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Chiari Malformation Community

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6

Welcome to the Chiari and Syringomyelia Forum...

by selmaS, Nov 29, 2008 11:19AM
Please read this message before you post! This is a good place for i...
28

So I Say- by Dr. John Oro- a chiari dr that truly understands

by selmaS, Dec 12, 2008 11:09AM
The following poem is by Dr. John Oro So I Say ...
5

Fluid build up behind the head

by Johnblutarsky, Nov 26, 2009 10:15PM
My son soon to be 4 in January went in for surgery Nov 20th. He had iss...

recovering- FINALLY!

by northernstarmn, 9 minutes ago
hi all just thought i would let y'all know that i once again ended up i...
2

finally feeling better

by northernstarmn, Nov 25, 2009 04:00PM
Hi all, I thought i would let you all know I am finally feeling SO MUCH...
2

Update on Elizabeth

by n40066, Nov 26, 2009 12:06PM
Happy Thanksgiving! Just got off the phone with Beth and she is now ou...
7

Update on Elizabeth

by n40066, Nov 24, 2009 10:44AM
Surgery went well with no surprises and lasted about 3 hours. The doct...
3

Thanx

by Zenji, Nov 26, 2009 09:55AM
Thanks for all your prayers and good vibes. I am allowed to have my com...
3

trying to determine a diagnosis

by katarina333, Nov 27, 2009 08:42PM
I have been having issues for almost a year now of fatigue, dizziness, ...
4

surgery update from jorlex

by jorlex137, Nov 26, 2009 02:40PM
Hello! I can't believe it but I"m home!!! Had decompression surgery...
4

What is an abnormal cine MRI? 

by Danaan, Nov 27, 2009 03:41PM
I'm 53, female, with about a 10 year history of classical migraines. I'...
3

Incision Pain

by ryntra, Nov 26, 2009 06:56PM
Hi...I had Decompression surgery on 10/28. Recovery has been going fair...
104

FRIDAY's FRIBBLE

by selmaS, Sep 24, 2009 09:30PM
Fribble- noun a person who wastes time any ...
12

PRAYERS FOR LIZZY AND MEG

by selmaS, Nov 21, 2009 10:58PM
n40066 and merlot prayers and good vibes to both of u on ur travels to ...
7

Does Anyone have a Big Bump Below Skull?

by achyten, Nov 24, 2009 08:45PM
I"m having pain on a big bump below my skull,,just below my neck.....ha...
1

Happy Thanksgiving! And thank you!

by CarrieinAK, Nov 25, 2009 05:40PM
Hi All, I haven't written in a long time, but with Thanksgiving comi...
1

NS appointment today

by Kim60, Nov 25, 2009 03:55PM
Hi Everyone, OK, I went to my NS today.. Grab a glass of wine..cup of ...
9

List if u r a parent/grandparent

by selmaS, Nov 07, 2009 11:46AM
of a child with chiari. We are trying to get the viewpoint of parent...
4

TO ALL THAT CELEBRATE HAPPY THANKSGIVING!!

by selmaS, Nov 24, 2009 10:47PM
I know that not everyone on the forum celebrates Thanksgiving.....but w...
2

Any other "re-do" Chiarians out there?

by not_all_tonsils_are_in_your_throat, Nov 25, 2009 06:00AM
My daughter will have a second surgery to try to relieve every chiari s...
9

Should I Be Worried?

by achyten, Nov 24, 2009 01:34PM
Here I am in Arizona, suppose to be enjoying myself.... we came down he...
6

Waking with terrible migaines

by scottwifey, Nov 24, 2009 09:05PM
I have CM1, was dx'd a year ago. I have MANY other dx's but most stem f...
9

Sleep Apnea and Chiari Malformation

by LG0526, Apr 09, 2009 10:01PM
I have recently been diagnosed with Sleep Apnea. I was wondering if an...
6

Exciting news to help spread awareness

by tysgmother, Oct 28, 2009 03:28PM
Hi I just found out that My Aunts Brother who is a Dr is going to a con...
12

after surgery ****

by majerus33, Nov 18, 2009 02:31PM
so my hubby had his surgery on the 8th of october and has been sick eve...
10

Progress of surgery

by ULMMom, Nov 14, 2009 09:39PM
Went in on Tuesday and her surgery lasted 4 and a half hours.. Our Lady...
16

If you do not have CSF blockage does that mean that the malformation are not the cause of your symptoms

by T73, Oct 28, 2009 07:28PM
I am very thankful that I found this website. It is extremely scary to...
8

Sleep issues

by ginapooh1969, Nov 24, 2009 06:13AM
Hi again! I have another question. Does anyone else with a Chiari dia...
19

Chiari 1 malformation

by Cathie9696, May 18, 2009 10:25AM
Is their such thing as mild chiari malformation. my husbands MRI just ...
3

PRAYERS FOR jorlex137's SURGERY

by selmaS, Nov 23, 2009 03:33PM
Hey Jenny...prayers and good vibes go out to u for ur surgery tomorrow!...
58

TUESDAY'S TREASURES

by selmaS, Sep 21, 2009 09:24PM
Today let's make note of what puts a twinkle in our eye...... ...
1

Pain behind ears

by Lovemygirls2, Nov 24, 2009 08:49AM
So does anyone have pain behind their ears? It hurts to be touched- li...
6

UPDATE ON LIZZY !!!!

by selmaS, Nov 23, 2009 01:25PM
HI I just heard from Lizzy n40066's mom and she is out of surgery and d...
123

How many zipperheads?

by Shane99, Jan 29, 2009 06:28PM
I was noticing some threads about people that are scheduled to have dec...
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