Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlankMar 10
Mel5056Mar 10
7
By mommadee2015
I was diagnosed with a CM in December of last year. I recently went and seen my NS and they recommended surgery. Whil...
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Lynnrae64Mar 11
selmaSBlankMar 10
2
By linnielou232
Stop by on here to say hello and catch up on you. I haven't been on here for a long while. I was having seizures so...
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selmaSBlankMar 10
2
By Lynnrae64
Does anyone out their have advice for this point of disability? My dx Arnold chiari, spondylosis, cervical stenosis, ...
620923_tn?1426651955
selmaSBlankMar 10
mimosa7Mar 10
selmaSBlankFeb 11
mimosa7Feb 09
FrojennFeb 06
62
By selmaSBlank Blank
Hi I wanted to get a list started for those of you in Canada...I am not sure if these drs r indeed chiari specialists...
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selmaSBlankMar 10
captalMar 09
selmaSBlankMar 09
3
By captal
I have not been on here in quite a while. I have been relatively symptom free for a year or better with only mild occ...
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selmaSBlankMar 08
selmaSBlankMar 08
5
By bethnichole
I have migraine with aura since i was a kid. Now i just found out i have Chiari 1. Does anyone else experience these ...
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selmaSBlankMar 09
3
By DianaEllen
Hi Everyone, I need help. I have to become a detective and put together the pieces of a puzzle that seems to be ...
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selmaSBlankMar 09
1
By 0224
I'm list surgery by 4 1/2 months. I feel like I get disoriented or spacey/ bring fog. When I talk to much or us stre...
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selmaSBlankMar 09
joe2381Mar 09
jbean877Mar 12, 2011
selmaSBlankMar 07, 2011
4
By jbean877 Blank
Hi. I am looking for an adult neurosurgeon in Rhode Island or Massachusetts specializing in adult Chiari 1 Malformat...
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selmaSBlankMar 09
icgirlMar 08
2
By icgirl
Anyone happen to know of an MRI facility which offers upright and CINE in NYC? I seem to find one of the other. T...
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selmaSBlankMar 08
Lynnrae64Mar 08
selmaSBlankMar 08
Lynnrae64Mar 08
4
By Lynnrae64
Can anyone tell me what that means. Having a hard time finding someone that does a CINE MRI, but my mri shows 5 mm he...
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selmaSBlankMar 08
RonFAZMar 08
selmaSBlankMar 08
Mel5056Mar 08
4
By RonFAZ
My daughter just diagnosed. She has constant headaches. Tingling hands and legs when she works out. Choking and gagg...
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Tammers17Mar 08
Mel5056Mar 07
Tammers17Mar 06
selmaSBlankJan 27
6
By AProvencher29
Hey everyone! I'm not sure if anyone is still on here it seems like the conversation has dried up a little. My name i...
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TMP902Mar 08
SquawrockFeb 15, 2014
selmaSBlankJan 20, 2014
lesliealford1979Jan 20, 2014
lesliealford1979Jan 20, 2014
6
By lesliealford1979 Blank
Has anyone had surgery with Dr. Frielander from PA for chiari? I have someone in my support group looking for informa...
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selmaSBlankMar 08
1
By bethnichole
As a kid @ age 10 ( maybe younger) i started having migraine with aura. Now at 35 years of age i have just been diagn...
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selmaSBlankMar 08
Becca8082Mar 07
Mel5056Mar 07
3
By Kvaa
Since this is my first post, I'll give a small background. I am a single mom of 4 awesome kids. I was diagnosed with ...
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selmaSBlankMar 08
1
By icgirl
Hi guys, I have my MRI scheduled for tomorrow to rule out or diagnose a Chiari formation. It's been a pain to s...
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selmaSBlankMar 08
Tammers17Mar 07
SionnanOct 05, 2012
Lani14Jun 04, 2012
linnielou232Jun 04, 2012
10
By Lani14 Blank
i had my 1st surgery for chiari decompression in Oct '11 and another surgery in Jan '12 to repair the durapatch when ...
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By sunshine82208
I just got back from my neurosurgeon and he believes that none of my symptoms are related to my Chiari and it is very...
12501326_tn?1425624398
Tammers17Mar 07
selmaSBlankMar 06
3
By Tammers17
Hi! I had surgery one year ago to correct Chiari. I managed to get about 10 of relatively pain free life. I was impre...
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