Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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LottidaMay 09
selmaSBlankMay 09
3
By Herchiari574
Hello everyone, I was diagnosed with Chiari in May 2014. After trying to find out what was going on with my arm for a...
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TeddeJun 08
selmaSBlankJun 08
TeddeJun 08
selmaSBlankNov 12, 2012
33
By Tharris85 Blank
I was diagnosed about a month ago and I just continue to get worse. The pressure in my head is unbearable with migrai...
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selmaSBlankJun 08
Riss0980Jun 08
n40066Jan 03, 2011
MomTerrifiedJan 03, 2011
jnclarkJan 03, 2011
10
By jnclark Blank
I had surgery 2 years ago in November 2008, I am still having issues and still seeing the neurologist. I can not sit ...
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selmaSBlankJun 05
Lynnrae64Jun 05
selmaSBlankJun 05
Lynnrae64Jun 05
selmaSBlankJun 03
5
By Lynnrae64
I have struggled since last year with all the symptoms, to find out I had Chiari. Been hospitalized three times for u...
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selmaSBlankJun 05
TRB3Jun 05
selmaSBlankJun 03
TRB3Jun 03
selmaSBlankJun 03
7
By TRB3
Hello Group, I found out recently (December 2014) that I have Chiari and although my symptoms aren't as bad as I'v...
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selmaSBlankJun 05
2
By LoLa1454
First off let me say I am in no way shape or form endorsed by any company this was a trial and error attempt to manag...
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selmaSBlankJun 04
selmaSBlankJun 03
12
By mrdude1234
Hi all, Background: 26 year old male, previously overweight for a period of 2 years, currently exercise regularly...
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selmaSBlankJun 04
1
By Paul_Mac_67
Hello. I recently had a Mir. And it says I have a cerebellar tonsillar ectopia with descent of up to 10 mm. Saw my d...
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selmaSBlankJun 03
cabkillrJun 01
cabkillrJun 01
cabkillrJun 01
cabkillrJun 01
11
By cabkillr
I started dating a woman with Chiari about 5 months ago she told me about her condition when we first met the first...
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selmaSBlankJun 03
joshipeaJun 03
haselmeJun 02
DSH519Jun 01
selmaSBlankJun 01
9
By haselme
I have been struggling with migraines for years and have saw numerous neurologists. The place I was being treated rec...
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selmaSBlankJun 02
emmac27Jun 02
selmaSBlankMar 25
*Stormy* Jul 28, 2010
10
By Guidinglight Blank
Hi there Have been diagnosed with CFS 4 years ago, all symptoms became worse so went back to my GP - finally got to ...
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selmaSBlankJun 01
1
By Sarasara089
Hello, every few days as I'm staining I start to shake and lose my vision, I then fall but I don't faint because I'm ...
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selmaSBlankJun 01
0224Jun 01
selmaSBlankJun 01
3
By 0224
I am 7 months out post surgery. I've been having symptoms oh heart palpations, dizziness, heart racing feel like I'm ...
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selmaSBlankJun 01
selmaSBlankJul 19, 2010
Lovely101Jul 19, 2010
selmaSBlankJul 15, 2010
12
By Lovely101 Blank
Hello. I am new to chiari. I was diagnosed with a Chiari 1 malformation. My herniation is 10mm. At this time I am try...
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selmaSBlankJun 01
LottidaMay 31
3
By Michael15688
How old were you when your symptoms started?
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selmaSBlankJun 01
PAULILNEMay 31
selmaSBlankJan 02
jennygault1Dec 31, 2014
Nellan12Nov 21, 2014
90
By 2GApeachy Blank
I just got a diagnosis. When the doctor told me, I was so nonchalant; however, having done more research, this is ra...
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selmaSBlankMay 29
joshipeaMay 29
selmaSBlankMay 28
LottidaMay 28
8
By joshipea
hello everyone, just found out about this and I was hoping to get some support and some answers, i was just told I ha...
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selmaSBlankMay 30
2
By kryptonitekimi64
I have a confirmed diagnosis of Chiari. I have not been able to get in yet to a neurosurgeon.I have had severe sympt...
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joshipeaMay 30
selmaSBlankMay 29
3
By ashiver917
Hi, I'm trying to understand chiari better, as my brother was recently diagnosed with chiari stage1. What should th...
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selmaSBlankMay 29
0224May 28
selmaSBlankMay 28
3
By 0224
What is the average time post decompression surgery that it takes for the dizziness to go away? I'm 7 months post sur...
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