Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlankFeb 23
2
By Pyron
Everything I put in my mouth is just horrible tasting. Saliva burns my lips leaving peeled skin and sores.
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Nellan12Feb 23
selmaSBlankFeb 23
3
By sheliarv
I have just been diagnosed with chiari. I have been suffering from horrible headaches in severe pain in my neck and s...
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selmaSBlankFeb 23
JanetKPFeb 23
selmaSBlankApr 20, 2014
Geri_bytheriverApr 20, 2014
Geri_bytheriverApr 19, 2014
41
By Lovemygirls2 Blank
I am scheduled to have decompression surgery for my Chiari on October 28- 3 weeks from Tuesday. I am beginning to ge...
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4
By Elisaandbucky
Hello All. I am scheduled for fusion surgery on Tuesday April 14. I have been healing steadily from decompression in ...
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3
By kyylleeiigghh
so I have to get a nodule removed in my neck and im expecting to get surgery. my hair is about a little longer than s...
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selmaSBlankFeb 22
2
By Whostole
I am three years out from posterior-fossa decompression surgery. Shortly after my surgery I found that I was having ...
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selmaSBlankFeb 02
2
By Missyq78
Hi About 7-8 days ago I started noticing some visual changes in my left eye. I do have a chiari 1. I do notice in...
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0224Feb 21
selmaSBlankFeb 21
2
By 0224
Hello I had a question. I was looking at my labs in the computer and noticed my TSH level was at 3.26 the range for ...
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selmaSBlankFeb 04
2
By Jennifer73084
Has anyone left their job on short term and then long term disability for syringomelia? I am finding it hard to work ...
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selmaSBlankFeb 18
zygy2Feb 18
selmaSBlankFeb 15
9
By pmorr
now 7 weeks post op from decompression . herniated 11mm and have a srinx. Weeks leading up to surgery I began experi...
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selmaSBlankFeb 20
tofersFeb 20
2
By sunshine82208
Hi everyone!! I'm posting here hoping to shed some light on my condition. I was told yesterday that I have Chiar...
10169340_tn?1415849761
3
By Nellan12
It has been 8 weeks today since surgery, Dr B said I could drive but, never had the courage till this morning, I got ...
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0224Feb 18
selmaSBlankFeb 13
8
By 0224
I'm 3 1/2 months out since surgery. I noticed that my internal sutures are coming to the surface. Is this normal. I ...
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selmaSBlankFeb 19
RhindaFeb 19
selmaSBlankFeb 19
4
By Rhinda
Diagnosed with Chiari 1 Malformation. Got a second opinion from Dr. Bolognese who thinks I still have other things g...
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selmaSBlankFeb 18
selmaSBlankFeb 18
2
By bigsmile123
Title says it all... im really quite scared. Any advice on what to anticipate afterwards? Bigsmile :-)
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0224Feb 18
selmaSBlankFeb 16
3
By copperbelly
Has anyone had any experience with a pediatric neurosurgeon in or near Milwaukee?
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selmaSBlankFeb 17
Missyq78Feb 17
selmaSBlankFeb 17
3
By Missyq78
Has anyone had any non enhancing non specific t2 hyper intensities show up on their mri? I have a 7mm chairi malforma...
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mace07Feb 16
mace07Feb 16
17
By mace07
My son is 4 year's old and has been recently diagnosed with a 13 mm chiari malformation type 1. He has been conplain...
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selmaSBlankFeb 16
selmaSBlankFeb 16
3
By Chiari_girl92
I am 9 months post op and doing well but I got in a car accident and have been having numbness in my hands and feet. ...
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selmaSBlankFeb 16
1
By PattyRiska
I have been in tones in the past week. I was wondering what other do to relieve pain.. The Doctors say I only have Ar...
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