Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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By kbahler
I am about to order knee high toe less compression stockings for edema in legs and knees and worry they will make my ...
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By kbahler
I am having edema in my legs and knees and my doctor wants me to use compression stockings. I have neuropathy in my t...
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HeiferlyBlank20 hours
HeiferlyBlankNov 20
4
By SheriLynn1980
I've been sick for about 6 months. Pcp mentioned pots but I think it's a endocrine issue. History of reactive hyp...
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HeiferlyBlank20 hours
2
By SheriLynn1980
For about 6 months I've experienced the following symptoms : Lightheaded, dizzy Can't stay awake, constant fatigue...
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HeiferlyBlankNov 20
GirlGhostNov 17
2
By GirlGhost
Hi all! My question isn't for me but rather my son. He is 20 years old, currently in the military and stationed ov...
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HeiferlyBlankJul 23
2
By EveNida
Hello, my name is Eve, and I'm new to this forum. A little background on me: I'm 22 years old, was diagnosed with POT...
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HeiferlyBlankFeb 12, 2012
CHRISTYDRAKEFeb 12, 2012
HeiferlyBlankFeb 12, 2012
HeiferlyBlankFeb 12, 2012
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By ablanken Blank
My 21 yo athletic daughter began feeling tired, had some dizziness, difficulty concentrating, occasional headache, be...
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By rhonda1017 Blank
Hi, I just came back from Cleveland Clinic and I tested positive on the tilt table for POTS, but they also to...
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15
By Joyce0218 Blank
I am looking for a Dr. who treats POTS in Illinois. My daughter was diagnosed with POTS at Mayo Clinic in MN several ...
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HeiferlyBlankNov 09
1
By IngallsFan
Hello all! I am new to this site. After a very abnormal Tilt Table Test, my Cardiologist told me that I have a very c...
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HeiferlyBlankNov 09
2
By ShweeMcD
Hi, my daughter was just diagnosed less than a week ago with DA. I am heavily in the research phase and would love al...
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HeiferlyBlankNov 09
IcannotNov 06
maithNov 05
HeiferlyBlankOct 10, 2013
HeiferlyBlankOct 10, 2013
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By the_mighty_gooch Blank
Does anyone know of a Dysautonomia Clinic in California? I heard there is one at UC Davis but couldn't find it online...
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HeiferlyBlankNov 09
IcannotNov 06
2
By Despairjam
Does anybody suffer nausea gastrointestinal problems severe fatigue tremors trouble sleeping headaches? I have a hiat...
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HeiferlyBlankNov 09
Red_StarOct 20
2
By Bamboozlem
Hi, I have EDS Hypermobile (diagnosed last year) and POTs (diagnosed this Summer). First question: understand...
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DonnaBugsNov 05
sue_1234Dec 22, 2011
sue_1234Nov 04, 2010
sue_1234Nov 04, 2010
TXflutterbyOct 25, 2010
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By TXflutterby Blank
Hi everyone. I live in Nacogodoches, TX and I am looking for a specialist in Houston. I was raised in Houston ...
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By curiousmom13
I live in Clay County, Florida. My 16 year old daughter has been diagnosed with Dysautonomia after years of misdiagno...
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HeiferlyBlankJan 18, 2013
lizzy222Jan 17, 2013
cathystNov 30, 2009
10
By cathyst Blank
Would anyone know of a "decent" dr. in preferably south Florida dealing with autonomic issues. I really do not want ...
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HeiferlyBlankOct 08
JMOgdenOct 04
anomaleJun 28
Hannah_Marie13Jan 05, 2012
AsthmaPOTSNov 01, 2011
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By laurab2818 Blank
Anyone else have asthma and POTS? I went to Cleveland Clinic and they recommended beta blocker, calcium channel bloc...
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HeiferlyBlankOct 08
2
By gemme771
this happened a few times to me i am laying down and i feel that i am going to faint things look a little dim and my...
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2
By drocnodiagnosis
I have a provision dx of dysautonomia based on an understanding PCP's observance of an episode of bradycardia in his ...
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