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Dysautonomia (Autonomic Dysfunction) Community
This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.
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1455116 tn?1330509017
I am a 24 year old female. I've been told after having "unexplained" tachycardia for the last 6 years, that I have Inappropriate Sinus No...
22 answers | 1 comment |
Avatar universal
Hi. Firstly I apologize but English is not my first language. I am a 33 year old male. I am 1,80 cm tall and I weigh 82 kg. I exercise re...
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Hey everyone. I have recently been diagnosed with Dysautonomia (POTS). Two years ago I started having fainting spells where I ended up i...
2 answers |
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My heart rate is 75 when laying but goes from 130-140 when standing but I don't get dizzy or faint but I do feel like I want to sit back ...
1 answer | 1 comment |
19706822 tn?1482977766
i just found out information about POTS and as far i am searching online, i haven't found any cure for this except just taking water 2-3 ...
1 answer |
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Hello I have sinus tachycardia and my Dr advised me to get a Kardia device. So I did and my first reading is kind of all over the place. ...
1 answer |
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Hello! Do you have big flare-ups of dysautonomia symptoms? Does anyone have these issues more in cold weather? I have been diagno...
10 answers |
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Hi, I've been diagnosed with right side Harlequin syndrome. I'm interested in talking with others who have this rare condition and/or pe...
6 answers |
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I'm 16 and for about 7 months so far I wake up every morning with stomach pain. it started during the time of finals and I admit that tim...
1316778 tn?1286997636
Hi everyone. I live in Nacogodoches, TX and I am looking for a specialist in Houston. I was raised in Houston and still have famil...
8 answers | 1 comment |
Avatar universal
Hi my country there's no specialist in dysautonomia and it's rare medical case in my country,few doctors know about it. One of my doctor...
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Hi, i suffer from diagnosed essential tremor and mild autonomic dysfunction (AD). In fact i experience orthostatic intolerance, hot/cold ...
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I am planning to move soon from Texas to Washington. Going to need to find a new PCP who is experienced in seeing patients with chronic i...
1 answer |
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Over the last few months I have found every time I stand up from sitting I feel almost like I will pass out, sometimes it is not so bad w...
2 answers |
Avatar universal
So I had an event monitor and was instructed to push the button whenever I felt "off". On the results, EVERY SINGLE time I pushed the but...
19438744 tn?1477695007
I guess my story is similar to alot of people out there. I originally suffered from my first bout of pots at the age of 20 after a bout o...
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My 9 year old son came down with sudden and severe POTS because of a Mast Cell Activation Disorder. Dr. Abdallah in the DC area was wond...
6 answers | 1 comment |
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Hello! I have been on a low dose beta blocker (concor 2.5 mg) for the past 4 months. For the past few days I felt that I might be able to...
1 answer |
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I was diagnosed with POTS a few years ago. I always had low BP and ate alot of salt, which helped. 2 months ago i had sinus surgery and h...
1 answer |
Avatar universal
Hi, I apreciate any insight or help with this question. I am a 45 yr. old F that worked full-time as a kindergarten teacher, was...
20 answers | 2 comments |
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