Dysautonomia (Autonomic Dysfunction) Community
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This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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bean41815 hours
1
By brienh05
I recently was diagnosed with dysautonomia and was first given metropylol(spelling) and my symptoms worsened so the c...
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sblytheApr 13
geneticstuffupNov 28, 2013
PhysioSamMar 01, 2013
TerrysmiserableOct 13, 2011
16
By JSkrill Blank
Does anyone here know of any relationship with autonomic dysfunction and cervical stenosis? I have found a little bi...
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By CorieA
My 15 y.o. daughter has been diagnosed with dysautonomia. She identifies as asexual. I've read that dysautonomia ca...
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PAF
By dpatel1
Is anyone else suffering from PAF? A relative of mine was diagnosed at the age of 25 years. What is the prognosis/ a...
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limonteeApr 04
team77Aug 07, 2012
kelli600Aug 06, 2012
stacey555Sep 02, 2008
team77Aug 23, 2008
17
By rhonda1017 Blank
Hi, I apreciate any insight or help with this question. I am a 45 yr. old F that worked full-time as a kinde...
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By Djanon03
Im 19 and I have been back and forth to the drs witch tachycardia and hypertension for the past 4 years , i was sent ...
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By Ball123
Does anyone know anything about valsalva headaches and POTS? Can POTS cause headaches associated with straining, coug...
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By Ball123
I suffer from headaches and head pains and I noticed that my symptoms always get worse when I have a cold or a flu. I...
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fattrobbMar 30
fattrobbMar 30
Ball123Mar 30
fattrobbMar 30
Poppy7402Mar 30
8
By fattrobb
I am a 43 year old male, overweight and pre-diabetic. My health has been deteriorating over the past couple of years...
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3
By Ball123
POTS sufferers don't necessarily have associated headaches but POTS is known for sometimes creating weird headaches. ...
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HeiferlyBlankOct 15, 2013
beautifulrainbowOct 07, 2013
kkryleeDec 17, 2011
28
By kkrylee Blank
My 16 yr old daughter has had numerous symptoms since Oct 4th, 2007: Continuous headache at base of skull, con...
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HeiferlyBlankFeb 24, 2011
CruBee44Feb 23, 2011
HeiferlyBlankFeb 23, 2011
HeiferlyBlankFeb 11, 2011
5
By CruBee44 Blank
Hello! I am a 26 year old female with inappropriate sinus tachycardia (IST), displaying all symptoms. I recently had ...
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ChessurMar 22
Ashmarie101Aug 16, 2013
Ashmarie101Aug 16, 2013
HeiferlyBlankAug 11, 2013
6
By Ashmarie101 Blank
I hope today is going well for all you! After every blood test and MRI and CR scans coming back normal, I found out I...
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By SeanMichael24
Can you die from POTs ? Another question is can it cause long term health concerns such as heart failure etc.. ?
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scotti562Mar 23
Mian01Mar 22
scotti562Mar 03
scotti562Mar 03
laurab63Mar 03
15
By scotti562
I have a 13yr old son with POTS, does anybody else find in the summer months, symptoms are so....... much worse? Even...
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By jen201041 Blank
I have POTS and am supposed to go to the Mayo Clinic in Minnesota this winter. I'm curious who has been to Mayo befor...
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By Niko_Saka
Let me start by saying thank you for taking you time to read this. I started having Shoulder pain about 8 months a...
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fattrobbMar 19
1
By MadiBogden
I believe I have dysautonomia. The first symptoms that have shown up are digestive related. In one day ill go from be...
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fattrobbMar 19
2
By AlishaDanae
Hello all, I was just diagnosed at the MAYO clinic with POTS. One of my symptoms is muscle twitching. Anyone else...
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2
By laurab63
I am having an upset stomach when I drink Gatorade. Am guessing it is the sugar. Anyone else have this problem and/...
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