Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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Brendaz20Sep 17
selmaSBlankSep 16
Brendaz20Sep 16
selmaSBlankSep 15
Brendaz20Sep 15
31
By Brendaz20
I used to post on this forum back then because of my unusual symptoms and to get advice. I haven't been to a chiari s...
246139_tn?1410875443
selmaSBlankSep 16
selmaSBlankSep 16
selmaSBlankSep 15
5
By baccalynnwv
I just noticed him on this list. Has anyone active on this forum been to Dr. Gold? He is the closest to me, at a lit...
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selmaSBlankSep 16
redkimSep 16
kristy12Sep 16
7
By redkim
Since I have posted. I lurk every so often. I was Dxed in 2004 with Chiari, told it was incidental, 9mm herniation ...
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selmaSBlankSep 13
harboySep 13
selmaSBlankSep 12
4
By harboy
Hi,Its Cindy, What do you do to gain comfort. Like pillows ...anything will be greatly appreciated
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selmaSBlankSep 14
harboySep 14
selmaSBlankSep 14
harboySep 14
6
By harboy
When my daughter was sent home from ER two weeks ago, they gave us a copy of the reports. Im not a licensed medical p...
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3
By SarahY79
For the last 23 years I have been on chronic pain medication for managing the pain associated with my Chiari Malforma...
246139_tn?1410875443
selmaSBlankSep 14
harboySep 14
selmaSBlankSep 14
10
By baccalynnwv
Driving is my nemisis. I have to drive an hour to work and back each day, plus several hours each day during work. (S...
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selmaSBlankSep 14
1
By harboy
Hi, Cindy here. When my daughter gets a severe episode when is it time to take her to the er? Last week, she was vo...
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selmaSBlankSep 13
1
By Jas0803
Hi all, I had chiari decompression surgery in june, and now have a CSF leak. Today I have been experiencing a vibr...
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Jas0803Sep 13
zygy2Sep 13
selmaSBlankSep 12
Jas0803Sep 12
selmaSBlankSep 12
5
By Jas0803
I have chiari malformation and syringomelia. I had decompression surgery in the end of June. Everything was going pre...
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selmaSBlankSep 13
harboySep 13
harboySep 12
selmaSBlankSep 11
OgottSep 11
292
By lollypop28 Blank
type 1 chiari malformation, does it get worse and is it heredity?
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By Rob_Spiers
Hi All i was diagnosed with chiari and a massive syrinx in feb 2014, my syrinx extends from c1 to t4, i've been seen ...
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selmaSBlankSep 12
VessieSep 11
selmaSBlankSep 11
kristy12Sep 11
5
By Vessie
Pls help been having having this bad headaches where I forget things and I had a vp shunt put in last year aswell as ...
246139_tn?1410875443
selmaSBlankSep 12
1
By baccalynnwv
If I send my MRI cds to The Chiari Institute, do they send the disks back? I can probably call and find out, but tho...
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selmaSBlankSep 11
1
By Ogott
Does anyone experience the feeling that your brain is trying to shut down? The only way to describe is like lights fl...
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selmaSBlankSep 11
selmaSBlankSep 11
selmaSBlankSep 11
5
By Munchies2012
Ive bought some magnesium citrate today to test see if it helps my headaches as been having alot of migraines lately...
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selmaSBlankSep 11
harboySep 11
selmaSBlankSep 11
3
By harboy
Hi, adult daughter was dx two wks ago. Learned much from this blog. we do not have health insurance and cannot afford...
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selmaSBlankSep 11
kf327Sep 11
selmaSBlankSep 10
kf327Sep 10
selmaSBlankSep 09
7
By kf327
Hello to all~ Where might I find the list for Chiari "Recommendations"? I've been reading your threads, that seem ...
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selmaSBlankSep 11
rod44Sep 10
selmaSBlankSep 10
6
By xxMusicSaviorxx
I need some advise on what to do My original intensity of symptoms before I had the surgery is starting to come ba...
246139_tn?1410875443
selmaSBlankSep 10
selmaSBlankSep 10
3
By baccalynnwv
I had my neurological appointment today. It was originally scheduled for suspected MS. I asked him about the tonsi...
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