Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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LottidaMay 09
selmaSBlankMay 09
LottidaMay 08
selmaSBlankMay 08
LottidaMay 08
8
By Lottida
Just wandering if anyone has had persistent swelling around incision?? I have had this for 3 weeks since my 2nd week...
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LottidaMay 09
selmaSBlankMay 09
2
By Herchiari574
Hello everyone, I was diagnosed with Chiari in May 2014. After trying to find out what was going on with my arm for a...
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selmaSBlankMay 08
1
By smk015
Hi all, I have a 3, almost 4 year old daughter who was diagnosed with a "borderline" Chiari malformation almost a...
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selmaSBlankMay 08
IDKibbleMay 07
IDKibbleMay 07
SloweladyMay 06
selmaSBlankApr 27
5
By IDKibble
Hello all I am Dana I am from ithaca ny and I am a 25 year old male. I was diagnosed chiari type 1 at birth but like ...
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DSH519May 07
LottidaMay 07
amoody21May 06
selmaSBlankMay 06
4
By amoody21
Hey guys. I just received my Chiari Malformation Type 1 diagnosis today. The neurologist who reported it to me did no...
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SloweladyMay 07
selmaSBlankMay 06
SloweladyMay 06
SloweladyMay 06
selmaSBlankMay 06
9
By Slowelady
Hey Guys been a while since I last posted.... Went and saw Dr. Or last July ever since been trying to figure out why ...
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selmaSBlankMay 06
PJBJPMay 06
selmaSBlankMay 06
LottidaMay 06
4
By PJBJP
Hi just wondering my son had decompression surgery 4 years ago was very successful and the headaches dissapeared. Abo...
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selmaSBlankMay 06
1
By PJBJP
Just wondering if there was any Australians on this page????
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0224May 06
selmaSBlankMay 06
2
By 0224
Is it normal to be 6 month post op and still be dizzy sometimes? I had a incidence yesterday that I got up to fast an...
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selmaSBlankMay 06
1
By meljb
I had my decompression surgery 2 months ago was doing great at first but in the last 2 weeks ice been having severe h...
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LottidaMay 06
selmaSBlankMay 06
CWeirMay 06
7
By CWeir
I think I may already know the answer but just to be on the safe side, can you fly pre-surgery or if surgery isn't in...
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selmaSBlankMay 05
Cooper87May 05
selmaSBlankMay 05
3
By Cooper87
My daughter had decompression surgery with duraplasty and cerebellar tonsillectomy on April 10th this year. She is 1...
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selmaSBlankMay 05
DSH519May 05
3
By SugarK
Please, can you help? Does anybody recognise this MRI picture as Chiari? I have hypermobility, sleep apnoea, awful...
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selmaSBlankMay 05
Jason2848May 05
ElisaandbuckyNov 21, 2014
Jason2848Nov 21, 2014
Jason2848Nov 18, 2014
7
By Jason2848 Blank
I just found out I have a 9 mm benign cerebellar tonsillar ectopia I've been having headaches for over two months I'm...
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By 4DancingGoats
61 yr old adult, newly diagnosed this week (8 mm.) Live in NW Arkansas so ready to go out of state (and spend life sa...
13598916_tn?1430689115
selmaSBlankMay 05
LottidaMay 05
CWeirMay 05
selmaSBlankMay 05
14
By CWeir
I woke up July 7, 2014 feeling like something was very wrong. Dizzy, vertigo, confusion, imbalance, pain, ringing ...
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selmaSBlankMay 03
DSH519May 03
selmaSBlankMay 02
DSH519May 02
selmaSBlankMay 02
5
By DSH519
Anyone who has had surgery- did anyone have hypersensitivity to anything touching the head/ spine? Even putting on a ...
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selmaSBlankMay 03
1
By absolutemomtwofour
I do not know what to do!!! I was standing on our soccer field during my boys practice and my legs started gettin...
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selmaSBlankMay 03
1
By hevnw8s
Hello. It's been quite awhile since I posted anything. I had decompression surgery July 21, 2014. It was bone only wi...
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selmaSBlankMay 03
RhindaMay 03
RhindaMay 03
selmaSBlankMar 28
Nellan12Mar 28
10
By Rhinda
Diagnosed with Chiari 1 Malformation. Got a second opinion from Dr. Bolognese who thinks I still have other things g...
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