Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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dysautomom1 minute
dysautomom25 minutes
HeiferlyBlankFeb 22
3
By GAreb169
I have been home bound for nearly 3 years. If I am exposed to any heat, or much activity, I go into what I call heat ...
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dysautomom55 minutes
HeiferlyBlankFeb 24
2
By thedmxdj
my dysautonomia has been getting worse over the last year... should i be enquiring about a degenerative failure of my...
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HeiferlyBlankFeb 23
boulboulFeb 23
HeiferlyBlankFeb 22
3
By boulboul
After extensive research im now sure that post my open heart surgery last year I developped dysautonomia and now im ...
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HeiferlyBlankFeb 22
LHgirlFeb 19
Pattycake69Nov 18, 2014
HeiferlyBlankFeb 12, 2012
CHRISTYDRAKEFeb 12, 2012
15
By ablanken Blank
My 21 yo athletic daughter began feeling tired, had some dizziness, difficulty concentrating, occasional headache, be...
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HeiferlyBlankFeb 20
limonteeFeb 20
LaLa4Sep 27, 2010
CHRISTYDRAKESep 26, 2010
10
By laurab2818 Blank
Halbashes' recent post about her latest concussion made me think about something I have been meaning to ask. Do othe...
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By queenofhearts316
Hi everyone, I am only 22 and while the Doctors here are unfamiliar I have the symptoms of Pots.My heart rate increas...
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HeiferlyBlankFeb 19
HeiferlyBlankFeb 17
HeiferlyBlankNov 29, 2014
4
By HeiferlyBlank
Hi. I'm Heiferly and I'm the CL (Community Leader) here in the Dysautonomia forum. (I'm also co-CL of the ostomy foru...
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3
By Joey2324
Hi, My name is joey and i am 26 years old. I fell ill with a myriad of horrible symptoms almost 2 years ago (20months...
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HeiferlyBlankFeb 15
CalusoFeb 14
HeiferlyBlankFeb 04
CalusoFeb 04
HeiferlyBlankFeb 04
10
By Caluso
Please help, has anyone seen severe mood swings in pots? My son is now 18 years old and was diagnosed 9 months ago w...
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HeiferlyBlankFeb 15
1
By queenofhearts316
Hi everyone just wondering if anyone has had luck with helping symptoms by taking magnesium? I will try anything to h...
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HeiferlyBlankFeb 15
HeiferlyBlankFeb 13
3
By anonymous1717
I've had a myriad of seemingly random symptoms -- lightheadedness, almost blacking out, intermittent palpitations, co...
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HeiferlyBlankFeb 10
cjvisionFeb 05
HeiferlyBlankFeb 04
3
By cjvision
I am inquiring to see if anyone has had their wisdom teeth pulled while under the influence of POTTS disease? And if ...
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HeiferlyBlankFeb 05
HeiferlyBlankFeb 04
4
By markiemark92
For about two years now, my GP and several specialist have been trying to figure out what is wrong with me. I have da...
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HeiferlyBlankFeb 04
PamOJJan 22
HeiferlyBlankNov 29, 2014
Leena425Nov 29, 2014
dotty9947Aug 15, 2013
14
By Richard1030 Blank
I have been feeling pretty bad since June. I have had nausea, shortness of breath, dizziness, fatigue, weakness, chi...
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HeiferlyBlankFeb 04
1
By pottypauline
i have just started on midodrine to help with my POTs condition I have been on it 3 weeks now but since starting it I...
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HeiferlyBlankFeb 04
1
By nitegracie23
Hello everyone, I'm sure many of you are in the middle of your long road to a diagnosis or can at least remember t...
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HeiferlyBlankJan 20
AmmobJan 20
HeiferlyBlankJan 19
AmmobJan 19
HeiferlyBlankJan 19
5
By Ammob
Hi all, I need some help and advice regarding my symptom. Over the last couple of months, I have been having the fol...
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HeiferlyBlankJan 14
dosheeJan 14
AuntCarolDec 09, 2014
Shay1125Feb 07, 2014
HeiferlyBlankJun 27, 2009
16
By HeiferlyBlank Blank
I know many of us agonize over the decision of whether to rely on local doctors, travel perhaps hundreds upon hundred...
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Godsgirl5Jan 08
tonyadApr 13, 2010
kelly1258Apr 13, 2010
3
By tonyad Blank
I have been thinking about you and your daughter. I hope that she is getting better w/ each day. Take Care, ~...
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KavbearOct 14, 2010
DysautonomiaPrisonOct 14, 2010
highflyinOct 14, 2010
DysautonomiaPrisonOct 13, 2010
8
By highflyin Blank
Do nerves repair themselves? My ANS is not quite right as I am susceptable to low blood pressure from dehydration and...
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Heiferly
Howard, OH