Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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flameofndJan 02
selmaSBlankJan 02
flameofndJan 02
FreyjaaDec 31, 2014
23
By Freyjaa
Primary doc called with MRI results: Chiari 1 and not much else she could explain (ordered because of ongoing pain, p...
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By Elisaandbucky
I am 5 months post-op and generally recovering well. However, my neck pain is just as intense as before my surgery, a...
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selmaSBlankJan 03
CecliadJan 03
selmaSBlankMay 14, 2012
motynesMay 14, 2012
selmaSBlankMay 11, 2012
10
By 10carole Blank
Hi, I'm new to this site and need a good doctor at Vanderbilt in Nashville TN who does Chiari surgery. Any suggestion?
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selmaSBlankJan 02
3
By RHagwood
Syrinx from C2-T12, no Chiari. After seeing three neurosurgeons the one I decided that seemed most knowledgeable tol...
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selmaSBlankJan 02
1
By kitkat2015
Looking for a recommendation for a neurosurgeon very familiar with decompression surgery for Chiari in Southern Ontar...
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selmaSBlankJan 02
jennygault1Dec 31, 2014
Nellan12Nov 21, 2014
baccalynnwvNov 21, 2014
hockeymom6Nov 21, 2014
88
By 2GApeachy Blank
I just got a diagnosis. When the doctor told me, I was so nonchalant; however, having done more research, this is ra...
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selmaSBlankDec 30, 2014
missyorkieDec 30, 2014
S_ChaneyDec 29, 2014
6
By missyorkie
My husband had chiari malformation decompression surgery. Sept 29 2014. He was doing great, then began puking daily ...
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mike709Dec 31, 2014
selmaSBlankDec 31, 2014
baccalynnwvDec 31, 2014
4
By mike709
I have been getting headaches and then my head goes numb. This comes and goes.does anyone else have this problem? I h...
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selmaSBlankDec 31, 2014
crowmedicusDec 30, 2014
selmaSBlankDec 30, 2014
Mel5056Dec 30, 2014
crowmedicusDec 30, 2014
6
By crowmedicus
Hello my name is John I'm looking for some opinions and advice regarding the possibility I may have chiari malform...
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selmaSBlankDec 31, 2014
socceroDec 30, 2014
selmaSBlankDec 29, 2014
socceroDec 29, 2014
selmaSBlankDec 29, 2014
11
By Sexybare Blank
If anyone on here has fingers, toes, nose and lips that get so numb they go white and dont have feeling from the cold...
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ASumrallDec 30, 2014
ASumrallDec 30, 2014
ASumrallDec 30, 2014
mike709Dec 30, 2014
ElisaandbuckyDec 30, 2014
6
By Tama_nicole
Has anyone else had GI issues as a symptom of your chiari malformation? Always being nauseous, bad acid reflux, ect.?...
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ElisaandbuckyDec 30, 2014
baccalynnwvDec 29, 2014
selmaSBlankDec 29, 2014
Bamagirl40Dec 29, 2014
Nellan12Dec 28, 2014
12
By Nellan12
This is Nella' husband Chris. I am giving update on Nella's surgery. Surgery started an hour later than expected. ...
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ElisaandbuckyDec 30, 2014
selmaSBlankDec 30, 2014
baccalynnwvDec 30, 2014
3
By RHagwood
it is excruciating . My NS said my Syrinx from C-2 through T12, expanded in width at C-4-C-7; causing nerve damage be...
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S_ChaneyDec 30, 2014
selmaSBlankDec 27, 2014
conklemwDec 23, 2014
billyz123May 14, 2012
JessiLinnMay 13, 2012
15
By Munchies2012 Blank
Thursday I had to leave work because all of a sudden my right side went numb and I started shaking, I had to pace bac...
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RHagwoodDec 30, 2014
selmaSBlankAug 04, 2014
selmaSBlankAug 04, 2014
castletonAug 03, 2014
rod44Aug 02, 2014
9
By castleton Blank
Can a syrinx cause you to have severe chest pain around the sternum and between the ribs? I have a large idiopathi...
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S_ChaneyDec 30, 2014
Mandy_BestDec 30, 2014
Mandy_BestDec 30, 2014
S_ChaneyDec 29, 2014
selmaSBlankDec 29, 2014
7
By Mandy_Best
I'm 23 years old, I was diagnosed and had Decompression Surgery at 16. I have had nearly every symptom of Chiari that...
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Dianna41Dec 29, 2014
selmaSBlankDec 29, 2014
2
By Bamagirl40
Hello all. I have been trying to find places closer to where I live. Does anyone know about a neurosurgeon by the n...
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selmaSBlankDec 29, 2014
Bamagirl40Dec 29, 2014
Bamagirl40Dec 29, 2014
Nellan12Dec 29, 2014
4
By Tama_nicole
I am having decompression surgery on Friday (Jan 2nd) for my chiari malformation type 1. I don't really know what to ...
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selmaSBlankDec 29, 2014
1
By whirligig
Hello. I was recently diagnosed with Chiari and Syringomyelia. I am waiting to get in for my appt with a neurosurge...
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SarahNewDec 28, 2014
selmaSBlankDec 23, 2014
NattyTeeDec 23, 2014
selmaSBlankDec 17, 2014
SarahNewDec 17, 2014
203
By selmaSBlank Blank
Ok...we know what most Drs will accept as a chiari symptom...but, we also know we have many more symptoms that r chia...
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