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Chiari Malformation Community
This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.
1 - 20 (of 11631) questions
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Avatar universal
My surgery was done 7/11/2017. I had a craniotomy with duraplasty. The symptoms were all gone for about 6 weeks until I got my hair don...
1 answer | 2 comments |
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Hi, All. I'm a newbie. My daughter Jessica was just diagnosed with Chiari 1 malformation 10mm descent. She has been sick for two years...
1 answer | 2 comments |
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I have been starting to have hallucinations. Every time i hallucinate i get a bad chiari headache and one side of my body goes extremely ...
2 answers | 4 comments |
7432831 tn?1390867965
16 y.o. has acquired mild Chiari from a head injury, extremely symptomatic (over 40 symptoms that appeared immediately after the injury) ...
1 answer |
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My new Neurologist just told me a couple of months ago that I have Chiari Malformation. My old Neurologist didn't tell me ,but she sent t...
1 answer |
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Hello, I have been living with a Chiari 1 Malformation for the last 19 years, I also have many hernaieted and bulging disc in my neck as ...
1 answer |
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Hi, I'm a 19 year old female who has been diagnosed with Chiari I Malformation (12.3 mm). I am having surgery in a couple of weeks (decom...
3 answers | 2 comments |
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After years of head aches and passing out spells I was diagnosed with Chiari 1 in March of this year. When I got the news, I didn't know...
29 answers | 4 comments |
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Hi. I am looking for an adult neurosurgeon in Rhode Island or Massachusetts specializing in adult Chiari 1 Malformations. Does anyone k...
4 answers | 3 comments |
1759188 tn?1324681908
i called dr butler at mgh he does the surgery , does a month 6 month and 1 yr after surgery i would have to get a ns for any p...
3 answers |
620923 tn?1452919248
What are you doing to help raise awareness of this condition? We can post facts about the condition in this thread and share with others...
1 answer | 2 comments |
20720577 tn?1504619221
Hi all, I have been diagnosed with Chiari 1 (7mm herniation of tonsils) one month ago. The MRI shows that the CSF flow is normal and n...
1 answer |
Avatar universal
Hello everyone, So I seem stuck in the same cycle over and over again, wanting to know whats wrong wkth me. My heniation is very m...
1 answer |
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I have a 5mm CM. Spinal fluid is fine but i am very symptomatic. Because my fluid flow is fine, should i not being symptomatic? Is it all...
1 answer |
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I was recently diagnosed with Chiari Malformation after a year of dizziness. This is my only symptom. Sometimes it feels like 'classic' d...
1 answer | 3 comments |
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Hi all. I have a neurosurgeon appt Thursday (not a chiari specialist) for the 3 herniations I currently have. 2 of them are significant a...
3 answers | 5 comments |
Avatar universal
I have Chiari 1 Malformation, and nocturnal epilepsy(meaning I only have seizures in my sleep, but every time I have one I stop breathing...
1 answer |
Avatar universal
Hello I recently had an MRI for prolactinomas due to fertility problems and the incidentally also found that my cerebellar tonsils des...
10 answers | 2 comments |
Avatar universal
Hi! I've been decompressed for 2 and 1/2 years. I occasionally still get headaches and it seems to be happening more frequently as of lat...
3 answers | 1 comment |
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29 yo female. Had the decompression and C1 laminectomy surgery August 15 and the first few days went really well. I was told the surgery ...
1 answer |
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