Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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246139_tn?1410875443
selmaSBlankSep 25
2
By baccalynnwv
Hello. My next Mri is on the 30th. I have said before that my Nuerologist does not think my chiari is causing my symp...
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selmaSBlankSep 28
Ruby54Sep 28
selmaSBlankSep 28
Ruby54Sep 28
ChiaritomSep 24
9
By Chiaritom
Hi All, Ive started noticing symptoms ever since I was 19 years old.. It started with this "dreamyness" and foggy ...
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selmaSBlankSep 26
Jorlex37Sep 26
selmaSBlankSep 26
4
By Jorlex37
Its been a long time since I've posted! Which is good! I had decompression 11/2009! Long recovery! Id say a year! ...
1664023_tn?1302964766
selmaSBlankSep 27
MissMom82Sep 27
selmaSBlankFeb 17, 2012
txredhead07Feb 17, 2012
10
By krisglo Blank
I was recently prescribed Topopax to help with headaches, can anyone tell me what their experience has been with this...
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selmaSBlankSep 25
2
By pmkbear
does anyone know of any doctors familiar with cm in fayetteville, nc or the surrounding area.
1307900_tn?1273517002
selmaSBlankSep 24
debkrollsSep 24
WarriorMommaMay 17, 2010
selmaSBlankMay 10, 2010
4
By WitchyWoman63 Blank
I have Elhers Danlos Syndrom and Chiari 1. I have been told they go hand and hand is this true? I have tried to go ...
999780_tn?1263675571
selmaSBlankSep 24
proteaSep 24
selmaSBlankSep 23
proteaSep 23
selmaSBlankSep 21
5
By protea
My son 7 yrs had decompression with C1 in August. Since surgery he has had a tough time healing and fevers. His eos c...
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selmaSBlankSep 22
harboySep 22
harboySep 22
selmaSBlankSep 21
4
By harboy
Hi to all ! Hope everyone is having a good day. I am wondering what medications you have tried to ease the pain. My...
1303966_tn?1296743610
Ruby54Sep 22
selmaSBlankSep 03
jiggle93Sep 03
AzrealtorSep 01
selmaSBlankJun 20
39
By kricklekrin Blank
I'm currently not on any medications other than natural supplements. I was on Keppra, but it changed my personality ...
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By Chiarimomandwarrior
I am 32 years old and was diagnosed at 27 with IH, in 2012 my son was diagnosed with Chiari. I believe I was misdiagn...
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kkluvSep 21
selmaSBlankApr 06, 2012
honeydew21Apr 06, 2012
RylanesmomApr 05, 2012
7
By honeydew21 Blank
Does anyone else blog? If you do have you blogged about what you're going through? If so...what's your blog? I'd l...
620923_tn?1413427272
selmaSBlankSep 21
dozzy379Sep 21
selmaSBlankSep 16
selmaSBlankSep 16
5
By selmaSBlank
EDS is not just hypermobility....and they even cover seizures...Headaches.....which can continue post op of a decomp...
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kristy12Sep 20
selmaSBlankSep 20
selmaSBlankSep 20
4
By emilysusan
I have recently been diagnosed with Ehler's Danlos. I know that chiari can be found in people with EDS. I have many s...
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0224Sep 20
selmaSBlankSep 19
2
By Amarisnery
I was diagnosed with Chiari Malformation 1 with a 6mm in March. I haven't seen the Dr. waiting on the Medical Card. I...
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selmaSBlankSep 18
0224Sep 18
selmaSBlankSep 17
7
By 0224
I was wondering 8th shortness of breath, and heart palpations are these symptoms of chiari. I also notice if I raise...
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harboySep 17
selmaSBlankSep 16
22
By Jennifwe223
Hi my name is Jennifer and I am seeking help! I am a 23 year old college student who is suppose to graduate in Decemb...
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selmaSBlankSep 18
1
By 0224
I'm posting to see if anybody has tried glyconutrients by mannatech for chiari malformation?
246139_tn?1410875443
harboySep 18
selmaSBlankSep 17
7
By baccalynnwv
Hi, my co-worker, one of the very few people I have told about this Chiari thing to, came up to me today and said las...
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klinkdogSep 18
klinkdogSep 16
selmaSBlankSep 12
5
By klinkdog
Dr. Paolo Bolgnese does anybody have his new address and phone number
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selmaSBlankSep 17
rod44Sep 17
selmaSBlankNov 02, 2010
17
By Lovely101 Blank
Help! Last friday i was eating dinner when suddenly my the outside of the right side of my nose and inside my nostril...
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