Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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By zjb0808
My daughter has been in competitive cheer for 7 years. Last week she was diagnosed with what appears to be a syrinx ...
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By Binyomin
Recently my daughter has been diagnosed with chiari 1 malformation. Having persistent headaches. Do you know of any g...
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By Binyomin
Recently my daughter has been diagnosed with chiari 1 malformation. Having persistent headaches. Do you know of any g...
3184083_tn?1347405743
Sug_973 hours
Sug_97Jan 03
jiggle93Sep 11, 2013
selmaSBlankSep 04, 2013
Sug_97Sep 04, 2013
6
By Sug_97 Blank
I have been decompressed and had to vp shunt surgeries... since my last surgery, I feel like I sleep perfectly during...
3184083_tn?1347405743
Sug_974 hours
selmaSBlankJan 03
Sug_97Jan 03
selmaSBlankJan 03
4
By Sug_97
It's been a long time since I've posted. It feels like I've spent most of this year having and recovering from surger...
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selmaSBlank11 hours
JustmeMrsBee11 hours
selmaSBlank12 hours
4
By JustmeMrsBee
I was diagnosed with Arnold Chairi type 1 in 2008 they were checking my pituitary gland and checking for any masses b...
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ZilZil8 hours
Mel505610 hours
selmaSBlank12 hours
3
By Twhit123
Who is still able to work with chairi?
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selmaSBlank11 hours
ITRUSTINHIM11 hours
selmaSBlankMar 22, 2013
TheodestaMar 22, 2013
selmaSBlankJan 10, 2011
16
By LG0526 Blank
I have recently been diagnosed with Sleep Apnea. I was wondering if anyone else had both Chiari Malformation and sle...
7530528_tn?1397354400
AKC_7511 hours
selmaSBlankApr 21
2
By AKC_75
I had a huge brain freeze today. I was opening a new checking acct today cause my current bank is closing soon. A...
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selmaSBlank15 hours
Ball12315 hours
Ball12315 hours
3
By Sanderson23
I am looking for info on Chiari zero. My daughter(18) has been very ill for over 5 years, basically disabled and cann...
6346533_tn?1396913414
frankie_rush17 hours
selmaSBlankApr 17
selmaSBlankApr 13
9
By KirstyyPie
Hi everyone, Im in pain pretty much everyday with my chiari as it is but yesterday on my way out of work i was com...
4486406_tn?1398122028
3
By DecompressedInAustin
Hi all, anyone with experience with a retroflexed odontoid? I have posted a pic from my latest MRI (MRI laying down)...
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By HeatherLynn2013
Does anyone know what happens when the tonsils are removed? Does it make a difference if the tonsils are shrunk or r...
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selmaSBlankApr 20
2
By mike709
I was wondering if anyone else has this problem. It seems like when I sit my left arm really shakes and when I stand ...
620923_tn?1393294254
selmaSBlankApr 21
selmaSBlankApr 18
oops1990Apr 16
AKC_75Apr 14
selmaSBlankApr 14
21
By selmaSBlank
Hi all this month's question is meds, which ones help and which ones are advised to avoid at all costs..... F...
8423485_tn?1398071720
hDavis12Apr 21
selmaSBlankApr 21
3
By hDavis12
Hi my name is Heather im 20 I was diagnosed with "mild" chiari malformation type 1 not to long ago and it seems as th...
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selmaSBlankApr 21
selmaSBlankApr 20
3
By Kennedyhanau
Hello, I'm brand new to the Chiari world. I've been having what were diagnosed as migraines for as long as I can reme...
620923_tn?1393294254
selmaSBlankApr 20
socceroApr 19
zygy2Apr 18
selmaSBlankApr 18
9
By selmaSBlank
Hi All we all know some have a rougher time post op then do others...and we are trying to see if a pattern emerges......
4816750_tn?1368808270
selmaSBlankApr 14
2
By frankie_rush
It has been almost 2 years, a 1 1/2. From everything that has happened, wouldn't trade one minute. It has made me s...
1303966_tn?1296743610
AKC_75Apr 19
selmaSBlankApr 19
selmaSBlankOct 15, 2013
28
By kricklekrin Blank
Last Sunday I woke up and went about my morning, and suddenly looked at the clock and realized I missed church. The ...
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