Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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620923_tn?1416285879
selmaSBlankDec 06
selmaSBlankDec 02
5
By selmaSBlank
Hi All please show support for Chiari and our friend as she heads in for surgery today Dec 2nd by wearing purple!...
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selmaSBlankDec 05
1
By inpain_indiana
just found out i have chiari 1... in so much pain for the last two years.. i need to find a specialist in indiana! pl...
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selmaSBlankDec 05
2
By 0224
I started my physical therapy today. The physical therapy says that it seems lmy balance issues are from my vision p...
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5
By EriktheViking
I had Chairi decompression surgery in August of 2012. The surgery went great and Dr. Tumble was a fantastic surgeon. ...
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selmaSBlankNov 09
2
By tiffers2012
Hi! I've been decompressed for 2 and 1/2 years. I occasionally still get headaches and it seems to be happening more ...
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selmaSBlankDec 04
2
By brooklynmarrie
Hi! So I got diagnosed with a type 1 Chiari Malformation is mid-may of this year. I had an MRI saying my malformation...
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selmaSBlankNov 11
MrsRuffNov 11
30
By MrsRuff
hey guys I've recently been diagnosed with borderline chiari 1 malformation 4-5mm. to keep this story short my symp...
620923_tn?1416285879
By selmaSBlank
Hi All, in order to post a Prayer Thread for u, please post ur date here on this thread so we know u would like one. ...
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mommasvDec 02
selmaSBlankMay 15, 2013
frankie_rushMay 15, 2013
SmilingLisaMay 14, 2013
7
By SmilingLisa Blank
I am wondering if anyone has had successful chiari surgery. Who was your Dr? Did anyone have second surgery? How lo...
11342983_tn?1417400798
2
By mommasv
Not sure if I am posting this in the right place, but Surgery is scheduled for the 12th of December, would love praye...
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mommasvDec 02
selmaSBlankDec 25, 2009
dermarfxDec 25, 2009
3
By sockermom31 Blank
I have just been diagnosed with Chiari 1, and need to find a specialist in my area. I have been suffering for 6 yea...
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selmaSBlankDec 02
2
By joannegi
I was just diagnosed haven't felt right for.a long time but this year has.been worse..I'm very dizzy but what bothers...
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selmaSBlankDec 02
1
By mike709
Sorry I haven't posted in so long. I have been dealing with a lot lately. I was diagnosed with Parkinson's disease se...
11342983_tn?1417400798
selmaSBlankDec 02
1
By mommasv
I am new, so I apologize but I couldn't find the list of things that one needs to have to prepare before surgery. Th...
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Nellan12Nov 30
selmaSBlankNov 28
Nellan12Nov 26
selmaSBlankNov 26
7
By Elisaandbucky
I am 4 months post-op and today I am scheduled for an MRI of my brain and C-spine to prepare for a visit back to the ...
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abbiedayNov 23
Nellan12Nov 22
selmaSBlankNov 21
5
By hockeymom6
My 16 yr old son was just diagnosed with chairi 1 malformation 2 weeks ago. He was at cross fit working out when ...
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3
By Heathermarie0519
Hello, I'm so happy to have found this forum. Our five-year-old son was just diagnosed last week and needless to say ...
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9
By lostforwordss
OK, just to refresh everyone.. I dont have Chiari, but my girlfriend does. We have gotten tests for all "related" iss...
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TinyRNNov 28
selmaSBlankNov 28
Nellan12Nov 27
TinyRNNov 26
6
By TinyRN
Has anyone here been on Topamax and gone through a pregnancy with no difficulties? I found out that I am pregnant I a...
11151482_tn?1415731252
10
By Cavyslave
I am scheduled for decompression surgery with duraplasty and cauterizing the cerebellum tonsil herniation on Novembe...
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