Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlank6 minutes
skrowe10 hours
skrowe11 hours
Jordanalanis22 hours
Jordanalanis22 hours
5
By skrowe
Hi, Ive been having symptoms my entire life, my entire 26 years every doctor has dismissed me as crazy or an attentio...
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selmaSBlank14 minutes
Jordanalanis22 hours
2
By Jordanalanis
So its been a year now, I'm still searching for answers. Please read my question i started working as a cna ( heavy...
4760166 tn?1398360913
selmaSBlank22 minutes
LealiebJun 23
The_beat_goes_onOct 28, 2014
socceroJun 11, 2014
zygy2Jun 11, 2014
15
By The_beat_goes_on Blank
Hi guys, This is a question for anyone who has a shunt catheter in their peritoneal cavity. On the 17th of last m...
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skroweJun 23
kris278Jun 21
deana57Jun 18
deana57Jun 18
4
By kris278
The Mayo Clinic is obviously world renowned, but I've heard many mixed reviews regarding their ability/willingness to...
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selmaSBlankJun 21
selmaSBlankJun 20
GemUK2016Jun 20
selmaSBlankJun 18
GemUK2016Jun 17
8
By GemUK2016
Hello. I recently had an MRI scan which has found an "extensive syrinx" and "moderate tonsillar herniation". I have ...
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selmaSBlankJun 21
1
By osterr30
Hello I am a 20 year old female who is in college and suffering from Chiari. I was diagnosed at age 12 (December 2008...
979826 tn?1389039958
selmaSBlankJun 21
socceroJun 13
selmaSBlankJun 13
socceroJun 13
lasel22Jun 10
12
By soccero
i don't know how to add a couple pics so i will add the rest in comments :) thank you!
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selmaSBlankJun 20
KerriC1Jun 20
LidiagglJun 20
selmaSBlankJun 18
LidiagglJun 17
11
By Lidiaggl
I had my decompression surgery about two months ago, and I have been noticing that there is a noticeable indent where...
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selmaSBlankJun 20
1
By Tbeanmarie
I'm 7 weeks post decompression surgery. At 5 weeks I jad concern over a small, squishy bulge at the top of my incisio...
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selmaSBlankJun 20
selmaSBlankJun 18
3
By Michelle_Love
I am looking for a primary care doctor to help coordinate my multiple doctors I see for Chiari Malformation. I re...
Avatar m tn
10
By michelle897
Hey everyone, my name is Michelle and I'm new here. Long story short, all of my symptoms are in sink with chiaris. I'...
979826 tn?1389039958
selmaSBlankJun 18
socceroJun 18
selmaSBlankJun 16
socceroJun 16
selmaSBlankJun 15
5
By soccero
I wish Dr. B would let me know something before monday, so anxious and stressed!
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selmaSBlankJun 18
1
By chuckclose1
i am less than 2 months from my decompression surgery. i felt great for the first month but lately my dizzyness, shak...
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selmaSBlankJun 18
1
By Jast0827
My 17 yr. old is 4 days out of the chiari surgery and is home. She has a little swelling in the back of her neck and ...
707040 tn?1440531483
selmaSBlankJun 18
sherimomJun 17
selmaSBlankJun 16
sherimomJun 16
sherimomJun 15
6
By sherimom
Hi all, I know it's been awhile since I've been here and I haven't posted in some time. My son is now 22, decompres...
4760166 tn?1398360913
selmaSBlankJun 18
1
By The_beat_goes_on
I'm having my VP shunt valve replaced Wednesday, This one was placed at the end of February I think? Anyway ... I s...
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zomblvrJun 18
lasel22May 22
selmaSBlankMay 22
4
By zomblvr
Hello everyone, My name is Amanda (zomblvr) and I live in Ohio. For the last several years I have had issues with ...
620923 tn?1452919248
kris278Jun 16
selmaSBlankJun 15
2
By selmaSBlank
Tonights episode Cops vs Zombies Mara Isles may have Chiari and is dealing with not being the sharpest mind she can b...
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selmaSBlankJun 15
1
By JessicaHensarling
My son's neurosurgeon confirmed that his spinal cord is low lying and tethered and in fact the cause of his chiari. W...
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selmaSBlankJun 14
tloftyJun 14
selmaSBlankJun 06
3
By tlofty
So I had surgery about a month ago and at first I was healing well now that I chose to no longer take my medication's...
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