Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlankJan 15
1
By Debbieducati
I have Syringomelia ? The reason for the question mark is I was diagnosed 9 years ago. Not sure I agree with all th...
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selmaSBlankJan 15
1
By Lmkelle
Yesterday I was looking through my medical records and found a document saying I have Chiari malformation Type 1, at ...
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Mel5056Jan 15
selmaSBlankJan 14
9
By bigsmile123
Hi I am new to this forum so just want to say thanks before i start. Basically i found out i had the condition an...
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selmaSBlankJan 14
H55Jan 13
selmaSBlankNov 21, 2014
H55Nov 21, 2014
selmaSBlankNov 18, 2014
117
By katiamarie Blank
Had a rough 5 days with severe waist hip low back pain. Had to go to er given pain meds. Had shaking vomiting hiccups...
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selmaSBlankJan 14
RhindaJan 14
Nellan12Oct 21, 2014
RhindaOct 20, 2014
20
By Rhinda Blank
I'm new on this forum. I have Syringomyelia and will be seeing a Chiari specialist in 3 weeks. I am almost at 6 yea...
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selmaSBlankJan 14
1
By robdane
Hello, Just wondering did you decide to go with either one of these surgeons?
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selmaSBlankJan 14
1
By AnniHilate
Hi all. I am a 28 year old female from the UK. Have been diagnosed with syringomyelia this past week. Waiting on an a...
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selmaSBlankJan 14
1
By melissa2503
Hi. I recently had an MRI and I was wondering if I could get a little help with what things meant. In 2002 I had a br...
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selmaSBlankJan 12
selmaSBlankJan 12
TJHJLHBEHJan 12
5
By TJHJLHBEH
The back story: my lo has been a fussy baby since birth. Lo never liked laying flat and would instantly scream bloody...
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selmaSBlankJan 12
0224Jan 12
Mel5056Jan 12
0224Jan 12
4
By 0224
When do you know when healing is complete and what symptoms you are going to have to deal with for the rest of your l...
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selmaSBlankJan 12
selmaSBlankJan 10
7
By birdie1120
I am in a whole lot of pain. I have been getting some help with doctors. I found out through a surgeon it was there. ...
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selmaSBlankJan 12
selmaSBlankJan 10
selmaSBlankJan 15, 2014
7
By shortyw3kids Blank
Hello everyone, It has been almost 2 years since I have posted. I was wondering what exercises are safe to begi...
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selmaSBlankJan 11
Nellan12Jan 10
selmaSBlankJan 09
10
By samsam5mom
My 5 yr old little boy was diagnosed about a month ago had the surgery on december 29th. He is doing ok but what shou...
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selmaSBlankJan 11
2
By 0224
I am 10 weeks out since surgery. I was at a football party today and I started feeling like I was disoriented like s...
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10
By Thisonesforthepast
I've been on here on and off for a year now and I was told I had a Chiari Malformation type 1 when I was 10. 6 years ...
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selmaSBlankJan 07
selmaSBlankJan 07
9
By Nichole_926
So I was just diagnosed with Type 1 Chiari Malformation about a little over a month ago. For 5 months now I have been...
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selmaSBlankJan 09
1
By samsam5mom
My 5 year old has chiari and had the decompression surgery on December 29th. He has always had speech problems. In sp...
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selmaSBlankJan 09
ASumrallJan 03
Mel5056Jan 02
9
By selmaSBlank
Finish the statement.... We did this a few times over the yrs and it seems to do well and thought it might be a g...
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bekah0656Jan 08
selmaSBlankJan 06
Mel5056Jan 06
3
By cbracc83
Anyone in michigan have chiari or been decompressed looking for a new ns in case I need to have a 2nd surgery
620923_tn?1422550960
selmaSBlankJan 06
3
By selmaSBlank
Hi all please wear your purple tomorrow Jan. 6th to gain awareness for Chiari and support our friend as they head int...
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