Chiari Malformation Community
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Sort by:
Last Post
Date Started
Background:
Blank
Blank
Blank
Avatar_n_tn
selmaSBlankJan 30
2
By disasterfullbeauty
OK so I watched the video of the decompression surgery when I was first diagnosed. Scared myself into avoiding my Dr ...
11950437_tn?1422346090
By Rushjackson
I recently had an MRI done on my head. These are the exact words that came to my inbox from my primary doctor, "Overa...
979826_tn?1389039958
Ball123Jan 28
socceroJan 28
Ball123Jan 28
socceroJan 27
12
By soccero
So I asked him to write a letter for my professors, which he has done before, just stating that I have medical issues...
6346533_tn?1415403542
selmaSBlankJan 27
cduqueJan 27
Nellan12Jan 24
Nellan12Jan 24
cduqueJan 23
35
By KirstyyPie
Hi everyone, Would really love some advice and info if anyone can help me? I was diagnosed with chiari type 1 last...
Avatar_m_tn
selmaSBlankJan 27
2
By jsmurf6921
I just recently got diagnosed with CM less than a week ago and I am still waiting to hear back on my referral to my n...
Avatar_m_tn
selmaSBlankJan 27
selmaSBlankJan 27
6
By papagarbear
has anyone with chiari gotten disability ins and how long did it take?
Avatar_m_tn
sibby7Jan 27
sibby7Jan 27
selmaSBlankJan 26
4
By sibby7
Hello, I am looking for my second opinion and trying to find a specialist anywhere near DC, or Northern VA. I was dia...
Avatar_f_tn
lasel22Jan 26
KrystinamarieDec 22, 2014
selmaSBlankDec 22, 2014
ElisaandbuckyDec 20, 2014
6
By Jaclynr926
Hi I was told I have a chari 1 malformation years ago and told it was fine. Now at the age of 36 I am sick every day,...
Avatar_f_tn
selmaSBlankJan 27
Nellan12Jan 27
2
By AProvencher29
Hey everyone! I'm not sure if anyone is still on here it seems like the conversation has dried up a little. My name i...
Avatar_f_tn
selmaSBlankJan 26
selmaSBlankJan 25
6
By beccasqueeze
Hi, 2 years I was told I had chiari malformation after having an mri scan to find out what was causing my migraines a...
Avatar_f_tn
selmaSBlankJan 26
missadlJan 25
cewilcoxMay 31, 2011
selmaSBlankMay 28, 2011
4
By StrwbryShrtck Blank
Hello everyone! I started experiencing EXTREME symptoms associated with my 9mm Chiari Malformation about 5 months ago...
Avatar_m_tn
selmaSBlankJan 25
jax11Jan 25
selmaSBlankJan 24
jax11Jan 24
selmaSBlankJan 24
5
By jax11
This is my 1st time on this forum. Not sure how it works yet. I had decompression surgery in 2006. Craniectomy, lamin...
Avatar_f_tn
selmaSBlankJan 24
Mel5056Jan 24
Mel5056Jan 02
9
By Mel5056
Hi my friends its been a while. I have been doing fairly well post op. But the last three days i am getting tinglin...
Avatar_m_tn
selmaSBlankJan 24
1
By mike709
I went to my new neurosurgeon and he said everything looks pretty good. He said he did not want to go digging around ...
555358_tn?1292535661
selmaSBlankJan 24
Dianna41Jan 01
selmaSBlankAug 14, 2014
Dirk_DaringAug 14, 2014
261
By Shane99 Blank
I was noticing some threads about people that are scheduled to have decompression surgery and it got me thinking; How...
Avatar_f_tn
Ball123Jan 24
selmaSBlankJan 23
Jessee37Jan 23
selmaSBlankJan 22
5
By Jessee37
Hello, My DD (Mackenzie, 14 years old) is scheduled for surgery on 2/2/15. She is (was?) a competitive gymnast. Her ...
Avatar_f_tn
01458Jan 24
selmaSBlankJan 23
01458Jan 23
selmaSBlankJan 23
01458Jan 23
6
By 01458
Hi I'm new here and I would like to chat with people who had similar experiences with this problem. I'm 18 years old ...
Avatar_n_tn
selmaSBlankJan 24
0224Jan 24
selmaSBlankJan 24
0224Jan 24
selmaSBlankJan 22
5
eds
By 0224
I have some questions about eds. What are the symptoms? I feel like sometimes I have it a get pain in my knees and ...
Avatar_m_tn
Ball123Jan 24
lasel22Jan 23
lasel22Jan 23
10
By lasel22
My chiari is 4 mm and was diagnosed by a neurotologist who thought my symptoms were from chiari. Neurologists think ...
Avatar_m_tn
NikRod97Jan 23
cduqueJan 21
NikRod97Jan 21
7
By NikRod97
Just found i had this this last tuesday. Im only 17, and yet im more exhausted every day than my father who does labo...
MedHelp Health Answers
Recent Activity
620923_tn?1425151934
Blank
soccero, and selmaS commented on soccero's status
Feb 23
6150006_tn?1408380236
Blank
AZHR Is 16 months post op. Comment
Feb 19
Avatar_n_tn
Blank
epfk commented on When Your Cold Is Not...
Feb 18
Top Neurology Answerers
620923_tn?1425151934
Blank
selmaS
Allentown, PA
Avatar_m_tn
Blank
Ball123
9432311_tn?1424647329
Blank
Elisaandbucky
Charlotte, NC
7530528_tn?1415842914
Blank
AKC_75
TX
979826_tn?1389039958
Blank
soccero
germantown, MD
246139_tn?1424375573
Blank
baccalynnwv
OH
Chiari Malformation Community Resources
RSS Expert Activity
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
Top Neurology Answerers
620923_tn?1425151934
Blank
selmaS
Allentown, PA
Avatar_m_tn
Blank
Ball123
9432311_tn?1424647329
Blank
Elisaandbucky
Charlotte, NC
7530528_tn?1415842914
Blank
AKC_75
TX
979826_tn?1389039958
Blank
soccero
germantown, MD
246139_tn?1424375573
Blank
baccalynnwv
OH