Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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KstavridDec 07, 2015
KerriC1Oct 26, 2015
selmaSBlankOct 24, 2015
3
By Jill1218
So here is the background. I am 29. I was diagnosed with type 1 chiari when I was 6. I had another decompression by D...
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joshuabloom99Dec 07, 2015
selmaSBlankDec 05, 2015
2
By joshuabloom99
Ive wanted to join the military sense i was in forth grade, but always told that i could never because i have a venou...
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selmaSBlankDec 07, 2015
chikitagirlDec 05, 2015
actressmouseDec 29, 2012
Viva001Dec 28, 2012
cfinnissOct 07, 2012
13
By tink_0427 Blank
Just wondering if anyone is currently taking Tramadol on a regular basis? I saw my NS today and was telling him abou...
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selmaSBlankDec 06, 2015
The_beat_goes_onDec 06, 2015
selmaSBlankDec 05, 2015
KerriC1Dec 05, 2015
The_beat_goes_onDec 05, 2015
6
By The_beat_goes_on
I might just be having a bad morning. I'm tapering off post op pain meds and I can't help but think back to my diagno...
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selmaSBlankDec 05, 2015
KstavridDec 03, 2015
selmaSBlankDec 02, 2015
KstavridDec 01, 2015
thrice3Sep 21, 2015
10
By Kstavrid
Hi everyone, I had my Chiari and fusion (occipital to c2) surgery done 3 years ago because I was told that I have Chi...
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Rae84RNDec 03, 2015
selmaSBlankDec 02, 2015
2
By Rae84RN
Hi, I had my first decompression surgery on Sept. 17th. At 7 weeks they had to surgically intervene for a CSF leak. T...
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selmaSBlankDec 02, 2015
Cng2011Dec 02, 2015
selmaSBlankDec 02, 2015
3
By Cng2011
I am 23 and I was recently diagnosed with a Chiari 1 malformation. I have been experiencing Absence seizures for some...
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selmaSBlankDec 02, 2015
FunsizexBeautyDec 02, 2015
selmaSBlankNov 24, 2015
3
By FunsizexBeauty
24 Year Old Female Diagnosed With Chiari In 2009. Ive Had A Decompression Surgery And A VP Shunt Placed In 2010. For ...
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selmaSBlankDec 02, 2015
rdennoDec 01, 2015
selmaSBlankOct 06, 2015
msmasseyOct 06, 2015
nsalem656May 18, 2013
9
By wnzday Blank
Was wondering if anyone that has chiari or post-op decompression for chiari has had issues with their pituitary gland...
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selmaSBlankDec 02, 2015
1
By Strixster
Hello everyone and thank you in advance for your insight. Brief history: Debilitating headaches my entire life. He...
4760166_tn?1398360913
selmaSBlankNov 30, 2015
The_beat_goes_onNov 30, 2015
selmaSBlankNov 29, 2015
3
By The_beat_goes_on
Hey guys. So I have not had a follow up MRI since my first decompression in December of 2013. Shame on me for not a...
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The_beat_goes_onNov 30, 2015
selmaSBlankNov 29, 2015
shelly0513Nov 29, 2015
selmaSBlankNov 29, 2015
4
By shelly0513
It has been 2-1/2 years since my decompression surgery and have been experiencing new symptoms I don't know what to m...
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The_beat_goes_onNov 30, 2015
shelly0513Nov 29, 2015
selmaSBlankNov 24, 2015
3
By JimH3000
My son is an 18 year old Type I Chiari with a VP shunt installed when he was 9 months old. No serious issues in the l...
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tattooer601Nov 29, 2015
selmaSBlankNov 24, 2015
2
By yacevander
Hello everyone. I had decompression surgery and laminectomy on July 7th 2014. I am now pain free and living life as I...
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tattooer601Nov 29, 2015
selmaSBlankNov 29, 2015
2
By kgperry
Went to a NS (the in state "Chiari Specialist" that does not check for co-morbidity issues) who said he would classif...
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selmaSBlankNov 27, 2015
JlatronicaNov 27, 2015
pipadelapazApr 05, 2013
chrissi_bAug 31, 2012
SexybareAug 27, 2012
26
By Dannichiari Blank
Hello! As some of you may know I have arnold chiari malformation, syrongymelia and hydrocephalus, I have had 12 ope...
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selmaSBlankNov 27, 2015
1
By hope2456
How do I find a team of doctors to help treat chronic pain due to syrinx and cm1 ? Like a rehabitation specialist, a...
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selmaSBlankNov 27, 2015
SugarSpyderNov 26, 2015
selmaSBlankNov 25, 2015
3
By SugarSpyder
I am dealing with an undiagnosed illness and have been on an unpaid medical leave of absence since June 23, 2015. I a...
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KerriC1Nov 24, 2015
KerriC1Nov 24, 2015
selmaSBlankNov 23, 2015
lasel22Nov 23, 2015
4
By KerriC1
Hi everyone! It's been 4 months since surgery and although I had some initial improvement, it was kinda short lived....
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selmaSBlankNov 23, 2015
selmaSBlankNov 23, 2015
LadySullivanNov 23, 2015
selmaSBlankNov 23, 2015
4
By LadySullivan
I have what appears to be a significant divot in my back just under my waistline. It is Right over the spine guessing...
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