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Chiari Malformation Community
This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.
1 - 20 (of 11544) questions
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Avatar universal
Hi, Okay I have been having strange sensations all over my body. Mostly a electricity, tingling on small patches of skin all over my body...
2 answers |
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New to group: 04/06/16 Decompressed with C1 lami- autologous patch- severe post-op vomiting immediately following surgery- ended up wit...
1 answer |
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Hi! I recently had a MRI due to neck pain and headaches. I have a history of migraines with aura but 3-4 years ago started developing hea...
1 answer |
20175331 tn?1492634378
Hi! thanks to the community! it s great to find this forum i am very happy for that! i ve posted my MRI i would like someone say me some...
4 answers | 7 comments |
847512 tn?1272570662
Hi everyone, I just wanted to see what everyone's average recovery time was after surgery to at least feel back up to par to manage goin...
20 answers | 6 comments |
Avatar universal
I was just diagnosed with Thoracic spine pseudomeningocele and Chiari malformation. I also have scoliosis and NF1. I started having heada...
1 answer | 3 comments |
Avatar universal
So a couple months ago I got my mri results back and turns out I have type one chiairi malformation mine is down 7mm on one side and 5mm ...
3 answers |
620923 tn?1452919248
Hi, please let us know when you are having surgery so we can post a Prayer thread for you.....and it also gives a place for updates on yo...
3 answers | 1 comment |
1175033 tn?1492204828
I woke up on 12-13-16 with loss of my spacial awareness. The day before, I was under a lot of stress and had a somewhat traumatic event. ...
1 answer | 2 comments |
Avatar universal
One of my daughters has Chiari Malformation and a Primary Immunodeficiency (CVID). Her surgery was April 26th with a 15 mm herniation. Ho...
3 answers |
4286019 tn?1352220227
I began having constant double vision a little over a year ago which lead to my Chiari diagnosis on an MRI. I had a 20mm herniation and ...
6 answers |
Avatar universal
I was recently diagnosed with Chiari and had the decomprrsssion surgery 2 weeks ago. Headaches have worsen. Is this normal? Please help!
1 answer |
Avatar universal
Hi everyone, Looking for some advice on my first appointment with Dr. Dan Heffez. I don't have one scheduled yet because i'm waiting f...
2 answers |
Avatar universal
Hi all. I have some concerns and needed some direction. I was involved in a rather serious accident where I was hit by a speeding semi tr...
9 answers | 1 comment |
Avatar universal
Where do I even start? I received the diagnosis over the phone an hour ago. 3/17 I was admitted to the ER with stroke like symptoms: di...
2 answers | 4 comments |
Avatar universal
I was diagnosed with Chiari last fall and, for the last 6 months, have been going through the motions to simply make sure we eliminate ot...
1 answer | 2 comments |
Avatar universal
I was dx about 6yrs ago. I have headaches and bad headaches pretty much daily. I don't have any other bad sx though. No syrinx, no par...
3 answers | 1 comment |
20175331 tn?1492634378
someone know why our left side is worse than our right? i mean in my case my left arm is very painful and i ve read here more cases like ...
1 answer |
Avatar universal
Hello. I am new to chiari. I was diagnosed with a Chiari 1 malformation. My herniation is 10mm. At this time I am trying to hold off on s...
14 answers | 2 comments |
Avatar universal
Please help I have just been diagnosed with the chiari malformation and I am so so scared I have two very small children and I am so frig...
34 answers | 7 comments |
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