Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlankAug 27
1
By Jordy36
Can you please advise if there are any Chiari Specialists in Melbourne Australia?
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selmaSBlankAug 27
selmaSBlankMay 16
SarahNewDec 28, 2014
selmaSBlankDec 23, 2014
206
By selmaSBlank Blank
Ok...we know what most Drs will accept as a chiari symptom...but, we also know we have many more symptoms that r chia...
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selmaSBlankAug 26
selmaSBlankAug 24
6
By samsam5mom
Could u give me the link for true specialists please. I can not find it. I live in Minnesota. Looking to find someon...
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selmaSBlankAug 26
lasel22Aug 26
selmaSBlankAug 20
21
By RayChap222
Hello, I recently had an MRI done and was told I had Chiari Malformation. I was told that i had downbeat nystagmus be...
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selmaSBlankAug 26
1
By Whan1998
I have had 3 mris all in 2 years first one said chari malformation but not mentioned in the next 2 Have a lot of he...
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sherimomAug 25
selmaSBlankAug 25
2
By sherimom
Hi all, So my son had the MRI yesterday and it looks fine. He didn't see any CSF flow issues (although they did not...
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MandiW74Aug 25
selmaSBlankAug 25
2
By MandiW74
Hi Guys! I've recently been diagnosed with a Chiari Malformation type 1. I've been prescribed pregabalin and so far ...
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sherimomAug 25
AKC_75Apr 08, 2014
selmaSBlankApr 08, 2014
3
By aimfall Blank
I am 16 and very scared as my neurosurgeon has finally come to the conclusion that with my sinking chiari, severe sym...
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selmaSBlankAug 25
1
By cfinniss9
Has anyone had Chiari surgery done by dr job Weingart at John Hopkins? I need a second decompression because of block...
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selmaSBlankAug 24
selmaSBlankAug 24
8
By samsam5mom
Another question from a concerned mom..... ok so I have been on here several times. My son had decompression surgury ...
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selmaSBlankAug 24
selmaSBlankNov 11, 2012
Magz666Nov 11, 2012
19
By czpdx Blank
I was recently diagnosed with a pseudomeningocele and am struggling with deciding whether or not to have it treated. ...
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selmaSBlankAug 24
KerriC1Aug 23
2
By selmaSBlank
Hi ALL please wear your purple tomorrow Aug 24th to help gain awareness for Chiari and show support of our freind as ...
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selmaSBlankAug 24
1
By Amayamarie
I was decompressed aug 4th I did Not have duraplasty done my doc just peeled layers to expand for better flow. I was ...
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selmaSBlankAug 24
patman817Aug 23
selmaSBlankAug 23
patman817Aug 22
selmaSBlankAug 18
7
By patman817
Well I went to doctor they gave me antibiotic cream. THe incision was closing, but now it's opening. I have CSF fluid...
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selmaSBlankAug 22
1
By Ginaggg
Hiya I just found this site and so pleased to see there are others with chiari type 1, not that I mean it like that! ...
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selmaSBlankAug 20
1
By lasel22
Since I've been reading this forum I have realized that POTS is a condition that can be related to chiari but can als...
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selmaSBlankAug 20
kellygaAug 20
selmaSBlankJun 01
selmaSBlankJul 19, 2010
14
By Lovely101 Blank
Hello. I am new to chiari. I was diagnosed with a Chiari 1 malformation. My herniation is 10mm. At this time I am try...
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13
By Paramedic22
Hi I'm new to this forum I was diagnosed with chaira malformation when I was 8 years old the doctor gave me a Mri ...
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selmaSBlankAug 19
Skippy777Aug 18
selmaSBlankAug 18
Skippy777Aug 18
selmaSBlankAug 17
12
By kelbelrn16 Blank
Hi, I am new here and just looking for some help. About 2 years ago, I developed horrible occipital headaches and had...
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selmaSBlankAug 18
sherimomAug 18
selmaSBlankAug 17
sherimomAug 17
selmaSBlankAug 17
8
By sherimom
Just saying "hi" to everyone. My son, now 22, still having problems after his decompression 6 years ago. Sometimes i...
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