Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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Ball12315 hours
MadiBogden23 hours
HeiferlyBlankJul 26
3
By MadiBogden
Okay I'm 16 and I can't remember how long but for the longest time I would pass out. I would pass out from getting up...
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Ball12315 hours
DynaverseJul 24
HeiferlyBlankJul 23
4
By sam_amilia
Hi all, I am just wondering if you could please go I to detail about your POTS symptoms. My story is, about 11 ye...
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Kai_spJul 26
HeiferlyBlankJul 26
Kai_spJul 23
HeiferlyBlankJul 23
5
By Kai_sp
I am 16 wks pregnant and in my 30s. No health issues except for anxiety for 3 about years now. Recently, I had hypert...
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HeiferlyBlankJul 26
1
By Notgoingdownyet
Hello everyone. I just found out I have dysautonomia. I've been bedridden since December 2013. I tested positive for ...
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By TRAVELERSUNITE
I was recently diagnosed w/ autonomic dysfunction, so I haven't had a lot of discussion time w/ a doctor yet. I'm tra...
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By Dynaverse
So.. I need some help figuring out what's going. Please read and give me your thoughts. Basically, 4 years ago, I ...
3712143_tn?1347939865
HeiferlyBlankJul 23
AdamqtnzJul 09
est_sunshineOct 17, 2012
LivingInHopeSep 21, 2012
DancingGiraffeSep 21, 2012
11
By DancingGiraffe Blank
Hi, I recently saw a neurologist who said I have pandysautonomia. He also said there are tests to see if this is aut...
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HeiferlyBlankJul 23
1
By pots123
I am 40 y.o female who has been battling POTS for at least 5 years. Tried numerous meds. Currently taking midodrine...
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HeiferlyBlankJul 23
1
By EveNida
Hello, my name is Eve, and I'm new to this forum. A little background on me: I'm 22 years old, was diagnosed with POT...
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HeiferlyBlankJul 23
1
By mellyXbby
I have autonomic dysfunction yet the doctor never directly determined the exact type in general. I have had this for ...
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HeiferlyBlankJul 23
1
By Amyschi
Hello. I am very interested and would appreciate hearing from anyone who has been seen at the University of Toledo b...
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By GMays
Someone i love was diagnosed with Dysautonomia and am looking for a doctor for her. We live in Fort Worth and want ...
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HeiferlyBlankJan 18, 2013
lizzy222Jan 17, 2013
cathystNov 30, 2009
10
By cathyst Blank
Would anyone know of a "decent" dr. in preferably south Florida dealing with autonomic issues. I really do not want ...
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madprigMay 01
lia_joyApr 24
3
By madprig
I have felt like I have been in a dream since October 2013, after months of not knowing what was wrong I was diagnose...
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HeiferlyBlankJul 06
joylinkJul 06
robin5232Mar 12
elisha79Nov 20, 2013
halesred1Sep 17, 2013
32
By pepito6 Blank
Does anyone know of a good Dr.that treats dysautonomia (POTS) in South Florida?? I have been to the Cleveland clinic...
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HeiferlyBlankJul 06
HeiferlyBlankJun 28
Ball123May 01
23
By JSkrill Blank
Does anyone here know of any relationship with autonomic dysfunction and cervical stenosis? I have found a little bi...
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14
By Joyce0218 Blank
I am looking for a Dr. who treats POTS in Illinois. My daughter was diagnosed with POTS at Mayo Clinic in MN several ...
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HeiferlyBlankJun 28
2
By MomTo2Nics
This is a complicated question. I hope someone can help. My Son had a malformation removed from his spinal cord abo...
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CorieAJun 29
HeiferlyBlankJun 28
2
By CorieA
A study came out earlier this year showing a connection between autoantibodies and pots. http://www.dysautonomiainte...
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anomaleJun 28
Hannah_Marie13Jan 05, 2012
AsthmaPOTSNov 01, 2011
Grace5555Mar 06, 2010
AireScottieFeb 01, 2010
5
By laurab2818 Blank
Anyone else have asthma and POTS? I went to Cleveland Clinic and they recommended beta blocker, calcium channel bloc...
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