Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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By CatheyP
Hello, I believe I may have a form of Dysautonomia, but it is not diagnosed yet. Has anyone found a good doctor to ...
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ConnieraAug 26
HeiferlyBlankJul 25
3
By ezeden
My daughter has just been diagnosed with dysautonomia. We have been going to a gastroenterologist for months and had ...
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dcdmitchAug 21
1
By LynseyT
Hello, Me and my Partner are caught up in a nightmare at the moment and don't know where to turn. 8 weeks ago in M...
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By lasel22
I posted this question in the Chiari forum but I thought it might be a good idea for me to post here as well. Sinc...
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KarendalAug 16
arpita124Mar 03, 2011
patient915Mar 03, 2011
mtgardnerMar 03, 2011
patient915Feb 28, 2011
5
By arpita124 Blank
I live in the Monterey Bay area of CA and I'm looking for a physician who has some knowledge and experience in treati...
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cougpharmAug 14
techiemom64Feb 07, 2014
reannacnDec 13, 2013
uniquelybeccaDec 12, 2013
uniquelybeccaDec 12, 2013
5
By techiemom64 Blank
HI I am new to this forum, and looking for a neurologist close to me that has experience or expertise in dysautonomia...
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Rocko230Aug 12
ahmedhassAug 04
2
By ahmedhass
hello I'm 36 y male suffering from horrible symptoms since 6 months, I have got a POTS syndrome with heart rate jum...
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By tandwstone
Diagnosed with: Gallbladder removed - 2005 Polysystic Ovary Syndrome - 2006 Diverticulosis - 2010 Stomach ulcers ...
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By Heartfreak
I'm a 28 year old female, and have been living with these unexplain symptoms, I do a lot of research and have came ac...
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MottecAug 09
SethraJun 28
2
By ahmedhass
I'm 35 years living in a hell since 6 months. I have many unexplained symptoms but I'm sure it is either POTS or Afib...
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By Jimsrv
I proceed to look up information on. DYSAUTONOMIA and I get multiple references to POTS????? Please explain.. ...
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By MichaelDul
Hi there, reading about the diagnosis of Postural Orthostatic Tachycardia Syndrome I got a little bit confused abo...
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cmmdAug 01
HeiferlyBlankJul 25
2
By rrva1
I'm not sure what direction to go now. My daughter has been passing out for over 2 yrs. She recently had a EMU study ...
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cmmdAug 01
HeiferlyBlankJul 25
3
By martinutrecht
Hello, I'm a 45y old man, living in the Netherlands. I have serious fatigue problems for more than 10 years. Since...
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Midas31Jul 29
KellyGottMay 19
HeiferlyBlankJan 14
dosheeJan 14
19
By HeiferlyBlank Blank
I know many of us agonize over the decision of whether to rely on local doctors, travel perhaps hundreds upon hundred...
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Larobin76Jul 26
HeiferlyBlankJul 25
2
By jtol946100
Did the medication help relieve your symptoms. I debating whether I should try it. My high heart rate is very uncomfo...
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By Syershov
Does anyone know how I can best cope with the physical demands of the job? Also, does anyone know exactly what the ph...
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meliaaJul 26
HeiferlyBlankJul 25
3
By meliaa
I was wondering if anyone else with pots experiences excruciating chest pain? Not just tightness or discomfort, but ...
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LilyminJul 25
HeiferlyBlankJul 25
2
By Lilymin
Does anyone know a Doctor that specializes in POTS in Michigan they can recommend?
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HeiferlyBlankJul 25
1
By anewsyd
Today I saw my primary care physician. I suspect that I have POTS. I've been dealing with chest pain, shortness of br...
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