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Chiari Malformation Community

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

141 - 160 (of 11281) questions
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Avatar universal
I have experienced a strange 2-3 second vibration in my right hip that occurs at random once or twice a day for the past 6 months. it feels like a cell phone vibrating, but i carry my cell phone on my left pocket. out of curiosity, I G...
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Avatar universal
2 years ago I rushed my son to the ER as he was presenting with symptoms of a stroke. For many years prior to this incident he had suffered with migraines. An MRA with and without contrast was performed and through that scan a diagnosi...
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Avatar universal
After years of head aches and passing out spells I was diagnosed with Chiari 1 in March of this year. When I got the news, I didn't know how to respond. I was greatful to have the answer but afraid at the same time that they actually f...
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Avatar universal
Thanks to everyone who answers. I'm 13 years old and have had chronic frontal headaches for 2.5 years now, (and neck pain, dizziness,occasional pain down my legs, sensitivity to light and sound and I get tired quickly) we've tried every ...
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Avatar universal
Hi all, I found my way here, probably like most, when a MRI produced that interesting line of text "low lying cerebellar tonsils." Short story: I am 35 F, healthy, active with only medical problems being psoriasis and migraines (years...
  Posted
16744917 tn?1451270439
A little background, had decompression surgery Dec 29th. Had a spinal fluid leak so had a second surgery on Feb 16th. My question is when I get up from a laying or sitting position my head throbs for a few seconds to a min. I don't remem...
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Avatar universal
I was diagnosed with Arnold-Chiari Malformation Syndrome. I read somewhere that some people were put on Oral Chemo to manage their symptoms. Is it possible that I will be put on Oral Chemo as well
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Avatar universal
I am having trouble with my sleeping pattern since surgery, I'm sleeping later in the morning like ten an eleven am.and when going to bed at night takes till early in the morning . Does having arnold chiari surgery have any thing to do w...
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Avatar universal
Hello there! My name is Trisha, I'm 21 years old and got diagnosed with a chiari malformation when I was 16. It was really hard to deal with on a day to day basis, I had to quit dancing because of the dizziness, nausea, headaches and som...
  Posted
6384874 tn?1385433406
I need some advice. Sorry for the long post. I ve been decompressed 2 times (1/2014 & 12/2014) with Dr. Oro. Full decompressions with duraplasty, c1 laminectomy and he even shrunk my tonsils on the second surgery. Things were going w...
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Avatar universal
I had surgery back in Nov 2015,had to return for a tare in the mesh and have it repaired in Dec.2015 doing better but I am having itching and pulling on the sides of the incision, my question is this normal ?
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Avatar universal
I have have my surgery 3 Yeats ago. I have had many MRI's to figure out what was saying all of my issues. But everything to them looked great. A successful surgery. Three years later, I'm struggling. Can't sit for over an hour, and at ti...
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Avatar universal
My 16 year old son was born with large posterior fossa arachnoid cyst required vp shunt at 4 months by 10 his cyst collapsed shunt disabled due to malfunction.. By age 13 he had developed intracranial hypertension was placed on 2000 mlg ...
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Avatar universal
I seem to be getting nowhere. Every Drs. office I call just puts me off or says " we don't see Chiari patients, or we don't have any qualified neurosurgeons here that work with Chiari even though I try to tell them that I have issues wit...
  Posted
Avatar universal
Hello, new here and new to Chiari's, I am a 28 yr old female that just got diagnosed and am having severe migraines (4-7x/week) since I was about 12, dizziness, left arm, hand, and finger numbness for 8 days, neck, back, and arm pain, an...
  Posted
Avatar universal
I was diagnosed over a year ago. No blockage, measured 13mm. My main issue is migraines. Migraines that will put me to the floor and feel like my head is going to explode. I turn bright red, veins buldge, eyes bloodshot, and have to ...
  Posted
Avatar universal
Curiosity- Once you've had this surgery, is it best to always kee a NS that youTRUST, is a Chiari specialist & have established care with, for the rest of your life? Like...Selma, or anybody else, if something happened, do you have a N...
  Posted
620923 tn?1452919248
Hi ALL please wear your purple tomorrow Feb. 23rd to help gain awareness for Chiari and show support as our new friend heads into surgery. Sending good vibes ~~~~and prayers to her and all in charge of her care <3 and sending heali...
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Avatar universal
Does anyone know what causes this? I thought pre op it was from csf restriction but post op? It's been doing this again in my left ear for several months. Is it CCI? So confused.... Thank you for any input!
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4760166 tn?1398360913
Hi guys ... I'm scheduled to have my shunt revised / replaced on the 17th ... but for the past couple months or more I've had a low grade fever (I usually run about 97. it's been 99 - 100 ... not even worth a doctor visit) and really th...
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