Aa
A
A
Close
Chiari Malformation Community
This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.
1 - 20 (of 11597) questions
NEWEST
ACTIVE
Avatar universal
Is there a list somewhere that can be found? My son's current NS is really pushing us to have an ICP Monitor and then most likely a de...
1 answer |
20562342 tn?1500770982
It has been at least 8 years since I was diagnosed with a chiari type 1. I saw a neurosurgeon very soon after. He determined at that time...
1 answer | 3 comments |
Avatar universal
I live in Southwest Missouri and have recently been diagnosed with Chiari Type 1. The local physicians have referred me to a neurosurgeo...
4 answers | 1 comment |
Avatar universal
I am 3 weeks post-op today. I am experiencing a lot of stiffness and a throbbing pain on the left side of my neck. I also get light heade...
1 answer |
620923 tn?1452919248
Hi, please let us know when you are having surgery so we can post a Prayer thread for you.....and it also gives a place for updates on yo...
18 answers | 22 comments |
1375086 tn?1278707565
Hi there Have been diagnosed with CFS 4 years ago, all symptoms became worse so went back to my GP - finally got to see a nurologist, wh...
14 answers | 2 comments |
Avatar universal
I am currently entering week 7 post Chiari decompression surgery. I have had a pretty rough recovery but felt I was turning a corner week...
2 answers | 2 comments |
Avatar universal
Which doctor at UAB in Birmingham performed your surgery? My granddaughter has just been told she has Chiari Malformation type 1 but is ...
4 answers | 2 comments |
Avatar universal
Does anyone know of any Chiari specialists in either the Atlanta or Nashville, TN area? Or have recommendations for neurosurgeons who do ...
1 answer | 1 comment |
Avatar universal
Hi everyone, I am trying to avoid thinking about this too much but everytime I get the headache it drives me insane, it lasts for days...
1 answer | 2 comments |
Avatar universal
Hi - I had decompression 9/2011 and tethered cord release 4/2012. My 10 year old daughter is having decompression July 26 and tethered co...
1 answer | 1 comment |
Avatar universal
Hi all, I am new here and was diagnosed with syringomyelia (syrinx in my spinal cord) about two months ago. Thankfully I do not have cha...
1 answer | 4 comments |
Avatar universal
This is how it all started with the swelling in 2009. Four weekends in a row they'd keep me three days and release me after getting the s...
1 answer | 3 comments |
Avatar universal
Hi. I had Chiari Malformation in 2008. I had no syrinx at the time. I had decompression surgery. Now, I have two small syrinx and pro...
1 answer | 5 comments |
620923 tn?1452919248
Hi ALL...Please wear your Purple on June 15th, to help gain awareness and show support as our new friend heads in for surgery. Sendin...
4 answers | 5 comments |
Avatar universal
Okay, so I have Chiari type 1 which for most of my life (I'm only 17) was asymptomatic (besides a few things). This past year though it h...
4 answers |
19681337 tn?1490559461
Hi everyone :) I was diagnosed with Chiari back in August after getting a series of scans to address severe recurring migraines and numbn...
3 answers | 2 comments |
Avatar universal
One of my screening tests reported Cardiomegaly as an incidental finding? Could this be connected to Chiari Malformation.
2 answers |
8170270 tn?1413848935
Just wanted to see if anyone has had a similar experience if so what was your method of treatment? I had decompression surgery in 2014...
2 answers |
Avatar universal
Hi, I'm having symptoms very similar to those I see described for Chiari Malformation and as I look back at my symptoms over the past 20-...
1 answer |
A
A
Recent Activity
987762 tn?1331031553
Blank
supermum_ms commented on aspen2's status
9 hrs ago
Avatar universal
Blank
nick_gadekar commented on The Turbinates: What ...
Jul 24
317787 tn?1473362051
Blank
Dee1956 commented on meegWpaw's status
May 23
Top Neurology Answerers
620923 tn?1452919248
Blank
Allentown, PA
1306714 tn?1327260680
Blank
muskegon, MI
Avatar universal
Blank
TX
Avatar universal
Blank
979826 tn?1389039958
Blank
germantown, MD
Avatar universal
Blank
Chiari Malformation Community Resources