Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlankMay 22
1
By nanaof14
I was told by my neurologist I had cerebellan extension of 7mm she said she would not refer me to a surgeon at this t...
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selmaSBlankMay 22
1
By Jesnnesaum
Hi, I was in an car accident 1/2015. I have had head, neck, shoulder, and back pain on and off since then. I've ha...
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lasel22May 22
BlueghostMay 21
KerriC1May 21
selmaSBlankMay 21
9
By Blueghost
I am three weeks post op, doing pretty well. Last Saturday I had a headache that built up through the day and by Satu...
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17
By orchidfae
This MRI was done in 2013. According to the Radiologist, it was "unremarkable" I have a Neuro appointment next week, ...
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selmaSBlankMay 21
1
By kristinelauren32
Hi has anyone found a really good chiari doctor in melbourne?
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selmaSBlankMay 21
MollpMay 21
selmaSBlankMay 20
3
By Mollp
Hi there, after a 2.5 year struggle with various debilitating symptoms my 17 yr old daughter has been diagnosed with ...
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selmaSBlankMay 20
1
By Currissa1
OK guys I have CHARIMALIFORMATION 1 and 2 I have lived knowing about this since I was 12 years old I'm 22 now and I w...
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selmaSBlankMay 20
1
By captal
So I finally got to see a top Neurosurgeon at Emory in Atlanta, well his resident anyway, Dr. Barrow himself was tra...
979826 tn?1389039958
selmaSBlankMay 18
socceroMay 18
socceroMay 18
mmv_811May 18
selmaSBlankMay 18
11
By soccero
I am graduating from community college on Friday!!!!!!!!!!!! It has been 4 years when it was suppose to be 2, I had a...
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selmaSBlankMay 13
duff9May 13
selmaSBlankMay 12
duff9May 12
6
By duff9
Hi all Its about a year since I posted. My now 10yr old was decompressed comeing up to 2yrs ago in July. He's doing w...
1380526 tn?1292842985
selmaSBlankMay 17
poosygirlMay 16
selmaSBlankMay 16
3
By Abbydabby36
I have back and forth somewhat high BP now. Dr put me on 100 mg Metoprolol 2 times a day. It's still somewhat high ...
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selmaSBlankMay 16
1
By RicardoSanch
This is my third time here on the chat and just before I ask my question would like to thank anyone who has answered ...
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selmaSBlankMay 16
1
By naomba
can anyone give a realistic estimate of the cost of chiari decompression surgery? thank you
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selmaSBlankMay 16
1
By Btgrabow
For those evaluated for EDS- were you evaluated by a rheumatologist or medical geneticist? And what specialist evalu...
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selmaSBlankMay 15
1
By Luv2teachK
Hello, I went to my Dr in February for several "random" problems I was having. She did some blood work and then 'wai...
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selmaSBlankMay 15
71sallyMay 14
selmaSBlankOct 22, 2009
redkimOct 22, 2009
DeeAnna78Oct 22, 2009
6
By DeeAnna78 Blank
I was diagnosed with an 8mm Chiari malformation in April 2007 and I had surgery in May of 2007. I had what was called...
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selmaSBlankMay 15
selmaSBlankMay 15
2
By Uncomfortableinmd
I am looking for a very reputable neurosurgeon in DC area? I have Chiari, syndrome I...
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selmaSBlankMay 15
mmv_811May 14
mmv_811May 14
KerriC1May 14
mmv_811May 14
18
By mmv_811
Hi, I'm hoping maybe someone can help point me in a direction. When I was a young child I thought that constant head...
Avatar m tn
selmaSBlankMay 15
1
By amyrvw
Hi group, My nine year old daughter has been diagnosed with Chiari type 1 in the few weeks. Rather progressed. W...
620923 tn?1452919248
selmaSBlankMay 14
poosygirlMay 13
KerriC1May 13
selmaSBlankMay 13
4
By selmaSBlank
Hi ALL please wear your purple today, May 13th as our friend heads in for surgery to help gain awareness for Chiari a...
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