Chiari Malformation Community
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Sort by:
Last Post
Date Started
Background:
Blank
Blank
Blank
Avatar_m_tn
selmaSBlankJul 14
1
By YankeesGirlSG
I was just diagnosed with chiari 1 as well as IIH. I have a 1.5cm (15mm) descent ion with numbness/tingling in my han...
Avatar_f_tn
By bean418
John M. Tew, Jr., MD, a leader in his field and in his community, stopped performing surgery at the Mayfield Clinic o...
620923_tn?1405964489
selmaSBlankJul 14
H55Jul 14
selmaSBlankJul 14
H55Jul 13
selmaSBlankJan 03, 2013
371
By selmaSBlank Blank
Hi all, As you are scheduled for surgery please add it to this thread so we know when it is.Please also have a con...
Avatar_f_tn
selmaSBlankJul 14
1
By Worriedmommyof4
Hi everyone, I'm new to this forum and need some guidance. My 6 year old daughter has been through tons of tests for ...
Avatar_f_tn
rod44Jul 14
selmaSBlankJul 14
JennettefJul 13
selmaSBlankApr 25, 2013
78
By 2GApeachy Blank
I just got a diagnosis. When the doctor told me, I was so nonchalant; however, having done more research, this is ra...
620923_tn?1405964489
selmaSBlankJul 14
selmaSBlankJul 05
hevnw8sJul 04
selmaSBlankJun 30
JenWorkJun 30
81
By selmaSBlank Blank
Hi All, in order to post a Prayer Thread for u, please post ur date here on this thread so we know u would like one. ...
Avatar_f_tn
selmaSBlankJul 14
Brandee75Jul 13
selmaSBlankJul 13
Brandee75Jul 12
rod44Jul 12
5
By Brandee75
Hello everyone I was recently diagnosed with CM. I have a 5mm herniation (laying down) with decreased csf flow. Th...
Avatar_n_tn
6
By disasterfullbeauty
I don't know how to get him to take the time to learn more or at least enuff about this disease to be more understand...
9673424_tn?1405211680
selmaSBlankJul 13
2
By NeuroGoth
Hello there, I found this website upon looking for answers about my Chiari and I was delighted to find that there was...
9584843_tn?1404690258
bean418Jul 12
bean418Jul 11
selmaSBlankJul 10
6
By travelingmind
Hi everyone. I feel like I know you already as I've been reading these posts for a while. I was diagnosed with CM...
1679858_tn?1346768781
amanda273Jul 12
DarthMomMay 19, 2011
ajunebugMay 18, 2011
selmaSBlankMay 18, 2011
4
By lynnbrook177 Blank
I struggle every night, fighting with two pillows, then one. Has anyone been told that propping up your head at nigh...
1823499_tn?1370093889
selmaSBlankJul 12
1
By Sexybare
Hello again. It's been a long time since I've posted, but I was having a lot of chiari issues. I had a craniocervical...
Avatar_m_tn
Mazee33Jul 12
oops1990Jul 11
mark1789Jul 07
oops1990Jul 06
selmaSBlankJun 08
12
By mark1789
Hi all, I am 25 and 15 years post op of decompression surgery for Arnold Chiari Malformation type 1 and a syrinx i...
Avatar_f_tn
selmaSBlankJul 11
selmaSBlankJul 11
selmaSBlankJul 05
13
By Cathy76513
Kind of lost here, not sure what to do. I have talked to so many people with chiari that I do not want the neurosur...
Avatar_n_tn
selmaSBlankJul 11
1
By A_Rare_Species_22
My daughter had surgery for ACM last August 2013 and the surgery was a success. Dr. Gary K. Steinberg, MD, PHD (Neur...
Avatar_m_tn
selmaSBlankJul 11
selmaSBlankJul 11
3
By Newbaby2812
Hi I've recently been diagnosed with chairi along with a syrinx. Does that mean I should have surgery?
Avatar_f_tn
LabsnarkJul 11
selmaSBlankDec 23, 2013
kdm13Dec 22, 2013
Samanthab259Aug 26, 2011
*Stormy* Aug 25, 2011
7
By sinnet78 Blank
I started getting into running last spring- 2010. My throbbing head/pressure hit me out of the blue this past January...
Avatar_f_tn
By bean418
http://mayfieldclinic.com/Tew_legacy.htm
Avatar_f_tn
selmaSBlankJul 11
selmaSBlankJul 11
2
By Elisaandbucky
Lately, I am gathering the things that I think I will need for my upcoming surgery. I am flying from NC to NY and I w...
Avatar_n_tn
selmaSBlankJul 11
rod44Jul 11
2
By disasterfullbeauty
So I have been diagnosed with chiari malformation but currently have no insurance and have not seen a doctor in 2+ ye...
MedHelp Health Answers
Recent Activity
Avatar_f_tn
Blank
22amber44 joined this community
Welcome them!
9 hrs ago
620923_tn?1405964489
Blank
selmaS commented on photo
Jul 21
Avatar_n_tn
Blank
TXCOWBOY10475 commented on photo
Jul 21
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
979826_tn?1389039958
Blank
soccero
germantown, MD
992677_tn?1337358095
Blank
ChiariWolf
OH
5640779_tn?1375816966
Blank
desertstorm2009
AZ
7530528_tn?1405298278
Blank
AKC_75
TX
1667208_tn?1333111449
Blank
zygy2
NH
Chiari Malformation Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank
242532_tn?1269553979
Blank
3 Reasons Why You are Still Binge E...
Jul 14 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating: What Your Closet ...
Jul 09 by Roger Gould, M.D.Blank
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
979826_tn?1389039958
Blank
soccero
germantown, MD
992677_tn?1337358095
Blank
ChiariWolf
OH
5640779_tn?1375816966
Blank
desertstorm2009
AZ
7530528_tn?1405298278
Blank
AKC_75
TX
1667208_tn?1333111449
Blank
zygy2
NH