero's status
15 hrs ago
Top Neurology Answerers
620923_tn?1439824912
Blank
selmaS
Allentown, PA
Avatar_m_tn
Blank
Ball123
9432311_tn?1432828685
Blank
Elisaandbucky
Charlotte, NC
7530528_tn?1428275172
Blank
AKC_75
TX
7489440_tn?1422931913
Blank
kwalker0004
Pocomoke, MD
979826_tn?1389039958
Blank
soccero
germantown, MD
Chiari Malformation Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
Top Neurology Answerers
620923_tn?1439824912
Blank
selmaS
Allentown, PA
Avatar_m_tn
Blank
Ball123
9432311_tn?1432828685
Blank
Elisaandbucky
Charlotte, NC
7530528_tn?1428275172
Blank
AKC_75
TX
7489440_tn?1422931913
Blank
kwalker0004
Pocomoke, MD
979826_tn?1389039958
Blank
soccero
germantown, MD