Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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By 4DancingGoats
61 yr old adult, newly diagnosed this week (8 mm.) Live in NW Arkansas so ready to go out of state (and spend life sa...
13598916_tn?1430689115
selmaSBlankMay 05
LottidaMay 05
CWeirMay 05
selmaSBlankMay 05
14
By CWeir
I woke up July 7, 2014 feeling like something was very wrong. Dizzy, vertigo, confusion, imbalance, pain, ringing ...
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selmaSBlankMay 03
DSH519May 03
selmaSBlankMay 02
DSH519May 02
selmaSBlankMay 02
5
By DSH519
Anyone who has had surgery- did anyone have hypersensitivity to anything touching the head/ spine? Even putting on a ...
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selmaSBlankMay 03
1
By absolutemomtwofour
I do not know what to do!!! I was standing on our soccer field during my boys practice and my legs started gettin...
1891806_tn?1391122637
selmaSBlankMay 03
1
By hevnw8s
Hello. It's been quite awhile since I posted anything. I had decompression surgery July 21, 2014. It was bone only wi...
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selmaSBlankMay 03
RhindaMay 03
RhindaMay 03
selmaSBlankMar 28
Nellan12Mar 28
10
By Rhinda
Diagnosed with Chiari 1 Malformation. Got a second opinion from Dr. Bolognese who thinks I still have other things g...
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DSH519May 02
selmaSBlankApr 20
2
By ArnoldL
I am so happy to know this forum is out here. I have had my Chiari decompression surgery 11 years ago.. I am now and...
13556457_tn?1430481345
DSH519May 01
selmaSBlankMay 01
LottidaMay 01
selmaSBlankMay 01
TLeigh71May 01
6
By TLeigh71
I was recently, well about a year ago now, diagnosed with Chiari. Have been in the medical field for over 20 years h...
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selmaSBlankMay 01
selmaSBlankMay 01
selmaSBlankApr 30
11
By Anreverett
Hello. I am wondering if anyone could share their immediate post op experiences. The last couple days I've had severa...
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selmaSBlankMay 01
Jas0803May 01
selmaSBlankMay 01
3
By Jas0803
Hello, I had decompression surgery 11 months ago. It was considered to be a success as MRI evidence showed my syrinx ...
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selmaSBlankMay 01
selmaSBlankMay 01
3
By Purple9914
Hello all... I have been struggling with symptoms off and on for years. Symptoms include lightheadedness, extreme fa...
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selmaSBlankMay 01
KrisptMay 01
selmaSBlankApr 27
KrisptApr 27
selmaSBlankApr 27
15
By Krispt
Hi guys Not sure if this is where I need to ask or even if you guys can help? I've had a build up of symptoms which...
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DSH519May 01
selmaSBlankApr 17
mattnmomApr 16
selmaSBlankOct 02, 2014
JAMBAY1998Oct 02, 2014
23
By bulldogmommy30 Blank
Hi guys & gals, I am so glad that I found you! I was just told I have Chiari this week. My biggest issue is numbness...
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DSH519Apr 30
girhuApr 30
selmaSBlankApr 30
LottidaApr 30
4
By girhu
I'm looking for any feedback that I can get. I have a Chiari 1 malformation with a 12 mm herniation and syrinx. It ...
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Twinky318Apr 30
selmaSBlankApr 30
Twinky318Apr 30
selmaSBlankApr 29
Twinky318Apr 29
8
By Twinky318
Hello. I am a 45 year old female that was diagnosed with Chiari Malformation at the age of 24. I had surgery on the b...
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selmaSBlankMar 29
me321uMar 29
selmaSBlankFeb 28, 2014
27
By bookworm79 Blank
Hey all, The roof of my mouth and back of my throat is yellowish with blood red spider web looking stuff througout an...
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selmaSBlankApr 28
1
By drjurmz
Hello all, about a year and a half ago they found a "tiny" syrinx at C7 when I had an MRI done due to unexplained che...
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selmaSBlankApr 28
1
By nmk816
Do your docs have you get brain MRIs even years after decompression surgery? Or do they just focus on other things li...
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selmaSBlankApr 28
KrisptApr 28
3
By JConger
Hello All, Like many, I'm new to this forum, and am quickly gaining such comfort in knowing it's here and availabl...
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selmaSBlankApr 26
2
By Starnapalm
Hi all I'm new hear im a chiari patient Im newly dignosed last year after being dignosed with fibromaylgia... I have ...
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