Chiari Malformation Community
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Sort by:
Last Post
Date Started
Background:
Blank
Blank
Blank
Avatar f tn
selmaSBlank2 minutes
MG1811 minutes
selmaSBlank1 hour
MG18May 28
MG18May 28
20
By MG18
Here is what MRI report says: " There is a 4 mm long fusiform focus of increased T2 signal intensity in the anterior...
Avatar f tn
selmaSBlank1 hour
1
By Littlepond
My kid was recently diagnosed with CM1. He complains headache and all over body pain (pokey in his word). Based on MR...
Avatar m tn
selmaSBlank1 hour
1
By ladaf
Are there any support groups that meet for Chiari survivors, sufferers in Knoxville, TN. My daughter had decompressi...
Avatar m tn
selmaSBlank1 hour
whatfunMay 28
selmaSBlankMay 27
whatfunMay 27
selmaSBlankMay 27
7
By whatfun
I have had the decompression surgery but now feel my Chiari symptoms are coming back. The ct scan showed everything ...
Avatar m tn
lasel22May 28
selmaSBlankMay 27
2
By hollyrosemom
Hi everyone my 13yr old daughter was diagnosed with Chiari 1 8mm descend this week after a year of severe dizziness...
Avatar f tn
whatfunMay 27
selmaSBlankMay 26
martynlizMay 26
selmaSBlankMay 19
4
By martynliz
I was recently diagnosed with Chiari but after seeing my MRI the dr. said I would not require surgery at this time. H...
1679858 tn?1346768781
selmaSBlankMay 26
BlueghostMay 26
selmaSBlankMay 23
lasel22May 23
5
By lynnbrook177
Hi Recently, I have been feeling dizziness (wooziness). I feel it when I lay down at night, or when I sit back on ...
615350 tn?1272602569
SaratogaNurseNov 11, 2009
SweetvelocityNov 11, 2009
rod44Nov 11, 2009
SaratogaNurseNov 11, 2009
7
By Sweetvelocity Blank
A dear friend of mine has this disease. I just learned about it a few days ago, but she has had it for a while. My qu...
Avatar f tn
selmaSBlankMay 23
Amarie17May 23
selmaSBlankMay 20
Amarie17May 20
selmaSBlankMay 19
5
By Amarie17
I had the chiari decompression laminectomy and duroplasty expansion done. During the surgery everything went well, bu...
12573102 tn?1431705217
selmaSBlankMar 19, 2015
LottidaMar 19, 2015
selmaSBlankMar 19, 2015
4
By Lottida Blank
Hi everyone. I just had my 2nd opinion with Dr Soleau (Chiari specialist) in Baton Rouge,LA. He looked at my MRI of...
Avatar f tn
lasel22May 22
selmaSBlankMay 22
3
By zomblvr
Hello everyone, My name is Amanda (zomblvr) and I live in Ohio. For the last several years I have had issues with ...
Avatar f tn
selmaSBlankMay 22
selmaSBlankMay 22
selmaSBlankMay 22
5
By serenedestiny
Hello, I recently got MRI results back, not checking for anything specific, doc sent me to a neurologist due to dizzi...
Avatar f tn
selmaSBlankMay 22
1
By nanaof14
I was told by my neurologist I had cerebellan extension of 7mm she said she would not refer me to a surgeon at this t...
Avatar f tn
selmaSBlankMay 22
1
By Jesnnesaum
Hi, I was in an car accident 1/2015. I have had head, neck, shoulder, and back pain on and off since then. I've ha...
Avatar n tn
lasel22May 22
BlueghostMay 21
KerriC1May 21
selmaSBlankMay 21
9
By Blueghost
I am three weeks post op, doing pretty well. Last Saturday I had a headache that built up through the day and by Satu...
Avatar f tn
1
By kristinelauren32
hi has anyone been given amitriptyline for chiari?? Does it work whats you experience with it please?
Avatar f tn
17
By orchidfae
This MRI was done in 2013. According to the Radiologist, it was "unremarkable" I have a Neuro appointment next week, ...
Avatar f tn
selmaSBlankMay 21
1
By kristinelauren32
Hi has anyone found a really good chiari doctor in melbourne?
Avatar f tn
selmaSBlankMay 21
MollpMay 21
selmaSBlankMay 20
3
By Mollp
Hi there, after a 2.5 year struggle with various debilitating symptoms my 17 yr old daughter has been diagnosed with ...
Avatar f tn
selmaSBlankMay 20
1
By Currissa1
OK guys I have CHARIMALIFORMATION 1 and 2 I have lived knowing about this since I was 12 years old I'm 22 now and I w...
Recent Activity
Avatar universal
Blank
MG18 uploaded new photos
May 28
Avatar universal
Blank
zomblvr uploaded new photos
May 22
Avatar universal
Blank
zomblvr joined this community
Welcome them!
May 22
Top Neurology Answerers
620923 tn?1452919248
Blank
Allentown, PA
Avatar universal
Blank
1306714 tn?1327260680
Blank
muskegon, MI
Avatar universal
Blank
7530528 tn?1428275172
Blank
TX
Avatar universal
Blank
Chiari Malformation Community Resources
RSS Expert Activity
233488 tn?1310696703
Blank
Marathon Running Done Over Many Yea...
05/15 by John C Hagan III, MD, FACS, FAAOBlank
233488 tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
05/15 by John C Hagan III, MD, FACS, FAAOBlank
748543 tn?1463449675
Blank
TMJ/TMJ The Connection Between Teet...
01/15 by Hamidreza Nassery , DMD, FICOI, FAGD, FICCMOBlank
Top Neurology Answerers
620923 tn?1452919248
Blank
Allentown, PA
Avatar universal
Blank
1306714 tn?1327260680
Blank
muskegon, MI
Avatar universal
Blank
7530528 tn?1428275172
Blank
TX
Avatar universal
Blank