Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlankJul 14
OGCR243Jul 14
selmaSBlankJul 14
3
By OGCR243
I was diagnosed with 2 syrinxs in May. Finally got to a NS. Now going to do another MRI. Say this one will last 3 ho...
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selmaSBlankJul 14
selmaSBlankJul 08
11
By Amayamarie
Does anyone else have this? I have 4 children who I am constantly picking up after and when I bend over to pick up to...
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RheaAnnJul 13
selmaSBlankJul 11
DloshawJul 11
selmaSBlankJul 10
4
By Dloshaw
Has anyone who has has to have the Chiari surgery developed gastriparesis? I was just diagnosed today. My dr. Seiff ...
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selmaSBlankJul 13
LottidaJul 13
2
By Tanya4706
Hi all, I've had three decompressions and have recently been told that my new scans indicate that my symptoms now are...
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selmaSBlankJul 13
HoudeNJul 13
selmaSBlankJul 13
HoudeNJul 13
redkimDec 20, 2010
10
By wkadrmas Blank
I have learned that I have a Chiari Malformation. I don't know the extent of my problem yet. I am going to be going...
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selmaSBlankJul 13
selmaSBlankMay 20
selmaSBlankApr 26
12
By Squeakie72
I have most of the lab results from lumbar puncture. Still waiting for I-band results to come back from mayo lab. ...
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LottidaJul 13
Bellum990Jul 11
selmaSBlankJul 11
3
By lindseyk221
Hi, I'm a 19 year old female who has been diagnosed with Chiari I Malformation (12.3 mm). I am having surgery in a co...
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selmaSBlankJul 12
1
By lasel22
Lately I've been experiencing sudden sharp pains in my lower legs and feet, mostly the feet, that don't last very lon...
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selmaSBlankJul 07
LottidaJul 07
3
By selmaSBlank
Hi ALL please wear your purple tomorrow July 7th to show awareness for Chiari and support as 2 of our friends hea...
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selmaSBlankJul 11
1
By Bellum990
Hi All, My name is Matt and I'm new to the forum. I just wanted to share my story with all of you as I can imagine...
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selmaSBlankJul 08
LottidaJul 08
3
By Stanley100
I have had extremely bad headaches all my life, and a few years ago I told my family dr about them. He sent me to hav...
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selmaSBlankJul 08
LottidaJul 08
3
By selmaSBlank
Hi ALL please wear your purple again tomorrow July 8th to gain awareness for Chiari and t support our friend as they...
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LottidaJul 09
selmaSBlankJul 09
3
By selmaSBlank
Hi all remember to wear your purple again tomorrow July 9th to show awareness for Chiari and support for our frien...
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5
By dreagensmommy
Well i officially feel like i had surgery to alleviate one set of severe to trade in for a new set. I now have a shar...
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selmaSBlankJul 10
treesleepJul 10
selmaSBlankJul 10
treesleepJul 10
8
By treesleep
I'm newly diagnosed with chiari yet have had symptoms since I was a teenager (I'm 35 now). I want to ask: 1) Do...
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AZHRJul 02
selmaSBlankJul 02
11
By Robbyd1329
Odd topic :) Well I've been fighting a good bit here with all this going on. On the 8th of July I see the hospital...
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selmaSBlankJul 10
whychiariJul 09
whychiariJul 09
selmaSBlankJul 09
lasel22Jul 09
5
By whychiari
Hi there - my 9 mo was dx with chiari 1 with a 5mm herniation. at a follow-up recently, we did another mri and found ...
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mags100Jul 10
selmaSBlankJul 09
mags100Jul 09
selmaSBlankJul 09
4
By mags100
Hi I have just found out today that I have Chiai Malformation and a spinal cord syrinx. I had a MRI scan with contra...
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selmaSBlankJul 08
LottidaJul 08
2
By suebashchiari
I have a 10mm herniation on right and 7mm on left. Have had headaches my whole life and have had several bad Chiari a...
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LottidaJul 08
selmaSBlankJul 08
LottidaJul 08
6
By paulinsomniac
Do you get pain in the eye region and top of the head but not in the back of the head? I have been reading about o...
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