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Dysautonomia (Autonomic Dysfunction) Community
This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.
1 - 20 (of 1877) questions
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Avatar universal
Hi, I am a 36 yo female newly diagnosed with POTS after a year long mysterious illness. I started feeling crummy after flu shot, then fo...
12 answers | 1 comment |
5915940 tn?1376622234
For some reason this didnt post the first time. I have been diagnosed with POTS after a series of tests carried out by my cardiologis...
Avatar universal
Ok. So ill be taking a shower and it can be cold, warm or semi hot and out of nowhere i cant breath at all, and i have seats in my shower...
Avatar universal
Hi. My daughter has a diagnosis of POTS. This ce on shortly after tking meds for autoimmune condition hashimotos. with each day she gets ...
1399250 tn?1436946897
I've had POTS since late October 2008 or so, I have been to several doctors and have tried several medications as well as exercise and di...
25 answers |
612876 tn?1355518095
"You just left it on the . . . where the food was." Does anyone else wind up saying nonsensical things like this because they get stuc...
16 answers | 1 comment |
Avatar universal
I am looking for a dysautonomia doctor in Shreveport Louisiana
4 answers |
Avatar universal
Hi All, I have recently been diagnosed w/POTS after a + TTT. It didn't induce syncope but rather the diagnosis was based on a severe ...
9 answers |
Avatar universal
Iv had pots (diagnosed) now for around 18months, had many different tests to find an underlying cause but so far no luck. I was taking ...
Avatar universal
I have trouble bending down. Like tying my shoes etc. It feels like all my blood rushes to my head and making it explode (a bit exaggerat...
3 answers | 1 comment |
Avatar universal
Hello! I was excited to find out that there is a dysautonomia forum out there! Isn't it great that we can be connected with other people ...
20 answers | 1 comment |
Avatar universal
Hello! I am new to the community, and I have many questions. First, a little background...After many years of misery and misdiagnoses, I...
2078882 tn?1333489661
HI I am new to this forum, and looking for a neurologist close to me that has experience or expertise in dysautonomia or POTS. I saw a ne...
7 answers |
Avatar universal
My issues ... Possible thyroid per previous natural doctor, thyroid response supplements were given sent me to the er. My body is real...
20244581 tn?1493306022
I have terrible week long flares where I'm incapacitated from skyrocketing bp and pulse upon standing, migraine ,weezing feeling ,nausea....
2 answers | 1 comment |
Avatar universal
I feel dizzy and breathless...as though the automatic functions of my body are no longer working. I quite often stop breathing when I'm f...
3 answers |
16361457 tn?1449656421
Hello. I was finally diagnosed with dysautonomia after having rapid heartbeat, insomnia, panick attacks and head and chest pressure for 8...
4 answers | 1 comment |
Avatar universal
I have Orthostatic diastolic Hypertension in which my BP goes up sky high at least twice a day but no doctor is treating me for this. ...
17 answers |
Avatar universal
I am 36 years old, female. I have been diagnosed with neurogardiogenic syncope with afib and premature arterial contractions. I pass out ...
Avatar universal
Has anyone seen Dr. Svetlana Blitshteyn or heard anything about her treatment of Dysautonomia? I saw her listed as a medical advisor on ...
4 answers | 1 comment |
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