Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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15523765_tn?1441132933
bscott9153 minutes
selmaSBlank21 minutes
bscott9151 hour
selmaSBlank2 hours
4
By bscott915
Hi, I'm scheduled for decompression in November but I only have a small amount of herniation. I had several tests do...
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selmaSBlank4 hours
1
By Aclark00
Hey guys I'm in desperate need for advice seems like I've seen doctor after doctor and I still have no answers. I've ...
620923_tn?1439824912
selmaSBlank6 hours
selmaSBlank7 hours
KerriC19 hours
selmaSBlank20 hours
KerriC1Aug 31
5
By selmaSBlank
Hi All please wear your purple all month long and let everyone you know what Chiari is and how it affects those of us...
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selmaSBlank8 hours
MaLuisa6315 hours
selmaSBlankAug 24
MaLuisa63Aug 23
selmaSBlankNov 19, 2009
10
By Lindad1966 Blank
I was decompressed in 2003 with numerous csf leaks and then repairs. Finally had vp shunt place, had stroke, re did ...
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selmaSBlank20 hours
Tom350322 hours
selmaSBlankAug 29
4
By Tom3503
My 36 year old daughter had decompression surgery on 2/6/15 at Johns Hopkins. She did not have the typical pain asso...
620923_tn?1439824912
selmaSBlank20 hours
lasel22Aug 31
selmaSBlankAug 27
selmaSBlankAug 23
selmaSBlankAug 10
61
By selmaSBlank Blank
Hi All, in order to post a Prayer Thread for you, please post your date here on this thread so we know u would lik...
620923_tn?1439824912
selmaSBlankAug 31
KerriC1Aug 28
selmaSBlankAug 27
RheaAnnAug 27
4
By selmaSBlank
Hi all please wear your purple tomorrow Aug 28th to help gain awareness for Chiari and support our friend s he heads ...
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lasel22Aug 27
selmaSBlankAug 27
3
By RachelChiari
Hi! I just joined this forum and I have to say I am a lot more nervous than I was yesterday reading about peoples pro...
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selmaSBlankAug 29
Bye_alexAug 29
Bye_alexAug 29
4
By Bye_alex
my insurace has paid over $250,000 worth of medical bills over the past 4 years mainly concerning 1 troublesome sympt...
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selmaSBlankAug 30
selmaSBlankAug 30
5
By musiknotes
sorry for making a double post but I was wondering why lifting something heavy can cause problems, and what problem...
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Lynnrae64Aug 29
selmaSBlankAug 28
sherimomAug 28
3
By charlene9869
I have been DENIED yet again for my disability, this time by the appeals council, this makes the 3rd time. 1st by...
620923_tn?1439824912
selmaSBlankAug 28
selmaSBlankApr 15
selmaSBlankFeb 07
selmaSBlankJan 26
selmaSBlankOct 15, 2014
25
By selmaSBlank Blank
Applying for social security disability and SSI benefits, with or without an advocate can be difficult due to how lon...
707040_tn?1440531483
selmaSBlankAug 28
1
By sherimom
Question for everyone: After decompression surgery, has anyone had to have second surgery due to scar tissue causing...
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selmaSBlankAug 27
RheaAnnAug 27
9
By musiknotes
I have chiari malformation type 1 shown on an MRI but when I went to the neuro he asked if i had headaches and I dont...
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selmaSBlankAug 27
1
By Renak
where I can find the list of all the Chiari doctors in USA ?
3060676_tn?1440706544
selmaSBlankAug 27
1
By RheaAnn
http://www.thepainrelieffoundation.com/conditions/eds-functional-somatic/ Here's an article worth reading about ED...
3060676_tn?1440706544
selmaSBlankAug 27
RheaAnnAug 27
selmaSBlankAug 27
3
By RheaAnn
Hi all! I know it's been a long time since I've been on here. I first off want to thank Selma with all my heart for n...
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selmaSBlankAug 27
1
By meg525va
Hi~ My daughter, 16, was just diagnosed with Chiari malformation; we are at the initial stages of our research. Our N...
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lasel22Aug 23
lasel22Aug 22
8
By delta74dawn
I started having dizzy spells in March of 2015 and they have progressively gotten worse. ENT doctor has ruled out an...
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selmaSBlankAug 27
RoydmAug 27
RoydmAug 27
SexybareOct 16, 2012
SexybareOct 16, 2012
14
By kaykay1331 Blank
Hi everyone. I need to vent a little here and then ask for any and all advice. My 21 yr old daughter has had lots of ...
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