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Chiari Malformation Community
This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.
1 - 20 (of 11373) questions
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Avatar universal
I had my decompression surgery about two months ago, and I have been noticing that there is a noticeable indent where the bone reduction ...
21 answers | 14 comments |
Avatar universal
Hey all, TCI in New York thinks that I have EDS as well as a Chiari that has become symptomatic. I'm 29 years old and previously very...
3 answers |
4760166 tn?1398360913
Hi guys ... I was really on the fence about seeing another geneticist but my neurosurgeons in office genetic counselor referred me to o...
3 answers |
1303966 tn?1296743610
Last Sunday I woke up and went about my morning, and suddenly looked at the clock and realized I missed church. The night before, I was ...
32 answers | 2 comments |
Avatar universal
I was diagnosed 2 yrs ago with chiari malformation type 1 from a car accident I was in where an 88 year old man hit me going 55 mph while...
2 answers |
Avatar universal
Hi, I'm new to forums so please forgive me. I had decompression surgery over ten years ago. I had always had severe headaches and start...
10 answers | 8 comments |
Avatar universal
Has anyone got Dr.Rosner's email address? I have his phone number, but as I am in Australia, the time difference is a pain. So I am wanti...
1 answer |
Avatar universal
Hi everyone! I was diagnosed with Chiari in April 2015 and underwent surgery in July 2015. I had a decompression, laminectomy, and dur...
7 answers |
Avatar universal
Hi! Two years ago I was diagnosed with a Prolactinoma (tumor on my pituitary). In doing the second MRI during the course of treatment f...
11 answers | 1 comment |
Avatar universal
Hello everyone I've been suffering for a little over 2 years my neck gets really sore off and on I deal with this constant head pressure ...
3 answers |
Avatar universal
I am almost 5 years post op and in the past 2 weeks or so I have been experiencing such a pressure and squeezing pain in the back of my h...
1 answer |
Avatar universal
I had my surgery April 13th of this year with a follow up surgery May 6th due to the incision not closing. About 3 weeks or so ago I bega...
2 answers |
847512 tn?1272570662
Hi everyone, I just wanted to see what everyone's average recovery time was after surgery to at least feel back up to par to manage goin...
13 answers | 2 comments |
Avatar universal
I am looking for a Chiari Malformation specialist in Illinois. Thanks in advance!
2 answers |
Avatar universal
I had surgery 2 years ago in November 2008, I am still having issues and still seeing the neurologist. I can not sit for very long nor ca...
11 answers | 1 comment |
Avatar universal
I have been diagnosed with a chiari according to my gp, but the ns stated that the spinal fluid is not being blocked, so no need to see m...
4 answers | 2 comments |
Avatar universal
So my question is kind of in response to my own troubles with finding a Dx. I know for a fact something is wrong on my MRIs. It is obvio...
11 answers | 1 comment |
18601554 tn?1467206937
Please help me, if you can? Chiari malformation: how can I help these symptoms? Right now: I have bad neck muscle spasms, dizziness, a...
6 answers | 1 comment |
959034 tn?1253675076
Can someone tell me what cranial instability is? Is it related to chiari?
8 answers | 1 comment |
Avatar universal
Hello everyone and thank you in advance. I was diagnosed and underwent decompression surgery for Chiari I four years ago. I'd been diagn...
3 answers |
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