Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlankApr 29
waxlips55Apr 29
selmaSBlankApr 04
punkin56Apr 03
selmaSBlankNov 02, 2014
298
By lollypop28 Blank
type 1 chiari malformation, does it get worse and is it heredity?
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selmaSBlankMar 29
me321uMar 29
selmaSBlankFeb 28, 2014
27
By bookworm79 Blank
Hey all, The roof of my mouth and back of my throat is yellowish with blood red spider web looking stuff througout an...
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selmaSBlankApr 28
1
By drjurmz
Hello all, about a year and a half ago they found a "tiny" syrinx at C7 when I had an MRI done due to unexplained che...
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selmaSBlankApr 28
1
By nmk816
Do your docs have you get brain MRIs even years after decompression surgery? Or do they just focus on other things li...
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selmaSBlankApr 28
KrisptApr 28
3
By JConger
Hello All, Like many, I'm new to this forum, and am quickly gaining such comfort in knowing it's here and availabl...
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selmaSBlankApr 26
2
By Starnapalm
Hi all I'm new hear im a chiari patient Im newly dignosed last year after being dignosed with fibromaylgia... I have ...
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selmaSBlankApr 27
LottidaApr 27
selmaSBlankApr 27
7
By Robbyd1329
I'm recently new to this I have a mild chiari malformation as the neurologist says, but here these past 3 months I ha...
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selmaSBlankApr 26
selmaSBlankApr 26
3
By marxkimberly
Can this chiari be causing seizures in my 6 yr old daughter?
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selmaSBlankApr 26
Shane99Jun 13, 2009
919Jun 13, 2009
Shane99Jun 12, 2009
6
By 919 Blank
Hello, Hoping to learn if anyone has had any luck research on the long term effects (>10 years) of cranial radiation....
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selmaSBlankApr 26
KrisptApr 26
niki3350Jul 12, 2011
patti615Jul 10, 2011
epsion22Jul 10, 2011
19
By niki3350 Blank
Hi all, Just a quick update on my NS appointment that was on Monday. Basically there is nothing they can do for...
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selmaSBlankApr 26
jallyoApr 26
jallyoApr 26
jallyoApr 26
5
By jallyo
Would Chiari show up on CT scan?
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selmaSBlankApr 26
WyssaMar 31, 2014
selmaSBlankAug 22, 2013
donnaw7788Aug 20, 2013
16
By milankai Blank
My mom is 41 years old. She got diagnosed with Arnold Chiari Malformation 1 in 2004. They found it when she had a sei...
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selmaSBlankApr 26
LottidaApr 25
2
By Loftylue9
When I am on my period or pregnant my headaches get so much worse. Does this happen to anyone else? Does anyone know ...
620923_tn?1426651955
selmaSBlankApr 26
NOTWlonaApr 25
selmaSBlankApr 20
5
By selmaSBlank
Hi all please wear your purple tomorrow Tuesday April 21st to help gain awareness for Chiari and show support as o...
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LottidaApr 24
selmaSBlankApr 24
selmaSBlankApr 23
19
By Endeavour33
Hi. I am 16 years old, and my symptoms started 2 months ago, with a migraine. It went on for a wee or two, and I fin...
9432311_tn?1424647329
6
By Elisaandbucky
Had the O-C2 fusion surgery on Apr 15th. Took 3 days before she started to feel better and get to the point where she...
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KerriC1Apr 24
selmaSBlankApr 24
KerriC1Apr 24
selmaSBlankApr 24
KerriC1Apr 24
8
By KerriC1
This is my first time posting. Although I have read through this forum for some time. I was diagnosed with chiari Feb...
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selmaSBlankApr 24
0224Apr 24
selmaSBlankApr 23
0224Apr 23
selmaSBlankApr 23
7
By 0224
I still have pain in the back of my head and neck. I 6 months posts up I would think this would be better by now. Tha...
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By greenfleshyflower
Well, I found out from the medical record of my MRI Brain Scan that I have a "Borderline Mild Chiari Malformation ...
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selmaSBlankApr 24
Jaybird28Apr 24
selmaSBlankApr 23
3
By Jaybird28
I'm glad I have found this forum. I was diagnosed with chiari a month ago by my PCP. I am finally going to see my neu...
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