Chiari Malformation Community
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Sort by:
Last Post
Date Started
Background:
Blank
Blank
Blank
Avatar f tn
selmaSBlankAug 09
1
By jenniferlynn1383
hello, I've suffered greatly. Fainting, dizziness, spasms, contractions, vertigo, muscle fatigue, full body weakness,...
Avatar f tn
3
By AmberM87
I was diagnosed 2 yrs ago with chiari malformation type 1 from a car accident I was in where an 88 year old man hit m...
Avatar f tn
selmaSBlankAug 08
1
By Seraphinaxx
I don't know if I have Chiari Malformation, but I've reached the point of desperation where you look for anything tha...
Avatar n tn
selmaSBlankAug 08
mindyk14Aug 08
selmaSBlankAug 07
mindyk14Aug 07
selmaSBlankAug 01
7
By mindyk14
Hi, I have been a lurker on this website for a while and finally got the courage to join. I am 27 and have been havin...
Avatar f tn
selmaSBlankAug 07
1
By VannahRenee20
Hello, I'm 20 years old and i was diagnosed only a year ago. My neurologist doesn't seem to think Chiari is a severe ...
Avatar f tn
selmaSBlankJul 29
LidiagglJul 29
selmaSBlankJul 28
LidiagglJul 28
36
By Lidiaggl
I had my decompression surgery about two months ago, and I have been noticing that there is a noticeable indent where...
Avatar f tn
selmaSBlankAug 06
1
By FutureOTA2020
My previous pediatric neurosurgeon got promoted to a higher job in a different state and I have a programmable vp shu...
Avatar f tn
selmaSBlankAug 05
BlueghostAug 05
selmaSBlankJul 24
3
By Spirit2375
Has anyone got Dr.Rosner's email address? I have his phone number, but as I am in Australia, the time difference is a...
847512 tn?1272570662
By Devin215 Blank
Hi everyone, I just wanted to see what everyone's average recovery time was after surgery to at least feel back up t...
Avatar f tn
selmaSBlankAug 05
Cindil323Aug 04
selmaSBlankAug 04
Cindil323Aug 04
selmaSBlankAug 04
11
By Cindil323
I have had a lot of symptoms for a long time and I can't get the doctors to listen. I have seen 8 of them. I am almos...
1306714 tn?1327260680
selmaSBlankAug 03
1
By linnielou232
I just wanted to stop in and let everyone know that I haven't been on here for almost a year to to medical complicati...
1587684 tn?1296930870
selmaSBlankAug 02
soozq1027Aug 02
*Stormy* Mar 31, 2011
8
By shaemika89 Blank
The Mri Results shows a benign syrinx in the spinal cord at C5-C6. It does list Chiari Malformation. I was just wonde...
18933372 tn?1469956793
selmaSBlankJul 31
1
By babyblu0607
I have recently been diagnosed with CM back in March. Does anyone know of someone to talk to or a support group to sp...
Avatar f tn
selmaSBlankJul 30
selmaSBlankJul 22
selmaSBlankApr 27, 2010
14
By terrmoo Blank
Hi! Two years ago I was diagnosed with a Prolactinoma (tumor on my pituitary). In doing the second MRI during the c...
Avatar f tn
selmaSBlankJul 28
JoeSklJul 28
selmaSBlankJul 27
3
By JoeSkl
Hey all, TCI in New York thinks that I have EDS as well as a Chiari that has become symptomatic. I'm 29 years old...
4760166 tn?1398360913
selmaSBlankJul 27
selmaSBlankJul 26
3
By The_beat_goes_on
Hi guys ... I was really on the fence about seeing another geneticist but my neurosurgeons in office genetic counse...
1303966 tn?1296743610
IveforgotJul 26
selmaSBlankDec 08, 2015
scummins1964Dec 08, 2015
ChiariWolfApr 21, 2014
AKC_75Apr 19, 2014
31
By kricklekrin Blank
Last Sunday I woke up and went about my morning, and suddenly looked at the clock and realized I missed church. The ...
Avatar f tn
selmaSBlankJul 23
LindskeaJul 23
selmaSBlankJul 22
LindskeaJul 22
selmaSBlankJul 20
7
By Lindskea
Hi everyone! I was diagnosed with Chiari in April 2015 and underwent surgery in July 2015. I had a decompression, ...
Avatar f tn
selmaSBlankJul 20
3
By Stroud5393
Hello everyone I've been suffering for a little over 2 years my neck gets really sore off and on I deal with this con...
Avatar f tn
selmaSBlankJul 19
1
By kelli8302
I am almost 5 years post op and in the past 2 weeks or so I have been experiencing such a pressure and squeezing pain...
Recent Activity
Avatar universal
Blank
Nacht246 commented on When Your Cold Is Not...
Aug 22
19045496 tn?1471569354
Blank
Rosemary2848 joined this community
Welcome them!
Aug 18
Avatar universal
Blank
Top Neurology Answerers
620923 tn?1452919248
Blank
Allentown, PA
1306714 tn?1327260680
Blank
muskegon, MI
7530528 tn?1428275172
Blank
TX
Avatar universal
Blank
979826 tn?1389039958
Blank
germantown, MD
Avatar universal
Blank
Chiari Malformation Community Resources