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Chiari Malformation Community

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

141 - 160 (of 11135) questions
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Avatar_universal
How do I find a team of doctors to help treat chronic pain due to syrinx and cm1 ? Like a rehabitation specialist, a pain management doctor in the Lehigh valley area and neurologist. The neurologist called said to take advils. The n...
hope2456 | Last answer
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I am dealing with an undiagnosed illness and have been on an unpaid medical leave of absence since June 23, 2015. I applied for the UDN (Undiagnosed Diseases Network) Study at Duke University after going to 15+ Dr's from Neurologist's to...
SugarSpyder | Last answer
Avatar_universal
Hi everyone! It's been 4 months since surgery and although I had some initial improvement, it was kinda short lived. I've been suffering with headaches and neck pain along with numbness in my hands and feet. My vision has gotten much st...
KerriC1 | Last answer
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I have what appears to be a significant divot in my back just under my waistline. It is Right over the spine guessing L-4,L-5,L-6,L-7. It's quite noticeable and if it is touched, pain begins radiating down my hips, into my legs, around m...
LadySullivan | Last answer
620923_tn?1452919248
We are starting a list for our friends down under...we have so many of you visit and become family here we want to help by keeping track of the drs you all find that know and understand chiari. The Drs on this list should all be resea...
selmaS | Last answer
Avatar_universal
Hey everyone, I'm 27 years old and I was just diagnosed with Chiari malformation type 1 with bad CSF blockage, I did a neck mri yesterday to rule out a syrinx, results not in yet. My symptoms started 2 years ago where I had on and ...
Jake_Adams | Last answer
Avatar_universal
I'm looking for a doctor/specialist who knows about chiari in Perth Australia who can look at my mris. Does anyone know of anything ?
jessica88866 | Last answer
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Hi everyone ! Happy Saturday. I have been dealing with this new thing for quite some time, and I thonl the only ones that wont think that I am crazy for explaining it would be everyone here. So here it goes. I have had this low, but lou...
Rahe28 | Last answer
4760166_tn?1398360913
Earlier this month I had a STAT mri because my head has been hurting worse than it did before my decompression. The report says I have re-herniated 12mm causing a syrinx in my cervical spine. But I can't tell where my skull ends. Can ...
The_beat_goes_on | Last answer
620923_tn?1452919248
Hi all please wear your purple to show awareness for Chiari and support for our friend as they head in for surgery today at 11 ! Sending Good Vibes ~~~~~ and prayers to her and all in charge of her care <3 and sending Healing M...
selmaS | Last answer
Avatar_universal
Although I recognize I've had mild Chiari symptoms throughout my life, they've gotten more severe this year (two full stroke-like episodes, tingling, etc.) which led to MRI and diagnosis. For those who have had surgery and resulting ...
kgperry | Last answer
Avatar_universal
I had my surgery in 2013 and I needed a fusion as well as the decompression because I have basillar invagination and chiari. I'm about 3 years post op and had an mri done that showed slight to moderate compression of my brainstem. I expe...
Kstavrid | Last answer
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Hi! I was diagnosed with Chiari Malformation, POTS and EDS in late July of this year. After finally finding the right Doctor for my decompression surgery in Salt Lake, I have scheduled it on Monday next week. I will also be turning 17 th...
brooke_hak | Last answer
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Hello all. I've been a member here for awhile and am in a Delilah and thought I'd ask if anyone may know of a way to suggest ideas so I may continue my fight. I'm disabled and have been symptomatic for 6 years now. I've had mu...
tattooer601 | Last answer
Avatar_universal
My daughter underwent decompression with laminectomy & dural patch on 10/28/15. Everything seemed to be going well until this past Monday when she developed left shoulder pain as well as left chest wall/rib pain. We contacted her neurosu...
Missifit | Last answer
Avatar_universal
I was diagnosed 13 yrs ago with a 5 mm Chiari malformation, as an incidental finding. About 1 1/2 yrs ago I started having some symptoms. I am progressively getting worse. I have been to a couple of neurologist & they are ignoring the...
Beck8994 | Last answer
Avatar_universal
Hi everyone,I am new to the group. I am looking for a Chiari NL near Boston ma. Thank Cid
Cidalia68 | Last answer
7205189_tn?1447798338
In the past few weeks I have been feeling terrible all the time! I've always had headaches and nausea and other various symptoms that came and went but lately all the time I am feeling fatigued and weak and nauseous and just overall extr...
NicoleAdia | Last answer
1468090_tn?1289097010
has anone ever took zofran for nausea?
angelways | Last answer
Avatar_universal
Im having a very hard time finding a doctor that understands chiari. I recently had a baby and my symptoms are getting a lot worse. I'm in Alabama if anybody knows of a good doctor or how to find one please let me know! Thank you so much...
Krista28 | Last answer
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