Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlank6 hours
1
By suzie123456789
Hi i have chiair and had brain surgery in 2004 i also have MS im fighting with ss for a wheelchair my husband and i b...
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selmaSBlank8 hours
1
By linz0214
Hi all, I'm new to this forum. I've been dealing with all kinds of symptoms for years beginning when I was around 14...
9432311_tn?1424647329
selmaSBlank9 hours
1
By Elisaandbucky
Had the O-C2 fusion surgery on Apr 15th. Took 3 days before she started to feel better and get to the point where she...
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selmaSBlank9 hours
Thumper036517 hours
rod44Mar 19, 2011
jacmurphyMar 19, 2011
lisaob1Mar 18, 2011
6
By lisaob1 Blank
my daughter had an mri scan almost three years ago which found she had a 9mm syrinx,she should of by now had another ...
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selmaSBlankApr 17
duff9Apr 17
selmaSBlankApr 17
3
By duff9
Just wondering if anyone has Adhd as well as Chairi and if they take meds for it. I had my son whos 9yr at the peadit...
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selmaSBlankApr 17
mattnmomApr 16
selmaSBlankOct 02, 2014
JAMBAY1998Oct 02, 2014
KSt1kingMar 19, 2013
22
By bulldogmommy30 Blank
Hi guys & gals, I am so glad that I found you! I was just told I have Chiari this week. My biggest issue is numbness...
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selmaSBlankApr 16
Lynnrae64Apr 16
selmaSBlankApr 16
Lynnrae64Apr 16
selmaSBlankApr 15
6
By Lynnrae64
Been off work since October, with bulging disc, C3-c7, spondylosis, stenosis, chiari, now depression and anxiety. Had...
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LottidaApr 16
selmaSBlankApr 15
2
By joefrede
Please help. I am basically on my last leg, so to speak. 2 years back I was having constant headaches, so I went to n...
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selmaSBlankApr 16
ihaterainApr 16
derek1983Oct 24, 2013
selmaSBlankOct 23, 2013
wonderchiariOct 23, 2013
9
By wonderchiari Blank
Is there any big connection between chiari and changes in barometric pressure..I cannot tolerate a cold enviroment an...
620923_tn?1426651955
Lynnrae64Apr 16
selmaSBlankApr 14
3
By selmaSBlank
Hi all please wear your purple tomorrow April 15th to help gain awareness for Chiari and support our friend as she he...
7489440_tn?1422931913
selmaSBlankApr 15
selmaSBlankApr 15
3
By kwalker0004
Today I visited with my NL, the new symptoms I been having is caused by two pinched nerves in my neck. According to h...
620923_tn?1426651955
selmaSBlankApr 15
selmaSBlankFeb 07
selmaSBlankJan 26
selmaSBlankOct 15, 2014
selmaSBlankMar 15, 2014
24
By selmaSBlank Blank
Applying for social security disability and SSI benefits, with or without an advocate can be difficult due to how lon...
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selmaSBlankApr 14
1
By annelie1980
I had severe reactions to Endep....i know there are alternatives. Can I ask what other people use for chronic headach...
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selmaSBlankApr 10
duff9Apr 10
selmaSBlankApr 10
5
By samsam5mom
So my 5 yr old had decompression surgery 3 months ago. He also has 2 big syrinxs and a chain of smaller ones. Surgery...
1679858_tn?1346768781
8
By lynnbrook177
Hi again, it's been a while, My symptoms have increased lately :(. Since September, the ear fullness has strengthe...
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selmaSBlankApr 05
3
By LaSeca
Does anyone know of a Chiari Specialist in Winston-Salem N.C.? I was diagnosed in May of 2009. The PCP I was seeing m...
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selmaSBlankApr 14
sandy629Feb 11, 2012
SilentSong101Jan 31, 2012
cynderskiJan 31, 2012
8
By cynderski Blank
I am 7months post PFD and duraplasty. Still get some pretty intense headaches, numbness and weakness in my left hand,...
7205189_tn?1391480865
selmaSBlankApr 14
selmaSBlankApr 12
4
By NicoleAdia
I have been diagnosed with Chiari and Ehlers Danlos Syndrome. and I've been dealing with extreme nausea for the past ...
847512_tn?1272570662
selmaSBlankApr 14
scotyhApr 13
selmaSBlankApr 13
scotyhApr 13
selmaSBlankAug 12, 2009
7
By Devin215 Blank
Hi Everyone I need some help with deciphering a term my NS used on a e-mail to me this morning....I told him about my...
9768260_tn?1405873803
selmaSBlankApr 13
selmaSBlankFeb 27
GruntyFeb 27
selmaSBlankDec 26, 2014
12
By Grunty Blank
Hi, I have been diagnosed with Cerebellar Tonsillar Ectopia (6mm). My question is.... Is it the same as Chiari Malfor...
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