Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlankMar 08
1
By bethnichole
As a kid @ age 10 ( maybe younger) i started having migraine with aura. Now at 35 years of age i have just been diagn...
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selmaSBlankMar 08
Becca8082Mar 07
Mel5056Mar 07
3
By Kvaa
Since this is my first post, I'll give a small background. I am a single mom of 4 awesome kids. I was diagnosed with ...
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selmaSBlankMar 08
1
By icgirl
Hi guys, I have my MRI scheduled for tomorrow to rule out or diagnose a Chiari formation. It's been a pain to s...
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selmaSBlankMar 08
Tammers17Mar 07
SionnanOct 05, 2012
Lani14Jun 04, 2012
linnielou232Jun 04, 2012
10
By Lani14 Blank
i had my 1st surgery for chiari decompression in Oct '11 and another surgery in Jan '12 to repair the durapatch when ...
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By sunshine82208
I just got back from my neurosurgeon and he believes that none of my symptoms are related to my Chiari and it is very...
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Tammers17Mar 07
selmaSBlankMar 06
3
By Tammers17
Hi! I had surgery one year ago to correct Chiari. I managed to get about 10 of relatively pain free life. I was impre...
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17
By Serg1993
Im a 21 year old male athelte in college, who was diagnosed with pots and dysautonomia along with pretty intense head...
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selmaSBlankNov 02, 2014
LeslieAnne3811Nov 02, 2014
selmaSBlankOct 04, 2014
5
By LeslieAnne3811
Hi everyone, I just found this forum and have been reading it for hours. Thank you all for sharing your stories and...
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selmaSBlankMar 06
selmaSBlankMar 06
Lynnrae64Mar 06
5
By JessicaLLong
Hi, I'll start off with I've had severe dizzyness, headache,confusion, blurred and tunnel vision, my hearing is very ...
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DizziMomMar 06
DizziMomMar 06
selmaSBlankMar 06
DizziMomMar 06
8
By DizziMom
Hi. I have had severe dizziness, coordination issues, difficulty concentrating, etc etc for 4 years. I just had an MR...
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selmaSBlankMar 06
2
By ReneeA37
Hello I haven't posted in a while because I have been feeling better with topamax therapy, the headaches have gotten ...
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selmaSBlankMar 06
selmaSBlankAug 17, 2011
cocoa42Aug 16, 2011
23
By selmaSBlank Blank
Please read this message before you post! This is a good place for info and comfort. If you are here, then you...
620923_tn?1426651955
selmaSBlankMar 06
2
By selmaSBlank
Hi ALL please wear your purple today to show awareness for Chiari and show support as our friend heads in for a shunt...
620923_tn?1426651955
3
By selmaSBlank
Hi all please wear your purple tomorrow March 2nd to help gain awareness for Chiari and support our friend heads...
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socceroMar 05
selmaSBlankMar 04
socceroMar 04
8
By soccero
and she thinks my seizures are really distonia from instability in my cspine. she wants me to where a rigid neckbrece...
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kkbee13Mar 05
kkbee13Mar 05
kkbee13Mar 05
selmaSBlankMar 05
Mel5056Mar 05
6
By kkbee13
Hello Everyone, I'm new here and was hoping that maybe some of you could take a look at this pic from my brain MRI...
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selmaSBlankMar 05
Jorlex37Mar 05
selmaSBlankMar 04
3
By Jorlex37
Not really a question but sharing in case someone else experiences this. This morning at 3:30 I woke to what I thoug...
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cateligoMar 05
selmaSBlankMar 04
Lynnrae64Mar 04
3
By cateligo
Hello everyone, I have been unwell for the past 3 months with heart palpitations, ectopic heartbeats, dizziness, c...
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selmaSBlankMar 04
cduqueMar 03
selmaSBlankJan 27
39
By KirstyyPie
Hi everyone, Would really love some advice and info if anyone can help me? I was diagnosed with chiari type 1 last...
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selmaSBlankMar 04
2
By Mandy_Best
I don't know how to begin this, I am beside myself with emotion. Fear, and anger, I am more frustrated than I have ...
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