Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlankSep 04
gramajoSep 04
selmaSBlankFeb 08
selmaSBlankFeb 08
S_sajy83Feb 08
28
By Jls12 Blank
Looking to know of others in Ottawa Ontario Canada who have been diagnosed and have had surgery. Any information ap...
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selmaSBlankSep 03
selmaSBlankSep 03
6
By evanderyac
I had a craniotomy done two months ago and a week ago, i was fine but this past sunday night i started getting a head...
7458518_tn?1399942721
By Jm_smalformedbrain Blank
Hi! I was diagnosed on December 20th of 2013 with C1 malformation. My Neuro called and said, "we didn't find a tumor....
620923_tn?1405964489
selmaSBlankSep 03
2
By selmaSBlank
HI all please wear your purple tomorrow Sept 3rd to show awareness for Chiari and support our friend as she heads in ...
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selmaSBlankSep 03
1
By 0224
How do you tested for these other syndromes, and what kind of doctor would test for those?
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selmaSBlankSep 03
butboSep 03
selmaSBlankSep 03
butboSep 03
selmaSBlankSep 02
24
By butbo
I have an arachnoid cyst on the posterior fossa, degenerative discs in my cervical spine. Sleep apnea. I have had a...
1303966_tn?1296743610
selmaSBlankSep 03
jiggle93Sep 03
AzrealtorSep 01
selmaSBlankJun 20
38
By kricklekrin Blank
I'm currently not on any medications other than natural supplements. I was on Keppra, but it changed my personality ...
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selmaSBlankSep 03
*Stormy* Jun 02, 2011
tumble06May 28, 2011
selmaSBlankMay 28, 2011
9
By tumble06 Blank
My feet get heavy. And they hurt so bad the pain never gos away. When I stand up & walk I have to drag my feet. They ...
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0224Sep 03
selmaSBlankSep 03
3
By 0224
Did anybody post surgery see improvement with balance?
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selmaSBlankSep 02
kristy12Aug 31
4
By 0224
I just got my cine mri back and it was abnormal. T2 sagittal view mild crowding at foremen magnum without definite c...
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4
By xxMusicSaviorxx
I have had my surgery more than 3 years ago. During the first year post-op, I was asymptomatic. Then my original symp...
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selmaSBlankSep 02
2
By maria51
Hi My 8 year old grandson may have CM TC. The doctor told my son and daughter in law that he needs an MRI to det...
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selmaSBlankSep 02
krisjwerSep 01
billyz123Apr 01, 2012
bookworm79Apr 01, 2012
billyz123Apr 01, 2012
24
By SG2 Blank
So the weirdest, scariest thing yet has happened to me last night. Lying in bed on my back and I can't move. No...
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selmaSBlankAug 30
GrieieAug 30
selmaSBlankAug 29
4
By Grieie
I was just wondering if anyone else gets funny speech when they move the wrong way? I have an 8mm dangle going on an...
246139_tn?1410875443
selmaSBlankAug 29
kristy12Aug 29
kristy12Aug 29
8
By baccalynnwv
Hello, I am a 34 year old female living in West Virginia. I have been going to my general physician for several yea...
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kristy12Aug 29
selmaSBlankAug 29
2
By Schroeder123
Okay, so I was diagnosed with CM1 in April 2013 and had my decompression surgery in Sept. 2013. I really like my NS,...
10322227_tn?1409325110
selmaSBlankAug 29
selmaSBlankAug 29
5
By chiaricarley
So I am 18 years old and I just started college. I was diagnosed with Chiari Malformation when I was a kid, my dad ha...
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selmaSBlankAug 27
3
By casscan2b
My surgery is scheduled for September 3rd, one week from today. I was so excites dttoinally had a solution to a probl...
9589627_tn?1404715817
Resa181Aug 18
GneeBneeJul 23
GneeBneeJul 23
8
By goldie2014
Hi all, just wondering if anyone else with chiari gets electric type zaps..... some which cause your entire body to j...
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selmaSBlankAug 18
AZHRAug 18
selmaSBlankAug 18
4
By jmatticks_08
So I was just wondering has anyone felt 100% better and stayed that way after sugery? It seems like i keep reading ab...
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