Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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3060676_tn?1440706544
selmaSBlank9 minutes
1
By RheaAnn
Hi all! I know it's been a long time since I've been on here. I first off want to thank Selma with all my heart for n...
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selmaSBlank13 minutes
1
By meg525va
Hi~ My daughter, 16, was just diagnosed with Chiari malformation; we are at the initial stages of our research. Our N...
3060676_tn?1440706544
By RheaAnn
http://www.thepainrelieffoundation.com/conditions/eds-functional-somatic/ Here's an article worth reading about ED...
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RheaAnn56 minutes
selmaSBlank5 hours
musiknotes16 hours
selmaSBlank20 hours
4
By musiknotes
I have chiari malformation type 1 shown on an MRI but when I went to the neuro he asked if i had headaches and I dont...
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lasel22Aug 23
lasel22Aug 22
8
By delta74dawn
I started having dizzy spells in March of 2015 and they have progressively gotten worse. ENT doctor has ruled out an...
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lasel224 hours
selmaSBlank5 hours
2
By RachelChiari
Hi! I just joined this forum and I have to say I am a lot more nervous than I was yesterday reading about peoples pro...
620923_tn?1439824912
selmaSBlank5 hours
selmaSBlankAug 23
selmaSBlankAug 10
selmaSBlankJul 26
dawnnm16Jul 26
59
By selmaSBlank Blank
Hi All, in order to post a Prayer Thread for you, please post your date here on this thread so we know u would lik...
620923_tn?1439824912
By selmaSBlank
Hi all please wear your purple tomorrow Aug 28th to help gain awareness for Chiari and support our friend s he heads ...
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selmaSBlank5 hours
Roydm9 hours
Roydm10 hours
SexybareOct 16, 2012
SexybareOct 16, 2012
14
By kaykay1331 Blank
Hi everyone. I need to vent a little here and then ask for any and all advice. My 21 yr old daughter has had lots of ...
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selmaSBlank5 hours
1
By Jordy36
Can you please advise if there are any Chiari Specialists in Melbourne Australia?
620923_tn?1439824912
selmaSBlank5 hours
selmaSBlankMay 16
SarahNewDec 28, 2014
selmaSBlankDec 23, 2014
206
By selmaSBlank Blank
Ok...we know what most Drs will accept as a chiari symptom...but, we also know we have many more symptoms that r chia...
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selmaSBlank18 hours
KellysharonZ22 hours
selmaSBlankAug 24
6
By samsam5mom
Could u give me the link for true specialists please. I can not find it. I live in Minnesota. Looking to find someon...
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selmaSBlank20 hours
lasel2222 hours
selmaSBlankAug 20
21
By RayChap222
Hello, I recently had an MRI done and was told I had Chiari Malformation. I was told that i had downbeat nystagmus be...
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selmaSBlank20 hours
1
By Whan1998
I have had 3 mris all in 2 years first one said chari malformation but not mentioned in the next 2 Have a lot of he...
707040_tn?1440531483
sherimomAug 25
selmaSBlankAug 25
2
By sherimom
Hi all, So my son had the MRI yesterday and it looks fine. He didn't see any CSF flow issues (although they did not...
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MandiW74Aug 25
selmaSBlankAug 25
2
By MandiW74
Hi Guys! I've recently been diagnosed with a Chiari Malformation type 1. I've been prescribed pregabalin and so far ...
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sherimomAug 25
AKC_75Apr 08, 2014
selmaSBlankApr 08, 2014
3
By aimfall Blank
I am 16 and very scared as my neurosurgeon has finally come to the conclusion that with my sinking chiari, severe sym...
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selmaSBlankAug 25
1
By cfinniss9
Has anyone had Chiari surgery done by dr job Weingart at John Hopkins? I need a second decompression because of block...
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selmaSBlankAug 24
selmaSBlankAug 24
8
By samsam5mom
Another question from a concerned mom..... ok so I have been on here several times. My son had decompression surgury ...
3112631_tn?1356657157
selmaSBlankAug 24
selmaSBlankNov 11, 2012
Magz666Nov 11, 2012
19
By czpdx Blank
I was recently diagnosed with a pseudomeningocele and am struggling with deciding whether or not to have it treated. ...
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TX
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Lottida
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