Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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0224May 06
selmaSBlankMay 06
2
By 0224
Is it normal to be 6 month post op and still be dizzy sometimes? I had a incidence yesterday that I got up to fast an...
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selmaSBlankMay 06
1
By meljb
I had my decompression surgery 2 months ago was doing great at first but in the last 2 weeks ice been having severe h...
13598916_tn?1430689115
LottidaMay 06
selmaSBlankMay 06
CWeirMay 06
7
By CWeir
I think I may already know the answer but just to be on the safe side, can you fly pre-surgery or if surgery isn't in...
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selmaSBlankMay 05
Cooper87May 05
selmaSBlankMay 05
3
By Cooper87
My daughter had decompression surgery with duraplasty and cerebellar tonsillectomy on April 10th this year. She is 1...
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selmaSBlankMay 05
DSH519May 05
3
By SugarK
Please, can you help? Does anybody recognise this MRI picture as Chiari? I have hypermobility, sleep apnoea, awful...
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selmaSBlankMay 05
Jason2848May 05
ElisaandbuckyNov 21, 2014
Jason2848Nov 21, 2014
Jason2848Nov 18, 2014
7
By Jason2848 Blank
I just found out I have a 9 mm benign cerebellar tonsillar ectopia I've been having headaches for over two months I'm...
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By 4DancingGoats
61 yr old adult, newly diagnosed this week (8 mm.) Live in NW Arkansas so ready to go out of state (and spend life sa...
13598916_tn?1430689115
selmaSBlankMay 05
LottidaMay 05
CWeirMay 05
selmaSBlankMay 05
14
By CWeir
I woke up July 7, 2014 feeling like something was very wrong. Dizzy, vertigo, confusion, imbalance, pain, ringing ...
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selmaSBlankMay 03
DSH519May 03
selmaSBlankMay 02
DSH519May 02
selmaSBlankMay 02
5
By DSH519
Anyone who has had surgery- did anyone have hypersensitivity to anything touching the head/ spine? Even putting on a ...
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selmaSBlankMay 03
1
By absolutemomtwofour
I do not know what to do!!! I was standing on our soccer field during my boys practice and my legs started gettin...
1891806_tn?1391122637
selmaSBlankMay 03
1
By hevnw8s
Hello. It's been quite awhile since I posted anything. I had decompression surgery July 21, 2014. It was bone only wi...
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selmaSBlankMay 03
RhindaMay 03
RhindaMay 03
selmaSBlankMar 28
Nellan12Mar 28
10
By Rhinda
Diagnosed with Chiari 1 Malformation. Got a second opinion from Dr. Bolognese who thinks I still have other things g...
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DSH519May 02
selmaSBlankApr 01
DloshawMar 31
10
By Dloshaw
I was hoping anyone who has had the chiari surgery could give me some advice on what type of pillow they used. My sur...
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DSH519May 02
selmaSBlankApr 20
2
By ArnoldL
I am so happy to know this forum is out here. I have had my Chiari decompression surgery 11 years ago.. I am now and...
13556457_tn?1430481345
DSH519May 01
selmaSBlankMay 01
LottidaMay 01
selmaSBlankMay 01
TLeigh71May 01
6
By TLeigh71
I was recently, well about a year ago now, diagnosed with Chiari. Have been in the medical field for over 20 years h...
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selmaSBlankMay 01
selmaSBlankMay 01
selmaSBlankApr 30
11
By Anreverett
Hello. I am wondering if anyone could share their immediate post op experiences. The last couple days I've had severa...
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selmaSBlankMay 01
Jas0803May 01
selmaSBlankMay 01
3
By Jas0803
Hello, I had decompression surgery 11 months ago. It was considered to be a success as MRI evidence showed my syrinx ...
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selmaSBlankMay 01
selmaSBlankMay 01
3
By Purple9914
Hello all... I have been struggling with symptoms off and on for years. Symptoms include lightheadedness, extreme fa...
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selmaSBlankMay 01
KrisptMay 01
selmaSBlankApr 27
KrisptApr 27
selmaSBlankApr 27
15
By Krispt
Hi guys Not sure if this is where I need to ask or even if you guys can help? I've had a build up of symptoms which...
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DSH519May 01
selmaSBlankApr 17
mattnmomApr 16
selmaSBlankOct 02, 2014
JAMBAY1998Oct 02, 2014
23
By bulldogmommy30 Blank
Hi guys & gals, I am so glad that I found you! I was just told I have Chiari this week. My biggest issue is numbness...
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