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Dysautonomia (Autonomic Dysfunction) Community
This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.
1 - 20 (of 1847) questions
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Avatar universal
I am planning to move soon from Texas to Washington. Going to need to find a new PCP who is experienced in seeing patients with chronic i...
1 answer |
612876 tn?1355518095
"You just left it on the . . . where the food was." Does anyone else wind up saying nonsensical things like this because they get stuc...
14 answers |
Avatar universal
Over the last few months I have found every time I stand up from sitting I feel almost like I will pass out, sometimes it is not so bad w...
2 answers |
Avatar universal
So I had an event monitor and was instructed to push the button whenever I felt "off". On the results, EVERY SINGLE time I pushed the but...
886699 tn?1270783344
Does anyone know of a good Dr.that treats dysautonomia (POTS) in South Florida?? I have been to the Cleveland clinic neurology dept with...
38 answers | 3 comments |
967168 tn?1477588089
My youngest daughter (14) has been fainting and had arrhythmia's since she was 9, following my path. I wasn't DX with NCS/OI until I was...
19438744 tn?1477695007
I guess my story is similar to alot of people out there. I originally suffered from my first bout of pots at the age of 20 after a bout o...
Avatar universal
My 9 year old son came down with sudden and severe POTS because of a Mast Cell Activation Disorder. Dr. Abdallah in the DC area was wond...
6 answers | 1 comment |
Avatar universal
Hello! I have been on a low dose beta blocker (concor 2.5 mg) for the past 4 months. For the past few days I felt that I might be able to...
1 answer |
Avatar universal
I feel dizzy and breathless...as though the automatic functions of my body are no longer working. I quite often stop breathing when I'm f...
1 answer |
Avatar universal
I was diagnosed with POTS a few years ago. I always had low BP and ate alot of salt, which helped. 2 months ago i had sinus surgery and h...
1 answer |
Avatar universal
Hi, I apreciate any insight or help with this question. I am a 45 yr. old F that worked full-time as a kindergarten teacher, was...
20 answers | 2 comments |
Avatar universal
Does anyone here know of any relationship with autonomic dysfunction and cervical stenosis? I have found a little bit scouring the inter...
25 answers |
1401877 tn?1288111239
Hi, Anyone out there with POTS have adrenal issues? I've recently had a 24 hour urine test and a saliva test that both confirm low corti...
4 answers | 1 comment |
Avatar universal
I was diagnosis about 4 months ago with Dysautonomia. I thought I had found a great doctor, (which was about a 3 hour drive to get to) b...
3 answers | 1 comment |
Avatar universal
Over the past 5 months I've had strange symptoms. It all began in February of this year. While standing on the train I got a bad headac...
8 answers | 1 comment |
Avatar universal
I am a 17 year old female. I was diagnosed with chronic nausea 4 years ago and have just recently came over the POTS syndrome. All of the...
3 answers | 2 comments |
Avatar universal
Hi, I was diagnosed with POTS several years ago and for the last week I have been experiencing constant leg pain in both legs which seem...
Avatar universal
Cutting a long story short. Heart flutters with exercise since I'm 17. Now 29, non smoker . Stopped alcohol, always was fit, Never fainte...
19082554 tn?1472039505
My doctor recommended that I go to Northwestern University in Chicago to see a specialist for POTS. But they won't take my medicaid card ...
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