Dysautonomia (Autonomic Dysfunction) Community
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This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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19082554 tn?1472039505
By DKMickel
My doctor recommended that I go to Northwestern University in Chicago to see a specialist for POTS. But they won't ta...
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maruzza2Aug 19
TandIHicksJan 19, 2011
Marinella82Sep 14, 2010
nec29Aug 26, 2010
CinainsJul 25, 2009
8
By Cinains Blank
Over the past 5 months I've had strange symptoms. It all began in February of this year. While standing on the trai...
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Dianna64Aug 19
Dianna64Aug 19
2
By peterlodf
Hello, my name is Peter and I am 22 years old. The last two months I suffer from orthostatic intolerance. When I stan...
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Dianna64Aug 19
dysautonomicDec 19, 2009
HeiferlyBlankDec 15, 2009
20
By acesew Blank
I have another question. Do any of you have trouble with gaining weight or not being able to lose it. I have gained...
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By Madison_lawson
I am a 17 year old female. I was diagnosed with chronic nausea 4 years ago and have just recently came over the POTS ...
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Dianna64Aug 19
Dianna64Aug 19
vetiver2Mar 16
3
By narobi69
I am a doctor of alternative healing and if you need help I am here to assist you in a recovery. Would you like me to...
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1
By TriFrog77
Hi! I am a 31 year old female in otherwise healthy condition but need help figuring out whats going on with me in th...
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shannonkimSep 25, 2011
HeiferlyBlankSep 23, 2011
LivingInHopeSep 06, 2011
4
By cathyst Blank
Is it true that people with POTS are more prone to kidney stones??? I read that, but wondering if anyone else has ha...
7205189 tn?1447798338
By NicoleAdia
At least once or twice a month I wake up in the middle of the night with an episode that goes like this: Within two ...
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By RJKR
I was diagnosed with POTS and NCS a few years ago. I was doing really well for a while but now it seems the my blood ...
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quinn_lAug 03
quinn_lAug 03
jennkApr 14, 2009
HeiferlyBlankApr 14, 2009
jennkApr 13, 2009
12
By jennk Blank
We were just told our 7yr old son could have autonomic dysfunction because of the symptoms he has. I have been readi...
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MallseAug 02
tkimberSep 13, 2011
montgomery0207Sep 13, 2011
LivingInHopeSep 12, 2011
LivingInHopeSep 12, 2011
12
By JMH0217 Blank
Hi, This is the first time I have posted anything, I am hoping someone has some input. My daughter is 14 and was d...
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By clairelivvy
My daughter has been diagnosed with p.o.t.s. she is only 7 and today Joined in a football game with her friends af...
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By EDSer43
Lately my heart seems to be acting up making it hard to breath, feeling nauseated, getting dizzy and I get headaches ...
1399250 tn?1436946897
potsladyJun 20, 2012
LivingInHopeMay 18, 2012
lfreem02May 18, 2012
hippychic258May 17, 2012
24
By NoFluxes Blank
I've had POTS since late October 2008 or so, I have been to several doctors and have tried several medications as wel...
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lindakayfrenchNov 08, 2015
thyquestionsJul 22, 2010
HeiferlyBlankJul 21, 2010
LivingInHopeJul 21, 2010
7
By thyquestions Blank
I posted this question in the Neurology forum before seeing this Dysautonomia forum. I was recently diagnosed with a...
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achilleaJul 17
Curly03Jul 06
Anisha12May 12
wendygsdMay 05
4
By wannathrive_21
Does anyone experience a rise in blood pressure and heart rate when they stand up or do slight exertion? Also, my he...
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By Hollygal99
Hi. I am new here. I have recently been diagnosed with pots type dysautonomia and also a form of super ventricular ta...
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Eryn09Jul 06
Karen196719851990Apr 14, 2015
Scarlett2001Nov 14, 2014
debkrollsJul 05, 2014
debkrollsJul 05, 2014
17
By Joyce0218 Blank
I am looking for a Dr. who treats POTS in Illinois. My daughter was diagnosed with POTS at Mayo Clinic in MN several ...
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By MCR1233211
I have Postural Orthostatic Tachycardia Syndrome (I worry I don't because i've been diagnosed without the title table...
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