Aa
A
A
Close
Chiari Malformation Community
This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.
1 - 20 (of 11547) questions
NEWEST
ACTIVE
Avatar universal
Hello! My recent MRI findings review "Minimal cerebellar tonsillar ectopia," which I'm learning likely refers to low laying cerebellum, a...
1 answer |
Avatar universal
Hi. I'm new here. I'm trying to make this short but let's see how I'll manage. It all started on 8th of March this year. Woke up and g...
3 answers |
Avatar universal
I just got back the results from a brain MRI. "Low-lying cerebellar tonsils are noted with findings consistent with Chiari Type I malform...
1 answer |
Avatar universal
Hi, Okay I have been having strange sensations all over my body. Mostly a electricity, tingling on small patches of skin all over my body...
2 answers |
Avatar universal
New to group: 04/06/16 Decompressed with C1 lami- autologous patch- severe post-op vomiting immediately following surgery- ended up wit...
1 answer |
Avatar universal
Hi! I recently had a MRI due to neck pain and headaches. I have a history of migraines with aura but 3-4 years ago started developing hea...
1 answer |
20175331 tn?1492634378
Hi! thanks to the community! it s great to find this forum i am very happy for that! i ve posted my MRI i would like someone say me some...
4 answers | 7 comments |
847512 tn?1272570662
Hi everyone, I just wanted to see what everyone's average recovery time was after surgery to at least feel back up to par to manage goin...
20 answers | 6 comments |
Avatar universal
I was just diagnosed with Thoracic spine pseudomeningocele and Chiari malformation. I also have scoliosis and NF1. I started having heada...
1 answer | 3 comments |
Avatar universal
So a couple months ago I got my mri results back and turns out I have type one chiairi malformation mine is down 7mm on one side and 5mm ...
3 answers |
620923 tn?1452919248
Hi, please let us know when you are having surgery so we can post a Prayer thread for you.....and it also gives a place for updates on yo...
3 answers | 1 comment |
1175033 tn?1492204828
I woke up on 12-13-16 with loss of my spacial awareness. The day before, I was under a lot of stress and had a somewhat traumatic event. ...
1 answer | 2 comments |
Avatar universal
One of my daughters has Chiari Malformation and a Primary Immunodeficiency (CVID). Her surgery was April 26th with a 15 mm herniation. Ho...
3 answers |
4286019 tn?1352220227
I began having constant double vision a little over a year ago which lead to my Chiari diagnosis on an MRI. I had a 20mm herniation and ...
6 answers |
Avatar universal
I was recently diagnosed with Chiari and had the decomprrsssion surgery 2 weeks ago. Headaches have worsen. Is this normal? Please help!
1 answer |
Avatar universal
Hi everyone, Looking for some advice on my first appointment with Dr. Dan Heffez. I don't have one scheduled yet because i'm waiting f...
2 answers |
Avatar universal
Hi all. I have some concerns and needed some direction. I was involved in a rather serious accident where I was hit by a speeding semi tr...
9 answers | 1 comment |
Avatar universal
Where do I even start? I received the diagnosis over the phone an hour ago. 3/17 I was admitted to the ER with stroke like symptoms: di...
2 answers | 4 comments |
Avatar universal
I was diagnosed with Chiari last fall and, for the last 6 months, have been going through the motions to simply make sure we eliminate ot...
1 answer | 2 comments |
Avatar universal
I was dx about 6yrs ago. I have headaches and bad headaches pretty much daily. I don't have any other bad sx though. No syrinx, no par...
3 answers | 1 comment |
A
A
Recent Activity
317787 tn?1473362051
Blank
Dee1956 commented on Belle313's status
19 hrs ago
317787 tn?1473362051
Blank
Dee1956 commented on It's me...
Apr 23
20175331 tn?1492634378
Blank
caszam uploaded new photos
Apr 21
Top Neurology Answerers
620923 tn?1452919248
Blank
Allentown, PA
1306714 tn?1327260680
Blank
muskegon, MI
Avatar universal
Blank
TX
Avatar universal
Blank
979826 tn?1389039958
Blank
germantown, MD
Avatar universal
Blank
Chiari Malformation Community Resources