Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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By steph1108
Im scared and unsure what im supposed to expect with this. Its been a bad weekend, anxiety, blood pressure up and dow...
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Rocko230Mar 26
HeiferlyBlankMar 21
CalusoMar 20
HeiferlyBlankMar 14
CalusoMar 11
15
By Caluso
Please help, has anyone seen severe mood swings in pots? My son is now 18 years old and was diagnosed 9 months ago w...
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By LausDeo
does anyone know of a dr--cardiologist or other--in Ocala Fl area who is familiar with POTS?
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tashad90Mar 26
tashad90Mar 26
tashad90Mar 26
HeiferlyBlankMar 15
tashad90Mar 14
11
By Seely7 Blank
I was diagnosed with dysautonomia almost a year ago. I recently found out I am pregnant. I am 10 weeks. My doctor has...
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HeiferlyBlankMar 21
1
By mamiJ
I have dysautonomia and have intermittent spasticity and weakness in arms and especially legs. I sometimes get contra...
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HeiferlyBlankMar 17
Nanna48Mar 16
HeiferlyBlankMar 15
3
By Nanna48
A great discussion here! Does anyone else think they may have sacral dysfunction? An important topic, as this is so m...
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HeiferlyBlankMar 15
Nanna48Mar 15
HeiferlyBlankMar 04
HeiferlyBlankFeb 10
7
By cjvision
I am inquiring to see if anyone has had their wisdom teeth pulled while under the influence of POTTS disease? And if ...
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HeiferlyBlankMar 15
Nanna48Mar 15
Nanna48Mar 15
HeiferlyBlankMar 14
5
By crowmedicus
For 13 years I have been dealing with a mystery illness and I've been checked for nearly everything imaginable, but s...
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HeiferlyBlankMar 14
DenTekMar 12
AireScottieJul 22, 2009
HeiferlyBlankJul 21, 2009
AireScottieJul 21, 2009
5
By HeiferlyBlank Blank
A few community members have expressed interest in hearing about what my experience was like getting testing done at ...
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HeiferlyBlankMar 11
LindaTXJun 06, 2010
tkimberJun 06, 2010
LindaTXJun 03, 2010
9
By tkimber Blank
Hi, I am new to this site, just recently diagnosed. Does anyone have any specialist, besides UCLA to go for testing ...
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HeiferlyBlankMar 03
HeiferlyBlankFeb 22
5
By GAreb169
I have been home bound for nearly 3 years. If I am exposed to any heat, or much activity, I go into what I call heat ...
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HeiferlyBlankMar 04
HeiferlyBlankMar 03
7
By thedmxdj
my dysautonomia has been getting worse over the last year... should i be enquiring about a degenerative failure of my...
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HeiferlyBlankMar 03
HeiferlyBlankFeb 22
19
By ablanken Blank
My 21 yo athletic daughter began feeling tired, had some dizziness, difficulty concentrating, occasional headache, be...
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HeiferlyBlankFeb 23
boulboulFeb 23
HeiferlyBlankFeb 22
3
By boulboul
After extensive research im now sure that post my open heart surgery last year I developped dysautonomia and now im ...
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HeiferlyBlankFeb 20
limonteeFeb 20
LaLa4Sep 27, 2010
CHRISTYDRAKESep 26, 2010
10
By laurab2818 Blank
Halbashes' recent post about her latest concussion made me think about something I have been meaning to ask. Do othe...
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By queenofhearts316
Hi everyone, I am only 22 and while the Doctors here are unfamiliar I have the symptoms of Pots.My heart rate increas...
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HeiferlyBlankFeb 19
HeiferlyBlankFeb 17
HeiferlyBlankNov 29, 2014
4
By HeiferlyBlank
Hi. I'm Heiferly and I'm the CL (Community Leader) here in the Dysautonomia forum. (I'm also co-CL of the ostomy foru...
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3
By Joey2324
Hi, My name is joey and i am 26 years old. I fell ill with a myriad of horrible symptoms almost 2 years ago (20months...
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HeiferlyBlankFeb 15
1
By queenofhearts316
Hi everyone just wondering if anyone has had luck with helping symptoms by taking magnesium? I will try anything to h...
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HeiferlyBlankFeb 15
HeiferlyBlankFeb 13
3
By anonymous1717
I've had a myriad of seemingly random symptoms -- lightheadedness, almost blacking out, intermittent palpitations, co...
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Howard, OH
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