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Chiari Malformation Community

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6

Welcome to the Chiari and Syringomyelia Forum...

by selmaS,
Please read this message before you post! This is a good place for i...
26

So I Say- by Dr. John Oro- a chiari dr that truly understands

by selmaS,
The following poem is by Dr. John Oro So I Say ...
12

Syringomyelia surgery by Dr. Bolognese

by angie343,
Can anyone help me find a great doctor in NewYork city that specializes...
2

stupid question

by lu7997,
ok this may be really dumb and it is a little embarrassing but it has ...
7

CSF Flow Study

by wina1969,
I went to Duke University on Friday and met with Dr. Sampson, a neurosu...
81

MONDAY'S RANT

by selmaS,
Rainy days and Mondays always get me down".....so lets rant all day Mon...
4

Back in the hospital

by Devin215,
Hey everyone just FYI I am back In the hospital. I got bad numbness in ...
12

Chiari Srgery

by rtyoung,
Wanting/needing information on Chiari surgery. My son has Chiari 1 mal...
2

List if u r a parent/grandparent

by selmaS,
of a child with chiari. We are trying to get the viewpoint of parent...
4

Problems after surgery

by jamijames40,
I had brain stem surgery in 07 from Chiari Malformation and 3 months la...
5

PRAYERS for Zenji

by selmaS,
Hi All please add Zenji to ur prayer list. She had Gall Bladder surg...
2

Update on son - 10 months post op

by sherimom,
Hi all It has been awhile since I have visited. I thought about it, bu...
6

Questions for Dr. Heffez

by merlot3106,
Hi everyone, I was talking to Elizabeth earlier and she suggested th...
4

Update/NS next week.

by rod44,
Ok....i don't have a specific question. I guess I want to up date you o...
6

TCI patients and insurance

by alexiwildchild,
hey everyone!! well, i was curious for those that have been or had surg...
43

Sign up here to work on our CHIARI BOOK 

by selmaS,
Hi...we have been discussing creating a book for chiari awareness. Ple...
7

Children's Recovery

by sbdingu,
My 6 year old grand-daughter will be having the decompression surgery i...
3

Whether Arnold Chiari Type 1 is a disease or disorder ?

by zahabux,
Please let me know that whether Arnold Chiari Type 1 is a genetic disea...
2

Checking in on Devin

by redkim,
I hope you're doing better. I am sure you're happy to be out of the ho...
10

Sore Throat

by merlot3106,
I have been wondering for a while but keep forgetting to ask. I know...
9

hey everyone!

by n40066,
my appt. with dr. heffez went great! thanks for all the thoughts and p...
2

syrinx back injury

by gotcha007,
hi everyone. im a company truck driver and was injured on the job about...
4

nerve food?????

by lu7997,
if I knew then what I do now............ for starters i would go bac...
2

Newly Diagnosed

by sheila53213,
I was recently diagnosed with CM1 on 10/15/09 and possible Pseudotumor ...
6

trying to make sense of my MRI report

by pdxmomof3boys,
hello everyone! I was very impatient and ordered my report today fro...
4

Went to NS who is sending us back to the Neuroligist!

by chiarikidsmom,
I posted on here about a month ago about my son and head twitching bein...
11

Tips for Choosing a New PCP?

by redkim,
I have seen my PCP I think twice in about two years. Usually because wh...
3

nedd a dr

by blackharley08,
i am trying to find a specialist that is great in nashville
40

LIST your SURGERY DATE ......

by selmaS,
We have several members going for surgery very soon!! Please list ur d...
9

Prayers for n40066 (Elizabeth)

by merlot3106,
To Everyone: Please have Elizabeth in your thoughts and prayers. She...
3

craniosacral therapy

by Rach68,
Ok has anyone ever heard of Craniosacral therapy?I went for my first se...
84

FRIDAY's FRIBBLE

by selmaS,
Fribble- noun a person who wastes time any ...
6

Saw my 2nd Opinion who agreed with the 1st Dude

by jorlex137,
It's so nice, everyone agrees!!!! I need to have surgery! So surgery ...
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