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Chiari Malformation Community
This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.
1 - 20 (of 11485) questions
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18978650 tn?1470664915
i had decompression a few months ago and finally tried to clean and move things around in my room by myself. After i cleaned i noticed my...
1448748 tn?1312959808
I was just wondering, I was reading other places that drop attacks related to Chiari are actually where you lose consciousness and then I...
9 answers
  Jody_M
Avatar universal
I had cervical and upper thoracic MRI's in early 2016 (Kaiser) for radicular symptoms. They found some disk degeneration and foremen narr...
5952632 tn?1377270669
Ok, first up, an update since it has been a very long time since I have been on here. I started having the black outs after the decompres...
1679858 tn?1346768781
Hi, just wondering what is available for brainfog and or fatigue. Anything? I awaken with head pressure which includes pain on top of ...
2 answers
  lynnbrook177,    selmaS
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I was diagnosed with Chiari malformation in October 2016 and since have been told I need surgery. I am really bothered by the fact that t...
1 answer
  selmaS
620923 tn?1452919248
I am posting this here as it seems not many utilize the Health Pages and I want this to be seen by ALL!! The subject no one wants to h...
47 answers | 1 comment
1496859 tn?1304519034
Have anyone been seen at Institut Chiari de Barcelona or have been in contact with Dr. Royo? I contacted them b/c I needed a third op...
16 answers
Avatar universal
I recently found out my sister has Chiari Malformation 1. She was diagnosed after being admitted to various hospitals for collapsing and ...
3 answers | 3 comments
Avatar universal
Can chiari get worse? Not the symptoms but the actual herniation? I am 15 so my brain is still growing. Right now I have about a 2mm hern...
1 answer | 1 comment
  oliviabelle,    selmaS
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So I just asked my neurologist about a possible chiari malformation, and looked over my scans and said I just have low lying cerebellar t...
2 answers | 1 comment
  selmaS ,    oliviabelle,    selmaS
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Has anyone had a leak in their dura patch? I'm not talking about a csf leak. If so, what are symptoms and the what was done to resolve?
3 answers
  selmaS ,    Lynnrae64,    selmaS
Avatar universal
I just got a diagnosis. When the doctor told me, I was so nonchalant; however, having done more research, this is rather serious, right?...
91 answers
Avatar universal
I'm at a loss here. The Diamox helps a little but not quite enough. The dose has been upped a few times and I still have problems. Not to...
8 answers | 1 comment
  KerriC1,    selmaS ,    Parone85mimi,    selmaS ,    KerriC1
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Hi All, Just joined the forum after some informative reading here. About two months ago, I was out playing a show (I 'sing' in a pu...
1 answer | 1 comment
  MrMaxximus,    selmaS
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over 2 years ago i was givin an mri scan for back pain when it come back i was sent to see a specialist at the hospital that told me i ha...
6 answers
  selmaS ,    cazzawazza,    cazzawazza,    selmaS ,    cazzawazza
Avatar universal
does anyone have issues when they drink? I was decompressed 11 years ago and when I drink, even a little, I have strange reactions....I k...
8 answers
1679858 tn?1346768781
Does anyone experience this? My sinuses are also very dry and inflammed, as I have chronic pan sinusitis. There must be a connection to c...
8 answers
Avatar universal
I think I may have chiari and i am planning on bringing it up to my doctor soon. I don't know if i have syringomyelia yet and i was just ...
2 answers | 2 comments
  Blkmgikwmn,    lynnbrook177,    oliviabelle,    selmaS
1679858 tn?1346768781
Hi, My GP has ordered a sleep study because I've complained of fatigue. Doctors look at me with 'that look' because nothing has ...
5 answers | 1 comment
  Blkmgikwmn,    selmaS ,    lynnbrook177,    selmaS ,    lynnbrook177
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