Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlankJul 26
selmaSBlankJan 05, 2013
AuntieLeighanJan 04, 2013
selmaSBlankJan 04, 2013
7
By AuntieLeighan Blank
I have been diagnosed with Chiari. I also had a tiny pituitary cyst. I had a pituitary study done and the finsings of...
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selmaSBlankJul 25
2
By frankie_rush
Mine is not a question. Mine is just saying Thank you all for being friends and a crutch at times for me. Cause two...
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selmaSBlankJul 24
selmaSBlankFeb 15
ZilZilFeb 15
aricaruthFeb 15
43
By KYKY84 Blank
HI, I was diagnosed and treated for epilepsy when i was 14 months old all the way to the age of 17 which at that time...
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KurtPTJul 21
selmaSBlankJul 18
4
By KurtPT
Who, after decompression, experiences the feeling of your brain "bouncing" or moving when walking or running?
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selmaSBlankJul 24
selmaSBlankJul 22
5
By Heather2414
I learned when I was in my teens that I had the Chiari in the back of my head from Children's Hospital and they told ...
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By TinyRN
So its been a while since I have posted. After my last MRI I was left with the fluid build up in the back of my surgi...
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VMZ14Jul 23
cduqueJul 23
cduqueJul 23
VMZ14Jul 22
9
By VMZ14
I have chiari 1 malformation and have been having these episodes mostly when I'm out and about where I have this feel...
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selmaSBlankJul 23
22amber44Jul 23
selmaSBlankJul 23
22amber44Jul 23
selmaSBlankJul 23
7
By 22amber44
I have a child recently diagnosed with chiari malformation type 1. His age is 4. It started with vision and hearing...
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selmaSBlankJul 23
Sbrown03Jul 23
selmaSBlankJul 23
3
By Sbrown03
I had decompression surgery in 2011 at John Hopkins in Baltimore Maryland. However we just found out that one of my 3...
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selmaSBlankJul 23
2
By shelly0513
Sometimes I get light headed with a mild pulsation headache after bending my head to far back. But only for a few sec...
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selmaSBlankJul 23
selmaSBlankJul 06
3
By shelly0513
Anyone have this sensation post surgery? I know the nerves are still healing 2 years post surgery, but should I be co...
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selmaSBlankJul 22
2
By lilbit1166
In the past year or so I have extreme hair loss, dry n brittle. the past 6 months my skin is thinning like I'm in my ...
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selmaSBlankJul 22
selmaSBlankJul 21
mistyp29Jul 21
13
By mistyp29
I seen a NS for my AMC and he did surgery, I had to be put back in the day after my reliece From the hospital becaus...
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kristy12Jul 22
selmaSBlankJul 22
3
By M_Mom
Hi- My 15-year old son has been recently diagnosed with chiari I and syringomyelia. He is not having any neurolog...
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3
By Mikec5595
Hello, I just wanted to see if anyone could shed some light on my issue. I had decompression surgery on May 29th of 2...
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By janellechree71
Hi, I was wondering if anyone gets nausea when sitting up in bed or laying ? Its such a double edged sword because I...
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selmaSBlankJul 21
selmaSBlankJul 21
3
By huskerfan71
I had surgery on January 27 (C1 laminectomy, dura patch with my own tissue and a mesh plate put in). Things were g...
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4
By selmaSBlank
Hi all please wear your purple tomorrow Monday July 21st to show awareness for Chiari and support for our friend as s...
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VMZ14Jul 21
selmaSBlankJul 21
RhindaJul 21
selmaSBlankJul 21
RhindaJul 21
11
By Rhinda
I'm new on this forum. I have Syringomyelia and will be seeing a Chiari specialist in 3 weeks. I am almost at 6 yea...
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selmaSBlankJul 21
1
By Stylo1955
Have been told wife has shading if brain after MRI Scan ....what dies this mean as appointment with Neurologist is a ...
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