Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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HeiferlyBlankJul 23
1
By pots123
I am 40 y.o female who has been battling POTS for at least 5 years. Tried numerous meds. Currently taking midodrine...
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HeiferlyBlankJul 23
1
By EveNida
Hello, my name is Eve, and I'm new to this forum. A little background on me: I'm 22 years old, was diagnosed with POT...
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HeiferlyBlankJul 23
1
By mellyXbby
I have autonomic dysfunction yet the doctor never directly determined the exact type in general. I have had this for ...
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HeiferlyBlankJul 23
1
By Amyschi
Hello. I am very interested and would appreciate hearing from anyone who has been seen at the University of Toledo b...
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By GMays
Someone i love was diagnosed with Dysautonomia and am looking for a doctor for her. We live in Fort Worth and want ...
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HeiferlyBlankJan 18, 2013
lizzy222Jan 17, 2013
cathystNov 30, 2009
10
By cathyst Blank
Would anyone know of a "decent" dr. in preferably south Florida dealing with autonomic issues. I really do not want ...
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madprigMay 01
lia_joyApr 24
3
By madprig
I have felt like I have been in a dream since October 2013, after months of not knowing what was wrong I was diagnose...
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HeiferlyBlankJul 06
joylinkJul 06
robin5232Mar 12
elisha79Nov 20, 2013
halesred1Sep 17, 2013
32
By pepito6 Blank
Does anyone know of a good Dr.that treats dysautonomia (POTS) in South Florida?? I have been to the Cleveland clinic...
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HeiferlyBlankJul 06
HeiferlyBlankJun 28
Ball123May 01
23
By JSkrill Blank
Does anyone here know of any relationship with autonomic dysfunction and cervical stenosis? I have found a little bi...
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14
By Joyce0218 Blank
I am looking for a Dr. who treats POTS in Illinois. My daughter was diagnosed with POTS at Mayo Clinic in MN several ...
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HeiferlyBlankJun 28
2
By MomTo2Nics
This is a complicated question. I hope someone can help. My Son had a malformation removed from his spinal cord abo...
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CorieAJun 29
HeiferlyBlankJun 28
2
By CorieA
A study came out earlier this year showing a connection between autoantibodies and pots. http://www.dysautonomiainte...
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anomaleJun 28
Hannah_Marie13Jan 05, 2012
AsthmaPOTSNov 01, 2011
Grace5555Mar 06, 2010
AireScottieFeb 01, 2010
5
By laurab2818 Blank
Anyone else have asthma and POTS? I went to Cleveland Clinic and they recommended beta blocker, calcium channel bloc...
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HeiferlyBlankJun 22
CorieAJun 22
HeiferlyBlankMay 26
tmama007May 16
CorieAMay 16
5
By tmama007
I am wondering if someone can direct me. In October of 2013 out of the blue I started having trouble getting my breat...
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HeiferlyBlankJun 20
1
By jennir54
My daughter-in law has POTS. She and my son have been looking for a doctor in California, preferrably So. Cal. who sp...
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itsthebmanAug 01, 2010
KavbearJul 21, 2010
laurab2818Jul 19, 2010
LivingInHopeJul 19, 2010
HeiferlyBlankJul 19, 2010
25
By pepito6 Blank
The dr. told me that I need to drink a lot of water and electrolyte's drink. I have been, drinking gatorade 2, but I...
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AmyschiJun 18
HeiferlyBlankJun 17
RissM1994Jun 16
4
By RissM1994
Hello everyone, my name is Riss and I'm 19 years old. The past week or so has been a whirlwind for me. My story start...
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Freefran5Jun 16
hbw1Jun 11, 2012
Fellowpatient513Jun 06, 2012
LivingInHopeJun 03, 2012
11
By lfreem02 Blank
I have been on Midodrine for a few weeks. My dose was increased from 5mg three times a day to 10 mg three times a da...
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CruBee44Jun 16
HeiferlyBlankFeb 24, 2011
CruBee44Feb 23, 2011
7
By CruBee44 Blank
Hello! I am a 26 year old female with inappropriate sinus tachycardia (IST), displaying all symptoms. I recently had ...
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jjnycJun 15
Ball123Jun 08
2
By jjnyc
So great to read other people's posts and realized I'm not alone on this bizarre journey. I'm a 40 year old female wh...
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