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Chiari Malformation Community
This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.
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Avatar universal
I also have a herniated cervical disc and scoliosis
3 answers | 1 comment |
620923 tn?1452919248
This list is not a complete list of possible Specialists - This thread is here so Please continue to add your Drs names once you have b...
34 answers | 3 comments |
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Hello, new to the community. Was diagnosed a few years back and have seasonal symptoms. I agree with all comments about Chiros and trea...
2 answers |
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I am newly diagnosed in Dec and my GP initially said I don't need to see anyone at all but I have a lot of questions. Took my oldest son ...
2 answers |
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My daughter was diagnosed with Chiari back in 2012 , the doctor said he tested her for EDS and put in the titanium mesh plate. a few mon...
4 answers | 2 comments |
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I was diagnosed with CM1 back in November of 2016 with a 6mm herniation. Since then, I've seen a neurosurgeon and a neurologist who both ...
2 answers |
1303966 tn?1296743610
Can anyone tell me if they experience head or face twitching with their Chiari? I'm having a lot of twitching near my temples, very anno...
33 answers |
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Hello All, I was diagnosed last year with a 7mm Chiari malformation. I am extremely symptomatic and have been for 9 years now. I was t...
2 answers |
847512 tn?1272570662
Hi everyone, I just wanted to see what everyone's average recovery time was after surgery to at least feel back up to par to manage goin...
19 answers | 6 comments |
Avatar universal
I just had an MRI done yesterday and here are the impressions, can someone please explain in layman's terms? 1. No significant change or ...
1 answer |
Avatar universal
Hi everybody.. Does anyone know about invasive cervical traction with floroscopic guidance procedure? I am having this done is 8 days at...
4 answers | 2 comments |
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I had decompression surgery Feb of 2016. I had a nerve block in Oct 2016 and first round of botox shots 2016 and a round of Xeonim on Fe...
1 answer |
1303966 tn?1296743610
Last Sunday I woke up and went about my morning, and suddenly looked at the clock and realized I missed church. The night before, I was ...
33 answers | 2 comments |
Avatar universal
I was diagnosed with Chiari I malformation 5 months ago with a cerebellar tonsil that protrudes 12 mm. a few times my neck muscles have b...
1 answer |
Avatar universal
This is crazy I know, but I have been having midspine pain. Hard to get up from sitting and just so so painful and sore. My husband was...
8 answers | 4 comments |
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Ive had a chiari malformation of 3mm as far as I know for over 12 years. I have seen various chiari specialists (ellenbogen, Di). I've be...
17 answers |
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Hello I was diagnosed with CM about 6 years ago but was told decompression isn't needed until I can no longer deal with my symptoms. Sinc...
15 answers | 1 comment |
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I just got a cervical MRI due to really bad headaches and really bad neck and shoulder pains. The pain would radiate down both arms into...
2 answers |
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Hello, I'm currently 17 years old and was diagnosed with a borderline Chiari Malformation type 1 when I was 10 after 3 years of testing a...
2 answers | 1 comment |
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Please help I have just been diagnosed with the chiari malformation and I am so so scared I have two very small children and I am so frig...
33 answers | 4 comments |
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