Chiari Malformation Community
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Sort by:
Last Post
Date Started
Background:
Blank
Blank
Blank
Avatar_f_tn
selmaSBlankAug 05
1
By Kariwise
Hi everyone! So i was diagnosed about a year aho with cm1.. the only thing that my neuro had treated was my migraines...
Avatar_f_tn
selmaSBlankAug 05
selmaSBlankAug 02
selmaSBlankAug 01
12
By LLMomAndWife
Hello All! I'm new to this forum. I'm highly suspicious that I have Chiari and a tethered cord. All of the symptoms f...
Avatar_f_tn
selmaSBlankAug 02
1
By babs1947
Hi can you please advise me of any doctors who specialise in Chiari Mal. 1 within the Brisbane area. We live on the ...
Avatar_n_tn
selmaSBlankAug 02
0224Aug 02
selmaSBlankAug 02
0224Aug 02
selmaSBlankAug 02
7
By 0224
I have chiari malformation and POTS. I noticed my balance did improve after surgery. My surgery was 9 months ago. I n...
9489060_tn?1404181151
selmaSBlankAug 02
HeloiseOSAug 02
HeloiseOSAug 02
HeloiseOSAug 02
lasel22Aug 02
6
By HeloiseOS
Hi, I'm 15 and was diagnosed with CM over a year ago after an MRI. I'm due to have another MRI within the course of t...
Avatar_f_tn
selmaSBlankJul 31
2
By Shellybellyz80
I had my surgery July 16, I'm doing alot of walking and as much as I can, just want to know when I'm going to feel li...
Avatar_m_tn
jsk46Jul 31
jsk46Jul 31
jsk46Jul 31
11
By jsk46 Blank
If anyone has any suggestions for ways you've managed your brain fog, please let me know. We can swap ideas on ways...
1996562_tn?1330341439
selmaSBlankJul 31
jowlasdfgJul 31
billyz123Feb 13, 2012
Rahe28Feb 13, 2012
selmaSBlankFeb 12, 2012
5
By billyz123 Blank
Anybody have a clue what this is about??
Avatar_f_tn
selmaSBlankJul 31
LottidaJul 27
3
By angie_zagami
I received my decompression surgery almost 2 years ago, but am still experiencing severe headaches, nausea, vomiting,...
Avatar_m_tn
selmaSBlankJul 31
1
By imsotired
Anyomne else suffer so much with eye pain/headacheds that you end up with pain when blinking (or are more aware of th...
4341544_tn?1353099368
selmaSBlankJul 31
selmaSBlankJul 31
2
By isabel0608
Has any one had any treatment to ease the neck pain prior or after surgery. How did it work? How long was the relief?
Avatar_m_tn
selmaSBlankJul 31
selmaSBlankJul 31
2
By hope2456
Please help by providing a list of neurologists who treat symptoms for syrinx and cm1 in southeast pa or leigh valley...
4341544_tn?1353099368
selmaSBlankJul 31
selmaSBlankJul 26
selmaSBlankJul 25
5
By isabel0608
Hi everyone. My name is Isabel and I was diagnosed 2 weeks ago with tonsils at 11 and 14 mm respectively. I am 42 an...
Avatar_f_tn
KerriC1Jul 27
selmaSBlankJul 27
3
By KerriC1
This is Kerri's daughter, she headed back for surgery about 10 minutes ago. We have all the faith in her doctor and a...
14494512_tn?1434833506
selmaSBlankJul 26
1
By dawnnm16
Is there anywhere you can send pictures of your childs mri and have it read by a Dr? I finally got my daughters and w...
Avatar_f_tn
selmaSBlankJul 26
selmaSBlankJul 16
4
By jasminecrawford
HI EVERYONE I JUST TURNED 29 YEARS OLD ON THE 2ND OF JULY. IM A MOTHER OF A 1 YEAR OLD SON. I RECENTLY HAD CHIARI MAL...
Avatar_f_tn
selmaSBlankJul 26
newchiJul 26
selmaSBlankJul 26
3
By newchi
Hi all. I've been having the following syptoms for over a year. Tried migraine meds etc no joy..... 1 migraines wit...
Avatar_m_tn
selmaSBlankJul 25
1
By DM2ore
My teenage friend has been diagnosed with Chiari 1 and Occipital Neuralgia. In addition to the debilitating headaches...
979826_tn?1389039958
selmaSBlankJul 24
1
By soccero
Guess what??? I went to my first asap conference and guess who I met??? @elisaandbucky !!!!!! It is so cool to put a ...
Avatar_f_tn
KerriC1Jul 24
KerriC1Jul 23
selmaSBlankJul 22
10
By Dani618
So I met with a Chiari specialist at the Milwaukee Chiari Institute and had many tests done however I left with many ...
Recent Activity
620923_tn?1439824912
Blank
selmaS September is Chiari Awarene... Comment
6 hrs ago
620923_tn?1439824912
Blank
selmaS commented on soccero's status
8 hrs ago
979826_tn?1389039958
Blank
soccero wish me luck, school tomorr... Comment
23 hrs ago
Top Neurology Answerers
620923_tn?1439824912
Blank
selmaS
Allentown, PA
Avatar_m_tn
Blank
Ball123
9432311_tn?1432828685
Blank
Elisaandbucky
Charlotte, NC
7530528_tn?1428275172
Blank
AKC_75
TX
7489440_tn?1422931913
Blank
kwalker0004
Pocomoke, MD
979826_tn?1389039958
Blank
soccero
germantown, MD
Chiari Malformation Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
Top Neurology Answerers
620923_tn?1439824912
Blank
selmaS
Allentown, PA
Avatar_m_tn
Blank
Ball123
9432311_tn?1432828685
Blank
Elisaandbucky
Charlotte, NC
7530528_tn?1428275172
Blank
AKC_75
TX
7489440_tn?1422931913
Blank
kwalker0004
Pocomoke, MD
979826_tn?1389039958
Blank
soccero
germantown, MD