Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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All5Speeds9 minutes
JenniferWATLOct 15, 2012
globalhikingSep 09, 2010
Marinella82Sep 08, 2010
vbc2000Sep 08, 2010
7
By Marinella82 Blank
About a year ago I had lyme disease in my spinal fluid and brain and at the same time developed Tackycardia and Vasov...
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By myjanelle
I have been diagnosed with vasovagel syncope which is a fainting when your blood pressure lowers. This fainting seems...
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SethraJun 28
1
By ahmedhass
I'm 35 years living in a hell since 6 months. I have many unexplained symptoms but I'm sure it is either POTS or Afib...
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By ezeden
My daughter has just been diagnosed with dysautonomia. We have been going to a gastroenterologist for months and had ...
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kfailoniJun 23
HeiferlyBlankFeb 15
Raisin1Jan 24
4
By Joey2324 Blank
Hi, My name is joey and i am 26 years old. I fell ill with a myriad of horrible symptoms almost 2 years ago (20months...
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By anewsyd
Today I saw my primary care physician. I suspect that I have POTS. I've been dealing with chest pain, shortness of br...
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3
By steph1108
Im scared and unsure what im supposed to expect with this. Its been a bad weekend, anxiety, blood pressure up and dow...
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By felychay
My two children inherited Dental Bacteria from their Dad. By the time my husband passed away, he lost almost all of ...
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CalusoJun 16
CalusoApr 10
20
By Caluso Blank
Please help, has anyone seen severe mood swings in pots? My son is now 18 years old and was diagnosed 9 months ago w...
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By Mottec
Hi I am dignosed with IST(inapropriate sinus tachycardi), a similar condition to POTS, or at least overlapping. My di...
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NickniceJun 16
HeiferlyBlankJul 06, 2014
joylinkJul 06, 2014
robin5232Mar 12, 2014
elisha79Nov 20, 2013
33
By pepito6 Blank
Does anyone know of a good Dr.that treats dysautonomia (POTS) in South Florida?? I have been to the Cleveland clinic...
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1
By TiredMomma1988
Sorry but this will be long but please respond if you have any info or same symptoms. I feel so alone with this illne...
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By rosered44
This has been ongoing and worsening for 10 years now, every time I eat and stand up I feel like I am going to pass ou...
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JoWorrallJun 11
1
By kristenuh44
This will be long so please bare with me. I am a 30 year old married, female with no children that has not found ANY ...
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By Cookie3221
My son was just recently diagnosed with dysautonomia a couple weeks ago. We had been seeing a regular neurologist fo...
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BeverlyzJun 09
lucy189Apr 25, 2013
BeverlyzApr 22, 2013
lucy189Sep 04, 2011
Marie4586Sep 04, 2011
13
By lucy189 Blank
I posted this under neurocardiogenic, as one of my son's doctors mentioned vasovagol, but we are not really sure what...
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KavbearOct 14, 2010
DysautonomiaPrisonOct 14, 2010
highflyinOct 14, 2010
9
By highflyin Blank
Do nerves repair themselves? My ANS is not quite right as I am susceptable to low blood pressure from dehydration and...
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By ellpea
Hi all. I was diagnosed with POTS last year, and through my own research I am very confident that that is my issue, d...
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LivingInHopeJul 30, 2012
Kristine1961Jul 29, 2012
dawnsc78Jul 29, 2012
Kristine1961Jul 27, 2012
9
By Kristine1961 Blank
I have not been diagnosed with POTS; however, after reading some of the symptoms, I feel as if I have some type of OI...
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1
By Harrafvr1
I had infusion for strengthenng.my bones last Thursday. Ever since my heart beat while resting has gone up into the ...
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