Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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VMZ147 minutes
selmaSBlank15 hours
2
By VMZ14
Does anyone know if their chiari is primary or acquired secondary chiari. I can't find much info On acquired or secon...
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Red_Star26 minutes
Nellan121 hour
Red_StarOct 19
Nellan12Oct 19
Red_StarOct 19
15
By Nellan12
Hello everyone, I was wondering if there was anyone out there who has had constant denial from the insurance company ...
620923_tn?1413427272
selmaSBlank9 hours
selmaSBlankOct 14
selmaSBlankOct 07
26
By selmaSBlank
Hi....today lets post so wishes for yourself, family, friends...whomever you want to share a wish for.... It ...
6384874_tn?1385433406
selmaSBlank10 hours
1
By huskerfan71
I have my date for my decompression redo. It's December 2nd. This time my NS will be shrinking my tonsils in hope...
6384874_tn?1385433406
selmaSBlank10 hours
1
By huskerfan71
I will be having my 2nd decompression about 9 months after my first. I was wondering if they can reuse the dura pa...
620923_tn?1413427272
selmaSBlank10 hours
selmaSBlankOct 13
selmaSBlankOct 05
selmaSBlankOct 04
109
By selmaSBlank Blank
Hi All, in order to post a Prayer Thread for u, please post ur date here on this thread so we know u would like one. ...
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waimee6312 hours
wrey1021Nov 06, 2013
selmaSBlankNov 04, 2013
Jules7872Nov 04, 2013
selmaSBlankSep 07, 2012
12
By witt0727 Blank
My son was recently diagnosed with Type 1 Chiari Malformation a few months ago after he underwent an MRI of the bra...
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selmaSBlank15 hours
selmaSBlankOct 20
3
By ihatechiair
I was diagnosed with ACM1 several years ago after several symptoms including vertigo. It subsided after about a year....
620923_tn?1413427272
selmaSBlank15 hours
selmaSBlankOct 20
selmaSBlankOct 13
39
By selmaSBlank
Today let's make note of what puts a twinkle in our eye...... ...
620923_tn?1413427272
selmaSBlank15 hours
Brendaz2016 hours
Brendaz20Oct 21
selmaSBlankOct 20
44
By selmaSBlank
Rainy days and Mondays always get me down" .....so lets rant all day Monday- each Monday a different topi...
7489440_tn?1392096009
selmaSBlankOct 20
selmaSBlankOct 19
4
By kwalker0004
Hear recently I have had the sensation that my neck is on fire. Like its really hot to the touch from a few inches in...
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Nellan12Oct 21
RhindaOct 20
Nellan12Oct 18
Nellan12Oct 18
selmaSBlankOct 15
17
By Rhinda
I'm new on this forum. I have Syringomyelia and will be seeing a Chiari specialist in 3 weeks. I am almost at 6 yea...
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RhindaOct 20
selmaSBlankOct 20
RhindaOct 20
selmaSBlankOct 20
4
By Rhinda
I have had trouble getting up after a lumbar puncture and blood patch. The blood patch fixed the excruciating pain, ...
620923_tn?1413427272
selmaSBlankOct 20
selmaSBlankOct 16
14
By selmaSBlank
Hi all looking to see if there might be a common thread with those of us with Chiari....and one member ask...
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selmaSBlankOct 20
2
By kunliks
Hi, I am 24 i before 5 month i suddenly got the numbness in my left arm and after 1 month of that its turn into burn...
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selmaSBlankOct 20
H55Oct 20
selmaSBlankOct 19
H55Oct 19
selmaSBlankOct 17
109
By katiamarie Blank
Had a rough 5 days with severe waist hip low back pain. Had to go to er given pain meds. Had shaking vomiting hiccups...
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selmaSBlankOct 19
1
By kmyw66
about 2 months ago I woke up n my left arm from my elbow to my fingers was swollen. As the swelling went down I start...
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2
By harboy
has anyone had any success with taking prednisone
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4
By grockwell925
Hi All, I was diagnosed with CM1 when I was 16. 6mm herniation with no symptoms....fast forward to 6 weeks ago (al...
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selmaSBlankOct 12
VMZ14Oct 12
6
By keshia3017
When I seen the neoro surgeon he said he wants me to do physical therapy because it could possibly be a posture thing...
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