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Chiari Malformation Community
This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.
121 - 140 (of 11450) questions
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Avatar universal
I was diagnosed 2 yrs ago with chiari malformation type 1 from a car accident I was in where an 88 year old man hit me going 55 mph while...
3 answers |
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I don't know if I have Chiari Malformation, but I've reached the point of desperation where you look for anything that matches the bulk o...
1 answer |
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Hi, I have been a lurker on this website for a while and finally got the courage to join. I am 27 and have been having headaches with oth...
6 answers | 1 comment |
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Hello, I'm 20 years old and i was diagnosed only a year ago. My neurologist doesn't seem to think Chiari is a severe thing but I see the ...
1 answer |
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My previous pediatric neurosurgeon got promoted to a higher job in a different state and I have a programmable vp shunt and I am wanting ...
1 answer |
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Has anyone got Dr.Rosner's email address? I have his phone number, but as I am in Australia, the time difference is a pain. So I am wanti...
3 answers |
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I have had a lot of symptoms for a long time and I can't get the doctors to listen. I have seen 8 of them. I am almost always told to see...
6 answers | 5 comments |
1587684 tn?1296930870
The Mri Results shows a benign syrinx in the spinal cord at C5-C6. It does list Chiari Malformation. I was just wondering since it list a...
6 answers | 2 comments |
18933372 tn?1469956793
I have recently been diagnosed with CM back in March. Does anyone know of someone to talk to or a support group to speak with who would u...
1 answer |
Avatar universal
Hi! Two years ago I was diagnosed with a Prolactinoma (tumor on my pituitary). In doing the second MRI during the course of treatment f...
13 answers | 1 comment |
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Hey all, TCI in New York thinks that I have EDS as well as a Chiari that has become symptomatic. I'm 29 years old and previously very...
3 answers |
4760166 tn?1398360913
Hi guys ... I was really on the fence about seeing another geneticist but my neurosurgeons in office genetic counselor referred me to o...
3 answers |
1303966 tn?1296743610
Last Sunday I woke up and went about my morning, and suddenly looked at the clock and realized I missed church. The night before, I was ...
30 answers | 1 comment |
Avatar universal
Hi everyone! I was diagnosed with Chiari in April 2015 and underwent surgery in July 2015. I had a decompression, laminectomy, and dur...
7 answers |
Avatar universal
Hello everyone I've been suffering for a little over 2 years my neck gets really sore off and on I deal with this constant head pressure ...
3 answers |
Avatar universal
I am almost 5 years post op and in the past 2 weeks or so I have been experiencing such a pressure and squeezing pain in the back of my h...
1 answer |
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I had my surgery April 13th of this year with a follow up surgery May 6th due to the incision not closing. About 3 weeks or so ago I bega...
2 answers |
Avatar universal
I am looking for a Chiari Malformation specialist in Illinois. Thanks in advance!
2 answers |
Avatar universal
I had surgery 2 years ago in November 2008, I am still having issues and still seeing the neurologist. I can not sit for very long nor ca...
11 answers | 1 comment |
Avatar universal
I have been diagnosed with a chiari according to my gp, but the ns stated that the spinal fluid is not being blocked, so no need to see m...
4 answers | 2 comments |
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