Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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zipperlessless than a minute
jsk466 hours
jsk466 hours
jsk466 hours
10
By jsk46 Blank
If anyone has any suggestions for ways you've managed your brain fog, please let me know. We can swap ideas on ways...
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selmaSBlank3 hours
selmaSBlank8 hours
selmaSBlank10 hours
5
By LLMomAndWife
Hello All! I'm new to this forum. I'm highly suspicious that I have Chiari and a tethered cord. All of the symptoms f...
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selmaSBlank8 hours
lasel22Jul 30
LottidaJul 29
4
By RayChap222
Hello, I recently had an MRI done and was told I had Chiari Malformation. I was told that i had downbeat nystagmus be...
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selmaSBlank8 hours
isabel060822 hours
LottidaJul 27
4
By angie_zagami
I received my decompression surgery almost 2 years ago, but am still experiencing severe headaches, nausea, vomiting,...
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selmaSBlank8 hours
1
By Shellybellyz80
I had my surgery July 16, I'm doing alot of walking and as much as I can, just want to know when I'm going to feel li...
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selmaSBlank10 hours
Lynnrae64Jul 30
LottidaJul 30
3
By TheChiariFamily
Hello Chiari world! I was diagnosed with Chiari in May. Now two of my cousins, my mom and brother have all be diag...
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selmaSBlank10 hours
1
By imsotired
Anyomne else suffer so much with eye pain/headacheds that you end up with pain when blinking (or are more aware of th...
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selmaSBlank10 hours
selmaSBlank10 hours
2
By isabel0608
Has any one had any treatment to ease the neck pain prior or after surgery. How did it work? How long was the relief?
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selmaSBlank10 hours
patman817Jul 29
selmaSBlankJul 17
patman817Jul 16
6
By selmaSBlank
Hi ALL we have another member going in for surgery tomorrow July 15th, so wear your purple to help gain awareness for...
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selmaSBlank10 hours
selmaSBlank10 hours
2
By hope2456
Please help by providing a list of neurologists who treat symptoms for syrinx and cm1 in southeast pa or leigh valley...
4341544_tn?1353099368
selmaSBlank10 hours
selmaSBlankJul 26
selmaSBlankJul 25
5
By isabel0608
Hi everyone. My name is Isabel and I was diagnosed 2 weeks ago with tonsils at 11 and 14 mm respectively. I am 42 an...
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KerriC1Jul 27
selmaSBlankJul 27
3
By KerriC1
This is Kerri's daughter, she headed back for surgery about 10 minutes ago. We have all the faith in her doctor and a...
620923_tn?1436154699
LottidaJul 27
selmaSBlankJul 27
KerriC1Jul 27
selmaSBlankJul 27
KerriC1Jul 27
6
By selmaSBlank
Hi all please wear your purple to gain awareness for Chiari and show support for our friend as they head in for surge...
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selmaSBlankJul 26
dawnnm16Jul 26
selmaSBlankJul 22
haselmeJul 21
bowermbJul 19
56
By selmaSBlank Blank
Hi All, in order to post a Prayer Thread for you, please post your date here on this thread so we know u would lik...
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selmaSBlankJul 26
1
By dawnnm16
Is there anywhere you can send pictures of your childs mri and have it read by a Dr? I finally got my daughters and w...
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selmaSBlankJul 26
selmaSBlankJul 16
4
By jasminecrawford
HI EVERYONE I JUST TURNED 29 YEARS OLD ON THE 2ND OF JULY. IM A MOTHER OF A 1 YEAR OLD SON. I RECENTLY HAD CHIARI MAL...
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selmaSBlankJul 26
newchiJul 26
selmaSBlankJul 26
3
By newchi
Hi all. I've been having the following syptoms for over a year. Tried migraine meds etc no joy..... 1 migraines wit...
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selmaSBlankJul 25
1
By DM2ore
My teenage friend has been diagnosed with Chiari 1 and Occipital Neuralgia. In addition to the debilitating headaches...
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selmaSBlankJul 25
Jaime2013Jul 25
Jaime2013Jul 25
selmaSBlankJul 24
4
By Jaime2013
Hello everyone. I've been a member here for a bit, and mostly just read stories and look for answers, so this is my f...
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selmaSBlankJul 24
1
By soccero
Guess what??? I went to my first asap conference and guess who I met??? @elisaandbucky !!!!!! It is so cool to put a ...
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Chiari Malformation Community Resources
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