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Chiari Malformation Community
This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.
1 - 20 (of 11669) questions
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Avatar universal
Hi I’m new here, recently had the surgery and I’m due to have my stitches removed on Tuesday. Have a quick question I have fluid next to ...
1 answer | 3 comments |
Avatar universal
I’ve been dealing with ongoing symptoms for years that have progressed. I deal with daily brain fog lightheaded spells blurry vision off ...
11 answers | 17 comments |
2078478 tn?1332047333
Hey my name is Christina. I'm 16 and i'm having a chiari decompression, lamenectomy, and duraplasty in less than two weeks. I was wonde...
17 answers | 2 comments |
Avatar universal
Hi, I have a bump next to my incision, I do have my stitches still in also. They get removed on Tuesday of next week. Now the bump doesn’...
1 answer |
Avatar universal
Hello, after 3 months of constant headaches, tingling limbs, muscle weakness and blurred vision I’m finally getting somewhere. Yesterday ...
1 answer |
20791471 tn?1509653962
So, I have a new symptom now. I'm getting waves of nausea when I swallow. To the point where I can't force myself to swallow because I'm ...
1 answer | 2 comments |
Avatar universal
So, I have been a lifelong migraine sufferer. Recently joined an online support group and a number of member suggested I look into chiari...
4 answers | 9 comments |
707563 tn?1455827280
Please take a moment to reach out to SelmaS, and give a shout out for how much you appreciate her! She has been a Community Leader in Chi...
2 answers | 1 comment |
Avatar universal
Hi, I had decompression surgery on 11/6,I thought everything went fine except I was just in a lot of pain for a few weeks. I thought that...
1 answer | 4 comments |
Avatar universal
Just got back from my visit with Dr. Oro. We were so disappointed. After 4 months waiting for an appointment and traveling many miles, ...
13 answers | 1 comment |
8170270 tn?1413848935
Hello, I’m hoping to see if anyone here can give me some advice/share their experiences on a pseudotumor diagnosis. Specifically after a...
1 answer |
Avatar universal
After years of head aches and passing out spells I was diagnosed with Chiari 1 in March of this year. When I got the news, I didn't know...
30 answers | 9 comments |
Avatar universal
Could u give me the link for true specialists please. I can not find it. I live in Minnesota. Looking to find someone to review my sons ...
6 answers | 2 comments |
Avatar universal
My mother had to have the decompression surgery done at the age of 50. I recently started having severe symptoms and I'm scheduled for an...
1 answer |
Avatar universal
With an estimated 300,000 + people with Chiari - how come we don't hear of more celebrities and famous people with Chiari? I know MS is s...
15 answers | 1 comment |
Avatar universal
My 14 year old daughter has been suffering from a wide range of symptoms for 3 years now. I finally found a pediatrician to run more tha...
1 answer |
Avatar universal
I ended up at the neurologist because the ENT thought I had MS based on my vertigo, persistent nausea, and my lack of coordination and ba...
1 answer | 10 comments |
Avatar universal
Does anyone know of a Chiari Specialist in Kentucky? I was diagnosed with Chiari I and Decompressed in September of 2006. Slowly but su...
10 answers | 2 comments |
Avatar universal
I have this week been diagnosed with Chairi 1 Malformation, it's has taken nearly 11 years to get here. I'm waiting to see neurosurgeon f...
1 answer |
7432831 tn?1390867965
16 y.o. has acquired mild Chiari from a head injury, extremely symptomatic (over 40 symptoms that appeared immediately after the injury) ...
2 answers | 30 comments |
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