Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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Ball1233 hours
soccero7 hours
soccero7 hours
selmaSBlank8 hours
9
By soccero
So I asked him to write a letter for my professors, which he has done before, just stating that I have medical issues...
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By daniisok
I have been diagnosed with chiari malformation 1. For the last year and a half I've been seeing pain may Dr and have...
6346533_tn?1415403542
selmaSBlank7 hours
cduque11 hours
Nellan12Jan 24
Nellan12Jan 24
cduqueJan 23
35
By KirstyyPie
Hi everyone, Would really love some advice and info if anyone can help me? I was diagnosed with chiari type 1 last...
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selmaSBlank9 hours
2
By jsmurf6921
I just recently got diagnosed with CM less than a week ago and I am still waiting to hear back on my referral to my n...
11570509_tn?1422390766
bean41811 hours
selmaSBlank14 hours
2
By Mandy_Best
My legs hurt SO bad, I thought it could be a symptom of my meds but all of them TREAT leg pain. It's an INTENSE achi...
11570509_tn?1422390766
selmaSBlank14 hours
Mandy_Best15 hours
Ball123Jan 24
Ball123Jan 22
21
By Mandy_Best
I hit my head last night but it didn't bother me until I layer down, the I started getting sharp pains in my head. Th...
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Mandy_Best15 hours
papagarbear19 hours
selmaSBlank19 hours
selmaSBlank19 hours
6
By papagarbear
has anyone with chiari gotten disability ins and how long did it take?
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sibby717 hours
sibby717 hours
selmaSBlankJan 26
4
By sibby7
Hello, I am looking for my second opinion and trying to find a specialist anywhere near DC, or Northern VA. I was dia...
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baccalynnwv19 hours
lasel22Jan 26
KrystinamarieDec 22, 2014
selmaSBlankDec 22, 2014
ElisaandbuckyDec 20, 2014
6
By Jaclynr926
Hi I was told I have a chari 1 malformation years ago and told it was fine. Now at the age of 36 I am sick every day,...
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selmaSBlank19 hours
Nellan1221 hours
2
By AProvencher29
Hey everyone! I'm not sure if anyone is still on here it seems like the conversation has dried up a little. My name i...
11950437_tn?1422346090
selmaSBlank19 hours
2
By Rushjackson
I recently had an MRI done on my head. These are the exact words that came to my inbox from my primary doctor, "Overa...
620923_tn?1421776989
selmaSBlankJan 26
selmaSBlankOct 15, 2014
selmaSBlankMar 15, 2014
selmaSBlankMar 03, 2014
girlinxileDec 31, 2013
22
By selmaSBlank Blank
Applying for social security disability and SSI benefits, with or without an advocate can be difficult due to how lon...
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selmaSBlankJan 26
selmaSBlankJan 25
6
By beccasqueeze
Hi, 2 years I was told I had chiari malformation after having an mri scan to find out what was causing my migraines a...
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selmaSBlankJan 26
missadlJan 25
cewilcoxMay 31, 2011
selmaSBlankMay 28, 2011
4
By StrwbryShrtck Blank
Hello everyone! I started experiencing EXTREME symptoms associated with my 9mm Chiari Malformation about 5 months ago...
620923_tn?1421776989
selmaSBlankJan 25
selmaSBlankJan 22
selmaSBlankJan 18
selmaSBlankJan 09
selmaSBlankJan 05
8
By selmaSBlank
This list is not a complete list of possible Specialists - This thread is here so Please continue to add your Drs n...
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selmaSBlankJan 25
jax11Jan 25
selmaSBlankJan 24
jax11Jan 24
selmaSBlankJan 24
5
By jax11
This is my 1st time on this forum. Not sure how it works yet. I had decompression surgery in 2006. Craniectomy, lamin...
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selmaSBlankJan 24
Mel5056Jan 24
Mel5056Jan 02
9
By Mel5056
Hi my friends its been a while. I have been doing fairly well post op. But the last three days i am getting tinglin...
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selmaSBlankJan 24
1
By mike709
I went to my new neurosurgeon and he said everything looks pretty good. He said he did not want to go digging around ...
555358_tn?1292535661
selmaSBlankJan 24
Dianna41Jan 01
selmaSBlankAug 14, 2014
Dirk_DaringAug 14, 2014
261
By Shane99 Blank
I was noticing some threads about people that are scheduled to have decompression surgery and it got me thinking; How...
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mace07Jan 16
mace07Jan 16
mace07Jan 16
11
By mace07
My son is 4 year's old and has been recently diagnosed with a 13 mm chiari malformation type 1. He has been conplain...
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