Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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By Brandee75
Hello everyone I was recently diagnosed with CM. I have a 5mm herniation (laying down) with decreased csf flow. Th...
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travelingmind17 minutes
bean418Jul 11
selmaSBlankJul 10
selmaSBlankJul 10
5
By travelingmind
Hi everyone. I feel like I know you already as I've been reading these posts for a while. I was diagnosed with CM...
1679858_tn?1346768781
amanda27332 minutes
DarthMomMay 19, 2011
ajunebugMay 18, 2011
selmaSBlankMay 18, 2011
4
By lynnbrook177 Blank
I struggle every night, fighting with two pillows, then one. Has anyone been told that propping up your head at nigh...
620923_tn?1404844667
selmaSBlank2 hours
selmaSBlankJul 10
fro510Jul 09
selmaSBlankJul 08
fro510Jul 08
19
By selmaSBlank
Hi All this month's topic is to have surgery or not....the Drs leave that decision up to us..... Thoughts, experie...
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selmaSBlank2 hours
2
By disasterfullbeauty
I don't know how to get him to take the time to learn more or at least enuff about this disease to be more understand...
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selmaSBlank2 hours
Mel50569 hours
LizziniJul 10
6
By Mel5056
Hi guys, surgery was monday and I came home yesterday. I had the tonsils removed, vertebre cut and duration patch p...
1823499_tn?1370093889
selmaSBlank2 hours
1
By Sexybare
Hello again. It's been a long time since I've posted, but I was having a lot of chiari issues. I had a craniocervical...
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selmaSBlank2 hours
H5514 hours
selmaSBlankDec 30, 2013
H55Dec 30, 2013
selmaSBlankDec 29, 2013
30
By katiamarie Blank
Had a rough 5 days with severe waist hip low back pain. Had to go to er given pain meds. Had shaking vomiting hiccups...
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Mazee338 hours
oops199018 hours
mark1789Jul 07
oops1990Jul 06
selmaSBlankJun 08
12
By mark1789
Hi all, I am 25 and 15 years post op of decompression surgery for Arnold Chiari Malformation type 1 and a syrinx i...
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selmaSBlank19 hours
selmaSBlank19 hours
Cathy7651319 hours
Cathy7651319 hours
selmaSBlankJul 05
13
By Cathy76513
Kind of lost here, not sure what to do. I have talked to so many people with chiari that I do not want the neurosur...
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selmaSBlank19 hours
1
By A_Rare_Species_22
My daughter had surgery for ACM last August 2013 and the surgery was a success. Dr. Gary K. Steinberg, MD, PHD (Neur...
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cduqueJul 11
cduqueJul 11
selmaSBlankJul 11
19
By cduque
Good afternoon All, I am new here and recently diagnosed with CM1 by a local neurosurgeon. For over a year I was ...
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selmaSBlank23 hours
selmaSBlankJul 11
3
By Newbaby2812
Hi I've recently been diagnosed with chairi along with a syrinx. Does that mean I should have surgery?
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LabsnarkJul 11
selmaSBlankDec 23, 2013
kdm13Dec 22, 2013
Samanthab259Aug 26, 2011
*Stormy* Aug 25, 2011
7
By sinnet78 Blank
I started getting into running last spring- 2010. My throbbing head/pressure hit me out of the blue this past January...
620923_tn?1404844667
selmaSBlankJul 11
swatkindJul 11
selmaSBlankJul 09
5
By selmaSBlank
Hi all please wear your purple tomorrow July 9th to show awareness for Chiari and support as our friend heads in for...
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By bean418
http://mayfieldclinic.com/Tew_legacy.htm
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selmaSBlankJul 11
selmaSBlankJul 11
2
By Elisaandbucky
Lately, I am gathering the things that I think I will need for my upcoming surgery. I am flying from NC to NY and I w...
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selmaSBlankJul 11
rod44Jul 11
2
By disasterfullbeauty
So I have been diagnosed with chiari malformation but currently have no insurance and have not seen a doctor in 2+ ye...
620923_tn?1404844667
selmaSBlankJul 11
selmaSBlankJul 05
selmaSBlankJun 27
selmaSBlankJun 23
64
By selmaSBlank Blank
This list is not a complete list of possible Specialists - This thread is here so Please continue to add your Drs n...
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selmaSBlankJul 11
selmaSBlankJul 08
4
By Andrealoveshair
Hi. What are some things it can and can not do? To help with pain I'm a hairdresser. Love my job.
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