Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlankMar 06
2
By ReneeA37
Hello I haven't posted in a while because I have been feeling better with topamax therapy, the headaches have gotten ...
620923_tn?1426651955
selmaSBlankMar 06
selmaSBlankAug 17, 2011
cocoa42Aug 16, 2011
23
By selmaSBlank Blank
Please read this message before you post! This is a good place for info and comfort. If you are here, then you...
620923_tn?1426651955
selmaSBlankMar 06
2
By selmaSBlank
Hi ALL please wear your purple today to show awareness for Chiari and show support as our friend heads in for a shunt...
620923_tn?1426651955
3
By selmaSBlank
Hi all please wear your purple tomorrow March 2nd to help gain awareness for Chiari and support our friend heads...
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socceroMar 05
selmaSBlankMar 04
socceroMar 04
8
By soccero
and she thinks my seizures are really distonia from instability in my cspine. she wants me to where a rigid neckbrece...
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kkbee13Mar 05
kkbee13Mar 05
kkbee13Mar 05
selmaSBlankMar 05
Mel5056Mar 05
6
By kkbee13
Hello Everyone, I'm new here and was hoping that maybe some of you could take a look at this pic from my brain MRI...
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selmaSBlankMar 05
Jorlex37Mar 05
selmaSBlankMar 04
3
By Jorlex37
Not really a question but sharing in case someone else experiences this. This morning at 3:30 I woke to what I thoug...
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cateligoMar 05
selmaSBlankMar 04
Lynnrae64Mar 04
3
By cateligo
Hello everyone, I have been unwell for the past 3 months with heart palpitations, ectopic heartbeats, dizziness, c...
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selmaSBlankMar 04
cduqueMar 03
selmaSBlankJan 27
39
By KirstyyPie
Hi everyone, Would really love some advice and info if anyone can help me? I was diagnosed with chiari type 1 last...
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selmaSBlankMar 04
2
By Mandy_Best
I don't know how to begin this, I am beside myself with emotion. Fear, and anger, I am more frustrated than I have ...
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selmaSBlankMar 04
1
By lurina
Hi everyone! My English is not so good but I need advice. I was diagnosed CM 12 mm two weeks ago and I have meningio...
1891806_tn?1391122637
selmaSBlankMar 04
selmaSBlankMar 04
Becca8082Mar 04
InvidaJul 28, 2014
CatdecoJul 28, 2014
7
By hevnw8s Blank
Well...I finally got my decompression surgery date. I am scheduled for July 21st at St. Joseph's Hospital in Phoenix....
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selmaSBlankMar 03
MeganY24Mar 03
selmaSBlankMar 02
3
By MeganY24
So I have been in and out of the hospital over the last month after my eye doctor discovered papilledema and hemorrha...
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MeganY24Mar 02
selmaSBlankMar 01
2
By inasense
Hi Everyone, Firstly, I just wanted to thank the community here as a whole, specifically the Neuro/Vision focused...
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0224Feb 27
selmaSBlankFeb 27
0224Feb 27
selmaSBlankFeb 27
7
By 0224
I was looking at my Mri report for lumbar spine and it states there are tiny vertebral body hemangiomas or lipomas. W...
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selmaSBlankFeb 27
2
By JazzyMattaz
Hi, I live in Pittsburgh. I was recetly diagnosed with Chiari by a doctor from the Chiari Institute in NY. The prob...
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selmaSBlankMar 02
2
By Lissy821
In 2010 I had a neck and decompression surgery for chiari malformation. Well 5 years later I still have headaches eve...
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selmaSBlankMar 01
2
By Squeakie72
I have most of the lab results from lumbar puncture. Still waiting for I-band results to come back from mayo lab. ...
1274661_tn?1301871921
selmaSBlankMar 02
selmaSBlankAug 04, 2010
DechenDolkarAug 04, 2010
selmaSBlankAug 04, 2010
14
By DechenDolkar Blank
I was just wondering how many of you have trouble swallowing and if your experience is anything like mine? I have had...
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selmaSBlankMar 02
wonderchiariOct 24, 2013
selmaSBlankOct 24, 2013
wonderchiariOct 23, 2013
11
By jokz2 Blank
In 1997 I was diagnosed with Chiari Malformation I with an 8mm tonsil displacement after an MRI.Over the past 2 month...
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