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Chiari Malformation Community
This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.
121 - 140 (of 11615) questions
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Avatar universal
This is crazy I know, but I have been having midspine pain. Hard to get up from sitting and just so so painful and sore. My husband was...
9 answers | 6 comments |
Avatar universal
Hello I recently had an MRI for prolactinomas due to fertility problems and the incidentally also found that my cerebellar tonsils des...
10 answers |
Avatar universal
I finally recieved a Dx! Cerviocranial Instability!! I had a consult with TCI in NY yesterday. Dr Rekate has ordered additional tests in...
1 answer |
19681337 tn?1490559461
Hi everyone. I'm scheduled to get my surgery in less than 2 months on May 17th (prayers are appreciated) and I'm nervous about the pain m...
2 answers | 1 comment |
1340519 tn?1305170302
Hey All - I am having some serious issues with my legs and don't know whats going on. I don't have a diagnosis but am working with a few ...
13 answers | 1 comment |
Avatar universal
I feel lost. I have a neurologist who has been treating me for migraines with Gabapenten, Razatriptan, and and Topamax. I was diagnosed w...
3 answers | 1 comment |
Avatar universal
Hello everyone, this is my first post - I'm not having much luck getting a clear answer on this one and thought someone might have some i...
9 answers |
4760166 tn?1398360913
I have had so many surgeries ... decompressed twice, countless shunt replacements / revisions .. I couldn't even guess how many. But my ...
1 answer |
Avatar universal
I have chiari 1. With two large syrinx in my spine. One at my neck and one between shoulder blades. A lot of pain. Numbness. Speech pro...
1 answer |
7205189 tn?1447798338
I recently had what they called an "atypical migraine" where I began with having a blind spot at the center of my vision and it kind of g...
3 answers | 2 comments |
906843 tn?1245212494
Hi all, well my raising a huge stink and writing a small novel to the insurance and demanding it be placed in my medical records seems t...
9 answers |
Avatar universal
I'm a young kid and on Friday I'm getting brain surgery for chiari. I don't really know what to expect. Is it painful?
1 answer |
Avatar universal
I recently was diagnosed with AVNRT (a type of PSVT) and have had a few major episodes where my heart was going 200 plus bpm. Just wonde...
Avatar universal
Hello to all! Hope you are feeling well! I have my share of surgeries after being diagnosed in 2008. I have had the original decompressio...
1 answer | 1 comment |
Avatar universal
Hi, I am wondering if anyone has been to/had a consult with TCI in NY recently? I am doing a skype consult with both NS (rekate and ...
1 answer | 1 comment |
Avatar universal
Hi everyone..I'll try to keep this short. Hope you're all doing well, this was also posted to Thyroid forum but I remember how all you w...
4 answers |
510038 tn?1489986629
I had a weird/terrifying experience last night not long after I had fallen asleep. I woke up and couldn't move or breathe and all I could...
3 answers | 1 comment |
Avatar universal
My wife has a chiari that is probably only 5-6 mm on one side with a very small syrinx. Symptoms camel's one progressively after whiplash...
4 answers | 4 comments |
Avatar universal
I was recently told by my VA office that my scans showed a mild cerebellar ectopia. I had my tests ran in january and they are only telli...
1 answer |
Avatar universal
I have just been diagnosed with Chiari 1 during emergency admission to hospital with long term headaches and high blood pressure. Been re...
1 answer |
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