Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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katydeeApr 08
katydeeApr 07
KurtPTApr 07
28
By katydee Blank
My daughter underwent decompression surgery for Chiari I about 18 months ago. She still gets headaches occasionally ...
620923_tn?1393294254
selmaSBlankApr 08
1
By selmaSBlank
Hi all please wear ur purple tomorrow April 8th to help show awareness for Chiari and to support our friend as her DD...
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6
By Krystinamarie
I have pretty recently been diagnosed with chiari 1 and because my symptoms are so severe the neurosurgeon I was refe...
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selmaSBlankApr 07
aimfallApr 07
2
By aimfall
I am 16 and have known I have had a chiari since I was 7. It has always been 7 mm and no symptoms until November 2013...
7530528_tn?1397354400
AKC_75Apr 07
selmaSBlankApr 07
KurtPTApr 07
KurtPTApr 07
5
By AKC_75
I have to crush my meds until the doc fixes whatever is wrong with my stomach. Does anyone have any suggestions on w...
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loushoApr 07
selmaSBlankApr 07
konnektApr 07
selmaSBlankApr 07
konnektApr 07
8
By lousho
I had my surgery for chiari malformation 1 week ago and have been feeling very sick from then has anyone else experi...
620923_tn?1393294254
nsalem656Apr 07
selmaSBlankApr 03
nsalem656Apr 03
LovageMay 17, 2010
22
By selmaSBlank Blank
finish the statement..... If you have related conditions such as syringomyelia.....use that.....or.....EDS...TC......
1175033_tn?1309511759
selmaSBlankApr 07
selmaSBlankApr 07
3
By Spaceystac
So I have ddd of my lumbar, an c-spine. I herniated my c6-7 lasy winter, now I'm in trouble with my lower back. I cou...
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wnzdayJan 15, 2013
tattooer601Jan 14, 2013
selmaSBlankJan 14, 2013
jaclyn1386Jan 14, 2013
17
By JENANDMIKE Blank
I was just diagnosed last week w/ Chiari's after being rushed to the ER twice in 2 days with the most severe pain in ...
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selmaSBlankApr 07
ateeq4b9Apr 07
ateeq4b9Dec 02, 2010
selmaSBlankDec 02, 2010
ateeq4b9Dec 02, 2010
10
By ateeq4b9 Blank
hi selma,iam chiari type1 patient from india.i found that i have chiari 4 months back but doctor didnot insist me ope...
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selmaSBlankApr 07
1
By mike709
I went back to see DR Bejjani last Thursday and was completely blown off . He asked me if I went to the neurologist h...
7595610_tn?1397471372
mike709Apr 06
naybeamApr 05
AnnieDearApr 04
selmaSBlankApr 04
KurtPTApr 04
13
By ZilZil
This is just for my own curiosity, but are any of you sun (or bright light) sneezers? Apparently about 20% of the po...
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selmaSBlankMar 15, 2012
linnielou232Mar 15, 2012
3
By Jennyfoo Blank
Hey guys. I don't post much since my symptoms are usually pretty mild these days, & I know you're already in great ha...
7530528_tn?1397354400
AKC_75Apr 05
selmaSBlankApr 05
AKC_75Apr 04
AKC_75Apr 03
ZilZilApr 03
6
By AKC_75
I have my appt. with Neuro doc tomorrow. Pray for me pls, that he will listen to me. Will update y'all.
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selmaSBlankApr 04
1
By bihheh
I am new to this and keep finding conflicting info online. My 12 year old daughter was seen by a neurologist 2 years ...
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selmaSBlankApr 04
1
By deliqueen
I had Chiari surgery in 2006. For the last 6 months or so, I have again started getting headaches,pains in the base o...
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selmaSBlankApr 04
NparuasApr 04
selmaSBlankApr 03
NparuasApr 03
AnnieDearFeb 26
15
By NicolecsNPR
I came across Dr. Uribe's name under USF physician's and learned that he studied under Dr. Bart Green, who is the exp...
1891806_tn?1391122637
selmaSBlankApr 04
Greeny17Apr 04
selmaSBlankFeb 14
2
By hevnw8s
Forgive me if this subject has already been addressed. I was wondering anyone has experienced violent body jerks when...
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selmaSBlankApr 04
melrose53Apr 04
selmaSBlankMay 24, 2012
gigicarn1940May 24, 2012
selmaSBlankApr 19, 2010
11
By 4inline Blank
Hey, guys, I'm new to this so I'll try to be brief. I did post on the MS site as well because I'm not sure what's go...
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selmaSBlankApr 04
katydeeApr 04
selmaSBlankApr 03
3
By katydee
My daughter's surgery was performed by a highly recognized Chiari specialist. He's done hundreds of surgeries, lectu...
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