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Chiari Malformation Community
This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.
1 - 20 (of 11659) questions
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Avatar universal
I’ve been dealing with ongoing symptoms for years that have progressed. I deal with daily brain fog lightheaded spells blurry vision off ...
5 answers | 10 comments |
Avatar universal
Does anyone know of a Chiari Specialist in Kentucky? I was diagnosed with Chiari I and Decompressed in September of 2006. Slowly but su...
10 answers | 2 comments |
Avatar universal
I have this week been diagnosed with Chairi 1 Malformation, it's has taken nearly 11 years to get here. I'm waiting to see neurosurgeon f...
1 answer |
7432831 tn?1390867965
16 y.o. has acquired mild Chiari from a head injury, extremely symptomatic (over 40 symptoms that appeared immediately after the injury) ...
2 answers | 30 comments |
Avatar universal
Hi everyone, I have recently been diagnosed with a chiari malformation after an MRI following onset of daily "stabbing" headaches. I get...
1 answer | 3 comments |
20791471 tn?1509653962
I went to Indy to meet with a neurosurgeon there. Long story short, he told me that the only symptoms he can verify are from the chiari a...
1 answer | 2 comments |
Avatar universal
hc1
Hi everyone and thanks for any help you can give me. I have a long story and I will try to summarize why I am posting in this group. ...
1 answer |
Avatar universal
I was perscribed Gabapentin which is generic for Lyrica, I believe. I was perscribed this prior to my diagnosis and my insurance just ap...
22 answers | 3 comments |
992677 tn?1497486696
Has anyone here seen Sarel Vorster, MD?
2 answers | 2 comments |
Avatar universal
Got my results from MRI and it states that it is "normal MRI of brain" but shows that there is a "cerebellar tonsillar ectopia of 2-3 mm"...
3 answers | 4 comments |
Avatar universal
I ended up at the neurologist because the ENT thought I had MS based on my vertigo, persistent nausea, and my lack of coordination and ba...
1 answer | 8 comments |
Avatar universal
And if so, what has your experience been with Chiari specialists? Was your diagnosis originally ignored or denied?
1 answer |
20791471 tn?1509653962
So, I went and saw my NS and he has diagnosed me with a Chiari 1.5. I never even knew it was a thing. He said that along with my cerebell...
1 answer | 2 comments |
Avatar universal
I am a 20 year old female who has been suffering a long time. I need help finding an intelligent neurologist who thinks outside of the bo...
2 answers | 18 comments |
Avatar universal
Hi all, this is probably the shortest possible way i can write all of this down i apologize Long story short, i have abused DXM in sup...
1 answer |
1968463 tn?1374761413
Sorry guys, I guess I got one of the remedies mixed up in my head. The "Robitussin" treatment helps with the widespread pain...I'm guessi...
16 answers |
Avatar universal
Hello all, pleased to meet you. Looking for a dr for Chiari in Oklahoma or N. Texas My situation derives from Vitamin D deficient Ric...
1 answer |
Avatar universal
looking for others with Syringomyelia only (NO chiari) in Ontario.
2 answers | 1 comment |
Avatar universal
Hi, I am having surgery next Monday with one of the best neurosurgeons in the country. I am very nervous, was just wondering how long eve...
1 answer | 6 comments |
Avatar universal
I have had a headache for a month straight. I have been to the E.R. more than once. I have had CT scans and M.R.I.s I had a fusion done i...
1 answer |
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