Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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joshipea10 minutes
1
By joshipea
hello everyone, just found out about this and I was hoping to get some support and some answers, i was just told I ha...
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joshipea12 minutes
Lottida6 hours
DloshawMay 22
16
By dreagensmommy
Hello everyone. I have so many questions but i need support more then anything. I am a 28 year old single mother, i h...
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selmaSBlankMar 10
mimosa7Mar 10
selmaSBlankFeb 11
64
By selmaSBlank Blank
Hi I wanted to get a list started for those of you in Canada...I am not sure if these drs r indeed chiari specialists...
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Dloshaw3 hours
LottidaMay 21
DSH519May 21
selmaSBlankMay 21
DSH519May 21
29
By DSH519
Had malformation type 1. Had decompression surgery in April 2001. Recently many of the same symptoms have returned. ...
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By Dloshaw
I am still recovering from decompression surgery. It went very well. I would recommend. Dr seiff in Las Vegas highly....
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jeklstudio5 hours
ambyjMar 06, 2013
selmaSBlankMar 05, 2013
jeklstudioMar 05, 2013
Viva001Jul 01, 2012
24
By auntij2746 Blank
One of my symptoms is a hot flushing feeling in my entire body like burning up from inside. I cannot seem to identify...
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By missyorkie
Has to be caring, knowledgable at Chiari and Syringomelia. Dr Prokupa said his job was done. Go see a neurologist ag...
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missyorkie6 hours
missyorkie6 hours
missyorkie6 hours
missyorkieDec 26, 2014
selmaSBlankDec 26, 2014
11
By missyorkie Blank
We have been struggling now over 4 years, 3 Neurologist in Kingston just saying complex case.. Now saw a NS and he w...
620923_tn?1426651955
Lottida6 hours
selmaSBlankMay 12
selmaSBlankMay 06
selmaSBlankApr 29
selmaSBlankApr 13
31
By selmaSBlank
Hi All, in order to post a Prayer Thread for you, please post your date here on this thread so we know u would lik...
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Lottida6 hours
selmaSBlank15 hours
2
By Bamagirl40
I need a little help with getting ready for chiari posterior decompression surgery. Dr. Soleau is going in with the ...
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LoLa14549 hours
selmaSBlank15 hours
Lottida17 hours
3
By LoLa1454
I live in Toledo OH and have been searching high and low for a Chiari specialist when I came across the Chiari Malfor...
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selmaSBlank16 hours
1
By BusterDooley
My Neurosurgeons name is Michael Doyle he seems very sincere about me needing this surgery and I feel secure when I t...
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Dianna41Dec 29, 2014
selmaSBlankDec 29, 2014
4
By Bamagirl40
Hello all. I have been trying to find places closer to where I live. Does anyone know about a neurosurgeon by the n...
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selmaSBlankMay 22
1
By Dloshaw
I just had my surgery on 4-17-15, and it was a success. I am starting to think my breasts are growing. It's not just ...
620923_tn?1426651955
selmaSBlankMay 22
fro510May 22
selmaSBlankMay 22
selmaSBlankJul 09, 2013
frankie_rushJul 09, 2013
58
By selmaSBlank Blank
The following poem is by Dr. John Oro So I Say Anothe...
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selmaSBlankMay 22
weelMay 22
selmaSBlankMay 21
3
By weel
Hi I was wondering I anyone can help me I have just found out I have chairi malformation and the tonsils at my cerebe...
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selmaSBlankMay 22
LottidaMay 22
2
By LoLa1454
Hi everybody so I just found out that Im 6mm herniated. About 4 years ago I was having severe migraines and had the d...
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selmaSBlankMay 22
1
By racrgrl
I have been researching for weeks, but honestly, I am not finding any really great referrals for Chiari doctors in At...
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selmaSBlankMay 22
1
By Rhinda
I am 6 weeks post-op after a Chiari decompression and cranio-cervical fusion surgery. My head is extremely sensitive...
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By BeyondFrustratedd
So my question is it ever normal to have csf blockage? Is it something a doctor should look at and suggest surgery or...
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