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Chiari Malformation Community
This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.
21 - 40 (of 11557) questions
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20175331 tn?1492634378
Hi! thanks to the community! it s great to find this forum i am very happy for that! i ve posted my MRI i would like someone say me some...
4 answers | 9 comments |
1448748 tn?1312959808
Anyone know what this means? is it caused by chiari? I went into er to evaluate chest pain because I am at a high risk for developing blo...
17 answers | 3 comments |
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One of my daughters has Chiari Malformation and a Primary Immunodeficiency (CVID). Her surgery was April 26th with a 15 mm herniation. Ho...
4 answers | 1 comment |
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I just got back the results from a brain MRI. "Low-lying cerebellar tonsils are noted with findings consistent with Chiari Type I malform...
1 answer | 2 comments |
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I was perscribed Gabapentin which is generic for Lyrica, I believe. I was perscribed this prior to my diagnosis and my insurance just ap...
22 answers | 1 comment |
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Hello! My recent MRI findings review "Minimal cerebellar tonsillar ectopia," which I'm learning likely refers to low laying cerebellum, a...
1 answer |
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New to group: 04/06/16 Decompressed with C1 lami- autologous patch- severe post-op vomiting immediately following surgery- ended up wit...
1 answer |
847512 tn?1272570662
Hi everyone, I just wanted to see what everyone's average recovery time was after surgery to at least feel back up to par to manage goin...
20 answers | 6 comments |
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I was just diagnosed with Thoracic spine pseudomeningocele and Chiari malformation. I also have scoliosis and NF1. I started having heada...
1 answer | 3 comments |
1175033 tn?1492204828
I woke up on 12-13-16 with loss of my spacial awareness. The day before, I was under a lot of stress and had a somewhat traumatic event. ...
1 answer | 2 comments |
4286019 tn?1352220227
I began having constant double vision a little over a year ago which lead to my Chiari diagnosis on an MRI. I had a 20mm herniation and ...
6 answers |
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I was recently diagnosed with Chiari and had the decomprrsssion surgery 2 weeks ago. Headaches have worsen. Is this normal? Please help!
1 answer |
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Hi everyone, Looking for some advice on my first appointment with Dr. Dan Heffez. I don't have one scheduled yet because i'm waiting f...
2 answers |
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Where do I even start? I received the diagnosis over the phone an hour ago. 3/17 I was admitted to the ER with stroke like symptoms: di...
2 answers | 4 comments |
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I was diagnosed with Chiari last fall and, for the last 6 months, have been going through the motions to simply make sure we eliminate ot...
1 answer | 2 comments |
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I was dx about 6yrs ago. I have headaches and bad headaches pretty much daily. I don't have any other bad sx though. No syrinx, no par...
3 answers | 1 comment |
20175331 tn?1492634378
someone know why our left side is worse than our right? i mean in my case my left arm is very painful and i ve read here more cases like ...
1 answer |
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Hello. I am new to chiari. I was diagnosed with a Chiari 1 malformation. My herniation is 10mm. At this time I am trying to hold off on s...
14 answers | 2 comments |
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Please help I have just been diagnosed with the chiari malformation and I am so so scared I have two very small children and I am so frig...
34 answers | 7 comments |
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I had an MRI a few weeks ago, the Dr. says well your report doesn't say anything about Chiari but I haven't seen your films, he can't exp...
1 answer |
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