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Chiari Malformation Community
This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.
21 - 40 (of 11500) questions
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Avatar universal
I had an mri done and it shows that and it also shows a few scattered1mm foci of t2 prolongation bilateral supratentorial white matter. T...
10 answers | 1 comment |
Avatar universal
Hi all, New here and have been reading through old posts to find answers to my questions. All very helpful. But I thought if I want to g...
2 answers | 1 comment |
Avatar universal
It started with what we thought was a pulled muscle in her shoulder after gym. The week after a sore throats and then abdominal pain and ...
4 answers | 1 comment |
Avatar universal
I have large Syrinx and it's growing outward from c1 to t3... my spinal cord is stretched like 5 mm at its widest point. These neurosurge...
2 answers | 1 comment |
1303966 tn?1296743610
I know Chiari can cause trouble with the ears, but if those of us could list some personal experiences concerning Chiari and their ears, ...
21 answers | 1 comment |
12501326 tn?1485677828
My first brain surgery was done February 2014. The decompression surgery leads to brain slumping or cerebular ptosis. I had a titanium me...
1 answer | 1 comment |
Avatar universal
Hello, I was recently diagnosed with Chiari Malformation after about a year of terrible headaches, neck pain, dizziness, fatigue, not bei...
3 answers | 2 comments |
8170270 tn?1413848935
Hello, I had decompression surgery about two and a half years ago for chiari type 1. My symptoms have not improved and after several M...
2 answers | 1 comment |
19842822 tn?1485308192
The pain is consist it never goes away. It feels like someone is pulling my hair 24/7. I also have burst of shocks of pain as well and it...
2 answers |
Avatar universal
I have a 6 mm herniation with a mild CSF blockage, but my symptoms make it seem so much larger. I've had a constant, horrible headache fo...
2 answers |
Avatar universal
I'm at a loss here. The Diamox helps a little but not quite enough. The dose has been upped a few times and I still have problems. Not to...
8 answers | 2 comments |
18978650 tn?1470664915
i had decompression a few months ago and finally tried to clean and move things around in my room by myself. After i cleaned i noticed my...
2 answers |
2201298 tn?1338689021
i had my 1st surgery for chiari decompression in Oct '11 and another surgery in Jan '12 to repair the durapatch when it started leaking c...
10 answers | 2 comments |
12501326 tn?1485677828
Hi! I had surgery one year ago to correct Chiari. I managed to get about 10 of relatively pain free life. I was impressed with how good o...
5 answers | 1 comment |
Avatar universal
I had cervical and upper thoracic MRI's in early 2016 (Kaiser) for radicular symptoms. They found some disk degeneration and foremen narr...
3 answers | 2 comments |
620923 tn?1452919248
Hi I wanted to get a list started for those of you in Canada...I am not sure if these drs r indeed chiari specialists, but found their na...
71 answers | 5 comments |
1679858 tn?1346768781
Hi, My GP has ordered a sleep study because I've complained of fatigue. Doctors look at me with 'that look' because nothing has ...
5 answers | 2 comments |
1679858 tn?1346768781
Hi, just wondering what is available for brainfog and or fatigue. Anything? I awaken with head pressure which includes pain on top of ...
4 answers |
5952632 tn?1377270669
Ok, first up, an update since it has been a very long time since I have been on here. I started having the black outs after the decompres...
1 answer |
1448748 tn?1312959808
I was just wondering, I was reading other places that drop attacks related to Chiari are actually where you lose consciousness and then I...
9 answers |
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