Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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AcasondcDec 27, 2015
AcasondcDec 27, 2015
crazycamApr 15, 2013
rhonda1017Apr 13, 2013
4
By crazycam Blank
Hello. I am really hoping someone or a doctor can provide feedback. I am experiencing some terrifying things and am a...
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Danago88Dec 18, 2015
helyannaAug 19, 2011
evo123May 25, 2011
evo123May 25, 2011
CHRISTYDRAKEMay 25, 2011
17
By HeiferlyBlank Blank
How far along are you in getting a diagnosis? (Note that the option of "I've been told a specific subtype of dysauto...
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mobvco3Dec 18, 2015
mobvco3Dec 18, 2015
DeanNunnFeb 14, 2013
aPOTSmomOct 09, 2012
techiemom64Sep 11, 2012
27
By CHRISTYDRAKE Blank
My son is being treated for autonomic dysfunction. He is taking fludrocortisone for the dizziness. Every day since ...
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HeiferlyBlankOct 06, 2009
Mom2four85Oct 06, 2009
halbashesOct 04, 2009
DizzyJSep 24, 2009
DizzyJSep 24, 2009
9
By DizzyJ Blank
My trip to Rochester, MN was a rough one for me. I fell in the DFW airport because they didn't get a wheelchair for m...
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massgirl80sDec 11, 2015
Zoe5710Jan 26, 2014
JLS_23Jan 25, 2014
Dorn82Nov 16, 2013
JCBFanClubSep 20, 2013
9
By Zoe5710 Blank
Hello! Do you have big flare-ups of dysautonomia symptoms? Does anyone have these issues more in cold weather? ...
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By MrsFox13
I am a POTS patient. I was diagnosed when I was 18 by the Mayo clinic. Since then my symptoms would get better and wo...
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By Pyr2
Just had ANSAR testing and it showed PPS in response to sympathetic stimulation. Does anyone know what this is? It ...
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IcannotDec 09, 2015
gogetter7Oct 30, 2015
ConnieraAug 26, 2015
HeiferlyBlankJul 25, 2015
CHRISTYDRAKEJul 08, 2015
5
By ezeden Blank
My daughter has just been diagnosed with dysautonomia. We have been going to a gastroenterologist for months and had ...
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kdawg87Dec 08, 2015
Danago88Dec 03, 2015
2
By kdawg87
I'm a 28 year old that recently started having syncope. Preceding that I had EKG changes, mild mitral valve regurg, c...
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Pipp9601Dec 08, 2015
m3369Feb 19, 2009
halbashesNov 19, 2008
3
By CindyBell411 Blank
Hi there, My daughter has severe gastroparesis...now they are wondering about automonic instability......does anyo...
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By Danielle_3289
I have had dysautonomia for about a year now,and I'm looking for people who dysautonomia in or near Charlotte.
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antonyhandDec 04, 2015
1
By Danago88
I can't stay focused on anything. It's like my mind just goes blank in the middle of work, talking, everything. Fee...
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Danago88Dec 03, 2015
1
By DrKrikFilms
Heya guys, I was just wondering if any of you would be willing to do an interview over Skype or Facebook about what e...
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AVGelbardDec 02, 2015
Shirts3414Jul 11, 2014
Shirts3414Jul 11, 2014
HeiferlyBlankJan 18, 2013
lizzy222Jan 17, 2013
11
By cathyst Blank
Would anyone know of a "decent" dr. in preferably south Florida dealing with autonomic issues. I really do not want ...
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By Danago88
My tilt table test results showed severe and chronic dysautonomia but the doctor didn't say which kind. From what I ...
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MH Community MgrNov 26, 2015
puregospeltruthNov 18, 2015
MyBabyLove2274Dec 16, 2010
Cyn1974Dec 05, 2010
MyBabyLove2274Nov 22, 2010
7
By MyBabyLove2274 Blank
I am 22 weeks pregnant with my son and I have been diagnosed with POTS/Hypotension for almost 4 years now. I have be...
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HeiferlyBlankNov 26, 2015
1
By Pyr2
Hi everyone. Just got tested but my neuro not an autonomic neuro. During Vasalva, they noted a normal sympathetic ...
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HeiferlyBlankNov 26, 2015
1
By RibbitMD
My 34-year-old son recently fainted -- not his first time, it has happened every so many years -- but it was concerni...
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HeiferlyBlankNov 26, 2015
1
By AROD08
I am 26 and newly diagnosed with POTS. It first hit me three months ago after a bad case of what I thought was food p...
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0224Nov 25, 2015
ittai1987Nov 02, 2015
ittai1987Nov 02, 2015
CHRISTYDRAKEAug 22, 2013
4
By redbuell1203 Blank
Does anyone on here have trouble with their legs being heavy or just down right hurt. Since I have been on midodrine ...
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