Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlankMay 20
1
By dreagensmommy
Has anyone ever had Cranial decompression surgery done by Dr Todd Shanks of Norton Neurosciences out of Louisville K...
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selmaSBlankMay 20
selmaSBlankMay 16
selmaSBlankMay 14
5
By sadladyneedhelp
I had a mri and the findings said in April it says, mild cerebellar tonsillar ectopia of 3mm below the foreamen magn...
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selmaSBlankMay 18
1
By AkCannaMom
Hi All I am three weeks out of decompression and I have been having some wild pain in my right groin area, shooting ...
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selmaSBlankMay 17
selmaSBlankMay 17
6
By Robbyd1329
Hello all! I had great support on what was happening to me so hopefully I can get some info before I see him. I had 2...
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selmaSBlankMay 18
1
By sschaff
I have suffered migraines for as long as I can remember. I am 24 and saw a pediatric neurologist when I was younger a...
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selmaSBlankMay 18
heysueMay 18
selmaSBlankMay 17
heysueMay 17
selmaSBlankMay 15
9
By heysue
It's been at least 6 yrs since my Chiari Malformation Decompression surgery. As of the last several months, I've been...
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selmaSBlankMay 17
1
By Spaceystac
Rheumatologist took a bunch of blood and the ANA PATTEN came back speckled. It says next to it most likely the writte...
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selmaSBlankMay 17
2
By strongenough1984
i had a mri done last april and they found a 4mm herniation of my right tonnsilar and I haven't seen a doctor for fu...
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selmaSBlankMay 16
selmaSBlankMay 06
selmaSBlankMay 02
selmaSBlankApr 26
23
By selmaSBlank Blank
This list is not a complete list of possible Specialists - This thread is here so Please continue to add your Drs n...
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selmaSBlankMay 16
SarahNewDec 28, 2014
selmaSBlankDec 23, 2014
NattyTeeDec 23, 2014
205
By selmaSBlank Blank
Ok...we know what most Drs will accept as a chiari symptom...but, we also know we have many more symptoms that r chia...
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selmaSBlankMay 15
zygy2May 15
selmaSBlankMay 14
LottidaMay 14
selmaSBlankMay 12
5
By Lottida
Just curious if anyone has had the CT guided needle drainage of a CSF leak recently?? Would love to get info on what...
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selmaSBlankMay 15
MrsBriMay 15
selmaSBlankMay 14
3
By MrsBri
My 14 year old son was diagnosed with Chiari Type 1 in January of this year. Thanks to his wonderful pediatrician we...
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selmaSBlankMay 15
1
By Wyssa
Hey guys! I'd just like to post a big thank you to everyone here! I would have never gotten my diagnosis of Sara synd...
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WyssaMay 15
selmaSBlankMay 14
happy1975May 13
selmaSBlankMay 13
5
By happy1975
I am 8 weeks post Chiari decompression and am feeling very grateful how well I am doing, however am having days where...
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selmaSBlankMay 14
2
By 0224
I feel like lately I've been feeling unsteady on my feet I thought this would be gone by now. How many months does i...
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selmaSBlankMay 14
1
By crystalmullens
I have recently been diagnosed with chiari malformation and keep hearing the sound of fluid shooting from my neck int...
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LottidaMay 14
selmaSBlankMay 14
2
By Bamagirl40
I was wondering if anyone needed a caregiver after surgery or were you able to do for yourself limited I am sure? ...
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selmaSBlankMay 14
2
By hope2456
My constant headache since MARCH 2015 severely increases in intensity when riding in a car. Does anyone have the same...
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selmaSBlankMay 13
Miminka0May 13
Miminka0May 13
selmaSBlankMay 12
5
By Miminka0
I have had chronic neck pain and stiffness alternating with weakness (and many, many other symptoms) for about two ye...
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selmaSBlankMay 12
1
By chacha1041
My 17 year old son is hoping to travel to the U.S., but needs to obtain medical travel insurance in case of an accide...
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