Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlankJan 16
Emme80Jan 11
LilygatorJan 11
selmaSBlankJan 10
7
By Lilygator
Finally! My daughter has been suffering with severe progressive (debilitating) headaches originating from her occipi...
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selmaSBlankJan 16
Emme80Jan 16
gjjlJan 14
selmaSBlankJan 14
8
By Emme80
Just an update... My NS follow up went...bad. He says there's no reason for a follow up. And I'm giving up. I don't k...
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Emme80Jan 21
gjjlJan 20
selmaSBlankJan 20
gjjlJan 20
gjjlJan 20
11
By gjjl
I was wondering if any one you had the same situation. I'm 3 weeks out from surgery and I was doing really well. Last...
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selmaSBlankJan 20
topneezieJan 20
RylanesmomMar 28, 2012
selmaSBlankMar 28, 2012
EliahnMar 28, 2012
7
By Eliahn Blank
I am curious, those of you who have had surgery for CM1 what are some of the side effects you are or have dealt with?...
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selmaSBlankJan 20
Emme80Jan 19
KerriC1Jan 19
Emme80Jan 18
selmaSBlankJan 18
8
By KerriC1
I had to put my beloved rescue dogs to sleep today due to congestive heart failure. My heart is broken and as I type ...
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selmaSBlankJan 20
1
By KayKay0611
Hi I had been diagnosed with the Chiari Malformation my senior year of high school. I am currently in college but wit...
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Emme80Jan 18
selmaSBlankJan 17
BlueghostJan 16
selmaSBlankJan 16
BlueghostJan 16
8
By Nacoma58
has anyone had surgery with a herniation of 4mm?,and does anyone experience cold water feelings in thier face?
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selmaSBlankJan 17
JeandsJan 17
selmaSBlankJan 16
3
By Jeands
My daughter of 12 has been diagnosed chiari malformation this week.The neurologist said no sport while she still has ...
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gjjlJan 17
selmaSBlankJan 16
3
By Blueghost
A few nights ago at about 3am I jerked the wheel to avoid a deer while driving and got pulled over by two deputies, o...
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lasel22Jan 16
selmaSBlankJan 15
dazza1982Jan 15
gjjlDec 29, 2015
selmaSBlankDec 18, 2015
11
By dazza1982
hi 1st time poster - im so scared rite now, about 6 weeks ago i started having bad headaches, not eating, cold and wa...
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selmaSBlankJan 16
1
By Jeands
Where are chiari headaches located?
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selmaSBlankJan 15
1
By KerriC1
I had my appointment on the 13th. I was impressed with his honesty and the time he took to listen to me. After being ...
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selmaSBlankJan 15
selmaSBlankJan 12
3
By shelly0513
I am desperate for a second opinion and feel like there is something not right, but my neurosurgeon is being dismissi...
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selmaSBlankJan 15
lasel22Jan 15
selmaSBlankJan 14
4
By LAURENKilb
I have recently been diagnosed with Chiari Malformation. Still trying to let this sink in and understand what this me...
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lasel22Jan 15
gjjlJan 14
selmaSBlankJan 14
3
By confusion07
It has been 5 years since my Chiari decompression surgery. In some issues there was great relief (vision, ringing in ...
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selmaSBlankJan 14
onix66Jan 14
2
By onix66
Hey, I am 20, male. I had this double bundle ACL reconstruction surgery a couple week ago. I was given anesthesia i...
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selmaSBlankJan 14
selmaSBlankJan 07
3
By engelsflugel
Hey everyone, after an MRI scan I was diagnosed with Chiari Malformation with a degenerative disc and a narrow, bu...
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BlueghostJan 14
selmaSBlankJan 12
ShannsamJan 11
KerriC1Jan 10
10
By Emme80
i was wondering others experience with people's reaction from loved ones or how said loved ones have said hurtful thi...
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selmaSBlankJan 13
gjjlJan 13
SWW16Jan 13
gjjlJan 13
4
By SWW16
Hi SelmaS..(and everyone else) Just thought I would leave a quick update on my surgery, it is 6 weeks tomorrow since...
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gjjlJan 13
Emme80Jan 13
gjjlJan 12
gjjlJan 12
Emme80Jan 12
9
By gjjl
Hello, everyone. I was wondering if anyone had the same symptom after surgery. I'm a little under 2 weeks out from my...
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