Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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By neethu09
Hi all my name is neethu and iam new to this forum. I was daignosed with chiati malformation last year and had a and...
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selmaSBlank7 hours
1
By selmaSBlank
Hi ALL continue to wear your Purple as Sept is Chiari awareness month and also bcuz our friend is heading in for surg...
620923_tn?1405964489
selmaSBlank8 hours
selmaSBlankSep 18
selmaSBlankSep 18
0224Sep 18
102
By selmaSBlank Blank
Hi All, in order to post a Prayer Thread for u, please post ur date here on this thread so we know u would like one. ...
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selmaSBlank8 hours
1
By protea
My son 7 yrs had decompression with C1 in August. Since surgery he has had a tough time healing and fevers. His eos c...
620923_tn?1405964489
selmaSBlank8 hours
dozzy37911 hours
selmaSBlankSep 16
selmaSBlankSep 16
5
By selmaSBlank
EDS is not just hypermobility....and they even cover seizures...Headaches.....which can continue post op of a decomp...
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selmaSBlank8 hours
1
By harboy
Hi to all ! Hope everyone is having a good day. I am wondering what medications you have tried to ease the pain. My...
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selmaSBlank8 hours
selmaSBlankSep 20
selmaSBlankSep 20
23
By hscurry Blank
Has anyone continued to hear/feel air bubbling in the back of their head and neck post decompression surgery? This so...
620923_tn?1405964489
selmaSBlank8 hours
selmaSBlankSep 15
selmaSBlankSep 14
12
By selmaSBlank
Rainy days and Mondays always get me down" .....so lets rant all day Monday- each Monday a different topi...
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kkluv19 hours
selmaSBlankApr 06, 2012
honeydew21Apr 06, 2012
RylanesmomApr 05, 2012
bledpubApr 05, 2012
6
By honeydew21 Blank
Does anyone else blog? If you do have you blogged about what you're going through? If so...what's your blog? I'd l...
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kristy12Sep 20
selmaSBlankSep 20
selmaSBlankSep 20
4
By emilysusan
I have recently been diagnosed with Ehler's Danlos. I know that chiari can be found in people with EDS. I have many s...
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0224Sep 20
selmaSBlankSep 19
2
By Amarisnery
I was diagnosed with Chiari Malformation 1 with a 6mm in March. I haven't seen the Dr. waiting on the Medical Card. I...
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selmaSBlankSep 19
Roxy1960Sep 19
angelRNSep 10
selmaSBlankAug 28
5
By Carlicue
Hi everyone. Where to begin? Three months ago I was having horrid headaches at the back of my head. These were...
620923_tn?1405964489
selmaSBlankSep 19
selmaSBlankSep 18
14
By selmaSBlank
Fribble- noun a person who wastes time any trifling act or thought intransitive verb fribbled frib′·bl...
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selmaSBlankSep 18
0224Sep 18
selmaSBlankSep 17
7
By 0224
I was wondering 8th shortness of breath, and heart palpations are these symptoms of chiari. I also notice if I raise...
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harboySep 17
selmaSBlankSep 16
22
By Jennifwe223
Hi my name is Jennifer and I am seeking help! I am a 23 year old college student who is suppose to graduate in Decemb...
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selmaSBlankSep 18
1
By 0224
I'm posting to see if anybody has tried glyconutrients by mannatech for chiari malformation?
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harboySep 18
selmaSBlankSep 17
7
By baccalynnwv
Hi, my co-worker, one of the very few people I have told about this Chiari thing to, came up to me today and said las...
620923_tn?1405964489
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By selmaSBlank
Hi....today lets post so wishes for yourself, family, friends...whomever you want to share a wish for.... It ...
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harboySep 18
selmaSBlankSep 16
selmaSBlankSep 16
58
By lostforwordss
OK, let me state, I do not have Chiari....Unfortunately my girlfriend does. She was recently diagnosed after roughly ...
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klinkdogSep 18
klinkdogSep 16
selmaSBlankSep 12
5
By klinkdog
Dr. Paolo Bolgnese does anybody have his new address and phone number
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