Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlankDec 22
4
By Daugter123
​Hello, My mother has chiari malformation type 1. My mother was misdiagnosed for ten years. Through years an...
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6
By Supermanluvsme
Hi, I am a 44 year old woman whos had Chiari I for most of my life, I've learned to deal with my headaches and all th...
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selmaSBlankDec 22
S_ChaneyDec 20
sheryl108Dec 20
S_ChaneyDec 20
5
By sheryl108
I hit my head a couple days ago, thinking nothing of it, took my ultram, put ice on it and, laid down. I am 8 months ...
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By Nellan12
This is Nella' husband Chris. I am giving update on Nella's surgery. Surgery started an hour later than expected. ...
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selmaSBlankDec 22
ASumrallDec 20
selmaSBlankDec 10
ASumrallDec 10
45
By selmaSBlank
Hi....today lets post so wishes for yourself, family, friends...whomever you want to share a wish for.... It ...
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5
By kwalker0004
I decided to go back to college to finish up my two degrees. Radiologist and Vet Tech. The only reason I had to let t...
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S_ChaneyDec 20
selmaSBlankDec 19
Mika_37Dec 19
selmaSBlankDec 02
5
By Mika_37
Two weeks ago I was diagnosed with chiari 1 malformation due to an injury of some sort. I was told that surgery is my...
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selmaSBlankDec 15
selmaSBlankDec 11
4
By annelie1980
Hi Up until March 2013 I was pretty healthy then bam! I have been struggling since and have racked up quite a comple...
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By lisasbitsnpieces
Hi, I am new to this forum.I just got diagnosed 2 months ago. Seen chairi yesterday. Dr. Payner at IU Methodist in In...
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WkmichalDec 18
selmaSBlankMar 16
selmaSBlankJun 26, 2013
jonlynJun 25, 2013
46
By 10Ebtrfly Blank
I'm a patient who's been on a 6 yr journey of trying to find out what's wrong with me. So many drs have given their ...
620923_tn?1416285879
selmaSBlankNov 06
selmaSBlankSep 29
selmaSBlankSep 10
selmaSBlankAug 28
95
By selmaSBlank Blank
This list is not a complete list of possible Specialists - This thread is here so Please continue to add your Drs n...
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Arya83Dec 18
Nellan12Dec 15
selmaSBlankDec 15
Arya83Dec 12
selmaSBlankDec 12
5
By Arya83
I have read through so many of the questions and answers, and appreciate everyone's time and information. I too have...
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selmaSBlankDec 17
2
By selmaSBlank
Hi all Please wear purple tomorrow Weds, Dec. 16th to help raise awareness for Chiari and show support for our f...
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selmaSBlankDec 17
1
By AKC_75
Hey everyone, I know its been a long time since I posted here but, just wanted to let y'all know that I have had 2 in...
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WyssaDec 17
Nellan12Dec 15
WyssaDec 15
13
By Wyssa
Hi guys! So I'll be scheduling surgery soon, and when I do, I plan on telling people about what I'm going through. My...
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katie_m8Dec 17
selmaSBlankDec 09
katie_m8Dec 08
selmaSBlankDec 08
9
By katie_m8
It's a bit like the chicken and egg story.. what came first .. tonsillar descent or syrinx and which one do they fix...
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selmaSBlankDec 15
0224Dec 13
selmaSBlankDec 12
3
By 0224
How long did it take after surgery for your balance to get better? Did it a ever go back to normal or just improve? ...
620923_tn?1416285879
By selmaSBlank
Hi All...please wear your purple tomorrow Dec.12th to help get awareness for Chiari and show support as o...
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selmaSBlankDec 12
bekah0656Dec 11
selmaSBlankDec 11
5
By bekah0656
I've had severe headaches since I've been decompressed last week I ended up in the ER due to the worst migraine of my...
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selmaSBlankDec 12
2
By happy1975
Hello! I have recently been diagnosed with an 8 mm herniation /chiari. My question is after seeing 2 neurosurgeons t...
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