Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlankDec 31, 2014
socceroDec 30, 2014
selmaSBlankDec 29, 2014
socceroDec 29, 2014
selmaSBlankDec 29, 2014
11
By Sexybare Blank
If anyone on here has fingers, toes, nose and lips that get so numb they go white and dont have feeling from the cold...
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ASumrallDec 30, 2014
ASumrallDec 30, 2014
ASumrallDec 30, 2014
mike709Dec 30, 2014
ElisaandbuckyDec 30, 2014
6
By Tama_nicole
Has anyone else had GI issues as a symptom of your chiari malformation? Always being nauseous, bad acid reflux, ect.?...
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ElisaandbuckyDec 30, 2014
baccalynnwvDec 29, 2014
selmaSBlankDec 29, 2014
Bamagirl40Dec 29, 2014
Nellan12Dec 28, 2014
12
By Nellan12
This is Nella' husband Chris. I am giving update on Nella's surgery. Surgery started an hour later than expected. ...
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ElisaandbuckyDec 30, 2014
selmaSBlankDec 30, 2014
baccalynnwvDec 30, 2014
3
By RHagwood
it is excruciating . My NS said my Syrinx from C-2 through T12, expanded in width at C-4-C-7; causing nerve damage be...
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S_ChaneyDec 30, 2014
selmaSBlankDec 27, 2014
conklemwDec 23, 2014
billyz123May 14, 2012
JessiLinnMay 13, 2012
15
By Munchies2012 Blank
Thursday I had to leave work because all of a sudden my right side went numb and I started shaking, I had to pace bac...
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RHagwoodDec 30, 2014
selmaSBlankAug 04, 2014
selmaSBlankAug 04, 2014
castletonAug 03, 2014
rod44Aug 02, 2014
9
By castleton Blank
Can a syrinx cause you to have severe chest pain around the sternum and between the ribs? I have a large idiopathi...
11570509_tn?1422390766
S_ChaneyDec 30, 2014
Mandy_BestDec 30, 2014
Mandy_BestDec 30, 2014
S_ChaneyDec 29, 2014
selmaSBlankDec 29, 2014
7
By Mandy_Best
I'm 23 years old, I was diagnosed and had Decompression Surgery at 16. I have had nearly every symptom of Chiari that...
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Dianna41Dec 29, 2014
selmaSBlankDec 29, 2014
2
By Bamagirl40
Hello all. I have been trying to find places closer to where I live. Does anyone know about a neurosurgeon by the n...
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selmaSBlankDec 29, 2014
Bamagirl40Dec 29, 2014
Bamagirl40Dec 29, 2014
Nellan12Dec 29, 2014
4
By Tama_nicole
I am having decompression surgery on Friday (Jan 2nd) for my chiari malformation type 1. I don't really know what to ...
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selmaSBlankDec 29, 2014
1
By whirligig
Hello. I was recently diagnosed with Chiari and Syringomyelia. I am waiting to get in for my appt with a neurosurge...
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SarahNewDec 28, 2014
selmaSBlankDec 23, 2014
NattyTeeDec 23, 2014
selmaSBlankDec 17, 2014
SarahNewDec 17, 2014
203
By selmaSBlank Blank
Ok...we know what most Drs will accept as a chiari symptom...but, we also know we have many more symptoms that r chia...
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selmaSBlankDec 27, 2014
Sillyile12497Dec 27, 2014
selmaSBlankMar 12, 2013
EmpinaMar 11, 2013
Jenn444Oct 03, 2011
7
By zygy2 Blank
I have had three surgeries and after the first one I don't remember having this much of an electrical zap feeling. I...
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selmaSBlankDec 27, 2014
RgargacDec 27, 2014
selmaSBlankDec 22, 2014
kwalker0004Dec 17, 2014
RgargacDec 17, 2014
26
By Rgargac
My 16 year old began having headaches which neuro diagnosed as migranes after he had hand surgery Oct 2013. Last Thu...
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selmaSBlankDec 26, 2014
GruntyDec 26, 2014
selmaSBlankJul 19, 2014
GruntyJul 19, 2014
VMZ14Jul 19, 2014
8
By Grunty Blank
Hi, I have been diagnosed with Cerebellar Tonsillar Ectopia (6mm). My question is.... Is it the same as Chiari Malfor...
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missyorkieDec 26, 2014
selmaSBlankDec 26, 2014
missyorkieDec 26, 2014
missyorkieJun 30, 2014
ElisaandbuckyJun 30, 2014
8
By missyorkie Blank
We have been struggling now over 4 years, 3 Neurologist in Kingston just saying complex case.. Now saw a NS and he w...
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KrystinamarieDec 26, 2014
selmaSBlankDec 26, 2014
2
By amandacd345
Hi my name is Amanda and I'm 18 years old. I found I had chiari malformation when I was 14 and I'm having decompressi...
620923_tn?1422550960
selmaSBlankDec 26, 2014
selmaSBlankDec 03, 2014
mommasvDec 02, 2014
selmaSBlankNov 11, 2014
selmaSBlankNov 06, 2014
122
By selmaSBlank Blank
Hi All, in order to post a Prayer Thread for u, please post ur date here on this thread so we know u would like one. ...
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selmaSBlankDec 25, 2014
1
By ReneeA37
Anyone experienced this?? The last 2 days my right neck and shoulder have been extremely uncomfortable all the way a...
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selmaSBlankDec 25, 2014
pepsidoodlesDec 24, 2014
selmaSBlankDec 24, 2014
3
By pepsidoodles
looking for info for a good neurologist in the San Francisco Bay area of CA,,, since my surgeon wants me to see one,,...
620923_tn?1422550960
ElisaandbuckyDec 24, 2014
1
By selmaSBlank
You all a very Merry Christmas and a Happy and Healthy New Year. Happy Chanukah, Quwanza,festivest what ever you do...
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