Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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Rgargac9 hours
baccalynnwv16 hours
23
By Rgargac
My 16 year old began having headaches which neuro diagnosed as migranes after he had hand surgery Oct 2013. Last Thu...
620923_tn?1416285879
selmaSBlank4 hours
SarahNew11 hours
selmaSBlankNov 05
manda2866Nov 05
selmaSBlankApr 25
200
By selmaSBlank Blank
Ok...we know what most Drs will accept as a chiari symptom...but, we also know we have many more symptoms that r chia...
620923_tn?1416285879
selmaSBlank4 hours
2
By selmaSBlank
Hi all Please wear purple tomorrow Weds, Dec. 16th to help raise awareness for Chiari and show support for our f...
7530528_tn?1415842914
selmaSBlank4 hours
1
By AKC_75
Hey everyone, I know its been a long time since I posted here but, just wanted to let y'all know that I have had 2 in...
11509747_tn?1418868111
selmaSBlank4 hours
selmaSBlank4 hours
2
By Supermanluvsme
Hi, I am a 44 year old woman whos had Chiari I for most of my life, I've learned to deal with my headaches and all th...
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Wyssa10 hours
baccalynnwv16 hours
Nellan12Dec 15
WyssaDec 15
13
By Wyssa
Hi guys! So I'll be scheduling surgery soon, and when I do, I plan on telling people about what I'm going through. My...
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baccalynnwv16 hours
selmaSBlankDec 16
ReneeA37Dec 15
6
By ReneeA37
Just diagnosed with Chiari and wondering what symptoms people initially had when diagnosed and what they become over ...
11405370_tn?1418081013
katie_m818 hours
selmaSBlankDec 09
katie_m8Dec 08
selmaSBlankDec 08
9
By katie_m8
It's a bit like the chicken and egg story.. what came first .. tonsillar descent or syrinx and which one do they fix...
11451522_tn?1418343022
Nellan12Dec 15
selmaSBlankDec 15
Arya83Dec 12
selmaSBlankDec 12
4
By Arya83
I have read through so many of the questions and answers, and appreciate everyone's time and information. I too have...
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selmaSBlankDec 15
selmaSBlankDec 11
3
By annelie1980
Hi Up until March 2013 I was pretty healthy then bam! I have been struggling since and have racked up quite a comple...
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selmaSBlankDec 15
0224Dec 13
selmaSBlankDec 12
3
By 0224
How long did it take after surgery for your balance to get better? Did it a ever go back to normal or just improve? ...
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ReneeA37Dec 15
selmaSBlankDec 14
3
By 1stTimeChiari
Hi, was curious, I tend to be getting panic attacks with my chiari. I was diagnosed less than a week ago but it's pre...
620923_tn?1416285879
By selmaSBlank
Hi All...please wear your purple tomorrow Dec.12th to help get awareness for Chiari and show support as o...
501469_tn?1417756010
selmaSBlankDec 12
bekah0656Dec 11
selmaSBlankDec 11
5
By bekah0656
I've had severe headaches since I've been decompressed last week I ended up in the ER due to the worst migraine of my...
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selmaSBlankDec 12
2
By happy1975
Hello! I have recently been diagnosed with an 8 mm herniation /chiari. My question is after seeing 2 neurosurgeons t...
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selmaSBlankDec 12
butboDec 12
selmaSBlankDec 10
butboDec 09
S_ChaneyDec 09
16
By butbo
Since I last was on here. Have been to a neurologist. He said I was a person that they don't know why I have a head...
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0224Dec 12
selmaSBlankDec 04
4
By 0224
IM 5 week post op. It seems like days change with my symptoms. Some days I feel my balance is better other days I fe...
624074_tn?1263877407
PhokoDec 12
selmaSBlankJun 09
selmaSBlankJun 09
65
By mama2twobabies Blank
Out of curiosity, what is the function of the cerebellar tonsils? I can't find their exact function. I can find the c...
11368261_tn?1418764653
selmaSBlankDec 11
selmaSBlankDec 09
14
By alixchiari
15 yrs ago I was in a car accident, had a whiplash injury and concussion. A MRI showed ACM I and I had a decompressi...
11380154_tn?1417709526
6
By chanelcrazy
Hello, I was a very healthy person until 2 years ago. I went into the ER with symptoms that mimic Meningitis. The ER ...
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Post Chiari I malformation surgery....
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