Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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Lottida1 minute
Robbyd13293 hours
crae925 hours
3
By Robbyd1329
Odd topic :) Well I've been fighting a good bit here with all this going on. On the 8th of July I see the hospital...
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Koja216 hours
lasel22Jun 09
selmaSBlankJun 09
4
By rockybear
Hi, I've been experiencing dizziness, like vertigo, for about 2 years. It puts me flat out for hours and sometimes d...
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Koja21Jun 30
LottidaJun 30
Koja21Jun 29
selmaSBlankJun 29
Koja21Jun 29
8
By Koja21
Had C1 Laminectomy, duraplasty on April 2, 2015. 2 weeks later developed a surgical site infection & needed a surgica...
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By crae92
Hi. I'm ten years post-op and I still experience symptoms aswell as migraines. For as long as I can remember, the ...
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Koja21Jun 30
selmaSBlankMar 12, 2012
linnielou232Mar 12, 2012
Debby39Mar 12, 2012
linnielou232Mar 12, 2012
7
By Debby39 Blank
I got the Chiari Decompression Surgery on Jan. 23rd 2012, I also had a Syrinx. I was in the hospital 5 days and then ...
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kshipleyFeb 24, 2014
selmaSBlankFeb 24, 2014
kshipleyFeb 24, 2014
kshipleyFeb 23, 2014
13
By kshipley Blank
I had decompression surgery in 07 for chiari malformation type 1. I started having severe neck pain 6 days ago. I can...
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MaLuisa63Jun 29
MaLuisa63Jun 29
selmaSBlankJun 25
MaLuisa63Jun 25
selmaSBlankJun 23
6
By MaLuisa63
Hi I had a chiari decompression surgery done April 28 2014 and three months after that I went to see my NS for a foll...
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marsha76Jun 29
patman817Jun 29
patman817Jun 29
selmaSBlankJun 29
selmaSBlankJun 19
42
By selmaSBlank
Hi All, in order to post a Prayer Thread for you, please post your date here on this thread so we know u would lik...
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selmaSBlankJun 29
dawnnm16Jun 22
selmaSBlankJun 20
3
By dawnnm16
Hi my 15month old was born with chiari 1 along with lobar holoprechaphaly and hydrocephalus.. She has a shunt which s...
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selmaSBlankJun 29
selmaSBlankJun 26
38
By Endeavour33
Hi. I am 16 years old, and my symptoms started 2 months ago, with a migraine. It went on for a wee or two, and I fin...
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selmaSBlankJun 29
LottidaJun 28
2
By paulinsomniac
HI, does anyone get chiari malformation symptoms that last for a few months (or longer), then seem to go into remissi...
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selmaSBlankJun 29
patman817Jun 29
selmaSBlankJun 29
LottidaJun 29
patman817Jun 28
8
By patman817
I have Chiari Malformation with a 5-6mm herniation I go see a neurosurgeon in the Morning and i was wanting to know W...
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selmaSBlankJun 29
lasel22Jun 29
2
By paulinsomniac
Does anyone get eye pain and vision problems? i.e. the vision doesnt look quite 'right' accompanied by pain in the ey...
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socceroJun 29
selmaSBlankJun 27
2
By lasel22
I have what may be a silly question, but its been on my mind. I am in the process of scheduling surgery, but first I...
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selmaSBlankJun 26
1
By dreagensmommy
Okay 3 weeks post op, will be 4 weeks on Monday. But i was wondering if anyone else has experienced this, If i laugh ...
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selmaSBlankJun 26
LottidaJun 26
selmaSBlankOct 15, 2012
12
By ga_mom Blank
"I've been experiencing almost constant light-headedness (almost a "fuzzy" feeling in my brain), headaches, visual di...
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selmaSBlankJun 26
LottidaJun 24
selmaSBlankJun 23
5
By dreagensmommy
Well folks i am officially 3 weeks post op! Getting a little better every day! My first week was terrible. I had a ba...
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selmaSBlankJun 23
selmaSBlankJun 23
3
By Aliciabear
Hi I had surgery 10 years ago for chiari malformation I have been doing good until recently I have has a headache for...
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selmaSBlankJun 23
dawnnm16Jun 23
selmaSBlankJun 23
dawnnm16Jun 22
dawnnm16Jun 22
309
By lollypop28 Blank
type 1 chiari malformation, does it get worse and is it heredity?
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selmaSBlankJun 23
1
By CamiRein
I'm a 17 year old female and I had chiari decompression surgery on May 26th, almost a month ago. Recently I've notice...
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