That is super!!! Thank you so much. Just having the name of this allergy is a huge stride in the right direction. I will certainly look to contact the dr. you recommended!
EPP refers to a condition called erythropoietic protopophyria, a condition it certainly seems that you have, based on the symptoms you describe. This is not easy to treat. Newer methods including the use of ultraviolet light (narrowband UVB.) If I were you, I would consult a dermatologist, quite possibly someone with a particular interest in porphyrias. This may involve a visit to an academic medical center in the US or elsewhere. One name you might start by contacting is Warwick Morison, M.D., who is an expert in this area and practices in Maryland. He is affiliated with the Johns Hopkins School of Medicine. You can get his contact information at the website of the American Academy of Dermatology, www.aad.org, where you click on "Find a Dermatologist."
Best.
Dr. Rockoff