Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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Suzyqone27 minutes
maltesesdJul 27, 2008
halbashesJun 26, 2008
melipnycJun 22, 2008
halbashesJun 20, 2008
5
By melipnyc Blank
Hi, I've been diagnosed with right side Harlequin syndrome. I'm interested in talking with others who have this rare...
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By HeiferlyBlank
Hey everyone, your fearless leader (ha!) here. I just wanted to post a message and let everyone in our community know...
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delia311Apr 25
HeiferlyBlankApr 14
delia311Apr 09
3
By delia311
Hi, I'm new here. I'm 25, have 2 kids and wonderful supportive husband and way to may weird medical issues. I've be...
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HeiferlyBlankApr 14
1
By ellpea
Hi all. I was diagnosed with POTS last year, and through my own research I am very confident that that is my issue, d...
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Rocko230Apr 19
HeiferlyBlankApr 14
2
By Rocko230
Does anyone with POTS or HYPER POTS or autoimmune dysautonomia have demyelinating periphreal neuropathy? Doctors have...
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3
By MaddieC12321
Hello all. My name is Maddie and I am 17 years old. I am a female living in Oregon. I have been expiriencing dizzines...
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By VIVECAH
I have bradycardia. I was having blackout spells. My doctor put me on my the drain would work great about six months...
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By VIVECAH
It is supposed to read my doctor put me on midodrine
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By kayhill8
Hi, my 13 year old has been recently tentatively diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome). She...
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ny2caliApr 19
halbashesMar 04, 2009
2
By princess4969 Blank
I have been poked, prodded, and darn near disected..My symptoms started 9 years ago and I have had unexplained severe...
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PmarkerApr 18
LaLa4Oct 20, 2010
HeiferlyBlankOct 20, 2010
LaLa4Oct 20, 2010
vbc2000Oct 20, 2010
28
By ParrotPal Blank
Hello. Am new to medhelp. Is there anyone that can help with the names of physicians that can treat, diagnose, or h...
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HeiferlyBlankApr 14
momintexasJun 17, 2009
gracieandzacharyJun 04, 2009
chamesMay 27, 2009
8
By laurab2818 Blank
Has anyone gone to to Vanderbilt for evaluation and treatment? I'm considering trying to get into the clinic or also...
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Scarlett2001Nov 14, 2014
debkrollsJul 05, 2014
debkrollsJul 05, 2014
CHRISTYDRAKEJun 11, 2014
16
By Joyce0218 Blank
I am looking for a Dr. who treats POTS in Illinois. My daughter was diagnosed with POTS at Mayo Clinic in MN several ...
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CalusoApr 10
Rocko230Mar 26
HeiferlyBlankMar 21
18
By Caluso
Please help, has anyone seen severe mood swings in pots? My son is now 18 years old and was diagnosed 9 months ago w...
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dml1977Apr 08
dml1977Apr 08
HeiferlyBlankMar 03
21
By ablanken Blank
My 21 yo athletic daughter began feeling tired, had some dizziness, difficulty concentrating, occasional headache, be...
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1
By LausDeo
does anyone know of a dr--cardiologist or other--in Ocala Fl area who is familiar with POTS?
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By steph1108
Im scared and unsure what im supposed to expect with this. Its been a bad weekend, anxiety, blood pressure up and dow...
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tashad90Mar 26
tashad90Mar 26
tashad90Mar 26
HeiferlyBlankMar 15
tashad90Mar 14
11
By Seely7 Blank
I was diagnosed with dysautonomia almost a year ago. I recently found out I am pregnant. I am 10 weeks. My doctor has...
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HeiferlyBlankMar 21
1
By mamiJ
I have dysautonomia and have intermittent spasticity and weakness in arms and especially legs. I sometimes get contra...
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HeiferlyBlankMar 17
Nanna48Mar 16
HeiferlyBlankMar 15
3
By Nanna48
A great discussion here! Does anyone else think they may have sacral dysfunction? An important topic, as this is so m...
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Heiferly
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