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Chiari Malformation Community
This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.
21 - 40 (of 11668) questions
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20791471 tn?1509653962
I went to Indy to meet with a neurosurgeon there. Long story short, he told me that the only symptoms he can verify are from the chiari a...
1 answer | 2 comments |
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hc1
Hi everyone and thanks for any help you can give me. I have a long story and I will try to summarize why I am posting in this group. ...
1 answer |
Avatar universal
I was perscribed Gabapentin which is generic for Lyrica, I believe. I was perscribed this prior to my diagnosis and my insurance just ap...
22 answers | 3 comments |
992677 tn?1497486696
Has anyone here seen Sarel Vorster, MD?
2 answers | 2 comments |
Avatar universal
Got my results from MRI and it states that it is "normal MRI of brain" but shows that there is a "cerebellar tonsillar ectopia of 2-3 mm"...
3 answers | 4 comments |
Avatar universal
And if so, what has your experience been with Chiari specialists? Was your diagnosis originally ignored or denied?
1 answer |
20791471 tn?1509653962
So, I went and saw my NS and he has diagnosed me with a Chiari 1.5. I never even knew it was a thing. He said that along with my cerebell...
1 answer | 2 comments |
Avatar universal
I am a 20 year old female who has been suffering a long time. I need help finding an intelligent neurologist who thinks outside of the bo...
2 answers | 18 comments |
Avatar universal
Hi all, this is probably the shortest possible way i can write all of this down i apologize Long story short, i have abused DXM in sup...
1 answer |
1968463 tn?1374761413
Sorry guys, I guess I got one of the remedies mixed up in my head. The "Robitussin" treatment helps with the widespread pain...I'm guessi...
16 answers |
Avatar universal
Hello all, pleased to meet you. Looking for a dr for Chiari in Oklahoma or N. Texas My situation derives from Vitamin D deficient Ric...
1 answer |
Avatar universal
looking for others with Syringomyelia only (NO chiari) in Ontario.
2 answers | 1 comment |
Avatar universal
Hi, I am having surgery next Monday with one of the best neurosurgeons in the country. I am very nervous, was just wondering how long eve...
1 answer | 6 comments |
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I have had a headache for a month straight. I have been to the E.R. more than once. I have had CT scans and M.R.I.s I had a fusion done i...
1 answer |
4175869 tn?1351117417
Hi Well, I had my repeat MRI done yesterday and am awaiting the results of that. I am having some odd symptoms...I am having facial numbn...
13 answers | 2 comments |
Avatar universal
Hi, I found out Tuesday that I must have surgery done on November 6th because of my CM. I have a blockage and a cyst. I was told my i...
2 answers |
Avatar universal
Hi, I've had a headache (a really weird headache) for almost 2 months now. I had a MRI done and it showed ectopic right cerebellar ton...
2 answers | 2 comments |
847512 tn?1272570662
Hi Everyone I need some help with deciphering a term my NS used on a e-mail to me this morning....I told him about my pain in my neck and...
7 answers | 2 comments |
12573102 tn?1431705217
Hi I am 41yrs old & 4 weeks ago developed right ear fullness, tinnitus in right ear, severe migraines, swelling in hands with tingling & ...
5 answers | 1 comment |
Avatar universal
So recently I found out i have 9.5mm shift, I’ve had Chiari diagnosed for years now but old neurologist brushed it off and instead insist...
1 answer |
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