Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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620923_tn?1413427272
selmaSBlankSep 21
dozzy379Sep 21
selmaSBlankSep 16
selmaSBlankSep 16
5
By selmaSBlank
EDS is not just hypermobility....and they even cover seizures...Headaches.....which can continue post op of a decomp...
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kristy12Sep 20
selmaSBlankSep 20
selmaSBlankSep 20
4
By emilysusan
I have recently been diagnosed with Ehler's Danlos. I know that chiari can be found in people with EDS. I have many s...
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0224Sep 20
selmaSBlankSep 19
2
By Amarisnery
I was diagnosed with Chiari Malformation 1 with a 6mm in March. I haven't seen the Dr. waiting on the Medical Card. I...
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selmaSBlankSep 18
0224Sep 18
selmaSBlankSep 17
7
By 0224
I was wondering 8th shortness of breath, and heart palpations are these symptoms of chiari. I also notice if I raise...
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harboySep 17
selmaSBlankSep 16
22
By Jennifwe223
Hi my name is Jennifer and I am seeking help! I am a 23 year old college student who is suppose to graduate in Decemb...
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selmaSBlankSep 18
1
By 0224
I'm posting to see if anybody has tried glyconutrients by mannatech for chiari malformation?
246139_tn?1410875443
harboySep 18
selmaSBlankSep 17
7
By baccalynnwv
Hi, my co-worker, one of the very few people I have told about this Chiari thing to, came up to me today and said las...
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klinkdogSep 18
klinkdogSep 16
selmaSBlankSep 12
5
By klinkdog
Dr. Paolo Bolgnese does anybody have his new address and phone number
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selmaSBlankSep 17
rod44Sep 17
selmaSBlankNov 02, 2010
17
By Lovely101 Blank
Help! Last friday i was eating dinner when suddenly my the outside of the right side of my nose and inside my nostril...
5997456_tn?1408770084
Brendaz20Sep 17
selmaSBlankSep 16
Brendaz20Sep 16
selmaSBlankSep 15
Brendaz20Sep 15
31
By Brendaz20
I used to post on this forum back then because of my unusual symptoms and to get advice. I haven't been to a chiari s...
246139_tn?1410875443
selmaSBlankSep 16
selmaSBlankSep 16
selmaSBlankSep 15
5
By baccalynnwv
I just noticed him on this list. Has anyone active on this forum been to Dr. Gold? He is the closest to me, at a lit...
539750_tn?1226525277
selmaSBlankSep 16
redkimSep 16
kristy12Sep 16
7
By redkim
Since I have posted. I lurk every so often. I was Dxed in 2004 with Chiari, told it was incidental, 9mm herniation ...
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selmaSBlankSep 15
dozzy379Sep 15
selmaSBlankSep 04
dozzy379Sep 04
selmaSBlankSep 04
14
By dozzy379
My son is now 19 but has had vertigo episodes since he was 2. They came about 4 times a year and lasted for a week ea...
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selmaSBlankSep 13
harboySep 13
selmaSBlankSep 12
4
By harboy
Hi,Its Cindy, What do you do to gain comfort. Like pillows ...anything will be greatly appreciated
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selmaSBlankSep 14
harboySep 14
selmaSBlankSep 14
harboySep 14
6
By harboy
When my daughter was sent home from ER two weeks ago, they gave us a copy of the reports. Im not a licensed medical p...
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3
By SarahY79
For the last 23 years I have been on chronic pain medication for managing the pain associated with my Chiari Malforma...
246139_tn?1410875443
selmaSBlankSep 14
harboySep 14
selmaSBlankSep 14
10
By baccalynnwv
Driving is my nemisis. I have to drive an hour to work and back each day, plus several hours each day during work. (S...
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selmaSBlankSep 14
1
By harboy
Hi, Cindy here. When my daughter gets a severe episode when is it time to take her to the er? Last week, she was vo...
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selmaSBlankSep 13
1
By Jas0803
Hi all, I had chiari decompression surgery in june, and now have a CSF leak. Today I have been experiencing a vibr...
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Jas0803Sep 13
zygy2Sep 13
selmaSBlankSep 12
Jas0803Sep 12
selmaSBlankSep 12
5
By Jas0803
I have chiari malformation and syringomelia. I had decompression surgery in the end of June. Everything was going pre...
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