Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlankMay 28
1
By byoung1052
I was diagnosed 2.5 years ago with mild chiari malformation I. As most everyone else, I've had good times and bad ti...
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selmaSBlankMay 28
1
By hitch73
My daughter, age 22, has recently been diagnosed with fusion of C1 to base of skull, basilar invagination, syrinx, bu...
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selmaSBlankMay 27
LottidaMay 27
2
By Dloshaw
I am still recovering from decompression surgery. It went very well. I would recommend. Dr seiff in Las Vegas highly....
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joshipeaMay 27
LottidaMay 26
DloshawMay 22
16
By dreagensmommy
Hello everyone. I have so many questions but i need support more then anything. I am a 28 year old single mother, i h...
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DloshawMay 26
LottidaMay 21
DSH519May 21
selmaSBlankMay 21
DSH519May 21
29
By DSH519
Had malformation type 1. Had decompression surgery in April 2001. Recently many of the same symptoms have returned. ...
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By missyorkie
Has to be caring, knowledgable at Chiari and Syringomelia. Dr Prokupa said his job was done. Go see a neurologist ag...
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missyorkieDec 26, 2014
selmaSBlankDec 26, 2014
11
By missyorkie Blank
We have been struggling now over 4 years, 3 Neurologist in Kingston just saying complex case.. Now saw a NS and he w...
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LottidaMay 26
selmaSBlankMay 26
2
By Bamagirl40
I need a little help with getting ready for chiari posterior decompression surgery. Dr. Soleau is going in with the ...
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LoLa1454May 26
selmaSBlankMay 26
LottidaMay 26
3
By LoLa1454
I live in Toledo OH and have been searching high and low for a Chiari specialist when I came across the Chiari Malfor...
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selmaSBlankMay 26
1
By BusterDooley
My Neurosurgeons name is Michael Doyle he seems very sincere about me needing this surgery and I feel secure when I t...
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Dianna41Dec 29, 2014
selmaSBlankDec 29, 2014
4
By Bamagirl40 Blank
Hello all. I have been trying to find places closer to where I live. Does anyone know about a neurosurgeon by the n...
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selmaSBlankMay 22
1
By Dloshaw
I just had my surgery on 4-17-15, and it was a success. I am starting to think my breasts are growing. It's not just ...
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selmaSBlankMay 22
fro510May 22
selmaSBlankMay 22
selmaSBlankJul 09, 2013
frankie_rushJul 09, 2013
58
By selmaSBlank Blank
The following poem is by Dr. John Oro So I Say Anothe...
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selmaSBlankMay 22
weelMay 22
selmaSBlankMay 21
3
By weel
Hi I was wondering I anyone can help me I have just found out I have chairi malformation and the tonsils at my cerebe...
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selmaSBlankMay 22
LottidaMay 22
2
By LoLa1454
Hi everybody so I just found out that Im 6mm herniated. About 4 years ago I was having severe migraines and had the d...
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selmaSBlankMay 22
1
By racrgrl
I have been researching for weeks, but honestly, I am not finding any really great referrals for Chiari doctors in At...
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selmaSBlankMay 22
1
By Rhinda
I am 6 weeks post-op after a Chiari decompression and cranio-cervical fusion surgery. My head is extremely sensitive...
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By BeyondFrustratedd
So my question is it ever normal to have csf blockage? Is it something a doctor should look at and suggest surgery or...
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DSH519May 21
selmaSBlankMay 17
2
By JaQari
I had my decompression surgery when I was 4 and I'm 20 now. It's been 16 years since my surgery.I had around 4-5 extr...
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selmaSBlankMay 21
2
By racrgrl
My daughter is having horrible headaches multiple times a day. They bring her to her knees. We just found out she h...
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