Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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bekah06563 hours
Resa181Aug 18
zygy2Jul 30
bekah0656Jul 29
kristy12Jul 28
14
By bekah0656
I've dealt with 3-4 migraines weekly since December 2008. We were in a car accident,rolled 2 1/2 times and I was not ...
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kristy124 hours
butboAug 19
butboAug 19
butboAug 19
selmaSBlankAug 19
8
By butbo
I have an arachnoid cyst on the posterior fossa, degenerative discs in my cervical spine. Sleep apnea. I have had a...
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cduque8 hours
cduqueJul 24
cduqueJul 24
cduqueJul 24
43
By cduque
Good afternoon All, I am new here and recently diagnosed with CM1 by a local neurosurgeon. For over a year I was ...
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selmaSBlank9 hours
rickyann17 hours
selmaSBlankJun 08
selmaSBlankMar 14
63
By Nuggin1983 Blank
I am a 25 year old male and I had decompression surgery 6 months ago. I am still suffering severe pain in my neck and...
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selmaSBlank9 hours
adm88mm22 hours
selmaSBlankAug 19
adm88mmAug 19
selmaSBlankAug 18
18
By Lyynzy
I was feeling almost perfectly normal until I accidentally found out that I have this condition. I have chiari 1 mal...
7489440_tn?1392096009
kwalker000414 hours
selmaSBlankAug 19
2
By kwalker0004
Update since I got all my new test and reports back and saw my NL in Maryland. He recommends surgery to relieve my pr...
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selmaSBlankAug 19
paz833Aug 19
Resa181Aug 18
paz833Aug 18
selmaSBlankAug 16
8
By paz833
I've been having strange symptoms for years - numbness/tingling of feet, leg, arm, fingers and recently in my face wi...
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AZHRAug 19
Mel5056Aug 19
Mel5056Aug 19
AZHRAug 19
10
By Mel5056
I am 4 weeks post op and started getting pressure in my face, eyes and forehead. I did have this pre op. Also i man...
1996562_tn?1330341439
Nellan12Aug 19
selmaSBlankAug 18
Nellan12Aug 18
selmaSBlankAug 18
Nellan12Aug 18
36
By billyz123 Blank
Has anyone had this done? or can anyone direct me to more information about patient outcomes or patient blogs (beside...
620923_tn?1405964489
oops1990Aug 19
selmaSBlankAug 18
Resa181Aug 18
AZHRAug 16
20
By selmaSBlank
Hi all we all tend to have issues with balance whether it is from feeling dizzy , vertigo, or just unstable feet and ...
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hc1Aug 18
selmaSBlankAug 18
hc1Aug 18
selmaSBlankAug 18
hc1Aug 18
15
By hc1
Hi everyone. I am a regular poster in the MS forum and was sent your way because I am in limbo right now for a MS di...
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selmaSBlankAug 18
AZHRAug 18
selmaSBlankAug 18
3
By jmatticks_08
So I was just wondering has anyone felt 100% better and stayed that way after sugery? It seems like i keep reading ab...
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AZHRAug 18
Resa181Aug 18
selmaSBlankJul 24
5
By disasterfullbeauty
i dont know what to do any more , thing are now .....i dont even have words for how i fell about the state of my life...
9589627_tn?1404715817
Resa181Aug 18
GneeBneeJul 23
GneeBneeJul 23
selmaSBlankJul 22
7
By goldie2014
Hi all, just wondering if anyone else with chiari gets electric type zaps..... some which cause your entire body to j...
1645944_tn?1305246937
Karma1973Aug 17
*Stormy* Apr 15, 2011
pamk5Apr 14, 2011
selmaSBlankApr 14, 2011
4
By Sabbynal Blank
I have read about the titanium plate that is used by some NS to reconstruct a sort of "false skull" that covers the d...
620923_tn?1405964489
selmaSBlankAug 17
AZHRAug 17
selmaSBlankAug 16
selmaSBlankAug 13
oops1990Aug 13
89
By selmaSBlank Blank
This list is not a complete list of possible Specialists - This thread is here so Please continue to add your Drs n...
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Nellan12Aug 17
H55Aug 17
selmaSBlankAug 16
H55Aug 15
selmaSBlankAug 12
62
By katiamarie Blank
Had a rough 5 days with severe waist hip low back pain. Had to go to er given pain meds. Had shaking vomiting hiccups...
1322693_tn?1308157496
selmaSBlankAug 16
lilmiss1999Feb 21, 2011
rod44Feb 21, 2011
jennylynchFeb 20, 2011
15
By lilmiss1999 Blank
Yesterday I was outside walking from the barn back to the house. I had the feeling that I needed to pee really bad an...
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selmaSBlankAug 16
glamcamAug 15
selmaSBlankNov 11, 2012
3
By veronicah90 Blank
I am looking for a chiari specialist in California, southern California is where is live. Can anyone recommend me a c...
6150006_tn?1408380236
AZHRAug 16
selmaSBlankAug 09
AZHRAug 09
AZHRAug 07
10
By AZHR
My surgery was Oct 31, 2014. I have had ongoing issues with several areas, but now an old one has raised it's ugly h...
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