Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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By JessicaLLong
Hi, I'll start off with I've had severe dizzyness, headache,confusion, blurred and tunnel vision, my hearing is very ...
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Elisaandbucky14 minutes
Nellan1243 minutes
2
By sunshine82208
I just got back from my neurosurgeon and he believes that none of my symptoms are related to my Chiari and it is very...
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DizziMom3 hours
selmaSBlank20 hours
2
By DizziMom
Hi. I have had severe dizziness, coordination issues, difficulty concentrating, etc etc for 4 years. I just had an MR...
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Tammers179 hours
selmaSBlankJan 27
Nellan12Jan 27
3
By AProvencher29
Hey everyone! I'm not sure if anyone is still on here it seems like the conversation has dried up a little. My name i...
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By Tammers17
Hi! I had surgery one year ago to correct Chiari. I managed to get about 10 of relatively pain free life. I was impre...
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Becca808213 hours
selmaSBlank22 hours
selmaSBlankFeb 26
17
By selmaSBlank
Hi All, in order to post a Prayer Thread for you, please post your date here on this thread so we know u would lik...
620923_tn?1425323098
selmaSBlankMar 03
3
By selmaSBlank
Hi all please wear your purple tomorrow March 2nd to help gain awareness for Chiari and support our friend heads...
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soccero15 hours
selmaSBlankMar 04
socceroMar 04
8
By soccero
and she thinks my seizures are really distonia from instability in my cspine. she wants me to where a rigid neckbrece...
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kkbee1319 hours
kkbee1319 hours
kkbee1319 hours
selmaSBlank19 hours
Mel505620 hours
6
By kkbee13
Hello Everyone, I'm new here and was hoping that maybe some of you could take a look at this pic from my brain MRI...
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selmaSBlank19 hours
selmaSBlankFeb 27
selmaSBlankFeb 23
selmaSBlankFeb 16
selmaSBlankJan 31
14
By selmaSBlank
This list is not a complete list of possible Specialists - This thread is here so Please continue to add your Drs n...
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selmaSBlank22 hours
Jorlex37Mar 05
selmaSBlankMar 04
3
By Jorlex37
Not really a question but sharing in case someone else experiences this. This morning at 3:30 I woke to what I thoug...
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cateligoMar 05
selmaSBlankMar 04
Lynnrae64Mar 04
3
By cateligo
Hello everyone, I have been unwell for the past 3 months with heart palpitations, ectopic heartbeats, dizziness, c...
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Mel5056Mar 04
selmaSBlankMar 03
2
By mommadee2015
I was diagnosed with a CM in December of last year. I recently went and seen my NS and they recommended surgery. Whil...
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selmaSBlankMar 04
cduqueMar 03
selmaSBlankJan 27
39
By KirstyyPie
Hi everyone, Would really love some advice and info if anyone can help me? I was diagnosed with chiari type 1 last...
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selmaSBlankMar 04
2
By Mandy_Best
I don't know how to begin this, I am beside myself with emotion. Fear, and anger, I am more frustrated than I have ...
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selmaSBlankMar 04
1
By lurina
Hi everyone! My English is not so good but I need advice. I was diagnosed CM 12 mm two weeks ago and I have meningio...
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selmaSBlankMar 04
selmaSBlankMar 04
Becca8082Mar 04
InvidaJul 28, 2014
CatdecoJul 28, 2014
7
By hevnw8s Blank
Well...I finally got my decompression surgery date. I am scheduled for July 21st at St. Joseph's Hospital in Phoenix....
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selmaSBlankMar 03
Serg1993Mar 03
selmaSBlankFeb 12
Serg1993Feb 12
12
By Serg1993
Im a 21 year old male athelte in college, who was diagnosed with pots and dysautonomia along with pretty intense head...
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selmaSBlankMar 03
MeganY24Mar 03
selmaSBlankMar 02
3
By MeganY24
So I have been in and out of the hospital over the last month after my eye doctor discovered papilledema and hemorrha...
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MeganY24Mar 02
selmaSBlankMar 01
2
By inasense
Hi Everyone, Firstly, I just wanted to thank the community here as a whole, specifically the Neuro/Vision focused...
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