Dysautonomia (Autonomic Dysfunction) Community
This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.
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By sallymanda May 18, 2013
My 10 year old son has had symptoms of dysautonomia for the past six months. Right now, his neurologist's diagnosis i...
By JCappiello May 20, 2013
So after a lot of trial and error with my electrophysiologist - he believes I do not have POTS of a peripheral origin...
Red_StarMay 17
1
By letsfigureoutpots May 17, 2013
In all my reading thus far, with all the myriad associative causes for secondary POTS, what I suspect they may all ha...
3
By hopeless2786 May 01, 2013
I have had a history of inappropriate sinus tach. for many years. About two months ago, i stood up one day from a sea...
25
Hi,
I just came back from Cleveland Clinic and I tested positive on the tilt table for POTS, but they also to...
neurasthenicMay 06
TaraLynn77May 01
2
By neurasthenic Apr 28, 2013
I get weird brief episodes of blood pressure extremes like 157/134, or 190/110, but can also have low/normal BP. My h...
4
Ok so, I've been diagnosed with h form of pots for over a year now and I've discovered and beaten Multiple Myeloma in...
Civilgirl7May 01
RachelLynn1311Apr 06, 2012
Speedy88Mar 02, 2012
potsygirlMar 01, 2012
KellysavedbygraceDec 28, 2011
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I don't have a question, but wanted to share some information with the members of this site. Dr. Charles R. (Randy) ...
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Hello! I was excited to find out that there is a dysautonomia forum out there! Isn't it great that we can be connecte...
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I have been doing research regarding a condition I have (high standing heart rate, dizzy, tired, etc). It looks like ...
LivingInHopeApr 27
1
By dave1726 Apr 27, 2013
22 year old male, healthy but series of perplexing life-long symptoms. Some odd findings recently include:
1.) Pro...
I posted this under neurocardiogenic, as one of my son's doctors mentioned vasovagol, but we are not really sure what...
LivingInHopeApr 25
1
By markia988 Apr 24, 2013
Lately, I have been noticing that mostly when I am anxious, or stressed I feel some pains in the chest. Also when I w...
4
By bsr1962 Apr 17, 2013
Hi, this is my first post! I have had symptoms since January, gone to multiple specialist and still no diagnosis. It ...
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By JCappiello Apr 12, 2013
Hi Everyone... My electrophysiologist is having problems finding the right medication to treat my POTS and IST. I am...
4
By Faith1o1 Mar 13, 2013
Recently, I've noticed that my heart rate drops really low when I lay down to go to sleep at night... Like mid 40's-5...
3
By invisiblyme Apr 18, 2013
i have been having terrrible problems with swelling in my arms and hands with pain. i seem to always feel bad with c...
4
By sarahATX Apr 14, 2013
Hi everyone. This is my first post here, so I'm sorry it's so long, bear with me!
I'm a 34 year old female. Latel...
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By JCappiello Apr 02, 2013
Hi Everyone,
I was just told by my electrophysiologist last Tuesday that I am "disabled" and he will not clear me ...
Does anyone know of a Dysautonomia Clinic in California? I heard there is one at UC Davis but couldn't find it online...
Dysautonomia (Autonomic Dysfunction) Community Resources
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