Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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Lottida1 minute
1
By LoLa1454
Hi everybody so I just found out that Im 6mm herniated. About 4 years ago I was having severe migraines and had the d...
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weel6 hours
selmaSBlank15 hours
2
By weel
Hi I was wondering I anyone can help me I have just found out I have chairi malformation and the tonsils at my cerebe...
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By racrgrl
I have been researching for weeks, but honestly, I am not finding any really great referrals for Chiari doctors in At...
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By Rhinda
I am 6 weeks post-op after a Chiari decompression and cranio-cervical fusion surgery. My head is extremely sensitive...
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selmaSBlank15 hours
selmaSBlank15 hours
selmaSBlank15 hours
6
By BeyondFrustratedd
So my question is it ever normal to have csf blockage? Is it something a doctor should look at and suggest surgery or...
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Lottida16 hours
DSH51917 hours
selmaSBlank19 hours
DSH51919 hours
DSH519May 13
28
By DSH519
Had malformation type 1. Had decompression surgery in April 2001. Recently many of the same symptoms have returned. ...
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DSH51919 hours
selmaSBlankMay 17
2
By JaQari
I had my decompression surgery when I was 4 and I'm 20 now. It's been 16 years since my surgery.I had around 4-5 extr...
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selmaSBlank19 hours
flipper33623 hours
2
By racrgrl
My daughter is having horrible headaches multiple times a day. They bring her to her knees. We just found out she h...
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selmaSBlankMay 20
selmaSBlankApr 26
selmaSBlankApr 12
10
By Squeakie72
I have most of the lab results from lumbar puncture. Still waiting for I-band results to come back from mayo lab. ...
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LottidaMay 20
chiariRNMay 20
selmaSBlankMay 20
3
By chiariRN
Hi, any good pregnancy stories out there? I had surgery Nov 2012. My NS told me my symptoms were acute. I went from...
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selmaSBlankMay 20
1
By dreagensmommy
Has anyone ever had Cranial decompression surgery done by Dr Todd Shanks of Norton Neurosciences out of Louisville K...
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selmaSBlankMay 20
LottidaMay 06
LottidaMay 06
11
By dreagensmommy
Hello everyone. I have so many questions but i need support more then anything. I am a 28 year old single mother, i h...
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selmaSBlankMay 20
selmaSBlankMay 16
selmaSBlankMay 14
5
By sadladyneedhelp
I had a mri and the findings said in April it says, mild cerebellar tonsillar ectopia of 3mm below the foreamen magn...
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selmaSBlankMay 19
selmaSBlankMay 18
3
By painintheneck81
Hi everyone! I've been reading other patients stories for awhile now, but this is my first entry. I have Arnold C...
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selmaSBlankMay 18
1
By AkCannaMom
Hi All I am three weeks out of decompression and I have been having some wild pain in my right groin area, shooting ...
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selmaSBlankMay 17
selmaSBlankMay 17
6
By Robbyd1329
Hello all! I had great support on what was happening to me so hopefully I can get some info before I see him. I had 2...
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selmaSBlankMay 18
1
By sschaff
I have suffered migraines for as long as I can remember. I am 24 and saw a pediatric neurologist when I was younger a...
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selmaSBlankMay 18
heysueMay 18
selmaSBlankMay 17
heysueMay 17
selmaSBlankMay 15
9
By heysue
It's been at least 6 yrs since my Chiari Malformation Decompression surgery. As of the last several months, I've been...
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selmaSBlankMay 17
1
By Spaceystac
Rheumatologist took a bunch of blood and the ANA PATTEN came back speckled. It says next to it most likely the writte...
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selmaSBlankMay 17
2
By strongenough1984
i had a mri done last april and they found a 4mm herniation of my right tonnsilar and I haven't seen a doctor for fu...
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