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Chiari Malformation Community
This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.
121 - 140 (of 11581) questions
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Avatar universal
Ive had a chiari malformation of 3mm as far as I know for over 12 years. I have seen various chiari specialists (ellenbogen, Di). I've be...
17 answers |
Avatar universal
Hello I was diagnosed with CM about 6 years ago but was told decompression isn't needed until I can no longer deal with my symptoms. Sinc...
15 answers | 1 comment |
Avatar universal
I just got a cervical MRI due to really bad headaches and really bad neck and shoulder pains. The pain would radiate down both arms into...
2 answers |
Avatar universal
Hello, I'm currently 17 years old and was diagnosed with a borderline Chiari Malformation type 1 when I was 10 after 3 years of testing a...
2 answers | 1 comment |
1141287 tn?1287500399
(Surgery was Oct. 1) Hey everyone! I have a question! Not this Saturday - but the Saturday before - I noticed I had what felt like a...
7 answers |
1968463 tn?1374761413
Hi everyone ! Happy Saturday. I have been dealing with this new thing for quite some time, and I thonl the only ones that wont think tha...
27 answers | 1 comment |
2932946 tn?1344725612
I just had my surgery on the 17th. How long do I wait until I wash my hair? The nurse said two Weeks. But too me that seems a little uns...
9 answers |
1150700 tn?1288119208
Would anyone share a list of things they took with them to the hospital that they really needed when they had their PFD surgery or things...
11 answers |
1235345 tn?1268245933
Hello all. I am wondering if you could describe your headaches to me. I am the mom to a 9 year old girl who has nearly constant headach...
11 answers | 1 comment |
Avatar universal
I get the airplane sound myself, its stronger with ear plugs but i can kind of feel it in my ears and head aswell like it pulsing in and ...
1 answer |
Avatar universal
I have an appointment with a neurosurgeon Friday. I just don't know what to expect and I am very scared. Having bad headaches, eye pressu...
2 answers | 1 comment |
Avatar universal
Hello, In 2012 I was diagnosed with a type one Arnold Chiari Malformation, and on December 5th of the same year I received a decompressio...
7 answers | 1 comment |
Avatar universal
What has your experience been with this doctor?
1 answer |
Avatar universal
I had an mri done and it shows that and it also shows a few scattered1mm foci of t2 prolongation bilateral supratentorial white matter. T...
10 answers | 1 comment |
Avatar universal
Hi all, New here and have been reading through old posts to find answers to my questions. All very helpful. But I thought if I want to g...
2 answers | 1 comment |
Avatar universal
It started with what we thought was a pulled muscle in her shoulder after gym. The week after a sore throats and then abdominal pain and ...
4 answers | 1 comment |
Avatar universal
I have large Syrinx and it's growing outward from c1 to t3... my spinal cord is stretched like 5 mm at its widest point. These neurosurge...
2 answers | 1 comment |
1303966 tn?1296743610
I know Chiari can cause trouble with the ears, but if those of us could list some personal experiences concerning Chiari and their ears, ...
21 answers | 1 comment |
12501326 tn?1485677828
My first brain surgery was done February 2014. The decompression surgery leads to brain slumping or cerebular ptosis. I had a titanium me...
1 answer | 1 comment |
Avatar universal
Hello, I was recently diagnosed with Chiari Malformation after about a year of terrible headaches, neck pain, dizziness, fatigue, not bei...
3 answers | 2 comments |
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