Chiari Malformation Community
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Sort by:
Last Post
Date Started
Background:
Blank
Blank
Blank
620923_tn?1366319552
nerys782 hours
max666Oct 13, 2010
Heda491Oct 11, 2010
colleen1214Sep 16, 2009
rod44Sep 16, 2009
7
By selmaSBlank Blank
This poll is posted for Elizabeth after reading colleens post, it occured to me that i have heard of several chiar...
979826_tn?1368222149
rod444 hours
selmaSBlank7 hours
2
By soccero
in so much pain and am peeing like crazy im concerned ive retethered;( my mom is making an appt with dr henderson tom...
620923_tn?1366319552
By selmaSBlank
Hi all please wear ur purple tomorrow June 20th to show awareness for Chiari and support, as our friend heads in ...
Avatar_n_tn
gimlihhyde8 hours
Viva001Jun 18
selmaSBlankJun 18
4
By saundra1957
Hi, I am a family member of a Chiari 1 patient. I am just wanting to hear personal experiences with Dr Rosner, or ot...
Avatar_f_tn
selmaSBlank10 hours
Behlmer712 hours
2
By robsmama
Hi, I saw a post in your forum and several people mentioned finding a Chiari expert for proper diagnosis. My son who ...
383138_tn?1314171373
selmaSBlank10 hours
1
By angelize
I have chiari which causes all kinds of migraines, dizzyness, zapping through head, flashing lights in vision esp. at...
Avatar_m_tn
selmaSBlank10 hours
selmaSBlank14 hours
frankie_rush21 hours
10
By desertstorm2009
I just need to talk to someone who has gone through this. I am so scared. I started having head aches in January, alo...
Avatar_m_tn
FrojennJun 18
selmaSBlankJun 18
3
By christiana71
hi i was diagnosed with chiari about 4 to 5 months ago i started having severe migranes that landed me in the ER seve...
Avatar_f_tn
selmaSBlank19 hours
bleary81Jun 18
bleary81Jun 18
selmaSBlankJun 11
7
By bleary81
I was rushed to the hospital one week ago for dizziness, numbness, and just an all over bad feeling. I was given a CT...
Avatar_f_tn
FrojennJun 18
selmaSBlankJun 18
2
By kate1798
Hey Everyone, I'm about 1 minute ago new to the group. I was diagnosed with Chiari when I was 19 years ol...
620923_tn?1366319552
FrojennJun 18
selmaSBlankJun 18
cougar05Jun 18
selmaSBlankMay 09
40
By selmaSBlank Blank
Hi I wanted to get a list started for those of you in Canada...I am not sure if these drs r indeed chiari specialists...
620923_tn?1366319552
selmaSBlankJun 18
selmaSBlankJun 17
derek1983Jun 17
SexybareJun 16
7
By selmaSBlank
Hi ALL please wear ur purple to give awareness to Chiari and show support to our friend, tomorrow Monday, June 17th ...
620923_tn?1366319552
selmaSBlankJun 18
selmaSBlankJun 15
selmaSBlankJun 10
STL5Jun 08
mike709Jun 08
9
By selmaSBlank
Hi all...wondering- What symptom or advice helped you decide to go forward with surgery ?
620923_tn?1366319552
selmaSBlankJun 18
selmaSBlankJun 03
KfelbzJun 03
selmaSBlankMay 29
selmaSBlankMay 07
167
By selmaSBlank Blank
Shane99 condensed our list of drs. (Thanks Shane!) This list is not a complete list of possible Specialists - Pleas...
620923_tn?1366319552
selmaSBlankJun 18
selmaSBlankJun 09
czpdxJun 09
selmaSBlankJun 09
74
By selmaSBlank Blank
Hi All here is a new thread for listing surgery dates that fall in the New year. I ask u all post on this thread ur d...
Avatar_f_tn
selmaSBlankJun 18
Richie62Jun 16
Devin215May 19, 2009
ThePeachy1May 19, 2009
IamMelMay 19, 2009
6
By IamMel Blank
Here we go again, not only have I been losing my speech, left and right legs giving out on a continous basis, right a...
979826_tn?1368222149
selmaSBlankJun 18
Viva001Jun 18
selmaSBlankJun 17
7
By soccero
This morning before we got on the road to come home I went for one more walk on the beach and all I can say is owwww!...
Avatar_f_tn
selmaSBlankJun 18
1
By Viva001
1 year! I still have nausea, dizziness, & swallowing difficulty--rarely! Head pain kind of slowly accumulates, but ...
5508557_tn?1369004543
selmaSBlankJun 17
selmaSBlankJun 17
3
By Loriann6482
Back story: I had Craniotomy 02/2012 to remove meningioma from sphenoid sinus area, compressing my right optic nerve....
Avatar_f_tn
selmaSBlankJun 17
1
By katherineRSM
Has anyone dealt with CA SDI and do you have to wait until after your surgery to file? My surgery is next Monday and...
Blank
Weight Tracker
Reach your weight goal faster
Start Tracking Now
Chiari Malformation Community Resources
RSS Expert Activity
748543_tn?1371556709
Blank
Jaw like a Plane?
Jun 18 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
521840_tn?1348844371
Blank
When your child needs a Psychologis...
Jun 13 by Rebecca Resnik, PsyDBlank
1741471_tn?1369660473
Blank
NBA 2013 FINALS START TODAY- Train ... Blank
Jun 06 by Michael Gonzalez-WallaceBlank
Top Neurology Answerers
620923_tn?1366319552
Blank
selmaS
Allentown, PA
Avatar_f_tn
Blank
Viva001
Chapel hill, NC
4816750_tn?1368808270
Blank
frankie_rush
New Tazewell, TN
1823499_tn?1370093889
Blank
Sexybare
Bay city, MI
1925822_tn?1333709217
Blank
irislita
1306714_tn?1327260680
Blank
linnielou232
muskegon, MI