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Chiari Malformation Community
This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.
1 - 20 (of 11448) questions
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Avatar universal
Hello, my name is Allen, a 22 year old male. I will try and compress my story, but I still want to explain everything in detail that I...
4 answers | 5 comments
  Tibberz,    Tibberz,    selmaS ,    Tibberz,    selmaS
Avatar universal
Hi there:) I am having an awful time right now and I don't know what to do. A little about what's going on...3 years ago, I started havin...
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Hi Everyone, I'm a 30 year old woman, in the uk. Having occasional headaches this year but since July I've had a daily throbbing heada...
19383564 tn?1477513584
Please thank your Community Leader selmaS for her 8 years of leadership in Chiari Malformation. Hooray, Selma!
5 answers
  KerriC1,    ChiariWolf,    Lidiaggl,    selmaS ,    rod44
Avatar universal
Hey guys, sorry it's been a little while since I've posted. Just wanted to update a little. I found a very good neurologist who says I ha...
14 answers | 1 comment
  KerriC1,    ChiariWolf,    KerriC1,    selmaS ,    ChiariWolf
Avatar universal
I just wanted to know because my brother will be having the surgery soon.
Avatar universal
My daughter was diagnosed with Chiari back in 2012 , the doctor said he tested her for EDS and put in the titanium mesh plate. a few mon...
2 answers | 1 comment
  selmaS ,    JeannieBrackett,    selmaS
Avatar universal
I am 2.5 months out from my decompression surgery and have started having shooting pains in my head almost like needles jammed in. I hav...
1 answer
  selmaS
620923 tn?1452919248
Hi I wanted to get a list started for those of you in Canada...I am not sure if these drs r indeed chiari specialists, but found their na...
71 answers | 4 comments
  shelleym01,    UKchiari,    UKchiari
Avatar universal
These answers has helped me also. I just had the surgery August 4, 2016 it has been 4 weeks now and I know I have a while to go before Im...
5 answers | 5 comments
  AKRawlings,    selmaS ,    Chris0819,    Chris0819,    selmaS
Avatar universal
My girlfriend has chiari and sometimes when I give her an orgasm, she has a sharp pain in her head and gets dizzy. Any ideas on how the s...
11 answers | 1 comment
Avatar universal
I would like to know if anyone else has ha a similar experience. If anyone has had the surgery, and if so where and with who? who do you ...
1 answer
  selmaS
2120085 tn?1344769510
Thursday I had to leave work because all of a sudden my right side went numb and I started shaking, I had to pace back and forward I was ...
17 answers
  Mumsymel,    Mumsymel
Avatar universal
I have been feeling unwell for years. My symptoms are: fatigue, vertigo, dizziness, blurred and sometimes double vision, pins and needles...
4 answers | 2 comments
  selmaS ,    ChiariWolf,    BethAnne85,    BethAnne85,    selmaS
Avatar universal
Hi everyone, I wanted to give everyone an update. I had my decompression surgery on October 24th. I came home on the 26th. Has anyone st...
4 answers | 6 comments
  mindyk14,    selmaS ,    mindyk14,    mindyk14,    selmaS
1929539 tn?1327254032
For those of you who've developed a pseudomeningocele after your surgery..... How was it treated?
8 answers
Avatar universal
What is the vomiting caused by? My brother was diagnosed with Chiari Malformation type 1, he is vomiting everyday and it varies. Does any...
1 answer | 1 comment
  lakshmishabu,    selmaS
Avatar universal
hi - i was wondering if any had lost their license due to chiari and if you ever got them back. I have many chiari related problems - ...
14 answers | 1 comment
  selmaS ,    Paula8138
Avatar universal
Hey Everyone, I need some help diagnosing Chiari, I have suffered all of my life from pressure, pain&stiffness in my neck - two spots, b...
1 answer
  selmaS
Avatar universal
28 year old male here. I was out with a friend when suddenly I felt very dizzy and lightheaded like I was about to pass out, then my hear...
2 answers | 1 comment
  selmaS ,    jq1106,    selmaS
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