Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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tnedwardsNov 07
selmaSBlankMar 25
LoganbradMar 25
LoganbradMar 25
7
By Loganbrad Blank
Hello, In 2012 I was diagnosed with a type one Arnold Chiari Malformation, and on December 5th of the same year I rec...
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selmaSBlankNov 06
selmaSBlankSep 29
selmaSBlankSep 10
selmaSBlankAug 28
94
By selmaSBlank Blank
This list is not a complete list of possible Specialists - This thread is here so Please continue to add your Drs n...
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selmaSBlankNov 06
2
By Sara_Rogers
I live in Kennewick, Wa. Recently diagnosed with Chiari and my Dr. (Neurologist) Has absolutely no clue about it. It ...
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selmaSBlankNov 05
1
By MAGGIEJUSTICE
I have chiari malformation type 1. I would like to have a cine mri done. Every where I have checked has no idea what ...
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selmaSBlankNov 05
Red_StarNov 05
Nellan12Nov 04
Nellan12Oct 22
20
By Nellan12
Hello everyone, I was wondering if there was anyone out there who has had constant denial from the insurance company ...
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selmaSBlankNov 05
manda2866Nov 05
selmaSBlankApr 25
selmaSBlankMar 24
198
By selmaSBlank Blank
Ok...we know what most Drs will accept as a chiari symptom...but, we also know we have many more symptoms that r chia...
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selmaSBlankNov 05
EehuntNov 04
selmaSBlankNov 04
Nellan12Nov 04
4
By Eehunt
I recently was diagnosed from a head ct, had an MRI and went to see a NS. He said I qualified for surgery, but I cou...
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selmaSBlankNov 05
selmaSBlankNov 04
4
By EriktheViking
I had Chairi decompression surgery in August of 2012. The surgery went great and Dr. Tumble was a fantastic surgeon. ...
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selmaSBlankNov 04
1
By Louise782
Hi all, I'm wondering if anyone has the same as me and what their outcome was through various treatment o...
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Nellan12Nov 03
selmaSBlankNov 02
3
By Gorham
I had my surgery on Oct 26th. I stayed in the hospital 3 days. I was able to sleep 2 days at home easily. By day 3 (W...
620923_tn?1416285879
Nellan12Nov 03
selmaSBlankNov 03
2
By selmaSBlank
Hi All please wear your purple tomorrow Nov 3rd, to help gain awareness for Chiari and support our fri...
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By lisasbitsnpieces
Hi, I am new to this forum.I just got diagnosed 2 months ago. Seen chairi yesterday. Dr. Payner at IU Methodist in In...
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selmaSBlankNov 02
1
By zipperhead2012
Hi 2 years ago I had decompression surgery and it has been doing great. My problem is I was just diagnosed with trig...
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selmaSBlankNov 02
selmaSBlankOct 31
8
By Raleighgirl
My 17 y.o. Daughter suffered a concussion 8 weeks ago. Due to persistent symptoms, an mri was done. She has chiari 1 ...
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selmaSBlankNov 02
SallyzarNov 02
selmaSBlankOct 31
4
By keshia3017
Hello my physical therapist was telling me the surgery if end up having to get it. Will leave a zipper scar.
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selmaSBlankNov 02
1
By Cufan97
I was diagnosed with Chiari Malformation type 1 around May 2014. I have 4mm tonsil on the Right and 9mm on the left...
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selmaSBlankNov 02
selmaSBlankOct 04
3
By LeslieAnne3811
Hi everyone, I just found this forum and have been reading it for hours. Thank you all for sharing your stories and...
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selmaSBlankNov 02
2
By Lilreata
I had Chiari surgery back in 1995, over the last couple of years I have been having pressure headaches. Can Chiari re...
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selmaSBlankNov 02
Cathy0Oct 31
selmaSBlankSep 13
harboySep 13
harboySep 12
294
By lollypop28 Blank
type 1 chiari malformation, does it get worse and is it heredity?
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selmaSBlankNov 02
girlinxileJun 11, 2013
selmaSBlankJun 10, 2013
carolynfishJun 10, 2013
18
By Jwills133 Blank
I went to the ER the other day and was told after having a CAT scan I have Chiari. I have been trying to read up on i...
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