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Chiari Malformation Community

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4

9 Years post op new issues

by Ticopuppy,
Hi all. First time posting here. I am a 46 year old female. I was dx...
14

PLEASE HELP!

by jorlex137,
Please let me know what to look for! Surgery 11/24, did well recovery....
2

rollar coaster of healing

by jorlex137,
Surgery was 11/24, it's been up and down. Thought I was doing great! ...
7

Having surgery--GET V NECK SHIRTS

by jorlex137,
Maybe you guys have already discussed this but I've never seen anyone d...
14

Cant talk

by rusty809,
Is it a common symptom to not be able to locate the words for things, o...
7

I really don't know what to do anymore!!!

by Candace5440,
So I don't know what to do anymore! Every doctor I see just pushes me f...
1

CHANGES TO NAVIGATION TO PROFILE PAGE

by selmaS,
Hi All, Some of you may have noticed you can no longer access your p...
3

Starting on Gabapentin / Records sent to Dr. Batzdorf

by laratterman,
Hi all! My pcp just put me on Gabapentin. I started it last night and...
4

Raynauds and Chiari

by sheila53213,
Does anyone else have Raynauds along with Chiari? Has your dr said that...
3

Muscle spasms

by rtyoung,
Did anyone get musle spasms after decompression surgery?
42

LIST OF CHIARI SPECIALISTS.......

by selmaS,
let's create a list of drs to refer to for our health pages: please ...
5

help after surgery

by rtyoung,
my son is in chiari decompression surgery right now. I am very worried....
3

TCI

by sheila53213,
I need someone to explain to me how long of a wait it is/will take for ...
9

Fluid build up behind the head

by Johnblutarsky,
My son soon to be 4 in January went in for surgery Nov 20th. He had iss...
11

Sleep issues

by ginapooh1969,
Hi again! I have another question. Does anyone else with a Chiari dia...
10

Post surgery questions

by jorlex137,
Hello, me again! Surgery was the 24th of Nov and I came home a little ...
1

She's Back!!!!

by n40066,
OK, not physically back at home, but Beth is more...well...Beth! She wa...
48

Sign up here to work on our CHIARI BOOK 

by selmaS,
Hi...we have been discussing creating a book for chiari awareness. Ple...
6

Post Surgery update/issues

by Devin215,
Hi Everyone its me! I am back! Sorry I haven't been on I have just had ...
1

18 months post Chiari 1 Decompression-still troubles

by Lindsaylulu,
My Chiari Malformation was a 14mm herniation. I had the decompression a...
1

doctors and waiting

by sherimom,
The NS reviewed the MRI of brain and xray of back. His office called me...
1

16 months post op

by sawyergirl,
Hello. New here. I had PFD (tonsils extremely damaged) and C1 & C2 lami...
5

Incision Pain

by ryntra,
Hi...I had Decompression surgery on 10/28. Recovery has been going fair...
13

UPDATE ON LIZZY !!!!

by selmaS,
HI I just heard from Lizzy n40066's mom and she is out of surgery and d...
5

surgery update from jorlex

by jorlex137,
Hello! I can't believe it but I"m home!!! Had decompression surgery...
1

Sagging Brain

by wina1969,
I have been told by numerous doctors in the last 6 months that I have ...
9

Update on Elizabeth

by n40066,
Surgery went well with no surprises and lasted about 3 hours. The doct...
2

recovering- FINALLY!

by northernstarmn,
hi all just thought i would let y'all know that i once again ended up i...
2

finally feeling better

by northernstarmn,
Hi all, I thought i would let you all know I am finally feeling SO MUCH...
2

Update on Elizabeth

by n40066,
Happy Thanksgiving! Just got off the phone with Beth and she is now ou...
3

Thanx

by Zenji,
Thanks for all your prayers and good vibes. I am allowed to have my com...
3

trying to determine a diagnosis

by katarina333,
I have been having issues for almost a year now of fatigue, dizziness, ...
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