Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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Lynnrae64less than a minute
Lottida7 hours
2
By TheChiariFamily
Hello Chiari world! I was diagnosed with Chiari in May. Now two of my cousins, my mom and brother have all be diag...
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lasel227 hours
RayChap22219 hours
Lottida20 hours
3
By RayChap222
Hello, I recently had an MRI done and was told I had Chiari Malformation. I was told that i had downbeat nystagmus be...
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angie_zagami20 hours
LottidaJul 27
2
By angie_zagami
I received my decompression surgery almost 2 years ago, but am still experiencing severe headaches, nausea, vomiting,...
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By Shellybellyz80
I had my surgery July 16, I'm doing alot of walking and as much as I can, just want to know when I'm going to feel li...
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By LLMomAndWife
Hello All! I'm new to this forum. I'm highly suspicious that I have Chiari and a tethered cord. All of the symptoms f...
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patman817Jul 29
selmaSBlankJul 17
patman817Jul 16
selmaSBlankJul 14
5
By selmaSBlank
Hi ALL we have another member going in for surgery tomorrow July 15th, so wear your purple to help gain awareness for...
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By imsotired
Anyomne else suffer so much with eye pain/headacheds that you end up with pain when blinking (or are more aware of th...
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By isabel0608
Has any one had any treatment to ease the neck pain prior or after surgery. How did it work? How long was the relief?
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By hope2456
Please help by providing a list of neurologists who treat symptoms for syrinx and cm1 in southeast pa or leigh valley...
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KerriC1Jul 27
selmaSBlankJul 27
3
By KerriC1
This is Kerri's daughter, she headed back for surgery about 10 minutes ago. We have all the faith in her doctor and a...
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selmaSBlankJul 26
selmaSBlankJul 25
4
By isabel0608
Hi everyone. My name is Isabel and I was diagnosed 2 weeks ago with tonsils at 11 and 14 mm respectively. I am 42 an...
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LottidaJul 27
selmaSBlankJul 27
KerriC1Jul 27
selmaSBlankJul 27
KerriC1Jul 27
6
By selmaSBlank
Hi all please wear your purple to gain awareness for Chiari and show support for our friend as they head in for surge...
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selmaSBlankJul 26
dawnnm16Jul 26
selmaSBlankJul 22
haselmeJul 21
bowermbJul 19
56
By selmaSBlank Blank
Hi All, in order to post a Prayer Thread for you, please post your date here on this thread so we know u would lik...
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selmaSBlankJul 26
1
By dawnnm16
Is there anywhere you can send pictures of your childs mri and have it read by a Dr? I finally got my daughters and w...
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selmaSBlankJul 26
selmaSBlankJul 16
4
By jasminecrawford
HI EVERYONE I JUST TURNED 29 YEARS OLD ON THE 2ND OF JULY. IM A MOTHER OF A 1 YEAR OLD SON. I RECENTLY HAD CHIARI MAL...
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selmaSBlankJul 26
newchiJul 26
selmaSBlankJul 26
3
By newchi
Hi all. I've been having the following syptoms for over a year. Tried migraine meds etc no joy..... 1 migraines wit...
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selmaSBlankJul 25
1
By DM2ore
My teenage friend has been diagnosed with Chiari 1 and Occipital Neuralgia. In addition to the debilitating headaches...
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selmaSBlankJul 25
Jaime2013Jul 25
Jaime2013Jul 25
selmaSBlankJul 24
4
By Jaime2013
Hello everyone. I've been a member here for a bit, and mostly just read stories and look for answers, so this is my f...
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selmaSBlankJul 24
1
By soccero
Guess what??? I went to my first asap conference and guess who I met??? @elisaandbucky !!!!!! It is so cool to put a ...
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KerriC1Jul 24
KerriC1Jul 23
selmaSBlankJul 22
10
By Dani618
So I met with a Chiari specialist at the Milwaukee Chiari Institute and had many tests done however I left with many ...
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Chiari Malformation Community Resources
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