Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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VMZ14Jul 21
selmaSBlankJul 21
RhindaJul 21
selmaSBlankJul 21
RhindaJul 21
11
By Rhinda
I'm new on this forum. I have Syringomyelia and will be seeing a Chiari specialist in 3 weeks. I am almost at 6 yea...
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selmaSBlankJul 21
1
By Stylo1955
Have been told wife has shading if brain after MRI Scan ....what dies this mean as appointment with Neurologist is a ...
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selmaSBlankJul 21
2
By MillaLT
Hello. I had decompression surgery for my Chiari I two years ago. It was successful; the only symptom I had at the t...
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Mel5056Jul 19
rod44Jul 18
acosheaJul 18
rod44Jul 18
17
By acoshea
hello I am new at this I am 23 I was diagnosed a nonth ago. I keep trying to ask questions but it doesn't seem like a...
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selmaSBlankJul 19
GruntyJul 19
VMZ14Jul 19
GruntyJul 19
selmaSBlankJul 19
6
By Grunty
Hi, I have been diagnosed with Cerebellar Tonsillar Ectopia (6mm). My question is.... Is it the same as Chiari Malfor...
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selmaSBlankJul 19
1
By Gebbp
Hi I'm new to this, but here goes. I've recently been treated by my neurosurgeon for Chiari. There have been several ...
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Mel5056Jul 19
H55Jul 19
Mel5056Jul 19
Mel5056Jul 19
Devmom3Jul 19
12
By Devmom3
I was diagnosed in February of this year while pregnant with my third child. I lost my sight in my right eye and had ...
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Mel5056Jul 19
Mel5056Jul 14
selmaSBlankJul 13
14
By Mel5056
Hi guys, surgery was monday and I came home yesterday. I had the tonsils removed, vertebre cut and duration patch p...
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kristy12Jul 18
zygy2Jul 17
selmaSBlankJul 15
selmaSBlankJul 14
7
By Tracysiller
I was decompressed 2011 and repaired in 2012. I've since discovered that I have occipital neuralgia. It's being treat...
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selmaSBlankJul 18
selmaSBlankJul 12
selmaSBlankJul 10
fro510Jul 09
21
By selmaSBlank
Hi All this month's topic is to have surgery or not....the Drs leave that decision up to us..... Thoughts, experie...
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selmaSBlankJul 17
1
By 1460
I need a chiari educated neurologists for on going follow up care for post operative chiari surgery
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selmaSBlankJul 16
RysmamaJul 16
selmaSBlankJul 16
3
By Rysmama
Hi. My 1 year old baby boy was just diagnosed with a significant syrinx in his thoracic spine. They don't believe h...
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selmaSBlankJul 15
selmaSBlankJul 15
lourie26Jul 14
lourie26Jul 14
7
By lourie26
was wanting to know if there is a gooood neorologist in or around detriot mi or even in ohio that knows about chiari
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selmaSBlankJul 16
selmaSBlankJul 15
4
By alexajoelle
I posted a while back when I was first diagnosed. Since then my headaches are less frequent but I have been getting w...
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selmaSBlankJul 15
1
By KurtPT
It's certainly been a while since I've posted! Since my series of blackouts and hospital stay that ended May 26, it's...
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selmaSBlankJul 14
1
By YankeesGirlSG
I was just diagnosed with chiari 1 as well as IIH. I have a 1.5cm (15mm) descent ion with numbness/tingling in my han...
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By bean418
John M. Tew, Jr., MD, a leader in his field and in his community, stopped performing surgery at the Mayfield Clinic o...
620923_tn?1405964489
selmaSBlankJul 14
H55Jul 14
selmaSBlankJul 14
H55Jul 13
selmaSBlankJan 03, 2013
371
By selmaSBlank Blank
Hi all, As you are scheduled for surgery please add it to this thread so we know when it is.Please also have a con...
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selmaSBlankJul 14
1
By Worriedmommyof4
Hi everyone, I'm new to this forum and need some guidance. My 6 year old daughter has been through tons of tests for ...
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rod44Jul 14
selmaSBlankJul 14
JennettefJul 13
selmaSBlankApr 25, 2013
78
By 2GApeachy Blank
I just got a diagnosis. When the doctor told me, I was so nonchalant; however, having done more research, this is ra...
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