Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlankless than a minute
Bye_alex31 minutes
Bye_alex36 minutes
3
By Bye_alex
my insurace has paid over $250,000 worth of medical bills over the past 4 years mainly concerning 1 troublesome sympt...
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selmaSBlank3 hours
1
By Tom3503
My 36 year old daughter had decompression surgery on 2/6/15 at Johns Hopkins. She did not have the typical pain asso...
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Lynnrae649 hours
selmaSBlank19 hours
sherimomAug 28
3
By charlene9869
I have been DENIED yet again for my disability, this time by the appeals council, this makes the 3rd time. 1st by...
620923_tn?1439824912
selmaSBlank19 hours
selmaSBlankApr 15
selmaSBlankFeb 07
selmaSBlankJan 26
selmaSBlankOct 15, 2014
25
By selmaSBlank Blank
Applying for social security disability and SSI benefits, with or without an advocate can be difficult due to how lon...
707040_tn?1440531483
selmaSBlank19 hours
1
By sherimom
Question for everyone: After decompression surgery, has anyone had to have second surgery due to scar tissue causing...
620923_tn?1439824912
KerriC1Aug 28
selmaSBlankAug 27
RheaAnnAug 27
3
By selmaSBlank
Hi all please wear your purple tomorrow Aug 28th to help gain awareness for Chiari and support our friend s he heads ...
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selmaSBlankAug 27
RheaAnnAug 27
9
By musiknotes
I have chiari malformation type 1 shown on an MRI but when I went to the neuro he asked if i had headaches and I dont...
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selmaSBlankAug 27
1
By Renak
where I can find the list of all the Chiari doctors in USA ?
3060676_tn?1440706544
selmaSBlankAug 27
1
By RheaAnn
http://www.thepainrelieffoundation.com/conditions/eds-functional-somatic/ Here's an article worth reading about ED...
3060676_tn?1440706544
selmaSBlankAug 27
RheaAnnAug 27
selmaSBlankAug 27
3
By RheaAnn
Hi all! I know it's been a long time since I've been on here. I first off want to thank Selma with all my heart for n...
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selmaSBlankAug 27
1
By meg525va
Hi~ My daughter, 16, was just diagnosed with Chiari malformation; we are at the initial stages of our research. Our N...
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lasel22Aug 23
lasel22Aug 22
8
By delta74dawn
I started having dizzy spells in March of 2015 and they have progressively gotten worse. ENT doctor has ruled out an...
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lasel22Aug 27
selmaSBlankAug 27
2
By RachelChiari
Hi! I just joined this forum and I have to say I am a lot more nervous than I was yesterday reading about peoples pro...
620923_tn?1439824912
selmaSBlankAug 27
selmaSBlankAug 23
selmaSBlankAug 10
selmaSBlankJul 26
dawnnm16Jul 26
59
By selmaSBlank Blank
Hi All, in order to post a Prayer Thread for you, please post your date here on this thread so we know u would lik...
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selmaSBlankAug 27
RoydmAug 27
RoydmAug 27
SexybareOct 16, 2012
SexybareOct 16, 2012
14
By kaykay1331 Blank
Hi everyone. I need to vent a little here and then ask for any and all advice. My 21 yr old daughter has had lots of ...
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selmaSBlankAug 27
1
By Jordy36
Can you please advise if there are any Chiari Specialists in Melbourne Australia?
620923_tn?1439824912
selmaSBlankAug 27
selmaSBlankMay 16
SarahNewDec 28, 2014
selmaSBlankDec 23, 2014
206
By selmaSBlank Blank
Ok...we know what most Drs will accept as a chiari symptom...but, we also know we have many more symptoms that r chia...
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selmaSBlankAug 26
selmaSBlankAug 24
6
By samsam5mom
Could u give me the link for true specialists please. I can not find it. I live in Minnesota. Looking to find someon...
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selmaSBlankAug 26
lasel22Aug 26
selmaSBlankAug 20
21
By RayChap222
Hello, I recently had an MRI done and was told I had Chiari Malformation. I was told that i had downbeat nystagmus be...
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selmaSBlankAug 26
1
By Whan1998
I have had 3 mris all in 2 years first one said chari malformation but not mentioned in the next 2 Have a lot of he...
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