Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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jc4385Feb 08
2
By bmxtuffy
Hi. I have recently been diagnosed with a 'mild' autonomic dysfunction & have over the last few weeks been experienci...
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By SarcoidMTHFR
I'm seeing a lot of research being done that links AD and MTHFR methylation errors. Has anyone found that using the ...
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dani_johnsonDec 03, 2015
dani_johnsonDec 03, 2015
dani_johnsonDec 03, 2015
40
By pepito6 Blank
Does anyone know of a good Dr.that treats dysautonomia (POTS) in South Florida?? I have been to the Cleveland clinic...
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hp0416Oct 29, 2014
mgam3131Jan 15, 2014
ts_mommy123Sep 22, 2013
ts_mommy123Sep 22, 2013
35
By junbug52704 Blank
I was wondering if anyone has delt with POTS while pregnant. I am now 21 weeks, the symptoms have started a very long...
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0769Feb 27
0769Feb 27
2
By hooloovoo Blank
So far my lab work is consistent with hyperparathyroidism. Nevertheless I have had many symptoms of dysautonomia, suc...
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4
By torilynn363
I would appreciate any answers you can give me, When I was younger (2nd grade) I passed out at school, I was standin...
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Ncsmomof2Feb 08
2
By spooniegirl
Hi everyone, I'm a teenage girl who has been experiencing POTS symptoms for almost 3 years, and was just diagnosed t...
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heckyaFeb 18
jc4385Feb 08
2
By AlyssaM0987
Has anyone gone to mayo clinic? What kinds of testing do they do for Dysautonomia there? It is going to be expensiv...
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lotti3Jan 30
PhyllischasDec 07, 2015
OdyvanchkNov 17, 2014
34
By rhonda1017 Blank
Hi, I just came back from Cleveland Clinic and I tested positive on the tilt table for POTS, but they also to...
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fastbackFeb 13
Rose1516Dec 24, 2009
HeiferlyBlankDec 23, 2009
Rose1516Dec 23, 2009
HeiferlyBlankDec 22, 2009
5
By Rose1516 Blank
What causes so many auto immune disorders in one person and could it be a sign of blood cancer and how do you get som...
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By Shelbzmarz
Hello I have ZERO ENERGY all the time! I take midodrine and my BP is usually 100/60. My doctor will not prescribe any...
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Ncsmomof2Feb 08
1
By AlyssaM0987
I have a few further questions for those who have been diagnosed with Dysautonomia... Has anyone ever received any ac...
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LivingInHopeMay 13, 2010
KujiforoMay 13, 2010
cathystMay 13, 2010
auntissieMay 12, 2010
8
By cathyst Blank
I think this may sound like a crazy question, but has anyone had an issue with hair loss? My hair has always been su...
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1
By spooniegirl
hi everyone. I'm a teenager who has had POTS symptoms for over 2 years, but was just recently diagnosed this past Oct...
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By AlyssaM0987
Hello from Canada.... Any Canadians experience trying to get a diagnosis in Canadaa? I am 5 years into this battle An...
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FoggyMomJan 19
HeiferlyBlankJun 20, 2014
2
By jennir54 Blank
My daughter-in law has POTS. She and my son have been looking for a doctor in California, preferrably So. Cal. who sp...
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northerncaliFeb 06, 2014
carolannaraDec 11, 2013
dancingbelleJul 09, 2013
LivingInHopeDec 01, 2011
24
By Lynn63 Blank
My daughter has Hyperadrenergic Postural Orthostatic Tachycardia Syndrome and I am just wondering if anyone else has ...
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1
By steiner71
As I look through the comments and articles on this website I noticed that many writings are not about "dysautonomia"...
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kleejonesJan 12
1
By Loulou0728 Blank
Hi all. I've been dealing with dysautonomia for years and am sick of being sick. I want to be more proactive in findi...
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By steiner71
I started with symptoms of Orthostatic Hypotension (OH) and extreme fatigue at age 11. I am now 69 and was finally -...
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