Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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WhyspersJun 23
Viva001Apr 11, 2012
selmaSBlankApr 10, 2012
hilzemApr 10, 2012
ajunebugMar 22, 2011
11
By RitaN Blank
Does anyone know where Dr Xiao Di formally of the Cleveland Clinic has gone? We were told by the Clinic he would cont...
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selmaSBlankJun 22
1
By llamas02
I was diagnosed with Chiari I four years ago. I had surgery that same year and I was told my symptoms most likely wou...
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swatkindJun 09
Mel5056Jun 09
selmaSBlankJun 09
5
By Mel5056
hello all...my surgery is Friday the 13 (can you believe that LOL) and i am trying to gather a list of items to take ...
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selmaSBlankJun 20
selmaSBlankJan 31
MONAMFRJan 31
selmaSBlankJan 14
35
By kricklekrin Blank
I'm currently not on any medications other than natural supplements. I was on Keppra, but it changed my personality ...
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selmaSBlankJun 20
Sevda1Jun 20
majerus33Dec 08, 2009
selmaSBlankDec 08, 2009
majerus33Dec 08, 2009
10
By Neyklem Blank
Hi everyone,' 4 weeks past my surgery, went back in twice to re-stitched after CSF leakage. I am n pain and out of...
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selmaSBlankJun 20
2
By Krystinamarie
It's been a little more than three weeks since surgery I have been doing as instructed by my ns to walk around and do...
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selmaSBlankJun 18
butterfly8446Mar 05, 2013
selmaSBlankMar 03, 2013
5
By teaandtwoslices Blank
Hi all, I'm kinda freaking out a bit as there's no one home. A mirror fell and hit the side of my forehead. It didn't...
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selmaSBlankJun 19
selmaSBlankJun 16
sangi27Jun 15
SloweladyMar 20
64
By actressmouse Blank
Does anyone else experience "phantom smells"? I smell cigarette smoke on and off (no one around me or in my home/wor...
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selmaSBlankJun 19
selmaSBlankJun 18
5
By Kennedyhanau
Hello all, I'm just giving a quick update on myself. I called my neurosurgeon to ask some questions that I was uncer...
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selmaSBlankJun 19
1
By Lori1944
Can seizures be caused by Chiari? Nine years after Chiari surgery, my daughter just experienced a bad headache with ...
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By disasterfullbeauty
OK so sometimes my brain just won't compute . Like things just don't process at a normal speed I'll be trying to do s...
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selmaSBlankJun 18
selmaSBlankJun 16
3
By missyorkie
Checking to see if anyone has had Dr. Pokrupa doing any of the syringomyelia surgery or Chiari Malformation surgery.....
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selmaSBlankJun 17
captalJun 17
selmaSBlankJun 17
captalJun 17
selmaSBlankJun 12
14
By captal
I was told I have a Chiari malformation by a neurologist after having an MRI done. He acted like it was no big deal a...
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selmaSBlankJun 17
selmaSBlankJun 16
3
By Amarisnery
Hi. I have Chiari Malformation 1 with 6mm. I know have been getting numbness and tingling in my left arm and feet. I ...
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selmaSBlankFeb 05, 2013
JCappielloFeb 05, 2013
JCappielloFeb 05, 2013
Marcie in GreeceFeb 05, 2013
padrssuckDec 08, 2012
12
By rae3342 Blank
I've been reading so much reviews and lawsuits brought against The Chiari Institute and I am scheduled to go there on...
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By selmaSBlank
Hi All please wear ur purple tomorrow June 13th to show awareness for Chiari and show support for 2 of our friend...
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6
By Krystinamarie
It has been about three weeks since my decompression surgery. C1 laminectomy and cerebellar tonsillectomy. After one ...
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selmaSBlankJun 16
1
By Krystinamarie
I am reposting with hopes the title will help me get answers. It has been about three weeks since my decompress...
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zekesmom1Jun 14
selmaSBlankJun 13
zekesmom1Jun 13
selmaSBlankJun 13
4
By zekesmom1
I have just received the call that my 9yr old son has chiari information 1, we will not see the neurosurgeon for anot...
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selmaSBlankOct 01, 2012
Jess0308Oct 01, 2012
selmaSBlankSep 30, 2012
Viva001Sep 29, 2012
10
By jen0959 Blank
i am 4 months post op. about a month ago, i started losing hair. i mean constant shedding. it has not stopped, it ...
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