Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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By MichaelDul
Hi there, reading about the diagnosis of Postural Orthostatic Tachycardia Syndrome I got a little bit confused abo...
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cmmd22 hours
HeiferlyBlankJul 25
2
By rrva1
I'm not sure what direction to go now. My daughter has been passing out for over 2 yrs. She recently had a EMU study ...
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cmmd22 hours
HeiferlyBlankJul 25
3
By martinutrecht
Hello, I'm a 45y old man, living in the Netherlands. I have serious fatigue problems for more than 10 years. Since...
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Midas31Jul 29
KellyGottMay 19
HeiferlyBlankJan 14
dosheeJan 14
19
By HeiferlyBlank Blank
I know many of us agonize over the decision of whether to rely on local doctors, travel perhaps hundreds upon hundred...
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Larobin76Jul 26
HeiferlyBlankJul 25
2
By jtol946100
Did the medication help relieve your symptoms. I debating whether I should try it. My high heart rate is very uncomfo...
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By Syershov
Does anyone know how I can best cope with the physical demands of the job? Also, does anyone know exactly what the ph...
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meliaaJul 26
HeiferlyBlankJul 25
3
By meliaa
I was wondering if anyone else with pots experiences excruciating chest pain? Not just tightness or discomfort, but ...
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LilyminJul 25
HeiferlyBlankJul 25
2
By Lilymin
Does anyone know a Doctor that specializes in POTS in Michigan they can recommend?
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HeiferlyBlankJul 25
1
By anewsyd
Today I saw my primary care physician. I suspect that I have POTS. I've been dealing with chest pain, shortness of br...
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HeiferlyBlankJul 25
2
By ezeden
My daughter has just been diagnosed with dysautonomia. We have been going to a gastroenterologist for months and had ...
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HeiferlyBlankJul 25
greglhJul 16
2
By myjanelle
I have been diagnosed with vasovagel syncope which is a fainting when your blood pressure lowers. This fainting seems...
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By TiredMomma1988
Sorry but this will be long but please respond if you have any info or same symptoms. I feel so alone with this illne...
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Mhamp17Jul 23
1
By kayhill8
Hi, my 13 year old has been recently tentatively diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome). She...
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By 0224
I was writing to see if anybody on this blog has Chiari and POTS? I was diagnosed with Chiari one year ago and had d...
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DaninMNJul 02
binder58Sep 22, 2010
lj9803Sep 10, 2010
globalhikingSep 09, 2010
NYCpotsSep 08, 2010
11
By lj9803 Blank
Hi has anybody on here found any meds that help with the stomach problems of POTS. I feel like I have a lead cookie i...
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JenniferWATLOct 15, 2012
globalhikingSep 09, 2010
Marinella82Sep 08, 2010
vbc2000Sep 08, 2010
7
By Marinella82 Blank
About a year ago I had lyme disease in my spinal fluid and brain and at the same time developed Tackycardia and Vasov...
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SethraJun 28
1
By ahmedhass
I'm 35 years living in a hell since 6 months. I have many unexplained symptoms but I'm sure it is either POTS or Afib...
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kfailoniJun 23
HeiferlyBlankFeb 15
Raisin1Jan 24
4
By Joey2324 Blank
Hi, My name is joey and i am 26 years old. I fell ill with a myriad of horrible symptoms almost 2 years ago (20months...
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3
By steph1108
Im scared and unsure what im supposed to expect with this. Its been a bad weekend, anxiety, blood pressure up and dow...
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CalusoJun 16
CalusoApr 10
20
By Caluso Blank
Please help, has anyone seen severe mood swings in pots? My son is now 18 years old and was diagnosed 9 months ago w...
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