Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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12417243_tn?1425181623
selmaSBlank2 hours
1
By inasense
Hi Everyone, Firstly, I just wanted to thank the community here as a whole, specifically the Neuro/Vision focused...
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selmaSBlank2 hours
1
By lurina
Does somebody know dr.Ning Lin ?
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selmaSBlank2 hours
1
By harriman
Who has been to a chiari Dr that knows what he is talking about in OHIO? Should a child with chiari 1 with a small fl...
620923_tn?1425151934
selmaSBlankFeb 27
selmaSBlankFeb 23
selmaSBlankFeb 16
selmaSBlankJan 31
MegN0708Jan 31
13
By selmaSBlank
This list is not a complete list of possible Specialists - This thread is here so Please continue to add your Drs n...
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selmaSBlankFeb 27
1
By JazzyMattaz
Hi, I live in Pittsburgh. I was recetly diagnosed with Chiari by a doctor from the Chiari Institute in NY. The prob...
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0224Feb 27
selmaSBlankFeb 27
0224Feb 27
selmaSBlankFeb 27
0224Feb 27
6
By 0224
I was looking at my Mri report for lumbar spine and it states there are tiny vertebral body hemangiomas or lipomas. W...
9768260_tn?1405873803
selmaSBlankFeb 27
GruntyFeb 27
selmaSBlankDec 26, 2014
GruntyDec 26, 2014
selmaSBlankJul 19, 2014
10
By Grunty Blank
Hi, I have been diagnosed with Cerebellar Tonsillar Ectopia (6mm). My question is.... Is it the same as Chiari Malfor...
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selmaSBlankFeb 27
0224Feb 27
selmaSBlankFeb 26
0224Feb 26
selmaSBlankFeb 26
13
By 0224
I have been having pain from my knees down pre and post surgery. My surgeon just told me that leg pain is unusual for...
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selmaSBlankFeb 27
Slobra96Feb 27
selmaSBlankFeb 23
Slobra96Feb 23
6
By Slobra96
Hello, This is my first post and I was hoping to get some insight on what we should be doing. So my relative (age...
620923_tn?1425151934
selmaSBlankFeb 26
WyssaFeb 26
selmaSBlankFeb 18
selmaSBlankFeb 16
13
By selmaSBlank
Hi All, in order to post a Prayer Thread for you, please post your date here on this thread so we know u would lik...
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WyssaFeb 26
selmaSBlankFeb 24
RyeCFeb 24
lu7997Sep 14, 2010
blondeballerina07Sep 14, 2010
8
By burdzmom Blank
so im frustrated. cant find any info on this, so im posting here for my crew to help me find answers. 6 months post...
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selmaSBlankFeb 26
1
By 0224
I was wondering if there is any support groups in Milwaukee or chicago? I live in Kenosha so I could do Chicago or mi...
12368139_tn?1424924838
VaneeceFeb 26
selmaSBlankFeb 25
VaneeceFeb 25
selmaSBlankFeb 25
4
By Vaneece
Hello... let me first start by saying this site is SO helpful. I just had cervical MRI for cervical disc symptoms. N...
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selmaSBlankFeb 25
selmaSBlankFeb 25
4
By samsam5mom
My question is ...my son had decompression surgery 12/29/14. Before surgery they had him try amtriptyline after being...
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selmaSBlankFeb 25
1
By perch2
Something burst inside my vagina 2 years ago just before my chiari surgery. I have continued to drain, last week foun...
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selmaSBlankFeb 25
1
By Aruntiwari12873
My mother is saying me that she is getting pain start from right side of head to the shoulders and then to hand somet...
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selmaSBlankFeb 25
1
By tes3
hi there i have been diagnosis with chirari malformation c2 i do get a lot of headaches bad ones i have got 2 ha...
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selmaSBlankFeb 25
duff9Feb 25
selmaSBlankFeb 24
duff9Feb 24
selmaSBlankFeb 24
19
By duff9
Hi my 9year old son had decompression surgery for chairi malformation with syrinxs last july. He had a follow up Mri ...
1281668_tn?1271379782
selmaSBlankFeb 24
tes3Feb 24
selmaSBlankNov 16, 2013
bobblehead1126Nov 15, 2013
selmaSBlankNov 15, 2013
81
By Niki2004 Blank
Hello I had severe pressure headaches, balance problems an dizziness for as long as I can remember, always having th...
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By Lynnrae64
I've been really depressed lately and I was told yesterday I have PTSD. Has anyone been dx with that as well. My ther...
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