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Chiari Malformation Community
This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.
101 - 120 (of 11371) questions
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Avatar universal
Hi, I'm hoping maybe someone can help point me in a direction. When I was a young child I thought that constant headaches & pain were no...
17 answers | 1 comment |
Avatar universal
Hi group, My nine year old daughter has been diagnosed with Chiari type 1 in the few weeks. Rather progressed. We went to both a neu...
1 answer |
620923 tn?1452919248
Hi ALL please wear your purple today, May 13th as our friend heads in for surgery to help gain awareness for Chiari and to support our fr...
4 answers |
Avatar universal
can you live a regular life w/o surgery if you can control the pain with medications? or it is imperative to get surgery; what is the lif...
2 answers |
Avatar universal
It's been 8 months since surgery and I've had so many issues.... Over the last several months this helicopter sound in my ear and intense...
23 answers | 2 comments |
Avatar universal
I just have some questions about post surgical symptoms. Thanks
7 answers | 5 comments |
Avatar universal
Please help I have just been diagnosed with the chiari malformation and I am so so scared I have two very small children and I am so frig...
31 answers |
3112631 tn?1356657157
I was recently diagnosed with a pseudomeningocele and am struggling with deciding whether or not to have it treated. My first decompressi...
22 answers |
Avatar universal
My eleven year old daughter had decompression surgery on 4/21. She had no symptoms before surgery. Rarely go headaches. If so regular ten...
2 answers | 1 comment |
Avatar universal
my sons MRI scan got sent to neurology they have come back with this cerebellar tonsils descend by 5mm, is this chirai ? does anyone k...
10 answers | 15 comments |
539750 tn?1226525277
Hi All, I have Kaiser and I am wondering if there are any doctors in my network that specialize in CM. I saw an NS already who said I...
9 answers |
1436969 tn?1283792724
We have no idea how we are going to pay for our little 5 year old boy's consult and following care to come at UCLA... Is there a way to g...
8 answers |
Avatar universal
I have aquired chiari malformation and have constant pain and a neurologist that refuses to prescribe pain medication. I'm eating so much...
3 answers | 1 comment |
17620464 tn?1458447186
I went to see THE Chiari neurosurgeon in Las Vegas. He says that I do not have Chiari Malformation. My MRI shows my tonsils hanging a lit...
3 answers | 1 comment |
Avatar universal
I was diagnosed 4-21-16 with Severe Type 1 Chiari and will have surgery when all pre-op tests (EKG, X-ray, bloodwork and a complete spine...
6 answers | 4 comments |
2178416 tn?1337617593
Anyone know about this or have one? Thoughts?
16 answers |
Avatar universal
has anyone used homeopathy to help?
Avatar universal
Hi I'm new to all this was diagnosed with chairi malformation a month ago an mines gotten pretty bad latley to were I can't think straigh...
3 answers |
Avatar universal
Hi I'm new to chiari and its symptoms and what it can do to my body. Having a hard time telling if the symptoms I'm feeling are because o...
1 answer |
Avatar universal
I had Decompression Surgery on Feb. 11, 2010. Since surgery I have had a fluid filled bubble to the left of my incision. Some days it s...
13 answers |
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