Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlankFeb 05
selmaSBlankFeb 02
selmaSBlankFeb 01
7
By BBSweet1952
How can I locate the list of physicians experienced with Chiari treatment that has been referenced by other users? Tr...
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selmaSBlankFeb 05
1
By Normalee69
I was diagnoised with Chiari Malformation 1, 8 years ago I am now starting to have real bad headaches and my arms an...
906843_tn?1245212494
selmaSBlankFeb 04
sciencedjFeb 04
selmaSBlankApr 03, 2013
ThePeachy1Apr 03, 2013
linnielou232Apr 03, 2013
7
By ThePeachy1 Blank
HI guys, I've had Chiari and been battleing the Dr's here for several several years, hunting and searching suffering ...
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selmaSBlankFeb 04
KerriC1Feb 03
2
By laratterman
Ok... I know! I have been absent for a while! My tail is between my legs... I have a question for all of you. ...
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selmaSBlankFeb 04
1
By laratterman
Selma, can you bump the doctors list please? I need to see if there are any NS and NL around Dayton or Columbus that...
620923_tn?1452919248
selmaSBlankFeb 04
selmaSBlankAug 28, 2015
selmaSBlankApr 15, 2015
selmaSBlankFeb 07, 2015
selmaSBlankJan 26, 2015
26
By selmaSBlank Blank
Applying for social security disability and SSI benefits, with or without an advocate can be difficult due to how lon...
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By KerriC1
Does anyone know what causes this? I thought pre op it was from csf restriction but post op? It's been doing this aga...
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Mikef1980Feb 04
selmaSBlankFeb 02
lasel22Feb 02
4
By CaityLynn17
I am 17 years old and I was diagnosed about 2 months ago. I've talked to a surgeon that has said I should get surgery...
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lasel22Feb 02
poosygirlJan 31
selmaSBlankJan 30
3
By lasel22
I had occasional episodes of sleep paralysis when I became symptomatic with chiari. At first I didn't know what was ...
17185752_tn?1454402076
selmaSBlankFeb 02
1
By AJohnson14
I've been dealing with headaches for roughly 2.5 years. I have a MRI when they first started and was told everything ...
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selmaSBlankFeb 01
selmaSBlankJan 31
selmaSBlankJan 31
5
By 1periodfarts
four months ago, i woke up with a headache that wouldn't go away. after a month, i went to the doctor who did an mri...
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selmaSBlankJan 31
1
By The_beat_goes_on
So I've discovered that since my second decompression surgery (11-18-15) my LP shunt has stopped working. I UGLY CRI...
6870851_tn?1385745046
selmaSBlankJan 31
LglatelyJan 30
Swampy1980Nov 30, 2013
Swampy1980Nov 30, 2013
bean418Nov 30, 2013
14
By Swampy1980 Blank
Just found out that my nine year old has Chiari type 1 malformation 5mm. They are setting up an vist to see the neuro...
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selmaSBlankJan 31
1
By kimberly6k
I recently found out a 2009 MRI picked up a 5 mm chiari. I just saw a neurosurgeon and after viewing a May 2015 brai...
17159718_tn?1454190687
selmaSBlankJan 30
1
By Lauraluv6
Hello everyone, I am Laura. On December 2nd, 2013 (I was only 17), I was diagnosed with Chiari Malformation 1. I told...
17149446_tn?1454113379
selmaSBlankJan 30
selmaSBlankJan 29
3
By RichsToots
Hello all! I've got Ehlers Danlos syndrome hypermobility type, scoliosis and thoracic outlet syndrome. About two year...
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KerriC1Jan 29
selmaSBlankJan 28
KerriC1Jan 28
selmaSBlankJan 28
KerriC1Jan 28
12
By Emme80
Hello all...someday I'm going to write (if I can concentrate long enough and find a point to make sense of my whole j...
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KerriC1Jan 28
KerriC1Jan 27
Southpaws3Oct 12, 2015
6
By Southpaws3
I finally got an appt for Dr Menenez in iowa but ive been reading and now im worried ive read he deals with children ...
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By undiagnosed1
Hi everyone. I had a regular MRI which showed a 4mm chiari, though the neuros that i've seen believe that it needs...
1309256_tn?1273513006
selmaSBlankJan 28
SachiwaJan 28
mamahobbsMay 14, 2010
selmaSBlankMay 12, 2010
shanmomof3May 12, 2010
9
By mamahobbs Blank
I seen a docter at Stanford, felt ok about the consulation, but didn't get alot of info, and was told Surgery would b...
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