Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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HeiferlyBlankFeb 05
HeiferlyBlankFeb 04
4
By markiemark92
For about two years now, my GP and several specialist have been trying to figure out what is wrong with me. I have da...
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HeiferlyBlankFeb 04
PamOJJan 22
HeiferlyBlankNov 29, 2014
Leena425Nov 29, 2014
dotty9947Aug 15, 2013
14
By Richard1030 Blank
I have been feeling pretty bad since June. I have had nausea, shortness of breath, dizziness, fatigue, weakness, chi...
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HeiferlyBlankFeb 04
1
By pottypauline
i have just started on midodrine to help with my POTs condition I have been on it 3 weeks now but since starting it I...
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HeiferlyBlankFeb 04
1
By nitegracie23
Hello everyone, I'm sure many of you are in the middle of your long road to a diagnosis or can at least remember t...
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HeiferlyBlankJan 20
AmmobJan 20
HeiferlyBlankJan 19
AmmobJan 19
HeiferlyBlankJan 19
5
By Ammob
Hi all, I need some help and advice regarding my symptom. Over the last couple of months, I have been having the fol...
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HeiferlyBlankJan 14
dosheeJan 14
AuntCarolDec 09, 2014
Shay1125Feb 07, 2014
HeiferlyBlankJun 27, 2009
16
By HeiferlyBlank Blank
I know many of us agonize over the decision of whether to rely on local doctors, travel perhaps hundreds upon hundred...
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Godsgirl5Jan 08
tonyadApr 13, 2010
kelly1258Apr 13, 2010
3
By tonyad Blank
I have been thinking about you and your daughter. I hope that she is getting better w/ each day. Take Care, ~...
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KavbearOct 14, 2010
DysautonomiaPrisonOct 14, 2010
highflyinOct 14, 2010
DysautonomiaPrisonOct 13, 2010
8
By highflyin Blank
Do nerves repair themselves? My ANS is not quite right as I am susceptable to low blood pressure from dehydration and...
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78kellDec 26, 2014
HeiferlyBlankDec 22, 2014
2
By 78kell
Hi everyone my name is Kell this is my first time posting anywhere. I was diagnosed with POTS early this year..... f...
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HeiferlyBlankDec 23, 2014
1
By BendyClutz
The short version:Adrenergic POTS is assosciated with Postural Hypertension. But Ehlers Danlos-related POTS is not us...
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HeiferlyBlankDec 23, 2014
ScouticusDec 21, 2014
78kellDec 19, 2014
3
By Scouticus
Hello there, would just love some perspective. I have CFS and POTS, due to a viral infection I had in 2009. Over ...
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HeiferlyBlankDec 22, 2014
ScouticusDec 21, 2014
2
By limontee
Hello. I was diagnosed with hyperadrenergic dysautonimia two years ago and put on beta blockers to control the tachy...
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HeiferlyBlankDec 22, 2014
valerielarsenDec 21, 2014
kelligreenMay 01, 2013
AgnesPNov 19, 2011
HeiferlyBlankMay 08, 2011
20
By Zoe5710 Blank
Hello! I was excited to find out that there is a dysautonomia forum out there! Isn't it great that we can be connecte...
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HeiferlyBlankDec 22, 2014
1
By Scouticus
Hey there. This year I have de-conditioned quite a lot. A couple of years ago, and after having POTS for a while,...
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limonteeDec 10, 2014
HeiferlyBlankNov 29, 2014
Treefrog67Nov 28, 2014
AireScottieApr 27, 2009
Gabby116Apr 26, 2009
14
By Gabby116 Blank
I was diagnosed with Dysautonomia in 2006 by a doctor at Mayo Clinic, the diagnosis was in the back of my mind untill...
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AndreaBerlinDec 03, 2014
HeiferlyBlankDec 02, 2014
2
By AndreaBerlin
Hi at all, my name ist Andrea, Im 37 years old and I have a little sweet son. I live in Germany and I hope you ca...
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HeiferlyBlankNov 29, 2014
1
By Leena425
How much water must I drink daily to prevent orthostatic hypotension?
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Treefrog67Nov 28, 2014
DonnaBugsNov 05, 2014
sue_1234Dec 22, 2011
sue_1234Nov 04, 2010
sue_1234Nov 04, 2010
8
By TXflutterby Blank
Hi everyone. I live in Nacogodoches, TX and I am looking for a specialist in Houston. I was raised in Houston ...
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pottsmomNov 26, 2014
Marinella82Oct 01, 2013
enzymeloverOct 27, 2010
Marinella82Oct 26, 2010
enzymeloverOct 15, 2010
12
By Marinella82 Blank
Just wanted to let you guys know I saw a specialist recently and there is a connection with Dysautonomia and Lyme. If...
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HeiferlyBlankNov 26, 2014
HeiferlyBlankNov 26, 2014
2
By kbahler
I am having edema in my legs and knees and my doctor wants me to use compression stockings. I have neuropathy in my t...
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