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Chiari Malformation Community
This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.
1 - 20 (of 11511) questions
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Avatar universal
My son was diagnosed with a form of Chiari at age 7 following a vehicle accidental where his head hit the glass. His pediatrician sent us...
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I was involved in a bad auto accident by in 2009 and was hospitalized for five days. I suffered a rupture disc in my in my neck (C4&C5) ...
2 answers | 1 comment |
510038 tn?1489986629
I had a weird/terrifying experience last night not long after I had fallen asleep. I woke up and couldn't move or breathe and all I could...
2 answers | 1 comment |
Avatar universal
i have a chiari i am in so much pain all day everyday the older i get the more pain .i just like to fine someone that is in my shoe . kno...
13 answers |
7205189 tn?1447798338
I recently had what they called an "atypical migraine" where I began with having a blind spot at the center of my vision and it kind of g...
1 answer |
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I have been feeling unwell for years. My symptoms are: fatigue, vertigo, dizziness, blurred and sometimes double vision, pins and needles...
8 answers | 5 comments |
1078178 tn?1265073799
Hey guys, I am just writing to discuss my latest doctor experience and to possibly save a trip for some of you considering the Mayo Clin...
2 answers |
Avatar universal
I also have a herniated cervical disc and scoliosis
3 answers | 1 comment |
620923 tn?1452919248
This list is not a complete list of possible Specialists - This thread is here so Please continue to add your Drs names once you have b...
34 answers | 3 comments |
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Hello, new to the community. Was diagnosed a few years back and have seasonal symptoms. I agree with all comments about Chiros and trea...
2 answers |
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I am newly diagnosed in Dec and my GP initially said I don't need to see anyone at all but I have a lot of questions. Took my oldest son ...
2 answers |
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My daughter was diagnosed with Chiari back in 2012 , the doctor said he tested her for EDS and put in the titanium mesh plate. a few mon...
4 answers | 2 comments |
Avatar universal
I was diagnosed with CM1 back in November of 2016 with a 6mm herniation. Since then, I've seen a neurosurgeon and a neurologist who both ...
2 answers |
1303966 tn?1296743610
Can anyone tell me if they experience head or face twitching with their Chiari? I'm having a lot of twitching near my temples, very anno...
33 answers |
Avatar universal
Hello All, I was diagnosed last year with a 7mm Chiari malformation. I am extremely symptomatic and have been for 9 years now. I was t...
2 answers |
847512 tn?1272570662
Hi everyone, I just wanted to see what everyone's average recovery time was after surgery to at least feel back up to par to manage goin...
19 answers | 6 comments |
Avatar universal
I just had an MRI done yesterday and here are the impressions, can someone please explain in layman's terms? 1. No significant change or ...
1 answer |
Avatar universal
Hi everybody.. Does anyone know about invasive cervical traction with floroscopic guidance procedure? I am having this done is 8 days at...
4 answers | 2 comments |
Avatar universal
I had decompression surgery Feb of 2016. I had a nerve block in Oct 2016 and first round of botox shots 2016 and a round of Xeonim on Fe...
1 answer |
1303966 tn?1296743610
Last Sunday I woke up and went about my morning, and suddenly looked at the clock and realized I missed church. The night before, I was ...
33 answers | 2 comments |
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