Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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naomisilvAug 20
naomisilvAug 19
HeiferlyBlankAug 18
4
By naomisilv
Hi I have been diagnosed with Dysautonomia and POTS. I was very happy to get the diagnosis after 8 years of weakne...
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EEustisAug 19
HeiferlyBlankAug 18
2
By EEustis
Hello everyone, Question, especially for POTS folks: I recently developed a polyneuropathy after vaccination. It is...
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HeiferlyBlankAug 18
2
By AWDRG0096
I didn't really know where to post this. Perhaps someone here can help. This is a kind of odd phenomenon I've noticed...
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Lucia2844Aug 07
LivingInHopeApr 29, 2012
OnTheFence142Apr 14, 2012
DNP47Apr 13, 2012
7
By OnTheFence142 Blank
Hi All, I have recently been diagnosed w/POTS after a + TTT. It didn't induce syncope but rather the diagnosis wa...
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ava2Jun 03, 2012
Family2011Sep 18, 2011
LivingInHopeMar 28, 2011
HeiferlyBlankMar 28, 2011
7
By arpita124 Blank
I haven't been given a diagnosis and I went to a neurologist because after researching my symptoms I suspected autono...
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naomisilvAug 19
HeiferlyBlankAug 18
2
By naomisilv
Hi All I have been diagnosed with POTS and Neurally mediated dysautonomia My GP has suggested that I get 8 liters o...
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HeiferlyBlankAug 18
1
By Tiffiny76
I have been experiencing issues since I was a teenager. I am now 38 & still undiagnosed. I should find out on Monda...
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RiddleyAug 16
pkt888Aug 15
2
By Riddley
Four months ago, I began to have these episodes, mostly in the late morning or late at night, which began with tachyc...
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HeiferlyBlankAug 04
HeiferlyBlankAug 04
2
By Dynaverse
To all you POTSIES out there, to what degree do you get shortness of breath if at all? When I walk more than 2kms ...
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HeiferlyBlankAug 04
HeiferlyBlankAug 04
2
By denisef_0324
I have been diagnosed with Neurocardiogenic Syncope for about 7 years, but I always knew there was something wrong wi...
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HeiferlyBlankAug 04
Ball123Jul 27
HeiferlyBlankJul 26
4
By MadiBogden
Okay I'm 16 and I can't remember how long but for the longest time I would pass out. I would pass out from getting up...
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HeiferlyBlankAug 04
1
By Dynaverse
So, I had orthostatic intollerance for about 4 years, and I was living a very normal life and dealing with all the sy...
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Ball123Jul 27
DynaverseJul 24
HeiferlyBlankJul 23
4
By sam_amilia
Hi all, I am just wondering if you could please go I to detail about your POTS symptoms. My story is, about 11 ye...
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Kai_spJul 26
HeiferlyBlankJul 26
Kai_spJul 23
HeiferlyBlankJul 23
5
By Kai_sp
I am 16 wks pregnant and in my 30s. No health issues except for anxiety for 3 about years now. Recently, I had hypert...
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HeiferlyBlankJul 26
1
By Notgoingdownyet
Hello everyone. I just found out I have dysautonomia. I've been bedridden since December 2013. I tested positive for ...
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By TRAVELERSUNITE
I was recently diagnosed w/ autonomic dysfunction, so I haven't had a lot of discussion time w/ a doctor yet. I'm tra...
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By Dynaverse
So.. I need some help figuring out what's going. Please read and give me your thoughts. Basically, 4 years ago, I ...
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HeiferlyBlankJul 23
AdamqtnzJul 09
est_sunshineOct 17, 2012
LivingInHopeSep 21, 2012
DancingGiraffeSep 21, 2012
11
By DancingGiraffe Blank
Hi, I recently saw a neurologist who said I have pandysautonomia. He also said there are tests to see if this is aut...
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HeiferlyBlankJul 23
1
By pots123
I am 40 y.o female who has been battling POTS for at least 5 years. Tried numerous meds. Currently taking midodrine...
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HeiferlyBlankJul 23
1
By EveNida
Hello, my name is Eve, and I'm new to this forum. A little background on me: I'm 22 years old, was diagnosed with POT...
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