Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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poosygirlless than a minute
selmaSBlank1 hour
poosygirl3 hours
poosygirl3 hours
poosygirl3 hours
44
By poosygirl
Opinions please, from people diagnosed with a reduced CSF flow. And from those who have had surgery because of it. Or...
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selmaSBlank2 hours
1
By captal
Hi, well it's been a while since I was here last and my how things have changed. Just to give a short history I was ...
16744917_tn?1451270439
gjjl3 hours
gjjl3 hours
gjjl3 hours
Emme805 hours
selmaSBlankFeb 11
10
By gjjl
I was wondering if it is possible to have a sf leak without a huge bulge. Background : I am a month out from surgery,...
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dhrycik4 hours
selmaSBlankSep 25, 2013
meemeesplaceSep 25, 2013
selmaSBlankOct 17, 2011
AngelasuejesseOct 17, 2011
15
By Angelasuejesse Blank
I have been having numbness and tingleing in my arms, hands, legs, and feet, sometimes they even turn blue I also ...
1069888_tn?1421940341
dhrycik20 hours
selmaSBlankFeb 04
2
By laratterman
Recently, my disability insurance company has informed me that I have to have an IME for reconsideration of benefits....
1679858_tn?1346768781
dhrycik21 hours
selmaSBlankFeb 10
selmaSBlankFeb 10
6
By lynnbrook177
I was diagnosed at 48, five years ago. My herniation is 11-13mm. I have had approx five mri's since my diagnosis and ...
620923_tn?1452919248
dhrycik21 hours
selmaSBlankFeb 11
143RAFeb 11
selmaSBlankFeb 03
LilygatorJan 10
7
By selmaSBlank
Hi All, in order to post a Prayer Thread for you, please post your date here on this thread so we know u would like o...
2144912_tn?1336273613
dhrycik21 hours
selmaSBlankMay 17, 2012
HoTtMaMa_SuNnIMay 17, 2012
selmaSBlankMay 15, 2012
4
By HoTtMaMa_SuNnI Blank
There is a high possibility that I will be having decompression surgery for CM- Type1 within the next month. I have r...
510038_tn?1455226819
selmaSBlankFeb 11
1
By oops1990
Hey guys, I was wondering if anyone has had any pain in their ribs or sides. This has been a new area of pain for me ...
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KerriC1Feb 11
gjjlFeb 11
selmaSBlankFeb 10
KerriC1Feb 10
Emme80Feb 10
6
By KerriC1
Sorry for airing all my woes. Ibe been through a lot this month and sadly it's easy to talk to you guys here. Last mo...
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selmaSBlankFeb 10
Emme80Feb 10
selmaSBlankFeb 10
3
By Emme80
I was curious, after watching a series of lectures online by Dr. Bolognese, something else popped out at me. All my M...
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Emme80Feb 10
Emme80Feb 10
9
By devdev1
Has anyone with Chiari experience head pressure?
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selmaSBlankFeb 10
selmaSBlankFeb 10
69
By Endeavour33 Blank
Hi. I am 16 years old, and my symptoms started 2 months ago, with a migraine. It went on for a wee or two, and I fin...
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selmaSBlankFeb 10
selmaSBlankFeb 09
3
By katheryn913
I was diagnosed with Chiari about 5 years ago. My tonsils were 25mm long. I had two surgeries in 2 months because t...
4760166_tn?1398360913
Emme80Feb 09
Emme80Feb 09
selmaSBlankFeb 09
Emme80Feb 09
Emme80Feb 09
17
By The_beat_goes_on
Hi guys ... I'm scheduled to have my shunt revised / replaced on the 17th ... but for the past couple months or more ...
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Jmv8008Feb 08
selmaSBlankFeb 06
2
By Jmv8008
Hi everyone. I was wondering if anyone can recommend a good doctor in Philadelphia Pennsylvania. I hear Jefferson hos...
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Emme80Feb 08
selmaSBlankFeb 08
Na_CFeb 08
zygy2Mar 02, 2012
aaa222Mar 01, 2012
10
By aaa222 Blank
I had my decompression surgery on feb. 16 and was readmitted to the hospital one week after being discharged for a cs...
1667208_tn?1333111449
selmaSBlankFeb 08
Ncsmomof2Feb 08
RheaAnnNov 14, 2012
selmaSBlankNov 13, 2012
RheaAnnNov 13, 2012
12
By zygy2 Blank
Just curious if anyone has tried the stockings because I am frustrated with the high heart rate but don't want meds. ...
1679858_tn?1346768781
selmaSBlankFeb 05
selmaSBlankFeb 04
7
By lynnbrook177
Hi all, Last night I woke up feeling strong pressure around my ears and throat. It felt as though my throat was cl...
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selmaSBlankFeb 06
selmaSBlankFeb 03
19
By Georgiag111
Hi everyone I am 36 year old mom of 6. I have POTS and EHlers Danlos Syndrome recently diagnosed with Chiari. 8.5 MM ...
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gjjl I have a leak and now am ha... Comment
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