Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlankApr 04
katydeeApr 04
selmaSBlankApr 03
3
By katydee
My daughter's surgery was performed by a highly recognized Chiari specialist. He's done hundreds of surgeries, lectu...
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selmaSBlankApr 04
1
By Meg_Joy
I was recently diagnosed with a Chiari Malformation Type 1 by my primary care phisician. Now trying to take the next ...
7530528_tn?1397354400
KurtPTApr 04
AKC_75Apr 04
ZilZilApr 03
ZilZilApr 03
5
By AKC_75
My understanding of the decompression surgery for Chiari is just that they go in and cut out a small piece of the sku...
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selmaSBlankApr 03
1
By brooke1979
My daughter is scheduled for decompression surgery in 2 weeks and I was just made aware of the significance of retrof...
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selmaSBlankApr 03
selmaSBlankApr 03
3
By newbietochiari
I was recently diagnosed with ACM type 1. I have been told that my herniation is 10 mm and it has been suggested that...
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selmaSBlankApr 03
1
By selmaSBlank
Hi All please wear ur purple tomorrow April 2nd to show awareness for Chiari and support of our friend as they head i...
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selmaSBlankApr 03
1
By ZilZil
Additionally: Stable single punctate white matter lesion in the posterior left frontal lobe white matter. I had a...
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selmaSBlankApr 03
1
By Nparuas
My son was just diagnosed with Chiari type 1. I took him to All Children's Hospital in St. Pete. He was seen by Dr. C...
7595610_tn?1397471372
selmaSBlankApr 02
1
By ZilZil
No, really. My mother sent me this comic that seems to sum up the Chiari plight. The original link: http://cheezbu...
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selmaSBlankApr 02
1
By Shell25manley
Hi, I'm new to the site. I don't have anyone I know with chiari malformation so it's pretty lonely sometimes. I have ...
7489440_tn?1392096009
selmaSBlankApr 02
selmaSBlankMar 31
3
By kwalker0004
Saturday I woke up with the most horrific pain in my lower right side. At first Itthought it was needing to go to the...
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selmaSBlankApr 02
Mel5056Apr 01
selmaSBlankApr 01
Mel5056Apr 01
selmaSBlankApr 01
5
By Mel5056
hey guys, quick question. Does anyone notice symptoms worse when you are sick? The stomach flu is in the family and...
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selmaSBlankApr 01
Laken256Apr 01
WyssaMar 31
selmaSBlankMar 31
Laken256Mar 31
6
By Laken256
I was decompressed 12 days ago (craniectomy, laminectomy, and duraplasty). I had been doing fantastic. Yesterday, I s...
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selmaSBlankApr 01
1
By SherryA1965
I was diagnosed with chiari 1 malformation several years ago. How often should I have a MRI done? Also the last few d...
1679858_tn?1346768781
selmaSBlankMar 31
2
By lynnbrook177
Ok, so I am pretty new to experiencing symptoms and still don't know if what I feel is myofacial pain (that's what I'...
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selmaSBlankApr 01
NicholelApr 01
selmaSBlankAug 24, 2010
CDG1977Aug 24, 2010
selmaSBlankDec 10, 2008
9
By Neon8RN Blank
I posted a similar question previously but noone answered, so I am trying again. I had an LP shunt placed in Apri...
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By Tom_Minneapolis
Hello, My brother just had chiari 1 malformation surgery last month. He was worried about his scar and if it stret...
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selmaSBlankApr 01
selmaSBlankMar 26
3
By mariefruit
Hi, again! I've had very strange upper body involuntary movement and I want to know if there is anyone who have th...
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selmaSBlankMar 31
1
By mike709
I called my neurosurgeon today. I explained to the nurse my symptoms. Left side weakness dizziness problems Walking s...
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15
By valleygirl26
Ok guys, first time posting, signed up just for this. Would just like to compare experiences because I have a hunch ...
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