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Chiari Malformation Community
This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.
1 - 20 (of 11318) questions
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Avatar universal
My kid was recently diagnosed with CM1. He complains headache and all over body pain (pokey in his word). Based on MRI (15mm cerebellum t...
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Here is what MRI report says: " There is a 4 mm long fusiform focus of increased T2 signal intensity in the anterior midline cervical co...
17 answers |
Avatar universal
Hi everyone my 13yr old daughter was diagnosed with Chiari 1 8mm descend this week after a year of severe dizziness, fatigue more recen...
2 answers |
Avatar universal
I have had the decompression surgery but now feel my Chiari symptoms are coming back. The ct scan showed everything is fine - has anyone...
4 answers | 2 comments |
Avatar universal
I was recently diagnosed with Chiari but after seeing my MRI the dr. said I would not require surgery at this time. He will be monitoring...
4 answers |
1679858 tn?1346768781
Hi Recently, I have been feeling dizziness (wooziness). I feel it when I lay down at night, or when I sit back on the couch. I usually...
4 answers | 1 comment |
615350 tn?1272602569
A dear friend of mine has this disease. I just learned about it a few days ago, but she has had it for a while. My question is, Should a ...
6 answers | 1 comment |
Avatar universal
I had the chiari decompression laminectomy and duroplasty expansion done. During the surgery everything went well, but then they started ...
4 answers | 2 comments |
12573102 tn?1431705217
Hi everyone. I just had my 2nd opinion with Dr Soleau (Chiari specialist) in Baton Rouge,LA. He looked at my MRI of brain & immediately...
3 answers | 1 comment |
Avatar universal
Hello everyone, My name is Amanda (zomblvr) and I live in Ohio. For the last several years I have had issues with neck pain, back pain...
3 answers |
Avatar universal
Hello, I recently got MRI results back, not checking for anything specific, doc sent me to a neurologist due to dizziness, etc. Neurologi...
3 answers | 2 comments |
Avatar universal
I was told by my neurologist I had cerebellan extension of 7mm she said she would not refer me to a surgeon at this time. I have always s...
1 answer |
Avatar universal
Hi, I was in an car accident 1/2015. I have had head, neck, shoulder, and back pain on and off since then. I've had autonomic issues; ...
1 answer |
Avatar universal
I am three weeks post op, doing pretty well. Last Saturday I had a headache that built up through the day and by Saturday night I couldn'...
8 answers | 1 comment |
Avatar universal
hi has anyone been given amitriptyline for chiari?? Does it work whats you experience with it please?
1 answer |
Avatar universal
This MRI was done in 2013. According to the Radiologist, it was "unremarkable" I have a Neuro appointment next week, and just received my...
16 answers | 1 comment |
Avatar universal
Hi has anyone found a really good chiari doctor in melbourne?
1 answer |
Avatar universal
Hi there, after a 2.5 year struggle with various debilitating symptoms my 17 yr old daughter has been diagnosed with a 10mm malformation ...
2 answers | 1 comment |
Avatar universal
OK guys I have CHARIMALIFORMATION 1 and 2 I have lived knowing about this since I was 12 years old I'm 22 now and I was wondering if anyo...
1 answer |
Avatar universal
So I finally got to see a top Neurosurgeon at Emory in Atlanta, well his resident anyway, Dr. Barrow himself was traveling at the time o...
1 answer |
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