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Chiari Malformation Community

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6

Welcome to the Chiari and Syringomyelia Forum...

by selmaS, Nov 29, 2008 11:19AM
Please read this message before you post! This is a good place for i...
28

So I Say- by Dr. John Oro- a chiari dr that truly understands

by selmaS, Dec 12, 2008 11:09AM
The following poem is by Dr. John Oro So I Say ...
5

Post Surgery update/issues

by Devin215, Nov 20, 2009 04:46AM
Hi Everyone its me! I am back! Sorry I haven't been on I have just had ...
2

question i need suggestions if anyone is familiar with this

by Candace5440, Nov 20, 2009 10:22PM
I HAD AN APPOINTMENT WITH A NEW NL TUESDAY HE WENT THROUGH ALL OF MY PR...
4

Post Surgery Balance Issues

by magster6869, Nov 14, 2009 11:01PM
Hello to all! I am new to your group and feel grateful to have found y...
3

Update on dr appt today

by sherimom, Nov 18, 2009 06:53PM
As you know, my son started having symptoms after wrestling camp. Saw o...
4

so confused

by sheila53213, Nov 19, 2009 07:26PM
Ok...here's my issue....I have one surgeon not acknowledging my chiari....
45

LIST your SURGERY DATE ......

by selmaS, Jan 10, 2009 12:57PM
We have several members going for surgery very soon!! Please list ur d...
6

List if u r a parent/grandparent

by selmaS, Nov 07, 2009 11:46AM
of a child with chiari. We are trying to get the viewpoint of parent...
8

NS update from Chicago

by sheila53213, Nov 14, 2009 10:16PM
Well....it was good and bad! Great because she is knowledgeable in Chia...
5

Nystagmus and Chiari

by marileew, Nov 19, 2009 07:26AM
Hi, I have chiari and I've been getting nystagmus all the time latel...
6

Nerve Blocks

by sheila53213, Nov 18, 2009 08:27AM
My neurologist mentioned to me yesterday about a deep occipital nerve b...
11

i have a date!

by n40066, Nov 17, 2009 04:48PM
monday, 11/23/09 at the wisconsin chiari center!

dr George jallo at hopkins

by soccero, Nov 20, 2009 04:20PM
does any body no anything about Dr George Jallo at john Hopkins Molly
4

pain after surgery

by tandmstephens, Nov 19, 2009 08:10AM
Hi! I had surgery for chiari in april of this year, but the pain that I...
103

FRIDAY's FRIBBLE

by selmaS, Sep 24, 2009 09:30PM
Fribble- noun a person who wastes time any ...
122

How many zipperheads?

by Shane99, Jan 29, 2009 06:28PM
I was noticing some threads about people that are scheduled to have dec...
2

Any Chiari sufferers also have Ehlers Danlos Syndrome???

by beentheredonethat2x, Nov 20, 2009 08:27AM
My daughter has had aeseptic meningitis since her decomp surgery in Aug...
19

PRAYERS for Zenji

by selmaS, Nov 07, 2009 08:15PM
Hi All please add Zenji to ur prayer list. She had Gall Bladder surg...
18

prayers for dpulum

by n40066, Nov 09, 2009 08:41AM
tina should be just going into the er right about now, so lets start se...
12

Forget about Chiari???

by Susan615, Nov 16, 2009 08:52PM
My son has suffered from headaches and a multitude of other problems fo...
2

Does this sound familiar to anyone?

by Kim60, Nov 19, 2009 06:52PM
Hi, I still haven't seen a NS yet. I have an appoint. on 11/24 with Dr...
10

after surgery ****

by majerus33, Nov 18, 2009 02:31PM
so my hubby had his surgery on the 8th of october and has been sick eve...
6

csf leak

by Lindad1966, Nov 18, 2009 12:06AM
I was decompressed in 2003 with numerous csf leaks and then repairs. F...
7

Progress of surgery

by ULMMom, Nov 14, 2009 09:39PM
Went in on Tuesday and her surgery lasted 4 and a half hours.. Our Lady...
45

LIST OF CHIARI SPECIALISTS.......

by selmaS, Nov 21, 2008 04:51PM
let's create a list of drs to refer to for our health pages: please ...
4

Dr. H update from today

by sheila53213, Nov 18, 2009 09:37PM
I am very happy with my outcome from today....I will be having the surg...
4

Prayers for smego

by selmaS, Nov 18, 2009 07:34PM
Smego had surgery today with Dr H.....please keep her in ur thoughts an...
2

Accupuncture/Rehab treatments for Chiari

by pdxmomof3boys, Nov 16, 2009 02:49PM
After seeing my NS and finding that I had his support for surgery, but ...
9

THURSDAY'S TERMINOLOGY

by selmaS, Sep 24, 2009 11:16AM
list names of tests...conditions.....medical terms ect.....and those wh...
1

Insurance appeals due to denial

by laratterman, Nov 18, 2009 05:15PM
I was wondering if anyone else has had to file an appeal to an insuranc...
3

Does this never END????

by MaraFowler, Nov 13, 2009 12:08PM
Wow. So I have sleep apnea so I get a CPAP machine. Then I end up with ...
1

Looking for help

by achyten, Nov 18, 2009 04:05PM
I have had an MRI of my brain, that showed tonsillar ectopia of 5mm,,,a...
9

Surgery Date!

by merlot3106, Nov 17, 2009 04:57PM
My surgery is scheduled for 11/23 with Dr. Heffez. I'm scheduled right ...
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