Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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246139_tn?1410875443
selmaSBlankSep 12
1
By baccalynnwv
If I send my MRI cds to The Chiari Institute, do they send the disks back? I can probably call and find out, but tho...
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selmaSBlankSep 11
1
By Ogott
Does anyone experience the feeling that your brain is trying to shut down? The only way to describe is like lights fl...
2120085_tn?1344769510
selmaSBlankSep 11
selmaSBlankSep 11
selmaSBlankSep 11
5
By Munchies2012
Ive bought some magnesium citrate today to test see if it helps my headaches as been having alot of migraines lately...
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selmaSBlankSep 11
harboySep 11
selmaSBlankSep 11
3
By harboy
Hi, adult daughter was dx two wks ago. Learned much from this blog. we do not have health insurance and cannot afford...
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selmaSBlankSep 11
kf327Sep 11
selmaSBlankSep 10
kf327Sep 10
selmaSBlankSep 09
7
By kf327
Hello to all~ Where might I find the list for Chiari "Recommendations"? I've been reading your threads, that seem ...
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selmaSBlankSep 11
rod44Sep 10
selmaSBlankSep 10
6
By xxMusicSaviorxx
I need some advise on what to do My original intensity of symptoms before I had the surgery is starting to come ba...
246139_tn?1410875443
selmaSBlankSep 10
selmaSBlankSep 10
3
By baccalynnwv
I had my neurological appointment today. It was originally scheduled for suspected MS. I asked him about the tonsi...
620923_tn?1413427272
selmaSBlankSep 10
selmaSBlankSep 10
selmaSBlankSep 08
9
By selmaSBlank
Hi ALL I hope you are wearing your purple everyday this month as it is Chiari awareness month.... Tell us in this...
620923_tn?1413427272
selmaSBlankSep 10
Resa181Sep 10
Resa181Sep 10
selmaSBlankSep 10
Resa181Sep 10
25
By selmaSBlank
Hi all we all tend to have issues with balance whether it is from feeling dizzy , vertigo, or just unstable feet and ...
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selmaSBlankSep 10
1
By 0224
I have a question does anybody have brisk reflexes and positive Hoffman reflex with chiari?
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selmaSBlankSep 10
kristy12Sep 04
selmaSBlankSep 03
7
By shelly0513
I am 26 years old and had my CM Decompression surgery last year. I have had hydrocephalus since birth with no complic...
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angelRNSep 10
rod44Sep 09
kristy12Sep 09
rod44Sep 09
20
By angelRN
I have been suffering from severe, posterior neck pain and migraines (or so I thought) for about a 3 months (constant...
620923_tn?1413427272
rod44Sep 09
selmaSBlankSep 09
11
By selmaSBlank Blank
Hi all, for those that are new to Chiari and may not be aware and for those that have the memory of a light that sti...
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angelRNSep 10
selmaSBlankSep 09
angelRNSep 09
pamk5Dec 23, 2010
11
By Jennyfoo Blank
Ugh! He was very nice, spent over 1/2 hour with me, after his FNP spent 1/2 hour with me too. Basically, he said he d...
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selmaSBlankSep 09
1
By J4cob99
I already know i have chiari since a long time ago my symptoms had pretty much gone until recently ive had some of my...
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selmaSBlankSep 09
1
By angelRN
Hi all, I've been referred to a Dr. Philip Theodosopoulos, neurosurgeon specializing in CMI, at UCSF. In look...
1476649_tn?1287206076
rod44Sep 09
selmaSBlankSep 09
selmaSBlankSep 09
52
By KYKY84 Blank
HI, I was diagnosed and treated for epilepsy when i was 14 months old all the way to the age of 17 which at that time...
246139_tn?1410875443
kristy12Sep 08
selmaSBlankSep 08
3
By baccalynnwv
I made spaghetti and bread sticks for dinner. At the same time I was reading on the site about retroflexed odontoid. ...
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selmaSBlankSep 08
WyssaSep 08
selmaSBlankSep 08
3
By Wyssa
Hi everyone! So I'm looking at going to the Chiari Institute for help. My symptoms have worsened over the past few we...
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selmaSBlankSep 08
RheaAnnSep 07
selmaSBlankJun 24
RheaAnnJun 24
selmaSBlankJun 24
11
By LoriVA
This is a long and complicated question. So, in October of 2012 at the urging of a new neurosurgeon up at Hopkins I ...
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