Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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Kim2770Mar 29
narobi69Mar 14
2
By cpinzon85
For many years I've been struggling with different health problems. Last year I was able to get answers to my main qu...
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vetiver2Mar 16
1
By narobi69
I am a doctor of alternative healing and if you need help I am here to assist you in a recovery. Would you like me to...
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narobi69Mar 14
2
By EDSPOTS Blank
Hi My 24 year old daughter living in NYC is looking for a dr who knows how to treat POTS that is caused by EDS. Her ...
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By narobi69
Who needs my help to get rid of some of the problems that your being faced with?
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HeiferlyBlankMar 13
1
By Sophiab123
I recently went to the cardiologist and got the diagnosis of vasomotor instability. For the past several years I have...
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cbeck32Mar 04
lfreem02May 10, 2012
HeiferlyBlankMay 10, 2012
lfreem02May 05, 2012
7
By lfreem02 Blank
I have read that there can be an adjustment period, but not sure how long is normal. My lightheadedness and tremors ...
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beema36Mar 24, 2011
tkimberMar 23, 2011
HeiferlyBlankMar 23, 2011
tkimberMar 22, 2011
HeiferlyBlankMar 22, 2011
8
By tkimber Blank
Hi All, I have had to call the paramedics a few times this month due to what my doctor calls autonomic crisis. I ha...
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jc4385Feb 08
2
By bmxtuffy
Hi. I have recently been diagnosed with a 'mild' autonomic dysfunction & have over the last few weeks been experienci...
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By SarcoidMTHFR
I'm seeing a lot of research being done that links AD and MTHFR methylation errors. Has anyone found that using the ...
886699 tn?1270783344
dani_johnsonDec 03, 2015
dani_johnsonDec 03, 2015
dani_johnsonDec 03, 2015
40
By pepito6 Blank
Does anyone know of a good Dr.that treats dysautonomia (POTS) in South Florida?? I have been to the Cleveland clinic...
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hp0416Oct 29, 2014
mgam3131Jan 15, 2014
ts_mommy123Sep 22, 2013
ts_mommy123Sep 22, 2013
35
By junbug52704 Blank
I was wondering if anyone has delt with POTS while pregnant. I am now 21 weeks, the symptoms have started a very long...
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0769Feb 27
0769Feb 27
2
By hooloovoo Blank
So far my lab work is consistent with hyperparathyroidism. Nevertheless I have had many symptoms of dysautonomia, suc...
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4
By torilynn363
I would appreciate any answers you can give me, When I was younger (2nd grade) I passed out at school, I was standin...
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Ncsmomof2Feb 08
2
By spooniegirl
Hi everyone, I'm a teenage girl who has been experiencing POTS symptoms for almost 3 years, and was just diagnosed t...
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heckyaFeb 18
jc4385Feb 08
2
By AlyssaM0987
Has anyone gone to mayo clinic? What kinds of testing do they do for Dysautonomia there? It is going to be expensiv...
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lotti3Jan 30
PhyllischasDec 07, 2015
OdyvanchkNov 17, 2014
34
By rhonda1017 Blank
Hi, I just came back from Cleveland Clinic and I tested positive on the tilt table for POTS, but they also to...
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fastbackFeb 13
Rose1516Dec 24, 2009
HeiferlyBlankDec 23, 2009
Rose1516Dec 23, 2009
HeiferlyBlankDec 22, 2009
5
By Rose1516 Blank
What causes so many auto immune disorders in one person and could it be a sign of blood cancer and how do you get som...
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By Shelbzmarz
Hello I have ZERO ENERGY all the time! I take midodrine and my BP is usually 100/60. My doctor will not prescribe any...
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Ncsmomof2Feb 08
1
By AlyssaM0987
I have a few further questions for those who have been diagnosed with Dysautonomia... Has anyone ever received any ac...
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LivingInHopeMay 13, 2010
KujiforoMay 13, 2010
cathystMay 13, 2010
auntissieMay 12, 2010
8
By cathyst Blank
I think this may sound like a crazy question, but has anyone had an issue with hair loss? My hair has always been su...
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