Chiari Malformation Community
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Sort by:
Last Post
Date Started
Background:
Blank
Blank
Blank
620923 tn?1452919248
selmaSBlankMar 16
KerriC1Mar 16
2
By selmaSBlank
Hi ALL please wear your purple to help gain awareness for Chiari and show support as our friend heads in for occipita...
Avatar m tn
captalMar 15
Mikef1980Mar 14
selmaSBlankFeb 16
captalFeb 15
selmaSBlankFeb 15
10
By captal
Hi, well it's been a while since I was here last and my how things have changed. Just to give a short history I was ...
Avatar m tn
Justin_TMar 14
selmaSBlankMar 14
2
By Justin_T
My 3yr old son just had the decompression surgery on 3/3 and has been having severe headaches all over his head (most...
Avatar f tn
4
By Juleslynne
Hi, I had decompression surgery in August 2013 and for two years I was pain free and back to normal. But the last few...
Avatar f tn
Jtay2630Mar 14
selmaSBlankMar 11
poosygirlMar 11
3
By Jadams9602
My son started having headaches and we had an MRI done and discovered he has Chiari 1 (about 9.5mm). After seeing a n...
620923 tn?1452919248
selmaSBlankMar 11
selmaSBlankMar 11
6
By selmaSBlank
Hi ALL please wear your purple tomorrow March 10th to show awareness for Chiari and support our friend as she heads ...
Avatar f tn
selmaSBlankMar 01
2
By MotoGearhead
Hi all. I was wondering if anyone knew if Chiari symptoms will prevent me from riding motorcycles pre-op. I am a serv...
17489454 tn?1457154745
By vluriepehpehronni
Hello everyone! Am quite new here so I apologize in advance if this has been asked before, but I had my surgery last ...
Avatar f tn
selmaSBlankMar 14
selmaSBlankMar 11
3
By Jesnnesaum
I was diagnosed with Chiari (5-7mm) and EDS-3 this past fall after having an MRI of my cervical following a car accid...
17480951 tn?1457152739
selmaSBlankMar 12
Levine38Mar 12
Levine38Mar 04
selmaSBlankMar 04
3
By Levine38
I'm contacting you on behalf of my wife. She has recently been diagnosed with Chiari Malformation at the age of 42 ye...
Avatar m tn
lasel22Mar 12
gjjlMar 07
11
By 1periodfarts
i'd say my symptoms started about 15 years ago, but only in the last year have they gotten really bad; i have not had...
16744917 tn?1451270439
gjjlMar 12
gjjlMar 12
gjjlMar 10
9
By gjjl
I was wondering, for those who have had decompression surgery, how long did the intracranial pressure last? I am 3 we...
Avatar m tn
selmaSBlankMar 11
AngelinriMar 11
selmaSBlankMar 03
poosygirlMar 03
4
By mking71
I have a chiari 1 malformation and have been seeing a nerologist , mine is 5 cm and my symptoms are headache, vision ...
Avatar f tn
selmaSBlankMar 09
gjjlMar 09
2
By Goombah351
Hi all. I have the Arnold Chiari malformation and had the decompression surgery 21 yes ago. I have allergies and ch...
Avatar n tn
selmaSBlankMar 09
1
By Blueghost
Is EDS possible without stretchy skin or the ability to bend your fingers/joints excessively? I have a lot of joint c...
1069888 tn?1421940341
selmaSBlankMar 08
sisk71Mar 08
selmaSBlankFeb 15
AV_MFeb 15
selmaSBlankFeb 15
7
By laratterman
Selma, can you bump the doctors list please? I need to see if there are any NS and NL around Dayton or Columbus that...
17440821 tn?1456757510
selmaSBlankMar 08
1
By AmberV1021
Hi all, My decompression is in 2-3 weeks. 2 things. First: hair. Has anyone had the surgery without having ANY...
17440821 tn?1456757510
selmaSBlankMar 08
selmaSBlankMar 02
selmaSBlankFeb 29
7
By AmberV1021
Hi fellow Chiarians, I'm Amber. My headaches started when I was 7 years old. They have been a part of my weekly, some...
Avatar f tn
gjjlMar 07
lasel22Mar 07
selmaSBlankMar 07
3
By Ray_harv
Hello! I'm Ray I am 15 and I got diagnosed early last year with Chiari Malformation 1 but I have had the symptoms ...
Avatar n tn
Mel5056Mar 07
lasel22Feb 22
selmaSBlankFeb 21
selmaSBlankFeb 15
5
By PRINCESSMOM2016
Hello I am new to all of this and I just got diagnosed a month or so ago and I was wondering if there is a list of Ch...
Recent Activity
620923 tn?1452919248
Blank
selmaS, and The_Marine_Corp_Brat commented on The_Marine_Corp_Brat's status
Apr 27
Avatar f tn
Blank
Ladytruth01 commented on When Your Cold Is Not...
Apr 24
3177763 tn?1344540646
Blank
The_Marine_Corp_Brat My brain and my body are no... Comment
Apr 22
Top Neurology Answerers
620923 tn?1452919248
Blank
Allentown, PA
7530528 tn?1428275172
Blank
TX
Avatar universal
Blank
Avatar universal
Blank
1306714 tn?1327260680
Blank
muskegon, MI
Avatar universal
Blank
Chiari Malformation Community Resources
RSS Expert Activity
233488 tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488 tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543 tn?1443740527
Blank
TMJ/TMJ The Connection Between Teet...
01/15 by Hamidreza Nassery , DMD, FICOI, FAGD, FICCMOBlank
Top Neurology Answerers
620923 tn?1452919248
Blank
Allentown, PA
7530528 tn?1428275172
Blank
TX
Avatar universal
Blank
Avatar universal
Blank
1306714 tn?1327260680
Blank
muskegon, MI
Avatar universal
Blank