Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlankMar 20
0224Mar 20
ASumrallMar 19
KareinMar 19
7
By 0224
Please if anybody notices if there symptoms are worse when they have their period and why? I have leg pain like but i...
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selmaSBlankMar 19
selmaSBlankMar 19
5
By kwalker0004
Hey everyone, I know I haven't been on in a long time besides answering a question here and there. I haven't been doi...
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DloshawMar 25
selmaSBlankMar 24
DloshawMar 24
DloshawMar 24
6
By Dloshaw
I am scheduled to have surgery. Has anyone heard good or bad about doctor Jeffrey seiff in las vegas, nv?
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selmaSBlankMar 24
2
By Dloshaw
I have a lot of symptoms, and I am having surgery. I see a lot of horror stories posted here. Did anyone have a good ...
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selmaSBlankMar 24
lurinaMar 24
selmaSBlankMar 23
LottidaMar 23
4
By lurina
Dear Selma! Thank you for your help! How to find list of questions to doctor before the surgery? I've read it so...
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selmaSBlankMar 24
2
By SuzinTN
My 13-year-old daughter who is healthy other than her type one well malformation is having the surgery this summer. W...
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selmaSBlankMar 24
Jas0803Mar 24
selmaSBlankMar 23
3
By Jas0803
Hello all, I had malformation surgery in June 2014. I also had a syrinx, I did suffer a CSF leak, but in November 201...
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3
By Christinalm24
This all started with being diagnosed with glossopharyngeal neuralgia. my neurologist said they found nothing on my m...
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selmaSBlankMar 23
lurinaMar 22
selmaSBlankMar 20
10
By Harlegal Blank
Where can I find the list of Doctors for Chiari Malformation? I am not very good at navigating on this site.
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selmaSBlankMar 22
sandy629Feb 18, 2012
selmaSBlankFeb 17, 2012
31
By rod44 Blank
For the past few years I have suffered vertigo and dizziness along with other non-specific vague symptoms like most...
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selmaSBlankMar 21
1
By 0224
I am 5 months post surgery. When did you feel like your balance was 100 percent better? I have a lot of leg pain so ...
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selmaSBlankMar 21
duff9Mar 21
LottidaMar 21
3
By Sherry80
Hi, my son is 8 yrs old diagnosed with chiari malformation With a herniation of 22mm. No syrinx or hydro. My questio...
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selmaSBlankMar 20
1
By laratterman
I have found on the site the name of Dr. Anthony Martino at the University of Southern Alabama Hospital. I called an...
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selmaSBlankMar 19
LottidaMar 19
selmaSBlankMar 19
3
By Lottida
Hi everyone. I just had my 2nd opinion with Dr Soleau (Chiari specialist) in Baton Rouge,LA. He looked at my MRI of...
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selmaSBlankMar 19
happy1975Mar 18
happy1975Mar 18
selmaSBlankMar 16
4
By happy1975
I had a Chiari decompression surgery 5 days ago and am having quite a lot of back pain. The doctor said this was qui...
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ASumrallMar 17
selmaSBlankMar 16
memax123Mar 15
ASumrallMar 15
selmaSBlankJan 30
11
By ASumrall
So My neurologist sent me for a sleep study to check for sleep apnea and the preliminary report say's I have severe s...
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selmaSBlankMar 16
selmaSBlankFeb 02
6
By annelie1980
Saw a NS for the first time. He said he currently wouldnt operate, my neuritis could be caused by my Chiari but didnt...
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memax123Mar 16
selmaSBlankMar 16
2
By memax123
I saw on the board that many have these symptoms. I also have the ringing in the ears. Is this all part of Chiari? ...
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selmaSBlankMar 16
selmaSBlankMar 14
3
By Krystinamarie
I was just in the ER being seen mainly for difficulty breathing. The only way I could describe it was a yawning feeli...
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LottidaMar 16
0224Mar 15
LottidaMar 13
selmaSBlankMar 13
6
By Lottida
Just wandering if anyone is having constant issues with off balance/dizziness and if so what meds/things help to reso...
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