Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlankJun 25
cfallz05Jun 24
3
By cfallz05
Hello everyone. I'm Cherie. It's my first time posting. I'm newly diagnosed by my pcp. I was sent for an MRI last ...
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selmaSBlankJun 24
CosullvnJun 24
selmaSBlankJun 24
4
By Cosullvn
Hi all just wondering would the use of a Kangoo Jump Boots be out of the question as a form of exercise? I have give...
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socceroJun 25
selmaSBlankJun 24
socceroJun 24
selmaSBlankJun 24
socceroJun 24
6
By soccero
ok i know this is a strange question coming from me, but how early can menopause come? I went from getting my period ...
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selmaSBlankJun 24
RheaAnnJun 24
selmaSBlankJun 24
LoriVAJun 24
RheaAnnJun 24
9
By LoriVA
This is a long and complicated question. So, in October of 2012 at the urging of a new neurosurgeon up at Hopkins I ...
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selmaSBlankJun 23
selmaSBlankJun 23
selmaSBlankJun 22
5
By GeeseHoward
In preparation for an arachnoid cyst surgery my MRI report said "minimal cerebellar ectopia." Despite a successful s...
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selmaSBlankJun 23
selmaSBlankJun 22
2
By trutru
I'm looking for a reliable neurologist in the Kansas City metro area. Mine tells me there is nothing wrong with me a...
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WhyspersJun 23
Viva001Apr 11, 2012
selmaSBlankApr 10, 2012
hilzemApr 10, 2012
ajunebugMar 22, 2011
11
By RitaN Blank
Does anyone know where Dr Xiao Di formally of the Cleveland Clinic has gone? We were told by the Clinic he would cont...
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selmaSBlankJun 22
1
By llamas02
I was diagnosed with Chiari I four years ago. I had surgery that same year and I was told my symptoms most likely wou...
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swatkindJun 09
Mel5056Jun 09
selmaSBlankJun 09
5
By Mel5056
hello all...my surgery is Friday the 13 (can you believe that LOL) and i am trying to gather a list of items to take ...
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selmaSBlankJun 20
selmaSBlankJan 31
MONAMFRJan 31
selmaSBlankJan 14
35
By kricklekrin Blank
I'm currently not on any medications other than natural supplements. I was on Keppra, but it changed my personality ...
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selmaSBlankJun 20
Sevda1Jun 20
majerus33Dec 08, 2009
selmaSBlankDec 08, 2009
majerus33Dec 08, 2009
10
By Neyklem Blank
Hi everyone,' 4 weeks past my surgery, went back in twice to re-stitched after CSF leakage. I am n pain and out of...
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selmaSBlankJun 20
2
By Krystinamarie
It's been a little more than three weeks since surgery I have been doing as instructed by my ns to walk around and do...
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selmaSBlankJun 18
butterfly8446Mar 05, 2013
selmaSBlankMar 03, 2013
5
By teaandtwoslices Blank
Hi all, I'm kinda freaking out a bit as there's no one home. A mirror fell and hit the side of my forehead. It didn't...
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selmaSBlankJun 19
selmaSBlankJun 16
sangi27Jun 15
SloweladyMar 20
64
By actressmouse Blank
Does anyone else experience "phantom smells"? I smell cigarette smoke on and off (no one around me or in my home/wor...
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selmaSBlankJun 19
selmaSBlankJun 18
5
By Kennedyhanau
Hello all, I'm just giving a quick update on myself. I called my neurosurgeon to ask some questions that I was uncer...
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selmaSBlankJun 19
1
By Lori1944
Can seizures be caused by Chiari? Nine years after Chiari surgery, my daughter just experienced a bad headache with ...
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By disasterfullbeauty
OK so sometimes my brain just won't compute . Like things just don't process at a normal speed I'll be trying to do s...
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selmaSBlankJun 18
selmaSBlankJun 16
3
By missyorkie
Checking to see if anyone has had Dr. Pokrupa doing any of the syringomyelia surgery or Chiari Malformation surgery.....
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selmaSBlankJun 17
captalJun 17
selmaSBlankJun 17
captalJun 17
selmaSBlankJun 12
14
By captal
I was told I have a Chiari malformation by a neurologist after having an MRI done. He acted like it was no big deal a...
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selmaSBlankJun 17
selmaSBlankJun 16
3
By Amarisnery
Hi. I have Chiari Malformation 1 with 6mm. I know have been getting numbness and tingling in my left arm and feet. I ...
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