Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlankJun 28
1
By sgmar
Hi! This will be my third go around. The first two werent too pretty. I need a very good neuroseugeon in oklahoma. Th...
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By selmaSBlank
Only 400 board certified specialists in the US ....for migraines? Now we know why it is difficult to locate Chiar...
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selmaSBlankJun 28
bmschartzJun 28
selmaSBlankJun 27
3
By bmschartz
I am looking for a Chiari specialist in Kansas. My insurance won't let me travel out of state and everything I have r...
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selmaSBlankJun 27
bmschartzJun 27
selmaSBlankJun 16
bmschartzJun 15
selmaSBlankMar 13, 2012
8
By hurting47 Blank
I just got diagnosed with Ectopia of the cerebellar tonsils with Chiari Malformation and the headaches, neck pain lan...
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selmaSBlankJun 27
selmaSBlankJun 26
3
By Elisaandbucky
Hello all. This is my first post, and I am so grateful for a supporting and caring place. The diagnosis was a turning...
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selmaSBlankJun 27
selmaSBlankJun 26
selmaSBlankJun 26
5
By rbryant003
hello, It was nice to read some of the posts related to chiari malformation. I was diagnosed with a chiari formation ...
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selmaSBlankJun 26
Jax85Jun 26
selmaSBlankJun 26
Jax85Jun 26
24
By MAC2917 Blank
Hi. My name is Mackenzie and I am 21 years old. I was diagnosed with an Arnold Chiari Malformation 1 in January and h...
620923_tn?1405964489
3
By selmaSBlank
Hi all please wear your purple tomorrow June 26th to show awareness for Chiari and support as our friend heads in for...
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selmaSBlankJun 26
selmaSBlankJun 26
selmaSBlankJun 26
9
By alexajoelle
Hello all, I have been reading through some of the Q and A's here and had some for myself. I am having debilitating h...
620923_tn?1405964489
4
By selmaSBlank
Hi All....here is a link to a clinical study being done on dura patches....they will do the decompression surgery and...
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selmaSBlankJun 26
selmaSBlankJun 24
6
By Amarisnery
Hi, everyone. I hope everyone is doing good. Today I was sitting in my car and all of a sudden I started sweating p...
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selmaSBlankJun 25
cfallz05Jun 24
3
By cfallz05
Hello everyone. I'm Cherie. It's my first time posting. I'm newly diagnosed by my pcp. I was sent for an MRI last ...
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selmaSBlankJun 24
CosullvnJun 24
selmaSBlankJun 24
4
By Cosullvn
Hi all just wondering would the use of a Kangoo Jump Boots be out of the question as a form of exercise? I have give...
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socceroJun 25
selmaSBlankJun 24
socceroJun 24
selmaSBlankJun 24
socceroJun 24
6
By soccero
ok i know this is a strange question coming from me, but how early can menopause come? I went from getting my period ...
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selmaSBlankJun 24
RheaAnnJun 24
selmaSBlankJun 24
LoriVAJun 24
RheaAnnJun 24
9
By LoriVA
This is a long and complicated question. So, in October of 2012 at the urging of a new neurosurgeon up at Hopkins I ...
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selmaSBlankJun 23
selmaSBlankJun 23
selmaSBlankJun 22
5
By GeeseHoward
In preparation for an arachnoid cyst surgery my MRI report said "minimal cerebellar ectopia." Despite a successful s...
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selmaSBlankJun 23
selmaSBlankJun 22
2
By trutru
I'm looking for a reliable neurologist in the Kansas City metro area. Mine tells me there is nothing wrong with me a...
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WhyspersJun 23
Viva001Apr 11, 2012
selmaSBlankApr 10, 2012
hilzemApr 10, 2012
ajunebugMar 22, 2011
11
By RitaN Blank
Does anyone know where Dr Xiao Di formally of the Cleveland Clinic has gone? We were told by the Clinic he would cont...
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selmaSBlankJun 22
1
By llamas02
I was diagnosed with Chiari I four years ago. I had surgery that same year and I was told my symptoms most likely wou...
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swatkindJun 09
Mel5056Jun 09
selmaSBlankJun 09
5
By Mel5056
hello all...my surgery is Friday the 13 (can you believe that LOL) and i am trying to gather a list of items to take ...
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