Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlankApr 17
selmaSBlankNov 02, 2011
38
By Lovemygirls2 Blank
I am scheduled to have decompression surgery for my Chiari on October 28- 3 weeks from Tuesday. I am beginning to ge...
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By Kennedyhanau
Hello, I'm brand new to the Chiari world. I've been having what were diagnosed as migraines for as long as I can reme...
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AKC_755 hours
selmaSBlank7 hours
gavinsmomm8710 hours
selmaSBlankOct 15, 2013
ChiariWolfOct 15, 2013
27
By kricklekrin Blank
Last Sunday I woke up and went about my morning, and suddenly looked at the clock and realized I missed church. The ...
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TinyRN6 hours
selmaSBlank11 hours
3
By Thisonesforthepast
Recently I have been seeing white or rainbow orbs/lights that cross my vision. I recently had my eyes dilated and my ...
620923_tn?1393294254
soccero14 hours
zygy2Apr 18
selmaSBlankApr 18
Niki2004Apr 18
Niki2004Apr 18
7
By selmaSBlank
Hi All we all know some have a rougher time post op then do others...and we are trying to see if a pattern emerges......
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selmaSBlankApr 17
Niki2004Apr 17
selmaSBlankApr 17
Mlb33Apr 17
7
By Mlb33
I am currently a 22 y/o female. For four years going on five now I have had a wide range of problems. Starting w extr...
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selmaSBlankApr 18
selmaSBlankApr 18
4
By Niki2004
My question is pretty basic. Who in your family has Chiari? Or are you the only one? I was diagnosed at 16 with Ch...
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TinyRNApr 18
TinyRNApr 18
selmaSBlankApr 18
zygy2Apr 18
12
By TinyRN
Did any of you have a post fossa decompression with duraplasty that resulted in an accumulation of fluid at your surg...
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By HeatherLynn2013
Does anyone know what happens when the tonsils are removed? Does it make a difference if the tonsils are shrunk or r...
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Niki2004Apr 17
tennchick31Jan 31, 2011
*Stormy* Jan 21, 2011
LisaM46Jan 21, 2011
10
By tennchick31 Blank
My son had the decompression when he was 3 and is doing quite well. My daughter has epilepsy, her specialty is gran ...
620923_tn?1393294254
selmaSBlankApr 18
2
By selmaSBlank
Hi all our friend was heading in for a shunt today. April 17th..she did not request a Prayer thread But I am asking a...
620923_tn?1393294254
selmaSBlankApr 18
oops1990Apr 16
AKC_75Apr 14
selmaSBlankApr 14
AZHRApr 14
20
By selmaSBlank
Hi all this month's question is meds, which ones help and which ones are advised to avoid at all costs..... F...
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selmaSBlankApr 18
aburns18Apr 18
2
By helpermom
Has anyone found dr in Michigan that are familiar w chairi malformation
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selmaSBlankApr 18
1
By danirenee115
I was HOPING you could help me.. have a history of back pain in back and neck. Got mri/2005 but pregnant right after ...
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selmaSBlankApr 18
del833Apr 18
selmaSBlankMar 22
del833Mar 22
selmaSBlankMar 21
9
By del833
Hi all Its been a while since Ive been on here. Just to re-cap I had a syrinx found at c6/c7 only very small. h...
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selmaSBlankApr 11
2
By perosevicl
Hi there, I have just been diagnosed with Chiari 1 malformation and also have syrinx syringomyelia from my C2 - C7. ...
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selmaSBlankApr 17
1
By rdenno
I had my surgery the end of 2012, got a horrible infection immediately after the surgery. Became really sick, with a...
6346533_tn?1396913414
selmaSBlankApr 17
selmaSBlankApr 13
ZilZilApr 13
8
By KirstyyPie
Hi everyone, Im in pain pretty much everyday with my chiari as it is but yesterday on my way out of work i was com...
7530528_tn?1397354400
selmaSBlankApr 17
AKC_75Apr 17
selmaSBlankApr 17
AKC_75Apr 17
4
By AKC_75
Is there anything OTC that can be taken for migraine (or) Chiari-headache that is not a NSAID????
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oops1990Apr 17
selmaSBlankApr 14
2
By Kyra_M
Hi everyone! My name is Kyra and I'm 16, 17 next month. I was diagnosed with chiari 1 two years ago but have been exh...
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