Aa
A
A
Close
Blank

Chiari Malformation Community

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

81 - 100 (of 11280) questions
NEWEST
ACTIVE
Avatar universal
Hello all, so today I learned that I have a " mild Chiari 1 malformation" As indicated by 3 separate MRI,s over almost 5 years, all indicating herniation ranging from 10mm 2011 to most recent CINE showing 6mm Left and no specific meas...
  Posted
Avatar universal
Hi Everyone. I was wondering if it is common to have severe leg weakness with CM? I have had leg stifnness, ie, scooting, dragging a leg, etc. off and on for several years now. But, for the last few months I have been having this weak...
  Posted
Avatar universal
Has anyone been to a doctor in Columbus that treats chiari malformation? Looking for someone to see. Dr Di has left CC, he would have been my first choice. Any suggestions?
  Posted
Avatar universal
Just wanted to wish all of you a happy and healthy Easter! I hope everyone is doing as well as they can be!
  Posted
16744917 tn?1451270439
So, I wanted to see how long after surgery you waited before getting back to your routines? For me this includes light cleaning, laundry and possibly driving. I have had 2 surgeries, Dec 29th and Feb 16th. I don't know if that would impa...
  Posted
Avatar universal
I was involved in a slip and fall injury, I reported neck pain the next day to all my Drs and even had a catscan, After a month of excruciating neck pain, Chiropractic care, PT, and seeing a specialist, my symptoms got worse. I went to e...
  Posted
2018583 tn?1457958299
I was recently diagnosed with Chiari 1 Malformation (I was diagnosed 1 month ago but i've had this severe debilitating headache since Nov. 21st; I had to drop out of school and I have to call out or work or leave work early a lot because...
  Posted
620923 tn?1452919248
This list is not a complete list of possible Specialists - This thread is here so Please continue to add your Drs names once you have been treated and like the Dr.. This is not any kind of "Official" list of Chiari Specialists! Th...
  Posted
Avatar universal
I had Chiari decompression surgery 4 months ago. Is it possible to have a CSF leak? My scar is leaking clear fluid out of the middle
  Posted
3060676 tn?1440706544
Hello all! I just wanted to share my fabulous news as it may help someone else! I have been going to an acupuncturist for 5 visits now (2 times a week). He is trained in Chinese theory. I've always heard that Chinese theory is better tha...
  Posted
Avatar universal
It has been 6 years this July since my surgery and I am now having alot of issues. I have not told my husband everything or he would flip but now I am to the worried stage. I need to find a doctor here in the St. Louis area that can help...
  Posted
Avatar universal
Opinions please, from people diagnosed with a reduced CSF flow. And from those who have had surgery because of it. Or anyone who had advice. I am 61 years old. My Chiari is only 1.5 mm. My last MRI said I have a mild reduction in CSF ...
  Posted
Avatar universal
Today I had a ECG stress test on a treadmill and after only two and a half minutes my BP went from 140/67 to 236/51. Has anyone heard of it being so high and with such a difference in systolic over diastolic? The diastolic actually dropp...
  Posted
992677 tn?1337358095
He was an absolutely awesome Dr! http://www.cleveland.com/metro/index.ssf/2014/03/common_pleas_jury_awards_forme.html
  Posted
Avatar universal
Does anyone have slightly restricted csf flow and lightheadedness as their main symptom? I have pain and discomfort at the back of my head too but not all the time. Has anyone had surgery with only lightheadedness? The csf spaces at lev...
  Posted
Avatar universal
Has anybody considered stem cell therapy to repair the damage done to the nervous system/brain? I had my decompression done 3 years ago and have been dealing with insomnia and central sleep apnea ever since. This leads me to believe that...
  Posted
Avatar universal
Okay people, talk to me about seizures and chiari. My 4 year old son had one last week, his pedi referred to it as a absence seizure. He checked out, stopped breathing and his eyes crossed and then rolled back. The whole thing only laste...
  Posted
Avatar universal
My son was diagnosed with Chiari I (11mm) a couple weeks ago, he is 4 years old. He is having a bunch of issues right now... headache since November, his voice turned raspy in like October, shoulder and neck pain, knee and leg pain, last...
  Posted
Avatar universal
Hi all, I am new to this site and was diagnosed with Chiari Malformation this week. I have suffered with lightheadedness for over 5 years and severe neck and shoulder tension. I get nerve tingling at times over the right side of my face....
  Posted
Avatar universal
I have had three bouts of Optic Neuritis in the last 3 years. The keep telling me that they think I have MS. I have had 6 MRI’s and a Lumbar Puncture that have all came back negative for MS. On all of my MRI’s a Chiari 1 Malformation has...
  Posted
A
A
Recent Activity
Top Neurology Answerers
620923 tn?1452919248
Blank
Allentown, PA
7530528 tn?1428275172
Blank
TX
Avatar universal
Blank
1306714 tn?1327260680
Blank
muskegon, MI
Avatar universal
Blank
Avatar universal
Blank
Chiari Malformation Community Resources
RSS Expert Activity
233488 tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488 tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543 tn?1443740527
Blank
TMJ/TMJ The Connection Between Teet...
01/15 by Hamidreza Nassery , DMD, FICOI, FAGD, FICCMOBlank
Top Neurology Answerers
620923 tn?1452919248
Blank
Allentown, PA
7530528 tn?1428275172
Blank
TX
Avatar universal
Blank
1306714 tn?1327260680
Blank
muskegon, MI
Avatar universal
Blank
Avatar universal
Blank