Chiari Malformation Community
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Sort by:
Last Post
Date Started
Background:
Blank
Blank
Blank
620923_tn?1436154699
patman81720 minutes
lasel22Aug 03
selmaSBlankAug 03
patman817Aug 02
13
By selmaSBlank
Hi ALL we have another member going in for surgery tomorrow July 15th, so wear your purple to help gain awareness for...
979826_tn?1389039958
By soccero
Ok, i know i said i was ready for surgery #25, but i wish it was tomorrow, I HATE waiting! its not until the 18th. it...
Avatar_f_tn
By LLMomAndWife
I wonder what other rare disorder produces Chiari-like symptoms, but is not Chiari. My chief complaint is a pressure ...
Avatar_f_tn
keilar16 hours
selmaSBlankApr 22
keilarApr 22
selmaSBlankApr 04
13
By keilar
I had a 18mm hernitation and had decompression surgery in November 24,2014. I stopped pain medicines within 3 weeks o...
Avatar_f_tn
By shelly0513
I have vertigo post-op, and I just celebrated 2 years post-op so I don't know if I can say that was the cause anymore...
Avatar_f_tn
Lynnrae6419 hours
selmaSBlankAug 02
Lynnrae64Aug 02
selmaSBlankJul 31
Lynnrae64Jul 30
6
By TheChiariFamily
Hello Chiari world! I was diagnosed with Chiari in May. Now two of my cousins, my mom and brother have all be diag...
Avatar_f_tn
By Kariwise
Hi everyone! So i was diagnosed about a year aho with cm1.. the only thing that my neuro had treated was my migraines...
Avatar_m_tn
By RayChap222
Hello, I recently had an MRI done and was told I had Chiari Malformation. I was told that i had downbeat nystagmus be...
Avatar_f_tn
selmaSBlankAug 02
selmaSBlankAug 01
11
By LLMomAndWife
Hello All! I'm new to this forum. I'm highly suspicious that I have Chiari and a tethered cord. All of the symptoms f...
620923_tn?1436154699
By selmaSBlank
Hi all please wear your purple tomorrow Aug. 4th to help show awareness for Chiari and to support our friend as she h...
Avatar_f_tn
selmaSBlankAug 02
1
By babs1947
Hi can you please advise me of any doctors who specialise in Chiari Mal. 1 within the Brisbane area. We live on the ...
Avatar_n_tn
selmaSBlankAug 02
0224Aug 02
selmaSBlankAug 02
0224Aug 02
selmaSBlankAug 02
7
By 0224
I have chiari malformation and POTS. I noticed my balance did improve after surgery. My surgery was 9 months ago. I n...
9489060_tn?1404181151
selmaSBlankAug 02
HeloiseOSAug 02
HeloiseOSAug 02
HeloiseOSAug 02
lasel22Aug 02
6
By HeloiseOS
Hi, I'm 15 and was diagnosed with CM over a year ago after an MRI. I'm due to have another MRI within the course of t...
Avatar_f_tn
selmaSBlankJul 31
2
By Shellybellyz80
I had my surgery July 16, I'm doing alot of walking and as much as I can, just want to know when I'm going to feel li...
Avatar_m_tn
jsk46Jul 31
jsk46Jul 31
jsk46Jul 31
11
By jsk46 Blank
If anyone has any suggestions for ways you've managed your brain fog, please let me know. We can swap ideas on ways...
1996562_tn?1330341439
selmaSBlankJul 31
jowlasdfgJul 31
billyz123Feb 13, 2012
Rahe28Feb 13, 2012
selmaSBlankFeb 12, 2012
5
By billyz123 Blank
Anybody have a clue what this is about??
Avatar_f_tn
selmaSBlankJul 31
LottidaJul 27
3
By angie_zagami
I received my decompression surgery almost 2 years ago, but am still experiencing severe headaches, nausea, vomiting,...
Avatar_m_tn
selmaSBlankJul 31
1
By imsotired
Anyomne else suffer so much with eye pain/headacheds that you end up with pain when blinking (or are more aware of th...
4341544_tn?1353099368
selmaSBlankJul 31
selmaSBlankJul 31
2
By isabel0608
Has any one had any treatment to ease the neck pain prior or after surgery. How did it work? How long was the relief?
Avatar_m_tn
selmaSBlankJul 31
selmaSBlankJul 31
2
By hope2456
Please help by providing a list of neurologists who treat symptoms for syrinx and cm1 in southeast pa or leigh valley...
Recent Activity
979826_tn?1389039958
Blank
soccero surgery #25 aug 18th 7am! r... Comment
Aug 03
620923_tn?1436154699
Blank
selmaS, and soccero commented on soccero's status
Jul 31
979826_tn?1389039958
Blank
selmaS, and soccero commented on ChiariWolf's status
Jul 31
Top Neurology Answerers
620923_tn?1436154699
Blank
selmaS
Allentown, PA
9432311_tn?1432828685
Blank
Elisaandbucky
Charlotte, NC
7530528_tn?1428275172
Blank
AKC_75
TX
12573102_tn?1431705217
Blank
Lottida
Thibodaux, LA
979826_tn?1389039958
Blank
soccero
germantown, MD
Avatar_m_tn
Blank
Ball123
Chiari Malformation Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
Top Neurology Answerers
620923_tn?1436154699
Blank
selmaS
Allentown, PA
9432311_tn?1432828685
Blank
Elisaandbucky
Charlotte, NC
7530528_tn?1428275172
Blank
AKC_75
TX
12573102_tn?1431705217
Blank
Lottida
Thibodaux, LA
979826_tn?1389039958
Blank
soccero
germantown, MD
Avatar_m_tn
Blank
Ball123