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Diabetes - Juvenile Community
This patient support community is for questions related to juvenile diabetes including celiac disease, depression, diabetic complications, hyperglycemia / diabetic keto-acidosis, hypoglycemia, islet cell transplantation, nutritional issues, parenting a diabetic child, pregnancy, pump therapy, school issues, and teens with diabetes.
Can not get control HELP!!!!
by luna25, Mar 16, 2006 12:00AM
Hi, I do not know what I need to do. I am 25 and I have had diabetes for 20 years almost. I have not taken the best care of my diabetes in the past. After my son was born I decided to take better care. Well with a child I didnt have all the money I needed to take care of my self with supplys. Now for the last week I have been puking and my kidneys have hurt also pain in my abdomin. I cant spell for anything so please bare with me and my typing. Anyways I went to the ER and they let me sit in the waiting room for 3 hours puking so I went home. Then Tuesday I went to the ER again casue I still didnt feel well. I had a blood sugar of 490 and they gave me fluids and said go home. Well ts 2 day ater and I still feel weird. I am dizzy and cant think. I am a little sick to my tummy but better then before. I dont know why I cant seem to feel better any idea's please. I just started a job and I dont want to loose it casue I take off time. I have already lost 3 jobs due to my diabetes I dont want to loose another one. I have a son and need the income. HELP please!!!!I have changed my insalin in the last month to the 24 hour and the fast acting insalin.
Doctor's Answer
by JDRF-Team-LRS, Mar 17, 2006 12:00AM
Luna,
We're not physicians here, but all of us have considerable experience with diabetes. As a fellow diabetic, also a long timer, I must tell you that we have no alternative as Type 1s but to take our insulin and any other meds we've been prescribed. The symptoms you describe are dangerous -- not just for you -- but for your child, who is dependent on you for his complete care.
Our forum has a "sister" initiative also sponsored by JDRF and I *urge* you to contact them. Called the Online Diabetes Support Team (ODST), there is a link to it off the main JDRF website: www.jdrf.org ODST is set up to put you in contact with folks who are local to you **AND** there is a person there who is quite knowledgeable about insurance & supplies issues in each state here in the US. There may well be resources to help you with the enormous financial cost of diabetes. When (not if ;-) ) you contact ODST, please tell them we (JDRF's MedHelp forum) sent you.
I imagine that you are scared in addition to feeling so poorly. If you have *any* supplies, talk to your doc about how to stretch them safely to get out of the danger you are in. High levels of sustained urine ketones may be the "tip of the iceberg." It seems to me that whatever you are doing is not working and only a medical doctor skilled in Type 1 care can guide you to better match your food, exercise, stress, health issues with your body's need for insulin.
Please do NOT delay in turning around your situation. Be persistent; do it for your son, if not for yourself.
We're not physicians here, but all of us have considerable experience with diabetes. As a fellow diabetic, also a long timer, I must tell you that we have no alternative as Type 1s but to take our insulin and any other meds we've been prescribed. The symptoms you describe are dangerous -- not just for you -- but for your child, who is dependent on you for his complete care.
Our forum has a "sister" initiative also sponsored by JDRF and I *urge* you to contact them. Called the Online Diabetes Support Team (ODST), there is a link to it off the main JDRF website: www.jdrf.org ODST is set up to put you in contact with folks who are local to you **AND** there is a person there who is quite knowledgeable about insurance & supplies issues in each state here in the US. There may well be resources to help you with the enormous financial cost of diabetes. When (not if ;-) ) you contact ODST, please tell them we (JDRF's MedHelp forum) sent you.
I imagine that you are scared in addition to feeling so poorly. If you have *any* supplies, talk to your doc about how to stretch them safely to get out of the danger you are in. High levels of sustained urine ketones may be the "tip of the iceberg." It seems to me that whatever you are doing is not working and only a medical doctor skilled in Type 1 care can guide you to better match your food, exercise, stress, health issues with your body's need for insulin.
Please do NOT delay in turning around your situation. Be persistent; do it for your son, if not for yourself.
Post Comment
I am not a physician, but a volunteer with knowledge of living with my son's diabetes for 21 years. LRS has given you the very best information and I urge you to follow up on these resources and advice.
My son is 29 and has had type 1 for 21 years. During his younger years he also did not take the best of care of his blood sugars. At 22, he started having similar syptoms that you have described. He was diagnosed with a complication called gastroparesis. This is a problem where the stomach is not able to move food through the intestines. A normal stomach moves about 3 times a minute. Someone with gastroparesis has a slowing of the stomach and is unable to digest food properly. This can cause vomiting, nausea, stomach pain,weight loss and erratic blood sugars.
Due to the type of symptoms, this is not what most doctors immediately think of. This can be diagnosed and treated through diet and medications. The main diagnostic tool is called a radioisotope gastric-emptying scan. It is a fairly simple test that would confirm gastroparesis. I would also like to give you a website that has more information. It is http://digestive.niddk.nih.gov/ddiseases/pubs/gastroparesis.
luna, there can be many reasons for your symptoms and I am only suggesting one possible cause. My concern is that your vomiting and stomach pain is not normal and you need a firm diagnoses.
From your post it is obvious that money and insurance is an issue. I completely understand your situation. The work issue is something my son has gone through also. It is a terrible situation, especially when you are raising a child. Again, you need to follow LRS's advice regarding contacting ODST. I would also stress that if you end up in ER, to suggest the possibility of gastroparesis and no matter what, do not leave if you are vomiting. I know that my son always needs fluids by an IV to rehydrate.
Please let us know what you find out.
dm