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Dysautonomia (Autonomic Dysfunction) Community
This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.
1 - 20 (of 1853) questions
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Avatar universal
Hey everyone. I have recently been diagnosed with Dysautonomia (POTS). Two years ago I started having fainting spells where I ended up i...
2 answers |
Avatar universal
My heart rate is 75 when laying but goes from 130-140 when standing but I don't get dizzy or faint but I do feel like I want to sit back ...
1 answer | 1 comment |
886699 tn?1270783344
Does anyone know of a good Dr.that treats dysautonomia (POTS) in South Florida?? I have been to the Cleveland clinic neurology dept with...
38 answers | 4 comments |
19706822 tn?1482977766
i just found out information about POTS and as far i am searching online, i haven't found any cure for this except just taking water 2-3 ...
1 answer |
Avatar universal
Hello I have sinus tachycardia and my Dr advised me to get a Kardia device. So I did and my first reading is kind of all over the place. ...
1 answer |
Avatar universal
Hello! Do you have big flare-ups of dysautonomia symptoms? Does anyone have these issues more in cold weather? I have been diagno...
10 answers |
Avatar universal
I have night time bradycardia where my heart slows way down when I am in REM sleep. Night time monitoring of my heart rate shows that it...
12 answers | 4 comments |
Avatar universal
Hi, I've been diagnosed with right side Harlequin syndrome. I'm interested in talking with others who have this rare condition and/or pe...
6 answers |
Avatar universal
I'm 16 and for about 7 months so far I wake up every morning with stomach pain. it started during the time of finals and I admit that tim...
1316778 tn?1286997636
Hi everyone. I live in Nacogodoches, TX and I am looking for a specialist in Houston. I was raised in Houston and still have famil...
8 answers | 1 comment |
Avatar universal
Hi my country there's no specialist in dysautonomia and it's rare medical case in my country,few doctors know about it. One of my doctor...
967168 tn?1477588089
My youngest daughter (14) has been fainting and had arrhythmia's since she was 9, following my path. I wasn't DX with NCS/OI until I was...
2 answers |
Avatar universal
Hi, i suffer from diagnosed essential tremor and mild autonomic dysfunction (AD). In fact i experience orthostatic intolerance, hot/cold ...
Avatar universal
I am planning to move soon from Texas to Washington. Going to need to find a new PCP who is experienced in seeing patients with chronic i...
1 answer |
612876 tn?1355518095
"You just left it on the . . . where the food was." Does anyone else wind up saying nonsensical things like this because they get stuc...
14 answers |
Avatar universal
Over the last few months I have found every time I stand up from sitting I feel almost like I will pass out, sometimes it is not so bad w...
2 answers |
Avatar universal
So I had an event monitor and was instructed to push the button whenever I felt "off". On the results, EVERY SINGLE time I pushed the but...
19438744 tn?1477695007
I guess my story is similar to alot of people out there. I originally suffered from my first bout of pots at the age of 20 after a bout o...
Avatar universal
My 9 year old son came down with sudden and severe POTS because of a Mast Cell Activation Disorder. Dr. Abdallah in the DC area was wond...
6 answers | 1 comment |
Avatar universal
Hello! I have been on a low dose beta blocker (concor 2.5 mg) for the past 4 months. For the past few days I felt that I might be able to...
1 answer |
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