Chiari Malformation Community
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlankMar 30
1
By NicoleIvyy
I'm 23 and I've had two decompression surgeries, the first when I was 14 and the second when I was 21, I also had a s...
1827123 tn?1383868876
selmaSBlankMar 29
jiggle93Mar 29
selmaSBlankMar 28
ZzyzxMekMar 28
9
By jiggle93
A few weeks ago, I was introduced to a TENS/EMS unit. We were out at an expo and walked by the booth...I rarely will ...
Avatar f tn
selmaSBlankMar 29
zakingMar 29
selmaSBlankMar 28
dare2dream11Nov 19, 2012
11
By Rosieboardman Blank
Hey! I'm 14 and recently had surgery. Unfortunately I had a few complications but my ns says I should be able to go b...
1069888 tn?1421940341
selmaSBlankMar 20, 2015
2
By laratterman Blank
I have found on the site the name of Dr. Anthony Martino at the University of Southern Alabama Hospital. I called an...
16744917 tn?1451270439
selmaSBlankMar 04
gjjlMar 04
selmaSBlankMar 04
4
By gjjl
Hello everyone! I was wondering if anyone has dealt with getting disability benefits? I have chiar malformation and s...
Avatar m tn
selmaSBlankMar 28
captalMar 26
selmaSBlankMar 25
captalMar 25
selmaSBlankMar 24
9
By captal
Hello all, so today I learned that I have a " mild Chiari 1 malformation" As indicated by 3 separate MRI,s over almo...
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selmaSBlankMar 28
selmaSBlankMar 30, 2015
Heather2414Mar 30, 2015
selmaSBlankMar 29, 2015
25
By bbisweary Blank
Hi Everyone. I was wondering if it is common to have severe leg weakness with CM? I have had leg stifnness, ie, sco...
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selmaSBlankMar 28
chiarilmtDec 23, 2010
dkdeanDec 22, 2010
selmaSBlankDec 22, 2010
7
By chiarilmt Blank
Has anyone been to a doctor in Columbus that treats chiari malformation? Looking for someone to see. Dr Di has left...
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selmaSBlankMar 28
gjjlMar 27
2
By KerriC1
Just wanted to wish all of you a happy and healthy Easter! I hope everyone is doing as well as they can be!
16744917 tn?1451270439
selmaSBlankMar 28
lasel22Mar 28
2
By gjjl
So, I wanted to see how long after surgery you waited before getting back to your routines? For me this includes ligh...
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selmaSBlankMar 28
gjjlMar 27
2
By missladrica
I was involved in a slip and fall injury, I reported neck pain the next day to all my Drs and even had a catscan, Aft...
2018583 tn?1457958299
Jtay2630Mar 27
Jtay2630Feb 08, 2012
linnielou232Feb 07, 2012
megthpFeb 07, 2012
Jtay2630Feb 07, 2012
9
By Jtay2630 Blank
I was recently diagnosed with Chiari 1 Malformation (I was diagnosed 1 month ago but i've had this severe debilitatin...
620923 tn?1452919248
selmaSBlankMar 24
selmaSBlankMar 23
102
By selmaSBlank Blank
This list is not a complete list of possible Specialists - This thread is here so Please continue to add your Drs n...
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selmaSBlankMar 24
1
By StellaCharleson
I had Chiari decompression surgery 4 months ago. Is it possible to have a CSF leak? My scar is leaking clear fluid ou...
3060676 tn?1440706544
RheaAnnMar 23
ElishaFlowerOct 23, 2013
RheaAnnNov 30, 2012
freefallinNov 27, 2012
12
By RheaAnn Blank
Hello all! I just wanted to share my fabulous news as it may help someone else! I have been going to an acupuncturist...
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jksranch5Mar 23
jksranch5Mar 17
selmaSBlankMar 11
KerriC1Mar 11
KerriC1Mar 11
9
By jksranch5
It has been 6 years this July since my surgery and I am now having alot of issues. I have not told my husband everyth...
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selmaSBlankMar 22
poosygirlMar 22
selmaSBlankMar 22
poosygirlMar 22
selmaSBlankMar 01
72
By poosygirl
Opinions please, from people diagnosed with a reduced CSF flow. And from those who have had surgery because of it. Or...
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selmaSBlankMar 22
poosygirlMar 22
selmaSBlankMar 22
3
By poosygirl
Today I had a ECG stress test on a treadmill and after only two and a half minutes my BP went from 140/67 to 236/51. ...
992677 tn?1337358095
selmaSBlankMar 22
1
By ChiariWolf
He was an absolutely awesome Dr! http://www.cleveland.com/metro/index.ssf/2014/03/common_pleas_jury_awards_forme.html
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poosygirlMar 22
selmaSBlankMar 22
2
By Alana4159
Does anyone have slightly restricted csf flow and lightheadedness as their main symptom? I have pain and discomfort a...
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