Chiari Malformation Community
This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.
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4
By mickma2 May 23, 2013
Hi everyone! I'm 30 and recently was diagnosed with Chiari malformation type 1, 7mm ext. I hit my head pretty hard...
By girlinxile 4 hours
Hi, new to the forums and very grateful they exist :)
So I had headaches for many years and kinda just got so used t...
5
By Lifesvr7 May 23, 2013
I get random chills and goosebumps on one body part at a time (like just my left leg). Sometime it can rapidly switch...
7
By soccero May 23, 2013
I know we've done this before but just for fun who wants to do it again ? I'll start
U no u have Chiari when u hit u...
15
Hi there...I have had vertigo for several months now and the doctors cannot explain medically why this is happening t...
17
By GavinsMom83 May 14, 2013
Hi Everyone!
I am 30 years old and just found out TODAY through MRI results that I have Chiari Malformation and it ...
32
By selmaS
May 09, 2013
May 09, 2013
Hi ALL...wondering....
What do u feel is the biggest CHANGE to u since ur DX?
By Viva001 May 23, 2013
I am 11 months post-op, and for some reason (maybe the tick fever),I am experiencing unmanageable head pain. I have ...
Hello...I have chiari 1 and all chiari expert says I am not surgical. However I will go months with my head only hurt...
7
By nsalem656 May 20, 2013
While in the ER for extreme neck pain (still post op less than a year out) when I was trying to relieve my pain by ke...
By selmaS Nov 27, 2012
Nov 27, 2012
Hi All here is a new thread for listing surgery dates that fall in the New year. I ask u all post on this thread ur d...
3
By lookingforanswers_2013 May 23, 2013
I have my first appointment with a Chiari specialist next week. I do not have a diagnosis yet this will be my first a...
cminor5May 23
1
By cminor5 May 23, 2013
Hey I canceled my surgery date for 6-13-13. I will let you know if I re-schedule. Waiting to have Cine MRI to see if ...
By popeye8j May 18, 2013
Is my CSF flow blocked? I am awaiting the radiologist report. Thanks!
frankie_rushMay 23
2
By Ransomnote May 22, 2013
Im 2mths post-op today & have been going to physical therapy for 1mth. Can anyone recommend ANYTHING to do about the...
11
By soulmeetsbody May 14, 2013
I was diagnosed with cm1 in June 2012. I had a baby in November 2011, and symptoms began at the end of my pregnancy. ...
5
By Deulley87 May 20, 2013
Hi everyone, just checking in to say hello and give an update. I'm currently 1 month post op, doing well with the hea...
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