Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlankSep 10
kristy12Sep 04
selmaSBlankSep 03
7
By shelly0513
I am 26 years old and had my CM Decompression surgery last year. I have had hydrocephalus since birth with no complic...
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angelRNSep 10
rod44Sep 09
kristy12Sep 09
rod44Sep 09
20
By angelRN
I have been suffering from severe, posterior neck pain and migraines (or so I thought) for about a 3 months (constant...
620923_tn?1405964489
rod44Sep 09
selmaSBlankSep 09
11
By selmaSBlank Blank
Hi all, for those that are new to Chiari and may not be aware and for those that have the memory of a light that sti...
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angelRNSep 10
selmaSBlankSep 09
angelRNSep 09
pamk5Dec 23, 2010
11
By Jennyfoo Blank
Ugh! He was very nice, spent over 1/2 hour with me, after his FNP spent 1/2 hour with me too. Basically, he said he d...
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selmaSBlankSep 09
1
By J4cob99
I already know i have chiari since a long time ago my symptoms had pretty much gone until recently ive had some of my...
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selmaSBlankSep 09
1
By angelRN
Hi all, I've been referred to a Dr. Philip Theodosopoulos, neurosurgeon specializing in CMI, at UCSF. In look...
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rod44Sep 09
selmaSBlankSep 09
selmaSBlankSep 09
52
By KYKY84 Blank
HI, I was diagnosed and treated for epilepsy when i was 14 months old all the way to the age of 17 which at that time...
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kristy12Sep 08
selmaSBlankSep 08
3
By baccalynnwv
I made spaghetti and bread sticks for dinner. At the same time I was reading on the site about retroflexed odontoid. ...
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selmaSBlankSep 08
WyssaSep 08
selmaSBlankSep 08
3
By Wyssa
Hi everyone! So I'm looking at going to the Chiari Institute for help. My symptoms have worsened over the past few we...
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selmaSBlankSep 08
RheaAnnSep 07
selmaSBlankJun 24
RheaAnnJun 24
selmaSBlankJun 24
11
By LoriVA
This is a long and complicated question. So, in October of 2012 at the urging of a new neurosurgeon up at Hopkins I ...
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selmaSBlankSep 05
rosedawnSep 05
selmaSBlankSep 03
4
By rosedawn
Hi all. I am almost 3 years post decompression surgery on a 30 mm herniation Chiari. In general, I did not recover we...
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selmaSBlankSep 06
rod44Sep 05
Sdj111Sep 05
HeloiseOSJun 30
13
By HeloiseOS
Hi I was wondering if there were any Chiari malformation specialists in Cork or near? I don't know where to find them...
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selmaSBlankSep 04
2
By disasterfullbeauty
Hung upside down the other day and got the worst immediate head ache I could hardly move my neck in an up and down mo...
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selmaSBlankSep 04
selmaSBlankSep 03
kristy12Sep 02
4
By Allisonw2001
Hi! I was wondering if some of you could help me. I started fainting and having lightheadedness and dizziness 3 yea...
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8
By AZHR
Wondered if anyone else felt the need to support their neck with their hand? This is not constant, just in certain p...
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selmaSBlankSep 04
gramajoSep 04
selmaSBlankFeb 08
selmaSBlankFeb 08
S_sajy83Feb 08
28
By Jls12 Blank
Looking to know of others in Ottawa Ontario Canada who have been diagnosed and have had surgery. Any information ap...
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selmaSBlankSep 03
selmaSBlankSep 03
6
By evanderyac
I had a craniotomy done two months ago and a week ago, i was fine but this past sunday night i started getting a head...
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By Jm_smalformedbrain Blank
Hi! I was diagnosed on December 20th of 2013 with C1 malformation. My Neuro called and said, "we didn't find a tumor....
620923_tn?1405964489
selmaSBlankSep 03
2
By selmaSBlank
HI all please wear your purple tomorrow Sept 3rd to show awareness for Chiari and support our friend as she heads in ...
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selmaSBlankSep 03
1
By 0224
How do you tested for these other syndromes, and what kind of doctor would test for those?
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