Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlankApr 26
Shane99Jun 13, 2009
919Jun 13, 2009
Shane99Jun 12, 2009
6
By 919 Blank
Hello, Hoping to learn if anyone has had any luck research on the long term effects (>10 years) of cranial radiation....
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selmaSBlankApr 26
KrisptApr 26
niki3350Jul 12, 2011
patti615Jul 10, 2011
epsion22Jul 10, 2011
19
By niki3350 Blank
Hi all, Just a quick update on my NS appointment that was on Monday. Basically there is nothing they can do for...
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selmaSBlankApr 26
jallyoApr 26
jallyoApr 26
jallyoApr 26
5
By jallyo
Would Chiari show up on CT scan?
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selmaSBlankApr 26
WyssaMar 31, 2014
selmaSBlankAug 22, 2013
donnaw7788Aug 20, 2013
16
By milankai Blank
My mom is 41 years old. She got diagnosed with Arnold Chiari Malformation 1 in 2004. They found it when she had a sei...
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selmaSBlankApr 26
LottidaApr 25
2
By Loftylue9
When I am on my period or pregnant my headaches get so much worse. Does this happen to anyone else? Does anyone know ...
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selmaSBlankApr 26
selmaSBlankApr 12
selmaSBlankApr 10
8
By Squeakie72
I have most of the lab results from lumbar puncture. Still waiting for I-band results to come back from mayo lab. ...
620923_tn?1426651955
selmaSBlankApr 26
NOTWlonaApr 25
selmaSBlankApr 20
5
By selmaSBlank
Hi all please wear your purple tomorrow Tuesday April 21st to help gain awareness for Chiari and show support as o...
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LottidaApr 24
selmaSBlankApr 24
selmaSBlankApr 23
19
By Endeavour33
Hi. I am 16 years old, and my symptoms started 2 months ago, with a migraine. It went on for a wee or two, and I fin...
9432311_tn?1424647329
6
By Elisaandbucky
Had the O-C2 fusion surgery on Apr 15th. Took 3 days before she started to feel better and get to the point where she...
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KerriC1Apr 24
selmaSBlankApr 24
KerriC1Apr 24
selmaSBlankApr 24
KerriC1Apr 24
8
By KerriC1
This is my first time posting. Although I have read through this forum for some time. I was diagnosed with chiari Feb...
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selmaSBlankApr 24
0224Apr 24
selmaSBlankApr 23
0224Apr 23
selmaSBlankApr 23
7
By 0224
I still have pain in the back of my head and neck. I 6 months posts up I would think this would be better by now. Tha...
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By greenfleshyflower
Well, I found out from the medical record of my MRI Brain Scan that I have a "Borderline Mild Chiari Malformation ...
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selmaSBlankApr 24
Jaybird28Apr 24
selmaSBlankApr 23
3
By Jaybird28
I'm glad I have found this forum. I was diagnosed with chiari a month ago by my PCP. I am finally going to see my neu...
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KrisptApr 24
selmaSBlankApr 19
linz0214Apr 19
selmaSBlankApr 18
4
By linz0214
Hi all, I'm new to this forum. I've been dealing with all kinds of symptoms for years beginning when I was around 14...
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selmaSBlankApr 23
selmaSBlankApr 23
6
By marina1281
My son has Chiari 1 malformation, he had his decompression surgery in December 09, 2014, everything was good. But I'm...
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selmaSBlankApr 23
JayAdamApr 23
selmaSBlankApr 23
JayAdamApr 23
selmaSBlankAug 08, 2011
9
By xmelax35 Blank
I just wondered something (again can't really read through all posts to see if someone else asked...bad concentration...
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By absolutemomtwofour
I had my 1st appt today with a Neurosurgeon, I am having mixed feelings on if I like him. He basically started off w...
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selmaSBlankApr 23
duff9Apr 23
selmaSBlankApr 17
duff9Apr 17
selmaSBlankApr 17
5
By duff9
Just wondering if anyone has Adhd as well as Chairi and if they take meds for it. I had my son whos 9yr at the peadit...
620923_tn?1426651955
Lynnrae64Apr 16
selmaSBlankApr 14
4
By selmaSBlank
Hi all please wear your purple tomorrow April 15th to help gain awareness for Chiari and support our friend as she he...
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selmaSBlankApr 22
1
By cjames723
I had Chiari decompression surgery (type 1 ) on February 12, 2015. Today I am still getting the headaches I did befor...
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