Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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1476649_tn?1287206076
rod44Sep 09
selmaSBlankSep 09
selmaSBlankSep 09
52
By KYKY84 Blank
HI, I was diagnosed and treated for epilepsy when i was 14 months old all the way to the age of 17 which at that time...
246139_tn?1410540859
kristy12Sep 08
selmaSBlankSep 08
3
By baccalynnwv
I made spaghetti and bread sticks for dinner. At the same time I was reading on the site about retroflexed odontoid. ...
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selmaSBlankSep 08
WyssaSep 08
selmaSBlankSep 08
3
By Wyssa
Hi everyone! So I'm looking at going to the Chiari Institute for help. My symptoms have worsened over the past few we...
620923_tn?1405964489
selmaSBlankSep 08
harboySep 08
selmaSBlankSep 08
harboySep 08
7
By selmaSBlank
Rainy days and Mondays always get me down" .....so lets rant all day Monday- each Monday a different topi...
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selmaSBlankSep 08
RheaAnnSep 07
selmaSBlankJun 24
RheaAnnJun 24
selmaSBlankJun 24
11
By LoriVA
This is a long and complicated question. So, in October of 2012 at the urging of a new neurosurgeon up at Hopkins I ...
1996562_tn?1330341439
selmaSBlankSep 08
selmaSBlankSep 06
Nellan12Sep 06
41
By billyz123 Blank
Has anyone had this done? or can anyone direct me to more information about patient outcomes or patient blogs (beside...
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selmaSBlankSep 05
rosedawnSep 05
selmaSBlankSep 03
4
By rosedawn
Hi all. I am almost 3 years post decompression surgery on a 30 mm herniation Chiari. In general, I did not recover we...
9489060_tn?1404181151
selmaSBlankSep 06
rod44Sep 05
Sdj111Sep 05
HeloiseOSJun 30
13
By HeloiseOS
Hi I was wondering if there were any Chiari malformation specialists in Cork or near? I don't know where to find them...
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selmaSBlankSep 04
2
By disasterfullbeauty
Hung upside down the other day and got the worst immediate head ache I could hardly move my neck in an up and down mo...
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selmaSBlankSep 04
selmaSBlankSep 03
kristy12Sep 02
4
By Allisonw2001
Hi! I was wondering if some of you could help me. I started fainting and having lightheadedness and dizziness 3 yea...
6150006_tn?1408380236
8
By AZHR
Wondered if anyone else felt the need to support their neck with their hand? This is not constant, just in certain p...
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selmaSBlankSep 04
dozzy379Sep 04
selmaSBlankSep 04
dozzy379Sep 04
dozzy379Aug 04
12
By dozzy379
My son is now 19 but has had vertigo episodes since he was 2. They came about 4 times a year and lasted for a week ea...
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selmaSBlankSep 04
gramajoSep 04
selmaSBlankFeb 08
selmaSBlankFeb 08
S_sajy83Feb 08
28
By Jls12 Blank
Looking to know of others in Ottawa Ontario Canada who have been diagnosed and have had surgery. Any information ap...
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selmaSBlankSep 03
selmaSBlankSep 03
6
By evanderyac
I had a craniotomy done two months ago and a week ago, i was fine but this past sunday night i started getting a head...
7458518_tn?1399942721
By Jm_smalformedbrain Blank
Hi! I was diagnosed on December 20th of 2013 with C1 malformation. My Neuro called and said, "we didn't find a tumor....
620923_tn?1405964489
selmaSBlankSep 03
2
By selmaSBlank
HI all please wear your purple tomorrow Sept 3rd to show awareness for Chiari and support our friend as she heads in ...
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selmaSBlankSep 03
1
By 0224
How do you tested for these other syndromes, and what kind of doctor would test for those?
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selmaSBlankSep 03
butboSep 03
selmaSBlankSep 03
butboSep 03
selmaSBlankSep 02
24
By butbo
I have an arachnoid cyst on the posterior fossa, degenerative discs in my cervical spine. Sleep apnea. I have had a...
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selmaSBlankSep 03
jiggle93Sep 03
AzrealtorSep 01
selmaSBlankJun 20
38
By kricklekrin Blank
I'm currently not on any medications other than natural supplements. I was on Keppra, but it changed my personality ...
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selmaSBlankSep 03
*Stormy* Jun 02, 2011
tumble06May 28, 2011
selmaSBlankMay 28, 2011
9
By tumble06 Blank
My feet get heavy. And they hurt so bad the pain never gos away. When I stand up & walk I have to drag my feet. They ...
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