Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlankApr 05
3
By LaSeca
Does anyone know of a Chiari Specialist in Winston-Salem N.C.? I was diagnosed in May of 2009. The PCP I was seeing m...
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selmaSBlankApr 14
sandy629Feb 11, 2012
SilentSong101Jan 31, 2012
cynderskiJan 31, 2012
8
By cynderski Blank
I am 7months post PFD and duraplasty. Still get some pretty intense headaches, numbness and weakness in my left hand,...
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selmaSBlankApr 14
selmaSBlankApr 12
4
By NicoleAdia
I have been diagnosed with Chiari and Ehlers Danlos Syndrome. and I've been dealing with extreme nausea for the past ...
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selmaSBlankApr 14
scotyhApr 13
selmaSBlankApr 13
scotyhApr 13
selmaSBlankAug 12, 2009
7
By Devin215 Blank
Hi Everyone I need some help with deciphering a term my NS used on a e-mail to me this morning....I told him about my...
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selmaSBlankApr 13
selmaSBlankFeb 27
GruntyFeb 27
selmaSBlankDec 26, 2014
12
By Grunty Blank
Hi, I have been diagnosed with Cerebellar Tonsillar Ectopia (6mm). My question is.... Is it the same as Chiari Malfor...
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selmaSBlankApr 12
3
By LK2015
I was diagnosed with chairi type malformation whilst I was pregnant with my son. Symptoms eased during pregnancy bu...
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selmaSBlankApr 10
2
By mariafph
Hi, I'm new here and I've been reading some posts (thank you everyone for sharing their own stories and suggestions!)...
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By teddybear26
im going to have my surgery soon ive had surgeries before but not this type of surgery tho my question is it bad to h...
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selmaSBlankApr 09
selmaSBlankApr 09
selmaSBlankApr 09
8
By nikkisorbet
I have been researching this hard in the last few days, and I am sure I have chiari malformation. Where do you go to ...
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selmaSBlankMar 28
selmaSBlankMar 26
6
By unclematty
hi everyone i was back at the neurologists yesterday and she is now denying diagnosing me with mild/borderline chia...
5997456_tn?1408770084
selmaSBlankApr 08
Brendaz20Apr 08
selmaSBlankApr 08
3
By Brendaz20
Hi all. It's been awhile since I posted here. Still no diagnosis. I'm planning to see a NS soon who lives nearby me a...
12498457_tn?1425606687
selmaSBlankApr 08
1
By Kvaa
I am 7 days post-op and was wondering if anyone who had the decompression surgery experienced diplopia (double vision...
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selmaSBlankApr 07
nmk816Apr 07
selmaSBlankApr 07
3
By nmk816
Haven't been on here for a while but was wondering if this is common after surgery. I had decompression in September ...
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By kwalker0004
Hey everyone, I know I haven't been on in a long time besides answering a question here and there. I haven't been doi...
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LottidaApr 07
misspam23Apr 06
selmaSBlankMar 29
4
By carlito7
Is it possible to live with chiari and have no surgery? I have mild symptoms headaches there n there which im used to...
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MarconisApr 07
selmaSBlankMar 08
MarconisMar 08
3
By Marconis
I just had my first ever full spine MRI and a brain MRI yesterday. I had a Brain/C/T MRI in 2006 (when Chiari was dxe...
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selmaSBlankApr 06
0224Apr 06
selmaSBlankApr 01
0224Mar 31
6
By 0224
I have a question does the brain fog and dizziness ever get better post surgery. I'm currently 5 months out it seems...
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selmaSBlankApr 04
2
By Lottida
Hi everyone.....I had my decompression surgery on 4/2/15 with much success thus far. I no longer have any of my symp...
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selmaSBlankApr 03
2
By martyk37
I had my surgery when I was 13! I'm 24 and I'm starting to get headaches like before and it's effecting my vision as ...
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selmaSBlankApr 03
koekriApr 02
nancyannyFeb 12
selmaSBlankFeb 12
nancyannyFeb 12
44
By kricklekrin Blank
I'm currently not on any medications other than natural supplements. I was on Keppra, but it changed my personality ...
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