Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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Dloshaw4 hours
Lottida9 hours
selmaSBlank10 hours
selmaSBlank11 hours
ZilZil11 hours
6
By Dloshaw
I was hoping anyone who has had the chiari surgery could give me some advice on what type of pillow they used. My sur...
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happy19755 hours
selmaSBlankMar 19
happy1975Mar 18
happy1975Mar 18
selmaSBlankMar 16
5
By happy1975
I had a Chiari decompression surgery 5 days ago and am having quite a lot of back pain. The doctor said this was qui...
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014586 hours
selmaSBlank7 hours
014589 hours
selmaSBlank9 hours
0145810 hours
6
By 01458
It's been 7 months since I starded having Chiari symptoms. One thing which worries me is the skull-crushing like feel...
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02246 hours
02246 hours
selmaSBlank7 hours
3
By 0224
I have a question does the brain fog and dizziness ever get better post surgery. I'm currently 5 months out it seems...
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selmaSBlank11 hours
1
By annelie1980
Hi folks, Just after your thoughts. I was diagnosed with CM1 last September, and stumbled on this site not long afte...
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By HuntressThompson
I'm slowly becoming more disabled, i have headaches extending from the back of my head to my eyes, pressure at the to...
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selmaSBlankMar 30
selmaSBlankMar 29
selmaSBlankMar 28
23
By bbisweary Blank
Hi Everyone. I was wondering if it is common to have severe leg weakness with CM? I have had leg stifnness, ie, sco...
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2
By Gizmos69
I was told that I had chairi about 2 years ago. At first I pursued to get help was sent to a neurosurgeon and was tol...
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sunorchidMar 30
selmaSBlankMar 29
sunorchidMar 28
BethanyatgApr 19, 2008
4
By browncat Blank
anybody been diagnosed with this connective tissue disorder? i was recently diagnosed w type 3. having alot of trobles.
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LottidaMar 29
selmaSBlankMar 29
selmaSBlankMar 29
3
By Lottida
Hi everyone......so I had my follow up visit with Dr. Soleau yesterday to get MRI/x-ray results. I do not have a Syr...
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selmaSBlankMar 29
Tnz100Mar 29
selmaSBlankMar 28
3
By Tnz100
Hi everyone. I was diagnosed with Chiari Malformation a couple of weeks ago after being admitted to hospital very il...
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selmaSBlankMar 29
me321uMar 29
selmaSBlankFeb 28, 2014
Lioness_23Feb 28, 2014
26
By bookworm79 Blank
Hey all, The roof of my mouth and back of my throat is yellowish with blood red spider web looking stuff througout an...
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selmaSBlankMar 29
1
By carlito7
Is it possible to live with chiari and have no surgery? I have mild symptoms headaches there n there which im used to...
620923_tn?1426651955
selmaSBlankMar 28
selmaSBlankMar 24
selmaSBlankMar 05
selmaSBlankFeb 27
selmaSBlankFeb 23
16
By selmaSBlank
This list is not a complete list of possible Specialists - This thread is here so Please continue to add your Drs n...
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selmaSBlankMar 28
selmaSBlankMar 26
LottidaMar 26
5
By unclematty
hi everyone i was back at the neurologists yesterday and she is now denying diagnosing me with mild/borderline chia...
620923_tn?1426651955
selmaSBlankMar 28
LottidaMar 28
selmaSBlankMar 25
selmaSBlankMar 19
selmaSBlankMar 06
22
By selmaSBlank
Hi All, in order to post a Prayer Thread for you, please post your date here on this thread so we know u would lik...
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selmaSBlankMar 28
Nellan12Mar 28
RhindaMar 27
selmaSBlankFeb 19
7
By Rhinda
Diagnosed with Chiari 1 Malformation. Got a second opinion from Dr. Bolognese who thinks I still have other things g...
620923_tn?1426651955
selmaSBlankMar 28
jbf08Mar 27
Viva001Jul 17, 2012
KKerneyJul 17, 2012
Viva001Jul 17, 2012
39
By selmaSBlank Blank
I am posting this here as it seems not many utilize the Health Pages and I want this to be seen by ALL!! The subje...
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selmaSBlankMar 27
selmaSBlankMar 27
3
By mrssquid11
Is is possible for you to have pain in the exact location of your syrinx? I know the main symptom of Syringomyelia i...
12834615_tn?1427438956
selmaSBlankMar 27
3
By Nanagristy1958
My son just told me today that my ten year old grandson has chiari malformation. I had never heard of it, but that do...
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