Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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cduque14 minutes
cduque24 minutes
cduque39 minutes
42
By cduque
Good afternoon All, I am new here and recently diagnosed with CM1 by a local neurosurgeon. For over a year I was ...
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lilbit11669 hours
lilbit11669 hours
lilbit11669 hours
lilbit116610 hours
7
By lilbit1166
Hi, I'm new at this. I have Chiari, I'm 7 yrs post op & grateful. After surgery I lost 30lbs, 108 down to 78lbs. Fina...
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selmaSBlank18 hours
2
By Carey4
Decompression surgery saved my life back in 2012, however recently the symptoms have now returned leading me to wonde...
7770892_tn?1397844002
By TinyRN
So its been a while since I have posted. After my last MRI I was left with the fluid build up in the back of my surgi...
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Heather241411 hours
selmaSBlankJul 22
4
By Heather2414
I learned when I was in my teens that I had the Chiari in the back of my head from Children's Hospital and they told ...
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selmaSBlank12 hours
bekah065613 hours
2
By bekah0656
I've dealt with 3-4 migraines weekly since December 2008. We were in a car accident,rolled 2 1/2 times and I was not ...
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VMZ1413 hours
cduque21 hours
cduque21 hours
VMZ14Jul 22
9
By VMZ14
I have chiari 1 malformation and have been having these episodes mostly when I'm out and about where I have this feel...
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Munchies201213 hours
selmaSBlankJul 22
5
By AlishaNiven
Hi All, So I've just done a visual field test with an opthamalogist, the results where not good to say the least. ...
9589627_tn?1404715817
GneeBnee17 hours
GneeBneeJul 23
selmaSBlankJul 22
6
By goldie2014
Hi all, just wondering if anyone else with chiari gets electric type zaps..... some which cause your entire body to j...
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selmaSBlank17 hours
22amber4417 hours
selmaSBlank17 hours
22amber4417 hours
selmaSBlank18 hours
7
By 22amber44
I have a child recently diagnosed with chiari malformation type 1. His age is 4. It started with vision and hearing...
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selmaSBlank18 hours
Sbrown0318 hours
selmaSBlank18 hours
3
By Sbrown03
I had decompression surgery in 2011 at John Hopkins in Baltimore Maryland. However we just found out that one of my 3...
620923_tn?1405964489
selmaSBlank19 hours
bekah0656Jul 22
selmaSBlankJul 21
bekah0656Jul 21
74
By selmaSBlank Blank
This list is not a complete list of possible Specialists - This thread is here so Please continue to add your Drs n...
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selmaSBlank19 hours
2
By shelly0513
Sometimes I get light headed with a mild pulsation headache after bending my head to far back. But only for a few sec...
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selmaSBlank19 hours
selmaSBlankJul 06
3
By shelly0513
Anyone have this sensation post surgery? I know the nerves are still healing 2 years post surgery, but should I be co...
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selmaSBlankJul 22
2
By lilbit1166
In the past year or so I have extreme hair loss, dry n brittle. the past 6 months my skin is thinning like I'm in my ...
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selmaSBlankJul 22
selmaSBlankJul 21
mistyp29Jul 21
13
By mistyp29
I seen a NS for my AMC and he did surgery, I had to be put back in the day after my reliece From the hospital becaus...
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kristy12Jul 22
selmaSBlankJul 22
3
By M_Mom
Hi- My 15-year old son has been recently diagnosed with chiari I and syringomyelia. He is not having any neurolog...
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selmaSBlankJul 22
WyssaJul 22
selmaSBlankJul 21
3
By Wyssa
So I saw a Chiari specialist who said it wasn't Chiari related. My symptoms continue to get worse, and seeing an orth...
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3
By Mikec5595
Hello, I just wanted to see if anyone could shed some light on my issue. I had decompression surgery on May 29th of 2...
9798554_tn?1405981453
By janellechree71
Hi, I was wondering if anyone gets nausea when sitting up in bed or laying ? Its such a double edged sword because I...
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