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Chiari Malformation Community
This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.
21 - 40 (of 11616) questions
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620923 tn?1452919248
Hi I wanted to get a list started for those of you in Canada...I am not sure if these drs r indeed chiari specialists, but found their na...
77 answers | 11 comments
  Joedmonton,    selmaS ,    mrscmuzik,    Kgagen,    selmaS
1230181 tn?1269954624
Does anyone have a good answer for that one? Recap - I have CM1 5 mm, multiple discs issues, multiple spinal curve problems (possible sc...
8 answers | 2 comments
  selmaS ,    JustCristi2
6150006 tn?1496083843
I had CM surgery in late 2013. My recovery has been slow, I believe, due to age & damages done prior to surgery that are not fully restor...
1 answer
  selmaS
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I had my last decompression surgery in 2014. Last week at work I started blacking out again and feeling dizzy. Long story short I passed ...
1 answer
  selmaS
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I was diagnosed with Chiari Malformation and an astrocytoma brain in early December 2016. I was herniated at a 16mm by the time it was di...
1 answer
  selmaS
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My only symptoms are headaches and pressured ears, with poping in my ears everytime I open my mouth. I can be doing anything and out o...
1 answer
  selmaS
20518617 tn?1499817861
My first NS appointment is in a couple weeks but I've tried searching this question and can't get much info. I live on the lake so every ...
1 answer | 1 comment
  Nay_nay11,    selmaS
Avatar universal
Hi everyone. Just wondering if anyone out there has had intense lower back pain from craniocervical instability. I get terrible pain in ...
2 answers | 1 comment
  selmaS ,    lasel22,    selmaS
620923 tn?1452919248
Hi all please wear your purple to help gain awareness and show support of our new friend going into surgery July 26th...sorry I was late ...
Avatar universal
Is there a list somewhere that can be found? My son's current NS is really pushing us to have an ICP Monitor and then most likely a de...
1 answer
  selmaS
20562342 tn?1500770982
It has been at least 8 years since I was diagnosed with a chiari type 1. I saw a neurosurgeon very soon after. He determined at that time...
1 answer | 3 comments
  SynyKon,    selmaS ,    SynyKon,    selmaS
Avatar universal
I live in Southwest Missouri and have recently been diagnosed with Chiari Type 1. The local physicians have referred me to a neurosurgeo...
4 answers | 1 comment
  Nay_nay11,    ChiariKym,    Nay_nay11,    selmaS ,    debi1959
Avatar universal
I am 3 weeks post-op today. I am experiencing a lot of stiffness and a throbbing pain on the left side of my neck. I also get light heade...
1 answer
  selmaS
1375086 tn?1278707565
Hi there Have been diagnosed with CFS 4 years ago, all symptoms became worse so went back to my GP - finally got to see a nurologist, wh...
14 answers | 2 comments
  selmaS ,    UndiagnosedK,    selmaS ,    Janana1,    selmaS
Avatar universal
I am currently entering week 7 post Chiari decompression surgery. I have had a pretty rough recovery but felt I was turning a corner week...
2 answers | 2 comments
  selmaS ,    hevnw8s,    Mnkohn,    selmaS
Avatar universal
Which doctor at UAB in Birmingham performed your surgery? My granddaughter has just been told she has Chiari Malformation type 1 but is ...
4 answers | 2 comments
  selmaS ,    JoMomma4ua
Avatar universal
Hi everyone, I am trying to avoid thinking about this too much but everytime I get the headache it drives me insane, it lasts for days...
1 answer | 2 comments
  selmaS ,    alaa_afaneh,    selmaS
Avatar universal
Hi - I had decompression 9/2011 and tethered cord release 4/2012. My 10 year old daughter is having decompression July 26 and tethered co...
1 answer | 1 comment
  Colie811,    selmaS
Avatar universal
Hi all, I am new here and was diagnosed with syringomyelia (syrinx in my spinal cord) about two months ago. Thankfully I do not have cha...
1 answer | 4 comments
  selmaS ,    Iris_Berlin,    selmaS ,    Iris_Berlin,    selmaS
Avatar universal
This is how it all started with the swelling in 2009. Four weekends in a row they'd keep me three days and release me after getting the s...
1 answer | 3 comments
  sebrina70,    SC_Chiari2009,    selmaS ,    selmaS
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