Chiari Malformation Community
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Sort by:
Last Post
Date Started
Background:
Blank
Blank
Blank
Avatar_f_tn
selmaSBlankAug 14
1
By Gabriella911
Hi. I am 18 years old and I have recently been diagnosed with Chiari 1 malformation. I have seen one neurosurgeon an...
620923_tn?1439824912
KerriC1Aug 13
LottidaAug 13
KerriC1Aug 12
selmaSBlankAug 12
25
By selmaSBlank
Hi all please wear your purple to gain awareness for Chiari and show support for our friend as they head in for surge...
Avatar_f_tn
selmaSBlankAug 11
selmaSBlankAug 10
3
By Bamagirl40
I had decompression surgery 2 months ago where he only removed a portion of my skull and did a laminectomy. Everythi...
Avatar_n_tn
selmaSBlankAug 11
selmaSBlankAug 10
JennacydeAug 09
4
By chiariconfusion
Hi, I was diagnosed with chiari 2 1/2 years ago (with a small syrinx) and things have pretty much gone downhill fr...
Avatar_f_tn
selmaSBlankAug 11
1
By Esafe24
I have two dents in my lower back. Does anybody know what that means?
Avatar_f_tn
selmaSBlankAug 11
1
By samsam5mom
My son had decompression surgury December 29th 2014. Everything went good surgeon said it was successful and i will n...
Avatar_f_tn
selmaSBlankAug 11
klynn005Aug 10
selmaSBlankAug 10
4
By Brandy8530
I had a MRI done and its saying I have low lying cerebellum tonsils measuring 8mm below foramen Magnum I have a lot o...
Avatar_m_tn
selmaSBlankAug 11
klynn005Aug 10
selmaSBlankApr 26
WyssaMar 31, 2014
18
By milankai Blank
My mom is 41 years old. She got diagnosed with Arnold Chiari Malformation 1 in 2004. They found it when she had a sei...
Avatar_f_tn
kmuehterAug 11
selmaSBlankApr 21, 2011
trebmal2Apr 21, 2011
ajunebugApr 21, 2011
4
By trebmal2 Blank
Anyone out there on a long term disability for Chiari? I'm not able to work right now. I've been out since Nov. 2010...
Avatar_f_tn
selmaSBlankAug 10
selmaSBlankAug 10
3
By lindseyk221
A few weeks ago, I had Chiari decompression surgery with a laminectomy and duraplasty. About 2 weeks after my surgery...
Avatar_f_tn
selmaSBlankAug 10
girhuAug 10
selmaSBlankAug 10
3
By girhu
I have a quick question and I'm not sure anyone will fit the bill but it's worth asking. I have a 12mm herniation an...
Avatar_f_tn
selmaSBlankAug 10
chiari1t3Aug 09
selmaSBlankAug 05
6
By LLMomAndWife
I wonder what other rare disorder produces Chiari-like symptoms, but is not Chiari. My chief complaint is a pressure ...
219373_tn?1274925034
selmaSBlankAug 10
chiari1t3Aug 09
selmaSBlankJan 09, 2014
chiari4234Jan 09, 2014
Angela310Oct 07, 2012
16
By Rachelinpain Blank
i have so many symptoms that seem to point to chiari, but my mri was apparently normal. is it possible to have chiar...
Avatar_f_tn
selmaSBlankAug 10
keilarAug 09
selmaSBlankAug 05
keilarAug 05
selmaSBlankAug 05
20
By keilar Blank
I had a 18mm hernitation and had decompression surgery in November 24,2014. I stopped pain medicines within 3 weeks o...
Avatar_f_tn
selmaSBlankAug 10
1
By Jennacyde
I have Chiari Type 1 at 1.2cm and didn't find out until last week when I was reviewing past MRIs and noticed it on a ...
Avatar_f_tn
selmaSBlankAug 10
selmaSBlankAug 10
JennacydeAug 08
selmaSBlankAug 08
4
By Jennacyde
I just found out I have Chiari Type 1 Malformation. I recently had an MRI to look at my hip and when I was gathering ...
620923_tn?1439824912
selmaSBlankAug 08
patman817Aug 08
patman817Aug 07
selmaSBlankAug 07
patman817Aug 06
25
By selmaSBlank
Hi ALL we have another member going in for surgery tomorrow July 15th, so wear your purple to help gain awareness for...
Avatar_f_tn
selmaSBlankAug 08
lasel22Aug 07
selmaSBlankAug 06
4
By lasel22
Has anyone else found that their symptoms improve over the summer months? My symptoms have gradually improved since ...
Avatar_f_tn
selmaSBlankAug 08
neensmomAug 07
neensmomJul 24
LottidaJul 24
neensmomJul 24
7
By neensmom
My 19 year old son was recently diagnosed with Chiari and Syringomyelia. He has been seen by one surgeon who suggeste...
Avatar_f_tn
selmaSBlankAug 07
selmaSBlankAug 06
Lynnrae64Aug 06
5
By crabbymoonmama
I was diagnosed last week with Chiari 1 malformation with a herniation of 7mm. My insurance denied the referral to th...
Recent Activity
6346533_tn?1441302647
Blank
KirstyyPie - Excited but scared :) Comment
1 hr ago
6346533_tn?1441302647
Blank
KirstyyPie uploaded a new photo
1 hr ago
620923_tn?1439824912
Blank
selmaS September is Chiari Awarene... Comment
16 hrs ago
Top Neurology Answerers
620923_tn?1439824912
Blank
selmaS
Allentown, PA
7530528_tn?1428275172
Blank
AKC_75
TX
9432311_tn?1432828685
Blank
Elisaandbucky
Charlotte, NC
Avatar_f_tn
Blank
mikeysmom1995
Oxford, MI
979826_tn?1389039958
Blank
soccero
germantown, MD
12573102_tn?1431705217
Blank
Lottida
Thibodaux, LA
Chiari Malformation Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
Top Neurology Answerers
620923_tn?1439824912
Blank
selmaS
Allentown, PA
7530528_tn?1428275172
Blank
AKC_75
TX
9432311_tn?1432828685
Blank
Elisaandbucky
Charlotte, NC
Avatar_f_tn
Blank
mikeysmom1995
Oxford, MI
979826_tn?1389039958
Blank
soccero
germantown, MD
12573102_tn?1431705217
Blank
Lottida
Thibodaux, LA