Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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By rhonda1017 Blank
Hi, I just came back from Cleveland Clinic and I tested positive on the tilt table for POTS, but they also to...
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15
By Joyce0218 Blank
I am looking for a Dr. who treats POTS in Illinois. My daughter was diagnosed with POTS at Mayo Clinic in MN several ...
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HeiferlyBlankNov 09
1
By IngallsFan
Hello all! I am new to this site. After a very abnormal Tilt Table Test, my Cardiologist told me that I have a very c...
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HeiferlyBlankNov 09
2
By ShweeMcD
Hi, my daughter was just diagnosed less than a week ago with DA. I am heavily in the research phase and would love al...
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HeiferlyBlankNov 09
IcannotNov 06
maithNov 05
HeiferlyBlankOct 10, 2013
HeiferlyBlankOct 10, 2013
14
By the_mighty_gooch Blank
Does anyone know of a Dysautonomia Clinic in California? I heard there is one at UC Davis but couldn't find it online...
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HeiferlyBlankNov 09
IcannotNov 06
2
By Despairjam
Does anybody suffer nausea gastrointestinal problems severe fatigue tremors trouble sleeping headaches? I have a hiat...
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HeiferlyBlankNov 09
Red_StarOct 20
2
By Bamboozlem
Hi, I have EDS Hypermobile (diagnosed last year) and POTs (diagnosed this Summer). First question: understand...
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By curiousmom13
I live in Clay County, Florida. My 16 year old daughter has been diagnosed with Dysautonomia after years of misdiagno...
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HeiferlyBlankJan 18, 2013
lizzy222Jan 17, 2013
cathystNov 30, 2009
10
By cathyst Blank
Would anyone know of a "decent" dr. in preferably south Florida dealing with autonomic issues. I really do not want ...
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HeiferlyBlankOct 08
JMOgdenOct 04
anomaleJun 28
Hannah_Marie13Jan 05, 2012
AsthmaPOTSNov 01, 2011
7
By laurab2818 Blank
Anyone else have asthma and POTS? I went to Cleveland Clinic and they recommended beta blocker, calcium channel bloc...
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HeiferlyBlankOct 08
2
By gemme771
this happened a few times to me i am laying down and i feel that i am going to faint things look a little dim and my...
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2
By drocnodiagnosis
I have a provision dx of dysautonomia based on an understanding PCP's observance of an episode of bradycardia in his ...
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Steve6Oct 30
AireScottieSep 23, 2009
evo123Sep 22, 2009
supineallthetimeSep 22, 2009
evo123Sep 22, 2009
8
By evo123 Blank
Has anyone had any problems whilst being weaned off Fludrocortisone (florinef)? I have been getting terrible flank p...
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hp0416Oct 29
mgam3131Jan 15
ts_mommy123Sep 22, 2013
ts_mommy123Sep 22, 2013
ashspenc21Nov 11, 2012
34
By junbug52704 Blank
I was wondering if anyone has delt with POTS while pregnant. I am now 21 weeks, the symptoms have started a very long...
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kelcee333Oct 29
HeiferlyBlankJul 06
HeiferlyBlankJun 28
24
By JSkrill Blank
Does anyone here know of any relationship with autonomic dysfunction and cervical stenosis? I have found a little bi...
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By Joey2324
Hi, My name is joey and i am 26 years old. I fell ill with a myriad of horrible symptoms almost 2 years ago (20months...
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HeiferlyBlankApr 28, 2010
2
By karinosa Blank
I went to my appointment earlier today and this is what was said. He thinks that my on/off swelling of hands/feet/an...
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RiddleyOct 01
laurab63Sep 08
RiddleySep 08
HeiferlyBlankSep 07
RiddleyAug 16
6
By Riddley
Four months ago, I began to have these episodes, mostly in the late morning or late at night, which began with tachyc...
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lyza13Sep 28
lladridoFeb 27, 2010
CHRISTYDRAKEFeb 10, 2010
3
By pepito6 Blank
I have POTS and might have to get a colonoscopy, has anyone ever done one while suffering with POTS, I am afraid to g...
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HeiferlyBlankSep 07
1
By PraxxtorCruel
I feel I may have some form of orthostatic intolerance based on the fact that I get a whole variety of symptoms when ...
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Heiferly
Columbus, OH