Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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By Mottec
Hi I am dignosed with IST(inapropriate sinus tachycardi), a similar condition to POTS, or at least overlapping. My di...
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NickniceJun 16
HeiferlyBlankJul 06, 2014
joylinkJul 06, 2014
robin5232Mar 12, 2014
elisha79Nov 20, 2013
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By pepito6 Blank
Does anyone know of a good Dr.that treats dysautonomia (POTS) in South Florida?? I have been to the Cleveland clinic...
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By rosered44
This has been ongoing and worsening for 10 years now, every time I eat and stand up I feel like I am going to pass ou...
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JoWorrallJun 11
1
By kristenuh44
This will be long so please bare with me. I am a 30 year old married, female with no children that has not found ANY ...
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By Cookie3221
My son was just recently diagnosed with dysautonomia a couple weeks ago. We had been seeing a regular neurologist fo...
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BeverlyzJun 09
lucy189Apr 25, 2013
BeverlyzApr 22, 2013
lucy189Sep 04, 2011
Marie4586Sep 04, 2011
13
By lucy189 Blank
I posted this under neurocardiogenic, as one of my son's doctors mentioned vasovagol, but we are not really sure what...
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KavbearOct 14, 2010
DysautonomiaPrisonOct 14, 2010
highflyinOct 14, 2010
9
By highflyin Blank
Do nerves repair themselves? My ANS is not quite right as I am susceptable to low blood pressure from dehydration and...
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By ellpea
Hi all. I was diagnosed with POTS last year, and through my own research I am very confident that that is my issue, d...
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LivingInHopeJul 30, 2012
Kristine1961Jul 29, 2012
dawnsc78Jul 29, 2012
Kristine1961Jul 27, 2012
9
By Kristine1961 Blank
I have not been diagnosed with POTS; however, after reading some of the symptoms, I feel as if I have some type of OI...
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By Harrafvr1
I had infusion for strengthenng.my bones last Thursday. Ever since my heart beat while resting has gone up into the ...
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Gordon73May 20
2
By Gordon73
Sadly I seem to have developed a major autonomic dysfunction - been in and out of hospital every other day for the pa...
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By paulcarignan
I'm brand new to this site. Do you know about these interent resources? http://www.dysautonomiainternational.org/p...
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delia311Apr 25
HeiferlyBlankApr 14
delia311Apr 09
4
By delia311
Hi, I'm new here. I'm 25, have 2 kids and wonderful supportive husband and way to may weird medical issues. I've be...
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AmySouthMay 07
2
By STRinVA
Hi everyone. I know I am new and I know this is a long story, so I hope you will read. A few months ago, I woke u...
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By AmySouth
I have been dx with POTS and autonomic neuropathy. I was looking for a Dr in the southern Indiana area or even just i...
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By EDSPOTS
Hi My 24 year old daughter living in NYC is looking for a dr who knows how to treat POTS that is caused by EDS. Her ...
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SuzyqoneMay 03
maltesesdJul 27, 2008
halbashesJun 26, 2008
melipnycJun 22, 2008
halbashesJun 20, 2008
5
By melipnyc Blank
Hi, I've been diagnosed with right side Harlequin syndrome. I'm interested in talking with others who have this rare...
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By HeiferlyBlank
Hey everyone, your fearless leader (ha!) here. I just wanted to post a message and let everyone in our community know...
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Rocko230Apr 19
HeiferlyBlankApr 14
2
By Rocko230
Does anyone with POTS or HYPER POTS or autoimmune dysautonomia have demyelinating periphreal neuropathy? Doctors have...
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3
By MaddieC12321
Hello all. My name is Maddie and I am 17 years old. I am a female living in Oregon. I have been expiriencing dizzines...
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