Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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78kell11 hours
1
By Scouticus
Hello there, would just love some perspective. I have CFS and POTS, due to a viral infection I had in 2009. Over ...
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By 78kell
Hi everyone my name is Kell this is my first time posting anywhere. I was diagnosed with POTS early this year..... f...
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1
By limontee
Hello. I was diagnosed with hyperadrenergic dysautonimia two years ago and put on beta blockers to control the tachy...
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limonteeDec 10
HeiferlyBlankNov 29
AireScottieApr 27, 2009
Gabby116Apr 26, 2009
14
By Gabby116 Blank
I was diagnosed with Dysautonomia in 2006 by a doctor at Mayo Clinic, the diagnosis was in the back of my mind untill...
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AuntCarolDec 09
Shay1125Feb 07
motherlovehoustonAug 01, 2012
HeiferlyBlankJun 27, 2009
BluebirdyJun 26, 2009
15
By HeiferlyBlank Blank
I know many of us agonize over the decision of whether to rely on local doctors, travel perhaps hundreds upon hundred...
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HeiferlyBlankDec 02
2
By AndreaBerlin
Hi at all, my name ist Andrea, Im 37 years old and I have a little sweet son. I live in Germany and I hope you ca...
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HeiferlyBlankNov 29
1
By HeiferlyBlank
Hi. I'm Heiferly and I'm the CL (Community Leader) here in the Dysautonomia forum. (I'm also co-CL of the ostomy foru...
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HeiferlyBlankNov 29
Leena425Nov 29
dotty9947Aug 15, 2013
mtgardnerOct 18, 2012
Becca14Oct 18, 2012
12
By Richard1030 Blank
I have been feeling pretty bad since June. I have had nausea, shortness of breath, dizziness, fatigue, weakness, chi...
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HeiferlyBlankNov 29
1
By Leena425
How much water must I drink daily to prevent orthostatic hypotension?
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DonnaBugsNov 05
sue_1234Dec 22, 2011
sue_1234Nov 04, 2010
sue_1234Nov 04, 2010
8
By TXflutterby Blank
Hi everyone. I live in Nacogodoches, TX and I am looking for a specialist in Houston. I was raised in Houston ...
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pottsmomNov 26
Marinella82Oct 01, 2013
enzymeloverOct 27, 2010
Marinella82Oct 26, 2010
enzymeloverOct 15, 2010
12
By Marinella82 Blank
Just wanted to let you guys know I saw a specialist recently and there is a connection with Dysautonomia and Lyme. If...
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HeiferlyBlankNov 26
HeiferlyBlankNov 26
2
By kbahler
I am having edema in my legs and knees and my doctor wants me to use compression stockings. I have neuropathy in my t...
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5
By SheriLynn1980
I've been sick for about 6 months. Pcp mentioned pots but I think it's a endocrine issue. History of reactive hyp...
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HeiferlyBlankNov 26
HeiferlyBlankNov 22
3
By SheriLynn1980
For about 6 months I've experienced the following symptoms : Lightheaded, dizzy Can't stay awake, constant fatigue...
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HeiferlyBlankNov 20
GirlGhostNov 17
2
By GirlGhost
Hi all! My question isn't for me but rather my son. He is 20 years old, currently in the military and stationed ov...
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HeiferlyBlankJul 23
2
By EveNida
Hello, my name is Eve, and I'm new to this forum. A little background on me: I'm 22 years old, was diagnosed with POT...
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HeiferlyBlankFeb 12, 2012
CHRISTYDRAKEFeb 12, 2012
HeiferlyBlankFeb 12, 2012
HeiferlyBlankFeb 12, 2012
13
By ablanken Blank
My 21 yo athletic daughter began feeling tired, had some dizziness, difficulty concentrating, occasional headache, be...
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By rhonda1017 Blank
Hi, I just came back from Cleveland Clinic and I tested positive on the tilt table for POTS, but they also to...
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15
By Joyce0218 Blank
I am looking for a Dr. who treats POTS in Illinois. My daughter was diagnosed with POTS at Mayo Clinic in MN several ...
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HeiferlyBlankNov 09
1
By IngallsFan
Hello all! I am new to this site. After a very abnormal Tilt Table Test, my Cardiologist told me that I have a very c...
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Heiferly
Columbus, OH