Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlankMay 22
LottidaMay 22
2
By LoLa1454
Hi everybody so I just found out that Im 6mm herniated. About 4 years ago I was having severe migraines and had the d...
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selmaSBlankMay 22
1
By racrgrl
I have been researching for weeks, but honestly, I am not finding any really great referrals for Chiari doctors in At...
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selmaSBlankMay 22
1
By Rhinda
I am 6 weeks post-op after a Chiari decompression and cranio-cervical fusion surgery. My head is extremely sensitive...
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By BeyondFrustratedd
So my question is it ever normal to have csf blockage? Is it something a doctor should look at and suggest surgery or...
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DSH519May 21
selmaSBlankMay 17
2
By JaQari
I had my decompression surgery when I was 4 and I'm 20 now. It's been 16 years since my surgery.I had around 4-5 extr...
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selmaSBlankMay 21
2
By racrgrl
My daughter is having horrible headaches multiple times a day. They bring her to her knees. We just found out she h...
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selmaSBlankMay 20
selmaSBlankApr 26
selmaSBlankApr 12
10
By Squeakie72
I have most of the lab results from lumbar puncture. Still waiting for I-band results to come back from mayo lab. ...
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LottidaMay 20
chiariRNMay 20
selmaSBlankMay 20
3
By chiariRN
Hi, any good pregnancy stories out there? I had surgery Nov 2012. My NS told me my symptoms were acute. I went from...
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selmaSBlankMay 20
1
By dreagensmommy
Has anyone ever had Cranial decompression surgery done by Dr Todd Shanks of Norton Neurosciences out of Louisville K...
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selmaSBlankMay 20
selmaSBlankMay 16
selmaSBlankMay 14
5
By sadladyneedhelp
I had a mri and the findings said in April it says, mild cerebellar tonsillar ectopia of 3mm below the foreamen magn...
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selmaSBlankMay 19
selmaSBlankMay 18
3
By painintheneck81
Hi everyone! I've been reading other patients stories for awhile now, but this is my first entry. I have Arnold C...
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selmaSBlankMay 18
1
By AkCannaMom
Hi All I am three weeks out of decompression and I have been having some wild pain in my right groin area, shooting ...
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selmaSBlankMay 17
selmaSBlankMay 17
6
By Robbyd1329
Hello all! I had great support on what was happening to me so hopefully I can get some info before I see him. I had 2...
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selmaSBlankMay 18
1
By sschaff
I have suffered migraines for as long as I can remember. I am 24 and saw a pediatric neurologist when I was younger a...
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selmaSBlankMay 18
heysueMay 18
selmaSBlankMay 17
heysueMay 17
selmaSBlankMay 15
9
By heysue
It's been at least 6 yrs since my Chiari Malformation Decompression surgery. As of the last several months, I've been...
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selmaSBlankMay 17
1
By Spaceystac
Rheumatologist took a bunch of blood and the ANA PATTEN came back speckled. It says next to it most likely the writte...
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selmaSBlankMay 17
2
By strongenough1984
i had a mri done last april and they found a 4mm herniation of my right tonnsilar and I haven't seen a doctor for fu...
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selmaSBlankMay 16
selmaSBlankMay 06
selmaSBlankMay 02
selmaSBlankApr 26
23
By selmaSBlank
This list is not a complete list of possible Specialists - This thread is here so Please continue to add your Drs n...
620923_tn?1426651955
selmaSBlankMay 16
SarahNewDec 28, 2014
selmaSBlankDec 23, 2014
NattyTeeDec 23, 2014
205
By selmaSBlank Blank
Ok...we know what most Drs will accept as a chiari symptom...but, we also know we have many more symptoms that r chia...
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selmaSBlankMay 15
zygy2May 15
selmaSBlankMay 14
LottidaMay 14
selmaSBlankMay 12
5
By Lottida
Just curious if anyone has had the CT guided needle drainage of a CSF leak recently?? Would love to get info on what...
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