Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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selmaSBlankJun 17
captalJun 17
selmaSBlankJun 17
captalJun 17
selmaSBlankJun 12
14
By captal
I was told I have a Chiari malformation by a neurologist after having an MRI done. He acted like it was no big deal a...
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selmaSBlankJun 17
selmaSBlankJun 16
3
By Amarisnery
Hi. I have Chiari Malformation 1 with 6mm. I know have been getting numbness and tingling in my left arm and feet. I ...
2060794_tn?1330782666
selmaSBlankFeb 05, 2013
JCappielloFeb 05, 2013
JCappielloFeb 05, 2013
Marcie in GreeceFeb 05, 2013
padrssuckDec 08, 2012
12
By rae3342 Blank
I've been reading so much reviews and lawsuits brought against The Chiari Institute and I am scheduled to go there on...
620923_tn?1405964489
By selmaSBlank
Hi All please wear ur purple tomorrow June 13th to show awareness for Chiari and show support for 2 of our friend...
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6
By Krystinamarie
It has been about three weeks since my decompression surgery. C1 laminectomy and cerebellar tonsillectomy. After one ...
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selmaSBlankJun 16
1
By Krystinamarie
I am reposting with hopes the title will help me get answers. It has been about three weeks since my decompress...
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zekesmom1Jun 14
selmaSBlankJun 13
zekesmom1Jun 13
selmaSBlankJun 13
4
By zekesmom1
I have just received the call that my 9yr old son has chiari information 1, we will not see the neurosurgeon for anot...
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selmaSBlankOct 01, 2012
Jess0308Oct 01, 2012
selmaSBlankSep 30, 2012
Viva001Sep 29, 2012
10
By jen0959 Blank
i am 4 months post op. about a month ago, i started losing hair. i mean constant shedding. it has not stopped, it ...
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selmaSBlankJun 14
StayinginJun 14
selmaSBlankJun 14
3
By Stayingin
I have not officially been diagnosed yet, but have a host of symptoms and head MRI showing a drop. I am schedule for ...
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selmaSBlankJun 13
YayyeeJun 13
selmaSBlankJun 13
3
By Yayyee
Hi everyone I was recently diagnosed (1 month)with CM after having a MRI to see what was causing my golfers elbow!...
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WyssaJun 13
selmaSBlankJun 12
selmaSBlankJun 12
3
By Wyssa
So I was just wondering if anyone else had sleep paralysis with chiari? They are really scary for me, when I can't wa...
620923_tn?1405964489
selmaSBlankJun 13
BinyominJun 13
BinyominJun 13
selmaSBlankJun 13
RheaAnnJun 11
6
By selmaSBlank
How important is finding a true Chiari specialist or going to a NS that has treated Chiari? What has your experie...
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selmaSBlankJun 12
selmaSBlankMar 23
selmaSBlankFeb 28
12
By Dipart69 Blank
I have chiari malformation 1 with 1cm herniation and saw one neurosurgeon. I'm just having a lot of second thoughts a...
440535_tn?1312371665
selmaSBlankJun 11
1
By Autumn55
Does having a syrinx mean you have syringomyelia? And is it possible that a 2mm syrinx from the top of your tailbone ...
4760166_tn?1398360913
socceroJun 11
zygy2Jun 11
selmaSBlankJun 08
selmaSBlankMay 18
12
By The_beat_goes_on
Hi guys, This is a question for anyone who has a shunt catheter in their peritoneal cavity. On the 17th of last m...
620923_tn?1405964489
selmaSBlankJun 11
1
By selmaSBlank
Hi all please wear ur purple tomorrow June 10th to help show awareness for Chiari and to show support of our friend a...
620923_tn?1405964489
selmaSBlankJun 11
HazyHazelJun 10
selmaSBlankJan 22
251
By selmaSBlank Blank
finish the statement. This is a fun thread we have done b4...seems the right time to do it again......
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selmaSBlankJun 10
jenlopez7Jun 10
selmaSBlankJun 09
RPC68Jun 09
selmaSBlankJun 09
25
By deatrapurplern Blank
I want to kno how fast does Chiari progress? Is it months or years? Can it kill you if you don't have surgery? And wh...
9141964_tn?1401996765
selmaSBlankJun 10
1
By oldenm
So on Friday I want to the Neurosurgeon we told me that I was only at a 6mm and for him to do surgery or treat me his...
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swatkindJun 09
selmaSBlankJun 09
swatkindJun 08
selmaSBlankJun 08
11
By swatkind
I really do suck about updating after starting a thread! Last I posted I was having a CT to check for a possible fra...
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