Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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By hope2456
Please help by providing a list of neurologists who treat symptoms for syrinx and cm1 in southeast pa or leigh valley...
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isabel060813 hours
KerriC123 hours
selmaSBlankJul 27
3
By KerriC1
This is Kerri's daughter, she headed back for surgery about 10 minutes ago. We have all the faith in her doctor and a...
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isabel060815 hours
selmaSBlankJul 26
selmaSBlankJul 25
4
By isabel0608
Hi everyone. My name is Isabel and I was diagnosed 2 weeks ago with tonsils at 11 and 14 mm respectively. I am 42 an...
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Lottida15 hours
selmaSBlank20 hours
KerriC121 hours
selmaSBlank21 hours
KerriC123 hours
6
By selmaSBlank
Hi all please wear your purple to gain awareness for Chiari and show support for our friend as they head in for surge...
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Lottida15 hours
1
By angie_zagami
I received my decompression surgery almost 2 years ago, but am still experiencing severe headaches, nausea, vomiting,...
620923_tn?1436154699
selmaSBlankJul 26
dawnnm16Jul 26
selmaSBlankJul 22
haselmeJul 21
bowermbJul 19
56
By selmaSBlank Blank
Hi All, in order to post a Prayer Thread for you, please post your date here on this thread so we know u would lik...
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selmaSBlankJul 26
1
By dawnnm16
Is there anywhere you can send pictures of your childs mri and have it read by a Dr? I finally got my daughters and w...
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selmaSBlankJul 26
selmaSBlankJul 16
4
By jasminecrawford
HI EVERYONE I JUST TURNED 29 YEARS OLD ON THE 2ND OF JULY. IM A MOTHER OF A 1 YEAR OLD SON. I RECENTLY HAD CHIARI MAL...
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selmaSBlankJul 26
newchiJul 26
selmaSBlankJul 26
3
By newchi
Hi all. I've been having the following syptoms for over a year. Tried migraine meds etc no joy..... 1 migraines wit...
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selmaSBlankJul 25
1
By DM2ore
My teenage friend has been diagnosed with Chiari 1 and Occipital Neuralgia. In addition to the debilitating headaches...
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selmaSBlankJul 25
Jaime2013Jul 25
Jaime2013Jul 25
selmaSBlankJul 24
4
By Jaime2013
Hello everyone. I've been a member here for a bit, and mostly just read stories and look for answers, so this is my f...
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selmaSBlankJul 24
1
By soccero
Guess what??? I went to my first asap conference and guess who I met??? @elisaandbucky !!!!!! It is so cool to put a ...
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KerriC1Jul 24
KerriC1Jul 23
selmaSBlankJul 22
10
By Dani618
So I met with a Chiari specialist at the Milwaukee Chiari Institute and had many tests done however I left with many ...
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Jaime2013Jul 24
selmaSBlankJul 24
2
By edbyrket22
Hi, My 11 yr old daughter has been having some health issues. They began 3 yrs ago, when she had a seizure as she ...
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neensmomJul 24
LottidaJul 24
neensmomJul 24
LottidaJul 23
selmaSBlankJul 22
5
By neensmom
My 19 year old son was recently diagnosed with Chiari and Syringomyelia. He has been seen by one surgeon who suggeste...
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selmaSBlankJul 24
1
By rajrane
what impression of linear t2/stir hyperintensity noted within the cord at c6 level - Syrinx
620923_tn?1436154699
selmaSBlankApr 21, 2014
selmaSBlankApr 18, 2014
oops1990Apr 16, 2014
AKC_75Apr 14, 2014
22
By selmaSBlank Blank
Hi all this month's question is meds, which ones help and which ones are advised to avoid at all costs..... F...
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selmaSBlankJul 23
bowermbJul 23
selmaSBlankJul 22
bowermbJul 22
6
By shelly0513
I use to be a regular blood donor, and now I am not sure if I can give blood. On one of the questions it asks if you ...
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selmaSBlankJul 23
1
By Sophiae98
Hi I'm a 16 year old girl who lives in Atlanta Georgia. I was diagnosed with Chiari malformation when I was 5 and had...
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LottidaJul 23
selmaSBlankJul 22
3
By kwyse
Hi everyone, I have been living with 24/7 constant headaches for the past 5 years. I used to get a migraine as a ch...
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Chiari Malformation Community Resources
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Ball123
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mikeysmom1995
Oxford, MI