Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlankFeb 07
BeckyVGAFeb 07
selmaSBlankFeb 06
4
By BeckyVGA
Hi everyone, Over the last 3 months I have been having severe headaches in the base of my skull, visual problems (li...
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selmaSBlankFeb 07
selmaSBlankFeb 06
3
By Fiberartist
Hi, I have chiari symptoms for over a year now. headache at back of head and neck, unbearable when I bend cough etc....
10169340_tn?1415849761
selmaSBlankFeb 06
Nellan12Feb 06
selmaSBlankFeb 06
Nellan12Feb 06
selmaSBlankFeb 05
5
By Nellan12
Sorry it's been a while since I have been on the forum , but I got a call from my Dr B ( my neurosurgent) office yest...
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selmaSBlankFeb 06
youngwifeJul 31, 2008
3
By jjadqews Blank
My wife had a decompression surgery in december and after surgery has had unexplained neutropenia. All her doctors fl...
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selmaSBlankFeb 05
Loftylue9Feb 05
Loftylue9Feb 05
selmaSBlankFeb 05
5
By Loftylue9
I have Chiari 1 but am just starting to learn about it. I am tired all the time no matter how much sleep I do or don'...
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ASumrallFeb 05
Loftylue9Feb 05
selmaSBlankFeb 05
caza1118Feb 05
4
By Loftylue9
I had a bad head injury (fractured the back of my skull plus more)9yrs ago. I have suffered with debilitating headach...
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By MeganAD89
I've never posted before, but I'm curious about the long-term recovery timeline others have experienced. I had my...
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selmaSBlankFeb 04
1
By 0224
I have the sensation sometimes that makes me not feel like I'm all there. Kinda like foggy cloudy brain. Is this no...
620923_tn?1424883196
selmaSBlankFeb 03
selmaSBlankFeb 02
3
By selmaSBlank
Hi all please wear your purple tomorrow Feb.2 to help gain awareness for Chiari and support our friend. Sending g...
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selmaSBlankFeb 04
2
By sibby7
Hello, I wanted to know what type of pain you experienced after decompression surgery. Please, don't share horror sto...
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0224Feb 03
selmaSBlankFeb 02
0224Feb 02
selmaSBlankFeb 02
6
By 0224
Is it normal to feel pressure at the back of your head at 15 weeks post op surgery? Than this fullness in my head hap...
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selmaSBlankFeb 02
3
By ConcernedintheMidsouth
Our baby is almost 3 years old. At almost 8 months old we were told our baby had mild chiari type 1 malformation tons...
620923_tn?1424883196
selmaSBlankFeb 02
socceroFeb 02
selmaSBlankFeb 02
socceroFeb 02
13
By selmaSBlank
Hi all please add our friend soccero (Molly) to your prayer list.....she is in need of as many as she can get rig...
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selmaSBlankFeb 02
MomofkFeb 02
selmaSBlankFeb 02
5
By Momofk
My daughter is 23 had first surgery a yr ago Had second surgery 3 weeks ago after this surgery pain is intense an ...
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selmaSBlankFeb 02
selmaSBlankFeb 01
3
By annelie1980
Saw a NS for the first time. He said he currently wouldnt operate, my neuritis could be caused by my Chiari but didnt...
5792451_tn?1390938290
selmaSBlankFeb 02
Ball123Feb 01
2
By MeganY24
On Wednesday I was feeling great, which is rare these days since my rheumy wants to try out new prescriptions every t...
1624990_tn?1299294124
youngwifeMar 07, 2011
selmaSBlankMar 05, 2011
pamk5Mar 05, 2011
bradysmom38633Mar 05, 2011
7
By bradysmom38633 Blank
My son had a MRI at LeBonheur in Memphis, TN in 2009. I was told it was normal...well my son has been complaining wit...
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selmaSBlankJan 30
ASumrallJan 30
ASumrallJan 30
selmaSBlankJan 29
7
By ASumrall
So My neurologist sent me for a sleep study to check for sleep apnea and the preliminary report say's I have severe s...
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selmaSBlankJan 30
caza1118Jan 30
selmaSBlankJan 30
4
Hi
By caza1118
Hi all I have been loitering here for months. I'm Caz i'm a 26 year old mother of 2 I was fairly fit until I had a ep...
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selmaSBlankJan 30
myalliJan 30
selmaSBlankAug 22, 2011
nativeplantsAug 22, 2011
18
By Natasha42 Blank
Hi everyone I am a 34 year old mum of 1 from the UK. I was diagnosed with chiari 1 in february this year after ...
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