Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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Gordon73less than a minute
paulcarignan10 hours
2
By Gordon73
Sadly I seem to have developed a major autonomic dysfunction - been in and out of hospital every other day for the pa...
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1
By steph1108
Im scared and unsure what im supposed to expect with this. Its been a bad weekend, anxiety, blood pressure up and dow...
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By paulcarignan
I'm brand new to this site. Do you know about these interent resources? http://www.dysautonomiainternational.org/p...
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CalusoApr 10
Rocko230Mar 26
19
By Caluso
Please help, has anyone seen severe mood swings in pots? My son is now 18 years old and was diagnosed 9 months ago w...
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HeiferlyBlankApr 14
2
By ellpea
Hi all. I was diagnosed with POTS last year, and through my own research I am very confident that that is my issue, d...
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delia311Apr 25
HeiferlyBlankApr 14
delia311Apr 09
4
By delia311
Hi, I'm new here. I'm 25, have 2 kids and wonderful supportive husband and way to may weird medical issues. I've be...
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AmySouthMay 07
2
By STRinVA
Hi everyone. I know I am new and I know this is a long story, so I hope you will read. A few months ago, I woke u...
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paulcarignan10 hours
KellyGottMay 19
HeiferlyBlankJan 14
dosheeJan 14
AuntCarolDec 09, 2014
18
By HeiferlyBlank Blank
I know many of us agonize over the decision of whether to rely on local doctors, travel perhaps hundreds upon hundred...
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By AmySouth
I have been dx with POTS and autonomic neuropathy. I was looking for a Dr in the southern Indiana area or even just i...
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By EDSPOTS
Hi My 24 year old daughter living in NYC is looking for a dr who knows how to treat POTS that is caused by EDS. Her ...
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SuzyqoneMay 03
maltesesdJul 27, 2008
halbashesJun 26, 2008
melipnycJun 22, 2008
halbashesJun 20, 2008
5
By melipnyc Blank
Hi, I've been diagnosed with right side Harlequin syndrome. I'm interested in talking with others who have this rare...
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By HeiferlyBlank
Hey everyone, your fearless leader (ha!) here. I just wanted to post a message and let everyone in our community know...
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Rocko230Apr 19
HeiferlyBlankApr 14
2
By Rocko230
Does anyone with POTS or HYPER POTS or autoimmune dysautonomia have demyelinating periphreal neuropathy? Doctors have...
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3
By MaddieC12321
Hello all. My name is Maddie and I am 17 years old. I am a female living in Oregon. I have been expiriencing dizzines...
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By VIVECAH
I have bradycardia. I was having blackout spells. My doctor put me on my the drain would work great about six months...
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By VIVECAH
It is supposed to read my doctor put me on midodrine
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By kayhill8
Hi, my 13 year old has been recently tentatively diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome). She...
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ny2caliApr 19
halbashesMar 04, 2009
2
By princess4969 Blank
I have been poked, prodded, and darn near disected..My symptoms started 9 years ago and I have had unexplained severe...
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PmarkerApr 18
LaLa4Oct 20, 2010
HeiferlyBlankOct 20, 2010
LaLa4Oct 20, 2010
vbc2000Oct 20, 2010
28
By ParrotPal Blank
Hello. Am new to medhelp. Is there anyone that can help with the names of physicians that can treat, diagnose, or h...
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HeiferlyBlankApr 14
momintexasJun 17, 2009
gracieandzacharyJun 04, 2009
chamesMay 27, 2009
8
By laurab2818 Blank
Has anyone gone to to Vanderbilt for evaluation and treatment? I'm considering trying to get into the clinic or also...
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