Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlank1 minute
1
By ASumrall
So My neurologist sent me for a sleep study to check for sleep apnea and the preliminary report say's I have severe s...
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selmaSBlank3 hours
soccero5 hours
selmaSBlank11 hours
6
By selmaSBlank
Hi all please add our friend soccero (Molly) to your prayer list.....she is in need of as many as she can get rig...
11570509_tn?1422390766
bean418Jan 27
selmaSBlankJan 27
4
By Mandy_Best
My legs hurt SO bad, I thought it could be a symptom of my meds but all of them TREAT leg pain. It's an INTENSE achi...
11950437_tn?1422346090
selmaSBlankJan 27
5
By Rushjackson
I recently had an MRI done on my head. These are the exact words that came to my inbox from my primary doctor, "Overa...
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selmaSBlankJan 28
2
By daniisok
I have been diagnosed with chiari malformation 1. For the last year and a half I've been seeing pain may Dr and have...
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kwalker000423 hours
Ball123Jan 28
socceroJan 28
Ball123Jan 28
socceroJan 27
12
By soccero
So I asked him to write a letter for my professors, which he has done before, just stating that I have medical issues...
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mace07Jan 28
mace07Jan 16
mace07Jan 16
12
By mace07
My son is 4 year's old and has been recently diagnosed with a 13 mm chiari malformation type 1. He has been conplain...
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selmaSBlankJan 27
cduqueJan 27
Nellan12Jan 24
Nellan12Jan 24
cduqueJan 23
35
By KirstyyPie
Hi everyone, Would really love some advice and info if anyone can help me? I was diagnosed with chiari type 1 last...
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selmaSBlankJan 27
2
By jsmurf6921
I just recently got diagnosed with CM less than a week ago and I am still waiting to hear back on my referral to my n...
11570509_tn?1422390766
selmaSBlankJan 27
Ball123Jan 24
Ball123Jan 22
21
By Mandy_Best
I hit my head last night but it didn't bother me until I layer down, the I started getting sharp pains in my head. Th...
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selmaSBlankJan 27
selmaSBlankJan 27
6
By papagarbear
has anyone with chiari gotten disability ins and how long did it take?
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sibby7Jan 27
sibby7Jan 27
selmaSBlankJan 26
4
By sibby7
Hello, I am looking for my second opinion and trying to find a specialist anywhere near DC, or Northern VA. I was dia...
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lasel22Jan 26
KrystinamarieDec 22, 2014
selmaSBlankDec 22, 2014
ElisaandbuckyDec 20, 2014
6
By Jaclynr926
Hi I was told I have a chari 1 malformation years ago and told it was fine. Now at the age of 36 I am sick every day,...
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selmaSBlankJan 27
Nellan12Jan 27
2
By AProvencher29
Hey everyone! I'm not sure if anyone is still on here it seems like the conversation has dried up a little. My name i...
620923_tn?1422550960
selmaSBlankJan 26
selmaSBlankOct 15, 2014
selmaSBlankMar 15, 2014
selmaSBlankMar 03, 2014
girlinxileDec 31, 2013
22
By selmaSBlank Blank
Applying for social security disability and SSI benefits, with or without an advocate can be difficult due to how lon...
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selmaSBlankJan 26
selmaSBlankJan 25
6
By beccasqueeze
Hi, 2 years I was told I had chiari malformation after having an mri scan to find out what was causing my migraines a...
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selmaSBlankJan 26
missadlJan 25
cewilcoxMay 31, 2011
selmaSBlankMay 28, 2011
4
By StrwbryShrtck Blank
Hello everyone! I started experiencing EXTREME symptoms associated with my 9mm Chiari Malformation about 5 months ago...
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selmaSBlankJan 25
selmaSBlankJan 22
selmaSBlankJan 18
selmaSBlankJan 09
selmaSBlankJan 05
8
By selmaSBlank
This list is not a complete list of possible Specialists - This thread is here so Please continue to add your Drs n...
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selmaSBlankJan 25
jax11Jan 25
selmaSBlankJan 24
jax11Jan 24
selmaSBlankJan 24
5
By jax11
This is my 1st time on this forum. Not sure how it works yet. I had decompression surgery in 2006. Craniectomy, lamin...
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selmaSBlankJan 24
Mel5056Jan 24
Mel5056Jan 02
9
By Mel5056
Hi my friends its been a while. I have been doing fairly well post op. But the last three days i am getting tinglin...
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