Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlankOct 20
H55Oct 20
selmaSBlankOct 19
H55Oct 19
selmaSBlankOct 17
109
By katiamarie Blank
Had a rough 5 days with severe waist hip low back pain. Had to go to er given pain meds. Had shaking vomiting hiccups...
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selmaSBlankOct 19
1
By kmyw66
about 2 months ago I woke up n my left arm from my elbow to my fingers was swollen. As the swelling went down I start...
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2
By harboy
has anyone had any success with taking prednisone
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4
By grockwell925
Hi All, I was diagnosed with CM1 when I was 16. 6mm herniation with no symptoms....fast forward to 6 weeks ago (al...
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selmaSBlankOct 12
VMZ14Oct 12
6
By keshia3017
When I seen the neoro surgeon he said he wants me to do physical therapy because it could possibly be a posture thing...
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selmaSBlankOct 17
VMZ14Oct 17
selmaSBlankOct 17
7
By keshia3017
Hello ive been feeling ok this week besides headaches until this evening. As soon as I left work my arm started to hu...
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selmaSBlankOct 17
selmaSBlankFeb 20, 2011
rod44Feb 20, 2011
4
By Cammie123 Blank
Are syrinxs usually located in a certain part of the spine?
8170270_tn?1413848935
selmaSBlankOct 16
1
By Krystinamarie
I was wondering if any of you have had experience in applying for EFMP because of Chiari malformation. I just started...
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zygy2Oct 15
selmaSBlankOct 14
4
By NicoleAdia
I have Chiari Malformation and was told I have EDS as well, I'm in the process of getting an official diagnosis. Bes...
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selmaSBlankOct 15
selmaSBlankOct 14
4
By LeslieAnne3811
My 19 year old son had Chiari decompression last Monday, 8 days ago. He was getting back to eating fairly normally, s...
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selmaSBlankOct 15
EehuntOct 15
selmaSBlankOct 15
4
By Eehunt
Hi, I was just told that I am a type 1, 2 days ago, and needless to say, I'm freaking out a bit. Glad I found this s...
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selmaSBlankOct 15
geebugJun 05, 2012
irislitaJun 05, 2012
geebugJun 04, 2012
selmaSBlankJun 04, 2012
14
By geebug Blank
A little background: I have an assortment of symptoms that all seem to be covered by ACM, but I've never been diagno...
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selmaSBlankOct 15
selmaSBlankMar 15
selmaSBlankMar 03
girlinxileDec 31, 2013
IndysweirDec 31, 2013
21
By selmaSBlank Blank
Applying for social security disability and SSI benefits, with or without an advocate can be difficult due to how lon...
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harboyOct 15
selmaSBlankOct 15
2
By vbmartin
My 13 yr old son was diagnosed with Chiari in 2006. He hasn't had alot of problems with it until the last yr. He had ...
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selmaSBlankOct 14
selmaSBlankOct 14
4
By Katems0521
Hello I am 24 years old and recently found out I had chiari type 1 I had a seizure first ever when they gave me an MR...
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selmaSBlankOct 14
selmaSBlankOct 14
3
By Chiari_girl92
For the past few days I have had severe pain from my muscles tightening and seizing in the back of my neck. I'm not s...
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3
By Zipperhead2013
On September 17 I past my one year Ziiperversary, with pretty good success. Unroll the beginning of October that is, ...
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selmaSBlankOct 14
2
By wishfulthinker13
hello all, I have been getting migraines since I was 11. They have always been the same until 6 months ago (im now 1...
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By wishfulthinker13
I recently had an MRI after suffering from a pressure headache in the same spot( due to migraine ) however my MRI r...
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selmaSBlankOct 13
selmaSBlankOct 12
2
By MakerofJacksBrain
My son is scheduled for decompression and dura work for his type 1.5 chiari. He is three years old and we've struggle...
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