Chiari Malformation Community
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Sort by:
Last Post
Date Started
Background:
Blank
Blank
Blank
6346533_tn?1415403542
cduque2 hours
selmaSBlankJan 27
cduqueJan 27
Nellan12Jan 24
Nellan12Jan 24
36
By KirstyyPie
Hi everyone, Would really love some advice and info if anyone can help me? I was diagnosed with chiari type 1 last...
Avatar_m_tn
selmaSBlank4 hours
Serg19935 hours
selmaSBlankFeb 12
Serg1993Feb 12
12
By Serg1993
Im a 21 year old male athelte in college, who was diagnosed with pots and dysautonomia along with pretty intense head...
979826_tn?1389039958
soccero5 hours
selmaSBlankMar 02
3
By soccero
and she thinks my seizures are really distonia from instability in my cspine. she wants me to where a rigid neckbrece...
Avatar_f_tn
selmaSBlank8 hours
1
By mommadee2015
I was diagnosed with a CM in December of last year. I recently went and seen my NS and they recommended surgery. Whil...
620923_tn?1425323098
selmaSBlank11 hours
2
By selmaSBlank
Hi all please wear your purple tomorrow March 2nd to help gain awareness for Chiari and support our friend heads...
5792451_tn?1390938290
selmaSBlank11 hours
MeganY2414 hours
selmaSBlankMar 02
3
By MeganY24
So I have been in and out of the hospital over the last month after my eye doctor discovered papilledema and hemorrha...
12417243_tn?1425415764
MeganY24Mar 02
selmaSBlankMar 01
2
By inasense
Hi Everyone, Firstly, I just wanted to thank the community here as a whole, specifically the Neuro/Vision focused...
Avatar_n_tn
0224Feb 27
selmaSBlankFeb 27
0224Feb 27
selmaSBlankFeb 27
7
By 0224
I was looking at my Mri report for lumbar spine and it states there are tiny vertebral body hemangiomas or lipomas. W...
Avatar_f_tn
selmaSBlankFeb 27
2
By JazzyMattaz
Hi, I live in Pittsburgh. I was recetly diagnosed with Chiari by a doctor from the Chiari Institute in NY. The prob...
1445116_tn?1425326715
selmaSBlankMar 02
2
By Lissy821
In 2010 I had a neck and decompression surgery for chiari malformation. Well 5 years later I still have headaches eve...
Avatar_f_tn
selmaSBlankMar 01
2
By Squeakie72
I have most of the lab results from lumbar puncture. Still waiting for I-band results to come back from mayo lab. ...
1274661_tn?1301871921
selmaSBlankMar 02
selmaSBlankAug 04, 2010
DechenDolkarAug 04, 2010
selmaSBlankAug 04, 2010
14
By DechenDolkar Blank
I was just wondering how many of you have trouble swallowing and if your experience is anything like mine? I have had...
Avatar_m_tn
selmaSBlankMar 02
wonderchiariOct 24, 2013
selmaSBlankOct 24, 2013
wonderchiariOct 23, 2013
11
By jokz2 Blank
In 1997 I was diagnosed with Chiari Malformation I with an 8mm tonsil displacement after an MRI.Over the past 2 month...
Avatar_n_tn
selmaSBlankMar 01
1
By lurina
Does somebody know dr.Ning Lin ?
Avatar_f_tn
selmaSBlankMar 01
1
By harriman
Who has been to a chiari Dr that knows what he is talking about in OHIO? Should a child with chiari 1 with a small fl...
620923_tn?1425323098
selmaSBlankFeb 27
selmaSBlankFeb 23
selmaSBlankFeb 16
selmaSBlankJan 31
MegN0708Jan 31
13
By selmaSBlank
This list is not a complete list of possible Specialists - This thread is here so Please continue to add your Drs n...
9768260_tn?1405873803
selmaSBlankFeb 27
GruntyFeb 27
selmaSBlankDec 26, 2014
GruntyDec 26, 2014
selmaSBlankJul 19, 2014
10
By Grunty Blank
Hi, I have been diagnosed with Cerebellar Tonsillar Ectopia (6mm). My question is.... Is it the same as Chiari Malfor...
Avatar_n_tn
selmaSBlankFeb 27
0224Feb 27
selmaSBlankFeb 26
0224Feb 26
selmaSBlankFeb 26
13
By 0224
I have been having pain from my knees down pre and post surgery. My surgeon just told me that leg pain is unusual for...
Avatar_m_tn
selmaSBlankFeb 27
Slobra96Feb 27
selmaSBlankFeb 23
Slobra96Feb 23
6
By Slobra96
Hello, This is my first post and I was hoping to get some insight on what we should be doing. So my relative (age...
620923_tn?1425323098
selmaSBlankFeb 26
WyssaFeb 26
selmaSBlankFeb 18
selmaSBlankFeb 16
13
By selmaSBlank
Hi All, in order to post a Prayer Thread for you, please post your date here on this thread so we know u would lik...
MedHelp Health Answers
Recent Activity
Avatar_f_tn
Blank
nequa2009 commented on When Your Cold Is Not...
Mar 02
620923_tn?1425323098
Blank
soccero, and selmaS commented on soccero's status
Feb 23
6150006_tn?1408380236
Blank
AZHR Is 16 months post op. Comment
Feb 19
Top Neurology Answerers
620923_tn?1425323098
Blank
selmaS
Allentown, PA
Avatar_m_tn
Blank
Ball123
7530528_tn?1415842914
Blank
AKC_75
TX
9432311_tn?1424647329
Blank
Elisaandbucky
Charlotte, NC
979826_tn?1389039958
Blank
soccero
germantown, MD
4816750_tn?1368808270
Blank
frankie_rush
New Tazewell, TN
Chiari Malformation Community Resources
RSS Expert Activity
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
Top Neurology Answerers
620923_tn?1425323098
Blank
selmaS
Allentown, PA
Avatar_m_tn
Blank
Ball123
7530528_tn?1415842914
Blank
AKC_75
TX
9432311_tn?1424647329
Blank
Elisaandbucky
Charlotte, NC
979826_tn?1389039958
Blank
soccero
germantown, MD
4816750_tn?1368808270
Blank
frankie_rush
New Tazewell, TN