Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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16744917 tn?1451270439
gjjlMar 12
gjjlMar 12
gjjlMar 10
9
By gjjl
I was wondering, for those who have had decompression surgery, how long did the intracranial pressure last? I am 3 we...
Avatar m tn
selmaSBlankMar 11
AngelinriMar 11
selmaSBlankMar 03
poosygirlMar 03
4
By mking71
I have a chiari 1 malformation and have been seeing a nerologist , mine is 5 cm and my symptoms are headache, vision ...
Avatar f tn
selmaSBlankMar 09
gjjlMar 09
2
By Goombah351
Hi all. I have the Arnold Chiari malformation and had the decompression surgery 21 yes ago. I have allergies and ch...
Avatar n tn
selmaSBlankMar 09
1
By Blueghost
Is EDS possible without stretchy skin or the ability to bend your fingers/joints excessively? I have a lot of joint c...
1069888 tn?1421940341
selmaSBlankMar 08
sisk71Mar 08
selmaSBlankFeb 15
AV_MFeb 15
selmaSBlankFeb 15
7
By laratterman
Selma, can you bump the doctors list please? I need to see if there are any NS and NL around Dayton or Columbus that...
17440821 tn?1456757510
selmaSBlankMar 08
1
By AmberV1021
Hi all, My decompression is in 2-3 weeks. 2 things. First: hair. Has anyone had the surgery without having ANY...
17440821 tn?1456757510
selmaSBlankMar 08
selmaSBlankMar 02
selmaSBlankFeb 29
7
By AmberV1021
Hi fellow Chiarians, I'm Amber. My headaches started when I was 7 years old. They have been a part of my weekly, some...
Avatar f tn
gjjlMar 07
lasel22Mar 07
selmaSBlankMar 07
3
By Ray_harv
Hello! I'm Ray I am 15 and I got diagnosed early last year with Chiari Malformation 1 but I have had the symptoms ...
Avatar n tn
Mel5056Mar 07
lasel22Feb 22
selmaSBlankFeb 21
selmaSBlankFeb 15
5
By PRINCESSMOM2016
Hello I am new to all of this and I just got diagnosed a month or so ago and I was wondering if there is a list of Ch...
7489440 tn?1442011976
Mel5056Mar 07
selmaSBlankFeb 29
selmaSBlankFeb 29
4
By kwalker0004
I know I haven't been on in a long time. But I just wanted to give everyone an update. Though I promised myself I wou...
Avatar m tn
selmaSBlankMar 07
1
By ic467
Over the years I have been having issues breathing as well as chest pains and a host of other symptoms. I was diagnos...
Avatar f tn
Ninki5853Mar 06
selmaSBlankMar 06
2
By Ninki5853
I will be getting MRI results on 3/8. I have been begging my PC and Rheumatologist for over 3 years for help! I ha...
620923 tn?1452919248
selmaSBlankMar 06
TrrrydMar 06
selmaSBlankMar 04
selmaSBlankFeb 04
selmaSBlankAug 28, 2015
29
By selmaSBlank Blank
Applying for social security disability and SSI benefits, with or without an advocate can be difficult due to how lon...
Avatar f tn
selmaSBlankMar 03
1
By Cg553
Hello all! I was DX with Occipital Neuralgia in 2013 bc of the pain in the back of my head. I have been rec' nerve bl...
Avatar f tn
selmaSBlankMar 03
1
By imfrustrated1978
WHo here has had experience with this? Does it keep getting worse? Can I wait a little longer to have the surgery t...
Avatar f tn
lasel22Mar 03
selmaSBlankMar 02
ecosetteMar 02
selmaSBlankMar 01
ecosetteMar 01
6
By ecosette
I have a 10mm chiari malformation. It was diagnosed by MRI in 2009. At the time, the neurosurgeon said surgery wasn't...
Avatar f tn
selmaSBlankMar 02
summerxo_Mar 02
selmaSBlankFeb 28
3
By summerxo_
I've been seeing doctors for about 9 years now, since I started experiencing symptoms at 16 which led my doctors to b...
Avatar f tn
selmaSBlankMar 02
1
By Fuzzydid
My herniation is only 4mm and CF flow scan showed "unremarkable CF flow". I don't know if I could still have symptoms...
Avatar n tn
selmaSBlankMar 02
sandhya60Mar 02
BflywarriorMay 27, 2014
selmaSBlankJun 03, 2013
callieshearerMay 31, 2013
17
By DanRavenWolf Blank
I have experienced a strange 2-3 second vibration in my right hip that occurs at random once or twice a day for the p...
Avatar m tn
selmaSBlankMar 02
1
By Cms103
2 years ago I rushed my son to the ER as he was presenting with symptoms of a stroke. For many years prior to this i...
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