Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlankOct 09
2
By huskerfan71
I had a lumbar puncture yesterday to check my intracranial pressure. It was normal so now I am waiting for my NS to ...
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selmaSBlankOct 08
3
By Amarisnery
Hi. I have Chiari Malformation 6mm. I wake up 2-3 times a night with severe pain in my lower back, starting @ my wais...
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selmaSBlankOct 09
VMZ14Oct 08
selmaSBlankOct 08
14
By Itsaleedanielle
My radiologist said on my MRI my cerebellar tonsills extended just below the level of the foraman magnum consistent w...
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selmaSBlankOct 08
selmaSBlankOct 08
4
By Elisaandbucky
Does anyone know any information about neurologists who specialize in Chiari, in/around Charlotte, NC? I had my surge...
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selmaSBlankOct 07
lydeliaOct 07
selmaSBlankOct 05
4
By lydelia
Hey all. It's been awhile. I was decompressed on 10/18/2011 and have been doing well since. Hence the reason I haven'...
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selmaSBlankOct 08
VMZ14Oct 08
selmaSBlankSep 21
26
By hscurry Blank
Has anyone continued to hear/feel air bubbling in the back of their head and neck post decompression surgery? This so...
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shinka06Oct 08
selmaSBlankOct 07
shinka06Oct 07
selmaSBlankOct 07
5
By shinka06
My 15 year old daughter has been suffering from extremely bad headaches, neck pain, dizziness for quite a while. My ...
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selmaSBlankOct 07
9
By keshia3017
Is there any medication to help chiari? Doctor gave me nurotin, doesn't seem to help
620923_tn?1416285879
rod44Oct 07
selmaSBlankOct 06
3
By selmaSBlank
Hi all Please wear your purple Monday, Oct 6th as 2 members head in for surgery....to show awareness for Chiari a...
246139_tn?1410875443
selmaSBlankOct 07
2
By baccalynnwv
Hi. The second neurologist appointment didn't offer much new info. He did say he was nearly positive I did not have ...
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ASumrallOct 06
selmaSBlankOct 06
3
By keshia3017
Does anyone ever have numbness in there face? And have trouble opening things? Ex: I can't open jars or things like ...
620923_tn?1416285879
selmaSBlankOct 06
selmaSBlankOct 03
selmaSBlankOct 03
8
By selmaSBlank
Barometric changes !! How does the change of seasons affect you...joint pain, more headaches.... What about t...
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ASumrallOct 05
linnielou232Sep 14, 2011
selmaSBlankSep 12, 2011
10
By ThatOneGoodGuy Blank
My girlfriend has chiari and sometimes when I give her an orgasm, she has a sharp pain in her head and gets dizzy. An...
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selmaSBlankOct 05
ASumrallOct 05
VMZ14Oct 05
ASumrallOct 04
selmaSBlankOct 04
5
By ASumrall
I was diagnosed with Chiari 1 about a year and a half ago. I have suffered migraine headaches since I was 8. About 20...
6384874_tn?1385433406
selmaSBlankOct 05
kristy12Sep 11
selmaSBlankSep 11
17
By huskerfan71
Ok I am going to do my best make a long complicated story understandable. I currently have 2 NS (one for Chiari and ...
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selmaSBlankOct 05
selmaSBlankOct 03
selmaSBlankOct 03
16
By Jennifwe223
I went to the neurologist on Tuesday because my symptoms began to worsen.I thought I was going to see one who special...
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0224Oct 05
0224Oct 05
SallyzarOct 05
SallyzarOct 05
10
By Sallyzar
Hi...I've had daily headaches for as long as I can remember; I never really thought much about it, just took obscene ...
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By LeslieAnne3811
Hi all, My son Robert will have decompression surgery on Monday, Oct 6 2014. Please keep him in your prayers.
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selmaSBlankOct 04
1
By Peachez812
I didn't know I had Chiari until June. I experienced symptoms for years though. Funny thing about Chiari symptoms is ...
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selmaSBlankOct 03
selmaSBlankOct 03
3
By Elisaandbucky
I recently passed my 2-month post-op date. Although many symptoms have been significantly eased, the nausea, vomiting...
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