Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

Important Announcement:
Font Size:
Sort by:
Last Post
Date Started
Avatar m tn
By MCR1233211
I have Postural Orthostatic Tachycardia Syndrome (I worry I don't because i've been diagnosed without the title table...
Avatar f tn
By Goldyukr
Hello. I am new to this board. I have been searching for a diagnosis for 4 years and two weeks ago finally got some a...
Avatar f tn
wschrammJun 10
LivingInHopeSep 29, 2012
toriySep 27, 2012
Dancer54Sep 25, 2012
Dancer54Sep 25, 2012
By miamijnt Blank
I am a 49 year old women and I can only stand up[ for 10 minutes max and that is a struggle. I feel my heaart poundin...
Avatar f tn
Birdie747Jun 04
By Pounami
My 16 year old daughter started experiencing fatigue 2 years ago, then headaches (constant) and after multiple visits...
Avatar m tn
By Birdie747
Yes would like answers if possible to this complicated disorder ! Bowel diseases is known to cause problems to the a...
255722 tn?1452550141
LivingInHopeSep 01, 2011
dolfnlvrSep 01, 2011
LivingInHopeAug 31, 2011
tkimberAug 31, 2011
By dolfnlvr Blank
This one's new. I've struggled with vasovagal symptoms since I was 15 years old. So, I know that I faint for certai...
Avatar f tn
IHPAJun 01
californiawoman298May 29, 2012
HeiferlyBlankJun 23, 2009
AireScottieJun 23, 2009
halbashesJun 22, 2009
By cathyst Blank
Hi, I have posted a few threads recently and hope I don't become a nuisance! Recently dx'ed with Autonomic Small ...
2078882 tn?1333489661
cougpharmAug 14, 2015
techiemom64Feb 07, 2014
reannacnDec 13, 2013
uniquelybeccaDec 12, 2013
By techiemom64 Blank
HI I am new to this forum, and looking for a neurologist close to me that has experience or expertise in dysautonomia...
886699 tn?1270783344
HeiferlyBlankMay 27, 2010
pepito6May 26, 2010
HeiferlyBlankMay 25, 2010
pepito6May 25, 2010
By pepito6 Blank
Does anyone suffer from sleep apnea? Could this be part of all the symptoms of POTS? I use a bi-pap machine to slee...
Avatar f tn
By chrisconn1954
I have now and have had for over twenty years a variety of symptoms and all are on the list of markers for dysautonom...
1833449 tn?1333853101
ayl291May 01
LivingInHopeJul 24, 2013
WestienutJul 23, 2013
LivingInHopeApr 29, 2012
gunnjohanneApr 26, 2012
By Charbt Blank
If you have been diagnosed with Postural Orthostatic Tachycardia Syndrome and/or various forms of autonomic dysfuncti...
Avatar m tn
mick645Dec 10, 2013
mick645Nov 20, 2013
jayjay1983Nov 18, 2013
By mick645 Blank
I have night time bradycardia where my heart slows way down when I am in REM sleep. Night time monitoring of my hear...
1323747 tn?1364810482
mtgardnerJun 28, 2011
none350Jun 28, 2011
HeiferlyBlankFeb 11, 2011
laurab2818Feb 09, 2011
By mtgardner Blank
I have had a tendency toward dry skin all my adult life and have a variety of creams I use. Lately though, and I thi...
Avatar f tn
BejindaApr 14
mvd1Feb 22
mvd1Feb 22
limonteeApr 04, 2014
By rhonda1017 Blank
Hi, I apreciate any insight or help with this question. I am a 45 yr. old F that worked full-time as a kinde...
1401877 tn?1288111239
HeiferlyBlankOct 28, 2011
sconesailOct 27, 2011
Dingy63Oct 27, 2011
By LaLa4 Blank
Hi All, So I just got back from the Cleveland Clinic in Ohio and I thought I'd share my experience and see if you ...
Avatar m tn
Lucia2844Aug 07, 2014
LivingInHopeApr 29, 2012
OnTheFence142Apr 14, 2012
DNP47Apr 13, 2012
By OnTheFence142 Blank
Hi All, I have recently been diagnosed w/POTS after a + TTT. It didn't induce syncope but rather the diagnosis wa...
16361457 tn?1449656421
CJS2Apr 01
By bunnyblair Blank
Hello. I was finally diagnosed with dysautonomia after having rapid heartbeat, insomnia, panick attacks and head and ...
Avatar n tn
des242Mar 31
des242Mar 31
LivingInHopeAug 03, 2012
kewi990Aug 03, 2012
LivingInHopeJul 31, 2012
By kewi990 Blank
I've had issues with my kidney's for about ten years now - infections, reflux, stones, and scar tissue. For the...
Avatar f tn
Kim2770Mar 29
narobi69Mar 14
By cpinzon85 Blank
For many years I've been struggling with different health problems. Last year I was able to get answers to my main qu...
Avatar n tn
narobi69Mar 14
Hi My 24 year old daughter living in NYC is looking for a dr who knows how to treat POTS that is caused by EDS. Her ...
Weight Tracker
Weight Tracker
Start Tracking Now
Dysautonomia (Autonomic Dysfunction) Community Resources