Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlankless than a minute
Lottida35 minutes
CWeir3 hours
DSH51914 hours
selmaSBlank14 hours
7
By CWeir
I woke up July 7, 2014 feeling like something was very wrong. Dizzy, vertigo, confusion, imbalance, pain, ringing ...
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DSH51914 hours
socceroMay 02
selmaSBlankMay 02
5
By 4DancingGoats
61 yr old adult, newly diagnosed this week (8 mm.) Live in NW Arkansas so ready to go out of state (and spend life sa...
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selmaSBlank23 hours
DSH519May 03
selmaSBlankMay 02
DSH519May 02
selmaSBlankMay 02
5
By DSH519
Anyone who has had surgery- did anyone have hypersensitivity to anything touching the head/ spine? Even putting on a ...
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selmaSBlank23 hours
1
By absolutemomtwofour
I do not know what to do!!! I was standing on our soccer field during my boys practice and my legs started gettin...
1891806_tn?1391122637
selmaSBlank23 hours
1
By hevnw8s
Hello. It's been quite awhile since I posted anything. I had decompression surgery July 21, 2014. It was bone only wi...
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selmaSBlankMay 03
RhindaMay 03
RhindaMay 03
selmaSBlankMar 28
Nellan12Mar 28
10
By Rhinda
Diagnosed with Chiari 1 Malformation. Got a second opinion from Dr. Bolognese who thinks I still have other things g...
620923_tn?1426651955
selmaSBlankMay 02
selmaSBlankApr 26
selmaSBlankApr 20
selmaSBlankApr 05
selmaSBlankMar 28
20
By selmaSBlank
This list is not a complete list of possible Specialists - This thread is here so Please continue to add your Drs n...
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Lynnrae64May 02
LottidaMay 02
selmaSBlankMay 01
DSH519May 01
4
By dreagensmommy
Hello everyone. I have so many questions but i need support more then anything. I am a 28 year old single mother, i h...
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DSH519May 02
selmaSBlankApr 01
DloshawMar 31
10
By Dloshaw
I was hoping anyone who has had the chiari surgery could give me some advice on what type of pillow they used. My sur...
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DSH519May 02
selmaSBlankApr 20
2
By ArnoldL
I am so happy to know this forum is out here. I have had my Chiari decompression surgery 11 years ago.. I am now and...
13556457_tn?1430481345
DSH519May 01
selmaSBlankMay 01
LottidaMay 01
selmaSBlankMay 01
TLeigh71May 01
6
By TLeigh71
I was recently, well about a year ago now, diagnosed with Chiari. Have been in the medical field for over 20 years h...
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selmaSBlankMay 01
selmaSBlankMay 01
selmaSBlankApr 30
11
By Anreverett
Hello. I am wondering if anyone could share their immediate post op experiences. The last couple days I've had severa...
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selmaSBlankMay 01
Jas0803May 01
selmaSBlankMay 01
3
By Jas0803
Hello, I had decompression surgery 11 months ago. It was considered to be a success as MRI evidence showed my syrinx ...
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DSH519May 01
DSH519May 01
selmaSBlankMay 01
DSH519Apr 30
selmaSBlankApr 30
5
By DSH519
Had malformation type 1. Had decompression surgery in April 2001. Recently many of the same symptoms have returned. ...
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selmaSBlankMay 01
selmaSBlankMay 01
3
By Purple9914
Hello all... I have been struggling with symptoms off and on for years. Symptoms include lightheadedness, extreme fa...
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selmaSBlankMay 01
KrisptMay 01
selmaSBlankApr 27
KrisptApr 27
selmaSBlankApr 27
15
By Krispt
Hi guys Not sure if this is where I need to ask or even if you guys can help? I've had a build up of symptoms which...
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DSH519May 01
selmaSBlankApr 17
mattnmomApr 16
selmaSBlankOct 02, 2014
JAMBAY1998Oct 02, 2014
23
By bulldogmommy30 Blank
Hi guys & gals, I am so glad that I found you! I was just told I have Chiari this week. My biggest issue is numbness...
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DSH519Apr 30
girhuApr 30
selmaSBlankApr 30
LottidaApr 30
4
By girhu
I'm looking for any feedback that I can get. I have a Chiari 1 malformation with a 12 mm herniation and syrinx. It ...
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Twinky318Apr 30
selmaSBlankApr 30
Twinky318Apr 30
selmaSBlankApr 29
Twinky318Apr 29
8
By Twinky318
Hello. I am a 45 year old female that was diagnosed with Chiari Malformation at the age of 24. I had surgery on the b...
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selmaSBlankApr 29
waxlips55Apr 29
selmaSBlankApr 04
punkin56Apr 03
selmaSBlankNov 02, 2014
298
By lollypop28 Blank
type 1 chiari malformation, does it get worse and is it heredity?
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