Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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amanda273Jul 12
DarthMomMay 19, 2011
ajunebugMay 18, 2011
selmaSBlankMay 18, 2011
4
By lynnbrook177 Blank
I struggle every night, fighting with two pillows, then one. Has anyone been told that propping up your head at nigh...
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selmaSBlankJul 12
1
By Sexybare
Hello again. It's been a long time since I've posted, but I was having a lot of chiari issues. I had a craniocervical...
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Mazee33Jul 12
oops1990Jul 11
mark1789Jul 07
oops1990Jul 06
selmaSBlankJun 08
12
By mark1789
Hi all, I am 25 and 15 years post op of decompression surgery for Arnold Chiari Malformation type 1 and a syrinx i...
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selmaSBlankJul 11
selmaSBlankJul 11
selmaSBlankJul 05
13
By Cathy76513
Kind of lost here, not sure what to do. I have talked to so many people with chiari that I do not want the neurosur...
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selmaSBlankJul 11
1
By A_Rare_Species_22
My daughter had surgery for ACM last August 2013 and the surgery was a success. Dr. Gary K. Steinberg, MD, PHD (Neur...
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selmaSBlankJul 11
selmaSBlankJul 11
3
By Newbaby2812
Hi I've recently been diagnosed with chairi along with a syrinx. Does that mean I should have surgery?
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LabsnarkJul 11
selmaSBlankDec 23, 2013
kdm13Dec 22, 2013
Samanthab259Aug 26, 2011
*Stormy* Aug 25, 2011
7
By sinnet78 Blank
I started getting into running last spring- 2010. My throbbing head/pressure hit me out of the blue this past January...
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By bean418
http://mayfieldclinic.com/Tew_legacy.htm
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selmaSBlankJul 11
selmaSBlankJul 11
2
By Elisaandbucky
Lately, I am gathering the things that I think I will need for my upcoming surgery. I am flying from NC to NY and I w...
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selmaSBlankJul 11
rod44Jul 11
2
By disasterfullbeauty
So I have been diagnosed with chiari malformation but currently have no insurance and have not seen a doctor in 2+ ye...
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selmaSBlankJul 11
selmaSBlankJul 08
4
By Andrealoveshair
Hi. What are some things it can and can not do? To help with pain I'm a hairdresser. Love my job.
9649638_tn?1405049175
selmaSBlankJul 11
1
By Tommy40
Does anyone know a good Chiari specialist in wv? I was recently diagnosed with chiari type 1 5mm after a bad fall at ...
9589627_tn?1404715817
11
By goldie2014
Hi everyone. I am new to understanding my diagnosis and it's symptoms. Chronic dizziness was the symptom that f...
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selmaSBlankJul 10
selmaSBlankJul 10
3
By AngelArm77
I had surgery almost two years ago. I'm single and live alone. I try to work but working brings on the symptoms stron...
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selmaSBlankJul 09
CessCJJul 09
selmaSBlankJul 09
5
By CessCJ
Hi everyone.. I am gonna try and make this kinda short. I found out I have Chiari back in the end of April 2003, and ...
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selmaSBlankJul 09
1
By khryssishanklin
I was wondering has anyone gave birth naturally while having chiari? Did anyone had anyone had any problems ?
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selmaSBlankJul 09
1
By rbryant003
I do not think that my doctor is very knowledgeable on Chiari. I had to ask him to check my CSF flow. He had to look ...
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selmaSBlankJul 08
selmaSBlankJul 08
11
By Kristen_Kuehl
Are any of you familiar with Avera Health care? It is like a Kaiser Plan I guess, for South Dakota. My sister in ...
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Ball123Jul 08
fro510Jul 05
selmaSBlankJul 05
Ball123Jul 05
16
By GabnCalebmommy
I had my daughter a year ago and I also have a 3 year old son. Before having my daughter I felt completely normal min...
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selmaSBlankJul 08
1
By SarahY79
I have had had Arnold Chiari Malformation type 1 for 25 years, unfortunately it's progressing and getting worse. I am...
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