Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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620923_tn?1413427272
selmaSBlankOct 21
selmaSBlankOct 20
selmaSBlankOct 13
39
By selmaSBlank
Today let's make note of what puts a twinkle in our eye...... ...
7489440_tn?1392096009
selmaSBlankOct 20
selmaSBlankOct 19
4
By kwalker0004
Hear recently I have had the sensation that my neck is on fire. Like its really hot to the touch from a few inches in...
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Nellan12Oct 21
RhindaOct 20
Nellan12Oct 18
Nellan12Oct 18
selmaSBlankOct 15
17
By Rhinda
I'm new on this forum. I have Syringomyelia and will be seeing a Chiari specialist in 3 weeks. I am almost at 6 yea...
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RhindaOct 20
selmaSBlankOct 20
RhindaOct 20
selmaSBlankOct 20
4
By Rhinda
I have had trouble getting up after a lumbar puncture and blood patch. The blood patch fixed the excruciating pain, ...
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selmaSBlankOct 20
2
By kunliks
Hi, I am 24 i before 5 month i suddenly got the numbness in my left arm and after 1 month of that its turn into burn...
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selmaSBlankOct 20
H55Oct 20
selmaSBlankOct 19
H55Oct 19
selmaSBlankOct 17
109
By katiamarie Blank
Had a rough 5 days with severe waist hip low back pain. Had to go to er given pain meds. Had shaking vomiting hiccups...
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selmaSBlankOct 19
1
By kmyw66
about 2 months ago I woke up n my left arm from my elbow to my fingers was swollen. As the swelling went down I start...
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2
By harboy
has anyone had any success with taking prednisone
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4
By grockwell925
Hi All, I was diagnosed with CM1 when I was 16. 6mm herniation with no symptoms....fast forward to 6 weeks ago (al...
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selmaSBlankOct 12
VMZ14Oct 12
6
By keshia3017
When I seen the neoro surgeon he said he wants me to do physical therapy because it could possibly be a posture thing...
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selmaSBlankOct 17
VMZ14Oct 17
selmaSBlankOct 17
7
By keshia3017
Hello ive been feeling ok this week besides headaches until this evening. As soon as I left work my arm started to hu...
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selmaSBlankOct 17
selmaSBlankFeb 20, 2011
rod44Feb 20, 2011
4
By Cammie123 Blank
Are syrinxs usually located in a certain part of the spine?
8170270_tn?1413848935
selmaSBlankOct 16
1
By Krystinamarie
I was wondering if any of you have had experience in applying for EFMP because of Chiari malformation. I just started...
7205189_tn?1391480865
zygy2Oct 15
selmaSBlankOct 14
4
By NicoleAdia
I have Chiari Malformation and was told I have EDS as well, I'm in the process of getting an official diagnosis. Bes...
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selmaSBlankOct 15
selmaSBlankOct 14
4
By LeslieAnne3811
My 19 year old son had Chiari decompression last Monday, 8 days ago. He was getting back to eating fairly normally, s...
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selmaSBlankOct 15
EehuntOct 15
selmaSBlankOct 15
4
By Eehunt
Hi, I was just told that I am a type 1, 2 days ago, and needless to say, I'm freaking out a bit. Glad I found this s...
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selmaSBlankOct 15
selmaSBlankOct 15
0224Oct 15
harboyOct 15
selmaSBlankOct 13
5
By harboy
Hi family, its Cindy. My daughters symptoms are getting worse. We are working with two government agencies to try...
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selmaSBlankOct 15
geebugJun 05, 2012
irislitaJun 05, 2012
geebugJun 04, 2012
selmaSBlankJun 04, 2012
14
By geebug Blank
A little background: I have an assortment of symptoms that all seem to be covered by ACM, but I've never been diagno...
620923_tn?1413427272
selmaSBlankOct 15
selmaSBlankMar 15
selmaSBlankMar 03
girlinxileDec 31, 2013
IndysweirDec 31, 2013
21
By selmaSBlank Blank
Applying for social security disability and SSI benefits, with or without an advocate can be difficult due to how lon...
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harboyOct 15
selmaSBlankOct 15
2
By vbmartin
My 13 yr old son was diagnosed with Chiari in 2006. He hasn't had alot of problems with it until the last yr. He had ...
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