Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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kristy1210 minutes
selmaSBlank13 hours
SarahY79Jul 27
selmaSBlankJul 26
5
By SarahY79
I have been suffering from ACM for just over 20 yrs, but b/c of other health problems, I wasn't healthy enough for th...
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6
By bekah0656
I've dealt with 3-4 migraines weekly since December 2008. We were in a car accident,rolled 2 1/2 times and I was not ...
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By selmaSBlank Blank
This list is not a complete list of possible Specialists - This thread is here so Please continue to add your Drs n...
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14
By AlishaNiven
Hi All, So I've just done a visual field test with an opthamalogist, the results where not good to say the least. ...
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kristy124 hours
selmaSBlankJul 26
JenWorkJul 26
4
By hevnw8s
Hello all...I had surgery July 21st and am now at home recovering. My doctor did a bone only decompression and told m...
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By Elisaandbucky
Does anyone know if a certain type of shampoo is needed before surgery?
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bstnana7 hours
selmaSBlankJul 26
2
By bstnana
Hi, I have had two Chiari surgeries, the most recent 9 months ago. The worst of the symptoms are gone, but the he...
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JenWork18 hours
selmaSBlankJul 26
2
By JenWork
Hi everyone! I had decompression surgery on July 2nd, went home July 5th and ended up back in the hospital for 5 days...
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11
By lilbit1166
Hi, I'm new at this. I have Chiari, I'm 7 yrs post op & grateful. After surgery I lost 30lbs, 108 down to 78lbs. Fina...
620923_tn?1405964489
selmaSBlankJul 26
swatkindJul 25
Mel5056Jul 19
16
By selmaSBlank
Hi all please wear your purple tomorrow July 9th to show awareness for Chiari and support as our friend heads in for...
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Mel5056Jul 26
selmaSBlankJul 26
selmaSBlankJul 26
5
By Elisaandbucky
I am wondering what is the best shampoo to pack as I head to my surgery.
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selmaSBlankJul 26
selmaSBlankJan 05, 2013
AuntieLeighanJan 04, 2013
selmaSBlankJan 04, 2013
7
By AuntieLeighan Blank
I have been diagnosed with Chiari. I also had a tiny pituitary cyst. I had a pituitary study done and the finsings of...
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selmaSBlankJul 25
2
By frankie_rush
Mine is not a question. Mine is just saying Thank you all for being friends and a crutch at times for me. Cause two...
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selmaSBlankJul 24
selmaSBlankFeb 15
ZilZilFeb 15
aricaruthFeb 15
43
By KYKY84 Blank
HI, I was diagnosed and treated for epilepsy when i was 14 months old all the way to the age of 17 which at that time...
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3
By disasterfullbeauty
i dont know what to do any more , thing are now .....i dont even have words for how i fell about the state of my life...
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KurtPTJul 21
selmaSBlankJul 18
4
By KurtPT
Who, after decompression, experiences the feeling of your brain "bouncing" or moving when walking or running?
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selmaSBlankJul 24
selmaSBlankJul 22
5
By Heather2414
I learned when I was in my teens that I had the Chiari in the back of my head from Children's Hospital and they told ...
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jcrunJul 24
selmaSBlankJul 23
3
By Carey4
Decompression surgery saved my life back in 2012, however recently the symptoms have now returned leading me to wonde...
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cduqueJul 24
cduqueJul 24
cduqueJul 24
42
By cduque
Good afternoon All, I am new here and recently diagnosed with CM1 by a local neurosurgeon. For over a year I was ...
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By TinyRN
So its been a while since I have posted. After my last MRI I was left with the fluid build up in the back of my surgi...
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