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Chiari Malformation Community

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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Avatar universal
I just last week had a posterior fossa decompression and duraplasty. Have an expanding syrinx at c7, and cine MIR showed obstructed flow posterior. Chiari itself is bordeline 1. My neurosurgeon, who doesn't explain much, said i had a rea...
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my sons MRI scan got sent to neurology they have come back with this cerebellar tonsils descend by 5mm, is this chirai ? does anyone know please
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Hi I'm new to the whole Chiari 1 malfunction world as I was barely told today that I had it. Something that was a shock to me at first but definitely explained a lot from stuff that happened in the past. My question tho is if the malfunc...
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Avatar universal
Hi everyone! I'm 9 months post-op (decompression, laminectomy, and duraplasty). I was wondering if anyone else has dealt with extreme fatigue AFTER their decompression. I was not really affected by fatigue before my surgery, but over the...
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I am 17 and was diagnosed about five years ago. I have severe anxiety and my brain never feels normal. I feel so embarrassed by how I feel but when I try to explain it to other people no one understands. does anyone else feel this way
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Hi everyone! I'm new here. My 6yo daughter is 3 weeks post op and 1 week since a csf leak. Her ns restitched her at the time of the leak and out her in bed rest. We haven't had anymore leaking, just some swelling that comes and goes. Las...
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Just thought I'd share a little story that made me shake my head and laugh. I needed to have a biopsy of my thyroid done and a radiologist performed it. I made a comment that I was more nervous about lying with my neck extended for 15...
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Got results from brain MRI yesterday and I am devastated! He said no Chiari! Brain atrophy! Will be doing spinal tap in a couple of weeks. My question is.....do I ask someone else to read this MRI? I have all the symptoms of Chi...
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I had my 6 month MRI and post op appointment and found out I do have mild to moderate craniocervical instability and most likely occult tethered cord, neither bad enough for surgery at the moment. I can't help but wonder if I was fused ...
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i just saw my ns for a follow up appt to review my mris and cine, my spinal fluid is not flowing properly! But I have on syrinx at this time ! My ns is leaving the surgery up to me! Iam confused and don't know what to do can someone plea...
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Avatar universal
Hey everyone, new here. I'll start with my issues... 1. type 1.5 chiari with 14 mm descent 2. Basilar invagination 3. platybasia 4. cranio cervical flexion deformity and a craniectomy/c1 laminectomy 2 years ago. When I had the d...
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Hi all, I was here some time back looking for some support and answers after I had a questionable MRI. I saw a neurosurgeon familiar with chiari; I had the cine flow and c-spine MRIs just recently with return visit today. He told me t...
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Avatar universal
This is my first post in a forum or support group.This forum pops up recurrently if I am searching for something Chiari related so thank you for being here. I am 21 days post-op. The occipital, frontal, temple area headaches are intracta...
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I'm 5 days post op, so far so good. I am off the narcotics. Right now the annoying stiff feeling of the patch/insision is bothering me. About how long before it starts to feel more normal? I can't turn my head more than a few degrees eit...
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Avatar universal
I was diagnosed 4-21-16 with Severe Type 1 Chiari and will have surgery when all pre-op tests (EKG, X-ray, bloodwork and a complete spine MRI) are done. I also have DDD and Spinal Stenosis and applied for disability before my Chiari dia...
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Avatar universal
Hello All ~ I was diagnosed in March with Chiari Malformation Type I. I have yet to see the neurologist, with the appointment being June 6th. I was diagnosed after a long period of debilitating migraines. My doctor sent me for an MRI ...
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Avatar universal
4 days ago I had surgery. Now I have more severe vertigo. I can do stuff I couldn't do before, such as stand in one leg but walking is hard. Is this normal? NS seems not concerned at all and says surgery went perfect. When I brough this ...
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Avatar universal
I have been dealing with Arnold chiarimalformation since I was 13 I'm now 24. I've finally found a NS who will listen and recommends the decompression surgery.I'm nervous and worried. I haven't been able to find really anything on the re...
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Avatar universal
So far so good. I'll post most later. Thanks for the prayers, comfort and wishes!!
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Avatar universal
Hey there, I don't post often but I'm here again. I'm really declining in health and my symptoms are getting more severe with new ones happening also. I have had brain MRI, cervical spine MRI and a cine flow MRI. The NS I sent my brain ...
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