Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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HeiferlyBlankNov 26, 2014
HeiferlyBlankNov 26, 2014
2
By kbahler
I am having edema in my legs and knees and my doctor wants me to use compression stockings. I have neuropathy in my t...
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HeiferlyBlankNov 26, 2014
SheriLynn1980Nov 22, 2014
HeiferlyBlankNov 22, 2014
SheriLynn1980Nov 21, 2014
HeiferlyBlankNov 20, 2014
5
By SheriLynn1980
I've been sick for about 6 months. Pcp mentioned pots but I think it's a endocrine issue. History of reactive hyp...
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HeiferlyBlankNov 26, 2014
SheriLynn1980Nov 22, 2014
HeiferlyBlankNov 22, 2014
3
By SheriLynn1980
For about 6 months I've experienced the following symptoms : Lightheaded, dizzy Can't stay awake, constant fatigue...
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HeiferlyBlankNov 20, 2014
GirlGhostNov 17, 2014
2
By GirlGhost
Hi all! My question isn't for me but rather my son. He is 20 years old, currently in the military and stationed ov...
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Leelee12345Nov 18, 2014
HeiferlyBlankJul 23, 2014
2
By EveNida Blank
Hello, my name is Eve, and I'm new to this forum. A little background on me: I'm 22 years old, was diagnosed with POT...
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Pattycake69Nov 18, 2014
HeiferlyBlankFeb 12, 2012
CHRISTYDRAKEFeb 12, 2012
HeiferlyBlankFeb 12, 2012
HeiferlyBlankFeb 12, 2012
13
By ablanken Blank
My 21 yo athletic daughter began feeling tired, had some dizziness, difficulty concentrating, occasional headache, be...
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OdyvanchkNov 17, 2014
abmascarenasSep 25, 2014
abmascarenasSep 25, 2014
abmascarenasSep 25, 2014
TraceyechoFeb 02, 2014
30
By rhonda1017 Blank
Hi, I just came back from Cleveland Clinic and I tested positive on the tilt table for POTS, but they also to...
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Scarlett2001Nov 14, 2014
debkrollsJul 05, 2014
debkrollsJul 05, 2014
CHRISTYDRAKEJun 11, 2014
mnicolep03Jun 05, 2014
15
By Joyce0218 Blank
I am looking for a Dr. who treats POTS in Illinois. My daughter was diagnosed with POTS at Mayo Clinic in MN several ...
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HeiferlyBlankNov 09, 2014
1
By IngallsFan
Hello all! I am new to this site. After a very abnormal Tilt Table Test, my Cardiologist told me that I have a very c...
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HeiferlyBlankNov 09, 2014
68SurvivorNov 06, 2014
2
By ShweeMcD
Hi, my daughter was just diagnosed less than a week ago with DA. I am heavily in the research phase and would love al...
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HeiferlyBlankNov 09, 2014
IcannotNov 06, 2014
maithNov 05, 2014
HeiferlyBlankOct 10, 2013
HeiferlyBlankOct 10, 2013
14
By the_mighty_gooch Blank
Does anyone know of a Dysautonomia Clinic in California? I heard there is one at UC Davis but couldn't find it online...
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HeiferlyBlankNov 09, 2014
IcannotNov 06, 2014
2
By Despairjam
Does anybody suffer nausea gastrointestinal problems severe fatigue tremors trouble sleeping headaches? I have a hiat...
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HeiferlyBlankNov 09, 2014
Red_StarOct 20, 2014
2
By Bamboozlem
Hi, I have EDS Hypermobile (diagnosed last year) and POTs (diagnosed this Summer). First question: understand...
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By curiousmom13
I live in Clay County, Florida. My 16 year old daughter has been diagnosed with Dysautonomia after years of misdiagno...
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Shirts3414Jul 11, 2014
Shirts3414Jul 11, 2014
HeiferlyBlankJan 18, 2013
lizzy222Jan 17, 2013
cathystNov 30, 2009
10
By cathyst Blank
Would anyone know of a "decent" dr. in preferably south Florida dealing with autonomic issues. I really do not want ...
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HeiferlyBlankOct 08, 2014
JMOgdenOct 04, 2014
anomaleJun 28, 2014
Hannah_Marie13Jan 05, 2012
AsthmaPOTSNov 01, 2011
7
By laurab2818 Blank
Anyone else have asthma and POTS? I went to Cleveland Clinic and they recommended beta blocker, calcium channel bloc...
10726861_tn?1412307612
HeiferlyBlankOct 08, 2014
68SurvivorOct 05, 2014
2
By gemme771
this happened a few times to me i am laying down and i feel that i am going to faint things look a little dim and my...
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drocnodiagnosisOct 05, 2014
HeiferlyBlankSep 26, 2014
2
By drocnodiagnosis
I have a provision dx of dysautonomia based on an understanding PCP's observance of an episode of bradycardia in his ...
726204_tn?1285879778
Steve6Oct 30, 2014
AireScottieSep 23, 2009
evo123Sep 22, 2009
supineallthetimeSep 22, 2009
evo123Sep 22, 2009
8
By evo123 Blank
Has anyone had any problems whilst being weaned off Fludrocortisone (florinef)? I have been getting terrible flank p...
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hp0416Oct 29, 2014
mgam3131Jan 15, 2014
ts_mommy123Sep 22, 2013
ts_mommy123Sep 22, 2013
ashspenc21Nov 11, 2012
34
By junbug52704 Blank
I was wondering if anyone has delt with POTS while pregnant. I am now 21 weeks, the symptoms have started a very long...
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Heiferly
Columbus, OH