Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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joshipea2 minutes
selmaSBlankMay 29
2
By ashiver917
Hi, I'm trying to understand chiari better, as my brother was recently diagnosed with chiari stage1. What should th...
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Dloshaw13 minutes
DSH519May 02
selmaSBlankApr 01
11
By Dloshaw
I was hoping anyone who has had the chiari surgery could give me some advice on what type of pillow they used. My sur...
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selmaSBlank1 hour
1
By kryptonitekimi64
I have a confirmed diagnosis of Chiari. I have not been able to get in yet to a neurosurgeon.I have had severe sympt...
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Dani61818 hours
Endeavour3319 hours
selmaSBlankMay 29
LottidaMay 28
24
By Endeavour33
Hi. I am 16 years old, and my symptoms started 2 months ago, with a migraine. It went on for a wee or two, and I fin...
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BenjaminMH18 hours
selmaSBlankJul 19, 2010
Lovely101Jul 19, 2010
selmaSBlankJul 15, 2010
Lovely101Jul 15, 2010
11
By Lovely101 Blank
Hello. I am new to chiari. I was diagnosed with a Chiari 1 malformation. My herniation is 10mm. At this time I am try...
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selmaSBlankMay 29
joshipeaMay 29
selmaSBlankMay 28
LottidaMay 28
joshipeaMay 27
7
By joshipea
hello everyone, just found out about this and I was hoping to get some support and some answers, i was just told I ha...
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selmaSBlankMay 29
0224May 28
selmaSBlankMay 28
3
By 0224
What is the average time post decompression surgery that it takes for the dizziness to go away? I'm 7 months post sur...
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selmaSBlankMay 28
ambyjMar 06, 2013
selmaSBlankMar 05, 2013
jeklstudioMar 05, 2013
25
By auntij2746 Blank
One of my symptoms is a hot flushing feeling in my entire body like burning up from inside. I cannot seem to identify...
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selmaSBlankMay 28
1
By byoung1052
I was diagnosed 2.5 years ago with mild chiari malformation I. As most everyone else, I've had good times and bad ti...
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selmaSBlankMay 28
1
By hitch73
My daughter, age 22, has recently been diagnosed with fusion of C1 to base of skull, basilar invagination, syrinx, bu...
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selmaSBlankMay 27
LottidaMay 27
2
By Dloshaw
I am still recovering from decompression surgery. It went very well. I would recommend. Dr seiff in Las Vegas highly....
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joshipeaMay 27
LottidaMay 26
DloshawMay 22
16
By dreagensmommy
Hello everyone. I have so many questions but i need support more then anything. I am a 28 year old single mother, i h...
620923_tn?1426651955
selmaSBlankMar 10
mimosa7Mar 10
selmaSBlankFeb 11
64
By selmaSBlank Blank
Hi I wanted to get a list started for those of you in Canada...I am not sure if these drs r indeed chiari specialists...
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DloshawMay 26
LottidaMay 21
DSH519May 21
selmaSBlankMay 21
DSH519May 21
29
By DSH519
Had malformation type 1. Had decompression surgery in April 2001. Recently many of the same symptoms have returned. ...
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By missyorkie
Has to be caring, knowledgable at Chiari and Syringomelia. Dr Prokupa said his job was done. Go see a neurologist ag...
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missyorkieDec 26, 2014
selmaSBlankDec 26, 2014
11
By missyorkie Blank
We have been struggling now over 4 years, 3 Neurologist in Kingston just saying complex case.. Now saw a NS and he w...
620923_tn?1426651955
LottidaMay 26
selmaSBlankMay 12
selmaSBlankMay 06
selmaSBlankApr 29
selmaSBlankApr 13
31
By selmaSBlank
Hi All, in order to post a Prayer Thread for you, please post your date here on this thread so we know u would lik...
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LottidaMay 26
selmaSBlankMay 26
2
By Bamagirl40
I need a little help with getting ready for chiari posterior decompression surgery. Dr. Soleau is going in with the ...
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LoLa1454May 26
selmaSBlankMay 26
LottidaMay 26
3
By LoLa1454
I live in Toledo OH and have been searching high and low for a Chiari specialist when I came across the Chiari Malfor...
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selmaSBlankMay 26
1
By BusterDooley
My Neurosurgeons name is Michael Doyle he seems very sincere about me needing this surgery and I feel secure when I t...
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