Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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By Rushjackson
I recently had an MRI done on my head. These are the exact words that came to my inbox from my primary doctor, "Overa...
620923_tn?1421776989
selmaSBlank10 hours
selmaSBlankOct 15, 2014
selmaSBlankMar 15, 2014
selmaSBlankMar 03, 2014
girlinxileDec 31, 2013
22
By selmaSBlank Blank
Applying for social security disability and SSI benefits, with or without an advocate can be difficult due to how lon...
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selmaSBlank10 hours
1
By papagarbear
has anyone with chiari gotten disability ins and how long did it take?
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Toni_Paugh11 hours
selmaSBlank16 hours
2
By sibby7
Hello, I am looking for my second opinion and trying to find a specialist anywhere near DC, or Northern VA. I was dia...
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lasel2215 hours
KrystinamarieDec 22, 2014
selmaSBlankDec 22, 2014
ElisaandbuckyDec 20, 2014
ElisaandbuckyDec 20, 2014
5
By Jaclynr926
Hi I was told I have a chari 1 malformation years ago and told it was fine. Now at the age of 36 I am sick every day,...
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beccasqueeze16 hours
selmaSBlank16 hours
beccasqueeze18 hours
selmaSBlankJan 25
6
By beccasqueeze
Hi, 2 years I was told I had chiari malformation after having an mri scan to find out what was causing my migraines a...
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selmaSBlank16 hours
missadlJan 25
cewilcoxMay 31, 2011
selmaSBlankMay 28, 2011
4
By StrwbryShrtck Blank
Hello everyone! I started experiencing EXTREME symptoms associated with my 9mm Chiari Malformation about 5 months ago...
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selmaSBlankJan 25
selmaSBlankJan 22
selmaSBlankJan 18
selmaSBlankJan 09
selmaSBlankJan 05
8
By selmaSBlank
This list is not a complete list of possible Specialists - This thread is here so Please continue to add your Drs n...
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selmaSBlankJan 25
jax11Jan 25
selmaSBlankJan 24
jax11Jan 24
selmaSBlankJan 24
5
By jax11
This is my 1st time on this forum. Not sure how it works yet. I had decompression surgery in 2006. Craniectomy, lamin...
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selmaSBlankJan 24
Mel5056Jan 24
Mel5056Jan 02
9
By Mel5056
Hi my friends its been a while. I have been doing fairly well post op. But the last three days i am getting tinglin...
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selmaSBlankJan 24
1
By mike709
I went to my new neurosurgeon and he said everything looks pretty good. He said he did not want to go digging around ...
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selmaSBlankJan 24
Dianna41Jan 01
selmaSBlankAug 14, 2014
Dirk_DaringAug 14, 2014
261
By Shane99 Blank
I was noticing some threads about people that are scheduled to have decompression surgery and it got me thinking; How...
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mace07Jan 16
mace07Jan 16
mace07Jan 16
11
By mace07
My son is 4 year's old and has been recently diagnosed with a 13 mm chiari malformation type 1. He has been conplain...
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Ball123Jan 24
selmaSBlankJan 23
Jessee37Jan 23
selmaSBlankJan 22
5
By Jessee37
Hello, My DD (Mackenzie, 14 years old) is scheduled for surgery on 2/2/15. She is (was?) a competitive gymnast. Her ...
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01458Jan 24
selmaSBlankJan 23
01458Jan 23
selmaSBlankJan 23
01458Jan 23
6
By 01458
Hi I'm new here and I would like to chat with people who had similar experiences with this problem. I'm 18 years old ...
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Nellan12Jan 24
Nellan12Jan 24
cduqueJan 23
selmaSBlankJan 21
cduqueJan 21
33
By KirstyyPie
Hi everyone, Would really love some advice and info if anyone can help me? I was diagnosed with chiari type 1 last...
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selmaSBlankJan 24
0224Jan 24
selmaSBlankJan 24
0224Jan 24
selmaSBlankJan 22
5
eds
By 0224
I have some questions about eds. What are the symptoms? I feel like sometimes I have it a get pain in my knees and ...
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Ball123Jan 24
Ball123Jan 22
selmaSBlankJan 21
19
By Mandy_Best
I hit my head last night but it didn't bother me until I layer down, the I started getting sharp pains in my head. Th...
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Ball123Jan 24
lasel22Jan 23
lasel22Jan 23
10
By lasel22
My chiari is 4 mm and was diagnosed by a neurotologist who thought my symptoms were from chiari. Neurologists think ...
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NikRod97Jan 23
cduqueJan 21
NikRod97Jan 21
7
By NikRod97
Just found i had this this last tuesday. Im only 17, and yet im more exhausted every day than my father who does labo...
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