Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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By clairelivvy
My daughter has been diagnosed with p.o.t.s. she is only 7 and today Joined in a football game with her friends af...
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By EDSer43
Lately my heart seems to be acting up making it hard to breath, feeling nauseated, getting dizzy and I get headaches ...
1399250 tn?1436946897
potsladyJun 20, 2012
LivingInHopeMay 18, 2012
lfreem02May 18, 2012
hippychic258May 17, 2012
24
By NoFluxes Blank
I've had POTS since late October 2008 or so, I have been to several doctors and have tried several medications as wel...
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lindakayfrenchNov 08, 2015
thyquestionsJul 22, 2010
HeiferlyBlankJul 21, 2010
LivingInHopeJul 21, 2010
7
By thyquestions Blank
I posted this question in the Neurology forum before seeing this Dysautonomia forum. I was recently diagnosed with a...
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achilleaJul 17
Curly03Jul 06
Anisha12May 12
wendygsdMay 05
4
By wannathrive_21
Does anyone experience a rise in blood pressure and heart rate when they stand up or do slight exertion? Also, my he...
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By Hollygal99
Hi. I am new here. I have recently been diagnosed with pots type dysautonomia and also a form of super ventricular ta...
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Eryn09Jul 06
Karen196719851990Apr 14, 2015
Scarlett2001Nov 14, 2014
debkrollsJul 05, 2014
debkrollsJul 05, 2014
17
By Joyce0218 Blank
I am looking for a Dr. who treats POTS in Illinois. My daughter was diagnosed with POTS at Mayo Clinic in MN several ...
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By MCR1233211
I have Postural Orthostatic Tachycardia Syndrome (I worry I don't because i've been diagnosed without the title table...
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By Goldyukr
Hello. I am new to this board. I have been searching for a diagnosis for 4 years and two weeks ago finally got some a...
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By TriFrog77
Hi! I am a 31 year old female in otherwise healthy condition but need help figuring out whats going on with me in th...
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wschrammJun 10
LivingInHopeSep 29, 2012
toriySep 27, 2012
Dancer54Sep 25, 2012
Dancer54Sep 25, 2012
13
By miamijnt Blank
I am a 49 year old women and I can only stand up[ for 10 minutes max and that is a struggle. I feel my heaart poundin...
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Birdie747Jun 04
1
By Pounami
My 16 year old daughter started experiencing fatigue 2 years ago, then headaches (constant) and after multiple visits...
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By Birdie747
Yes would like answers if possible to this complicated disorder ! Bowel diseases is known to cause problems to the a...
255722 tn?1452550141
LivingInHopeSep 01, 2011
dolfnlvrSep 01, 2011
LivingInHopeAug 31, 2011
tkimberAug 31, 2011
7
By dolfnlvr Blank
This one's new. I've struggled with vasovagal symptoms since I was 15 years old. So, I know that I faint for certai...
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IHPAJun 01
californiawoman298May 29, 2012
HeiferlyBlankJun 23, 2009
AireScottieJun 23, 2009
halbashesJun 22, 2009
7
By cathyst Blank
Hi, I have posted a few threads recently and hope I don't become a nuisance! Recently dx'ed with Autonomic Small ...
2078882 tn?1333489661
cougpharmAug 14, 2015
techiemom64Feb 07, 2014
reannacnDec 13, 2013
uniquelybeccaDec 12, 2013
6
By techiemom64 Blank
HI I am new to this forum, and looking for a neurologist close to me that has experience or expertise in dysautonomia...
886699 tn?1270783344
HeiferlyBlankMay 27, 2010
pepito6May 26, 2010
HeiferlyBlankMay 25, 2010
pepito6May 25, 2010
10
By pepito6 Blank
Does anyone suffer from sleep apnea? Could this be part of all the symptoms of POTS? I use a bi-pap machine to slee...
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By chrisconn1954
I have now and have had for over twenty years a variety of symptoms and all are on the list of markers for dysautonom...
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dysautonomicDec 19, 2009
HeiferlyBlankDec 15, 2009
dysautonomicDec 15, 2009
susieqdouNov 20, 2009
18
By acesew Blank
I have another question. Do any of you have trouble with gaining weight or not being able to lose it. I have gained...
1833449 tn?1333853101
ayl291May 01
LivingInHopeJul 24, 2013
WestienutJul 23, 2013
LivingInHopeApr 29, 2012
gunnjohanneApr 26, 2012
18
By Charbt Blank
If you have been diagnosed with Postural Orthostatic Tachycardia Syndrome and/or various forms of autonomic dysfuncti...
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