Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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By Harrafvr1
I had infusion for strengthenng.my bones last Thursday. Ever since my heart beat while resting has gone up into the ...
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By Cookie3221
My son was just recently diagnosed with dysautonomia a couple weeks ago. We had been seeing a regular neurologist fo...
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Gordon73May 20
2
By Gordon73
Sadly I seem to have developed a major autonomic dysfunction - been in and out of hospital every other day for the pa...
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By steph1108
Im scared and unsure what im supposed to expect with this. Its been a bad weekend, anxiety, blood pressure up and dow...
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By paulcarignan
I'm brand new to this site. Do you know about these interent resources? http://www.dysautonomiainternational.org/p...
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CalusoApr 10
Rocko230Mar 26
19
By Caluso
Please help, has anyone seen severe mood swings in pots? My son is now 18 years old and was diagnosed 9 months ago w...
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HeiferlyBlankApr 14
2
By ellpea
Hi all. I was diagnosed with POTS last year, and through my own research I am very confident that that is my issue, d...
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delia311Apr 25
HeiferlyBlankApr 14
delia311Apr 09
4
By delia311
Hi, I'm new here. I'm 25, have 2 kids and wonderful supportive husband and way to may weird medical issues. I've be...
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AmySouthMay 07
2
By STRinVA
Hi everyone. I know I am new and I know this is a long story, so I hope you will read. A few months ago, I woke u...
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KellyGottMay 19
HeiferlyBlankJan 14
dosheeJan 14
AuntCarolDec 09, 2014
18
By HeiferlyBlank Blank
I know many of us agonize over the decision of whether to rely on local doctors, travel perhaps hundreds upon hundred...
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By AmySouth
I have been dx with POTS and autonomic neuropathy. I was looking for a Dr in the southern Indiana area or even just i...
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By EDSPOTS
Hi My 24 year old daughter living in NYC is looking for a dr who knows how to treat POTS that is caused by EDS. Her ...
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SuzyqoneMay 03
maltesesdJul 27, 2008
halbashesJun 26, 2008
melipnycJun 22, 2008
halbashesJun 20, 2008
5
By melipnyc Blank
Hi, I've been diagnosed with right side Harlequin syndrome. I'm interested in talking with others who have this rare...
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By HeiferlyBlank
Hey everyone, your fearless leader (ha!) here. I just wanted to post a message and let everyone in our community know...
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Rocko230Apr 19
HeiferlyBlankApr 14
2
By Rocko230
Does anyone with POTS or HYPER POTS or autoimmune dysautonomia have demyelinating periphreal neuropathy? Doctors have...
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By MaddieC12321
Hello all. My name is Maddie and I am 17 years old. I am a female living in Oregon. I have been expiriencing dizzines...
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By VIVECAH
I have bradycardia. I was having blackout spells. My doctor put me on my the drain would work great about six months...
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By VIVECAH
It is supposed to read my doctor put me on midodrine
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By kayhill8
Hi, my 13 year old has been recently tentatively diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome). She...
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ny2caliApr 19
halbashesMar 04, 2009
2
By princess4969 Blank
I have been poked, prodded, and darn near disected..My symptoms started 9 years ago and I have had unexplained severe...
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