Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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By Pounami
My 16 year old daughter started experiencing fatigue 2 years ago, then headaches (constant) and after multiple visits...
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HeiferlyBlankMay 27, 2010
pepito6May 26, 2010
HeiferlyBlankMay 25, 2010
pepito6May 25, 2010
10
By pepito6 Blank
Does anyone suffer from sleep apnea? Could this be part of all the symptoms of POTS? I use a bi-pap machine to slee...
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By chrisconn1954
I have now and have had for over twenty years a variety of symptoms and all are on the list of markers for dysautonom...
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Anisha12May 12
wendygsdMay 05
2
By wannathrive_21
Does anyone experience a rise in blood pressure and heart rate when they stand up or do slight exertion? Also, my he...
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dysautonomicDec 19, 2009
HeiferlyBlankDec 15, 2009
dysautonomicDec 15, 2009
susieqdouNov 20, 2009
18
By acesew Blank
I have another question. Do any of you have trouble with gaining weight or not being able to lose it. I have gained...
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ayl291May 01
LivingInHopeJul 24, 2013
WestienutJul 23, 2013
LivingInHopeApr 29, 2012
gunnjohanneApr 26, 2012
18
By Charbt Blank
If you have been diagnosed with Postural Orthostatic Tachycardia Syndrome and/or various forms of autonomic dysfuncti...
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mick645Dec 10, 2013
mick645Nov 20, 2013
jayjay1983Nov 18, 2013
14
By mick645 Blank
I have night time bradycardia where my heart slows way down when I am in REM sleep. Night time monitoring of my hear...
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mtgardnerJun 28, 2011
none350Jun 28, 2011
HeiferlyBlankFeb 11, 2011
laurab2818Feb 09, 2011
19
By mtgardner Blank
I have had a tendency toward dry skin all my adult life and have a variety of creams I use. Lately though, and I thi...
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BejindaApr 14
mvd1Feb 22
mvd1Feb 22
limonteeApr 04, 2014
21
By rhonda1017 Blank
Hi, I apreciate any insight or help with this question. I am a 45 yr. old F that worked full-time as a kinde...
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HeiferlyBlankOct 28, 2011
sconesailOct 27, 2011
Dingy63Oct 27, 2011
14
By LaLa4 Blank
Hi All, So I just got back from the Cleveland Clinic in Ohio and I thought I'd share my experience and see if you ...
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Lucia2844Aug 07, 2014
LivingInHopeApr 29, 2012
OnTheFence142Apr 14, 2012
DNP47Apr 13, 2012
7
By OnTheFence142 Blank
Hi All, I have recently been diagnosed w/POTS after a + TTT. It didn't induce syncope but rather the diagnosis wa...
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CJS2Apr 01
1
By bunnyblair
Hello. I was finally diagnosed with dysautonomia after having rapid heartbeat, insomnia, panick attacks and head and ...
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des242Mar 31
des242Mar 31
LivingInHopeAug 03, 2012
kewi990Aug 03, 2012
LivingInHopeJul 31, 2012
5
By kewi990 Blank
I've had issues with my kidney's for about ten years now - infections, reflux, stones, and scar tissue. For the...
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Kim2770Mar 29
narobi69Mar 14
2
By cpinzon85
For many years I've been struggling with different health problems. Last year I was able to get answers to my main qu...
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vetiver2Mar 16
1
By narobi69
I am a doctor of alternative healing and if you need help I am here to assist you in a recovery. Would you like me to...
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narobi69Mar 14
2
By EDSPOTS Blank
Hi My 24 year old daughter living in NYC is looking for a dr who knows how to treat POTS that is caused by EDS. Her ...
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By narobi69
Who needs my help to get rid of some of the problems that your being faced with?
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HeiferlyBlankMar 13
1
By Sophiab123
I recently went to the cardiologist and got the diagnosis of vasomotor instability. For the past several years I have...
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cbeck32Mar 04
lfreem02May 10, 2012
HeiferlyBlankMay 10, 2012
lfreem02May 05, 2012
7
By lfreem02 Blank
I have read that there can be an adjustment period, but not sure how long is normal. My lightheadedness and tremors ...
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beema36Mar 24, 2011
tkimberMar 23, 2011
HeiferlyBlankMar 23, 2011
tkimberMar 22, 2011
HeiferlyBlankMar 22, 2011
8
By tkimber Blank
Hi All, I have had to call the paramedics a few times this month due to what my doctor calls autonomic crisis. I ha...
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