Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlankJul 15
1
By 0224
Hello everyone. Well I finally got the diagnosis that I have POTS yesterday. The nurse called and spoke with me but I...
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selmaSBlankJul 15
1
By Krystinamarie
Hi guys I'm a little over a year post op for decompression Chiari type 1. About 5 months ago I was diagnosed with Cra...
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selmaSBlankJul 14
2
By gmtl34
hey everyone, Im a 24 year old male from Melbourne Australia, im honestly really confused and scared by what ive f...
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candlinzJul 14
selmaSBlankMar 15
4
By DRFlan
Has anyone been successful in getting a CONFIRMED diagnosis of a CHIARI 0? If so, HOW did you get your doctor to say...
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LottidaJul 13
selmaSBlankJul 12
3
By Krystinamarie
I was wondering if anyone has experienced emotional problems or moodiness after surgery? I'm a little over a year pos...
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selmaSBlankJul 14
dawnnm16Jul 14
selmaSBlankJul 02
dawnnm16Jul 02
LottidaJul 02
9
By dawnnm16
I have been trying to learn as much as possible since my daughter was diagnosed but can someone please tell me what t...
620923_tn?1439824912
selmaSBlankJul 14
1
By selmaSBlank
Hi all please wear your purple tomorrow July 15th to help gain awareness for Chiari and show support for our friend a...
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selmaSBlankJul 14
OGCR243Jul 14
selmaSBlankJul 14
3
By OGCR243
I was diagnosed with 2 syrinxs in May. Finally got to a NS. Now going to do another MRI. Say this one will last 3 ho...
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selmaSBlankJul 14
selmaSBlankJul 08
11
By Amayamarie
Does anyone else have this? I have 4 children who I am constantly picking up after and when I bend over to pick up to...
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RheaAnnJul 13
selmaSBlankJul 11
DloshawJul 11
selmaSBlankJul 10
4
By Dloshaw
Has anyone who has has to have the Chiari surgery developed gastriparesis? I was just diagnosed today. My dr. Seiff ...
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selmaSBlankJul 13
LottidaJul 13
2
By Tanya4706
Hi all, I've had three decompressions and have recently been told that my new scans indicate that my symptoms now are...
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selmaSBlankJul 13
HoudeNJul 13
selmaSBlankJul 13
HoudeNJul 13
redkimDec 20, 2010
10
By wkadrmas Blank
I have learned that I have a Chiari Malformation. I don't know the extent of my problem yet. I am going to be going...
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selmaSBlankJul 13
selmaSBlankMay 20
selmaSBlankApr 26
12
By Squeakie72
I have most of the lab results from lumbar puncture. Still waiting for I-band results to come back from mayo lab. ...
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LottidaJul 13
Bellum990Jul 11
selmaSBlankJul 11
3
By lindseyk221
Hi, I'm a 19 year old female who has been diagnosed with Chiari I Malformation (12.3 mm). I am having surgery in a co...
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selmaSBlankJul 12
1
By lasel22
Lately I've been experiencing sudden sharp pains in my lower legs and feet, mostly the feet, that don't last very lon...
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selmaSBlankJul 07
LottidaJul 07
3
By selmaSBlank
Hi ALL please wear your purple tomorrow July 7th to show awareness for Chiari and support as 2 of our friends hea...
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selmaSBlankJul 11
1
By Bellum990
Hi All, My name is Matt and I'm new to the forum. I just wanted to share my story with all of you as I can imagine...
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selmaSBlankJul 08
LottidaJul 08
3
By Stanley100
I have had extremely bad headaches all my life, and a few years ago I told my family dr about them. He sent me to hav...
620923_tn?1439824912
selmaSBlankJul 08
LottidaJul 08
3
By selmaSBlank
Hi ALL please wear your purple again tomorrow July 8th to gain awareness for Chiari and t support our friend as they...
620923_tn?1439824912
LottidaJul 09
selmaSBlankJul 09
3
By selmaSBlank
Hi all remember to wear your purple again tomorrow July 9th to show awareness for Chiari and support for our frien...
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Chiari Malformation Community Resources
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selmaS
Allentown, PA
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AKC_75
TX
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Elisaandbucky
Charlotte, NC
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germantown, MD
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mikeysmom1995
Oxford, MI