Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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HeiferlyBlankMar 15
Nanna48Mar 15
Nanna48Mar 15
HeiferlyBlankMar 14
5
By crowmedicus
For 13 years I have been dealing with a mystery illness and I've been checked for nearly everything imaginable, but s...
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HeiferlyBlankMar 14
DenTekMar 12
AireScottieJul 22, 2009
HeiferlyBlankJul 21, 2009
AireScottieJul 21, 2009
5
By HeiferlyBlank Blank
A few community members have expressed interest in hearing about what my experience was like getting testing done at ...
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HeiferlyBlankMar 11
LindaTXJun 06, 2010
tkimberJun 06, 2010
LindaTXJun 03, 2010
9
By tkimber Blank
Hi, I am new to this site, just recently diagnosed. Does anyone have any specialist, besides UCLA to go for testing ...
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HeiferlyBlankMar 03
HeiferlyBlankFeb 22
5
By GAreb169
I have been home bound for nearly 3 years. If I am exposed to any heat, or much activity, I go into what I call heat ...
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HeiferlyBlankMar 04
HeiferlyBlankMar 03
7
By thedmxdj
my dysautonomia has been getting worse over the last year... should i be enquiring about a degenerative failure of my...
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HeiferlyBlankFeb 23
boulboulFeb 23
HeiferlyBlankFeb 22
3
By boulboul
After extensive research im now sure that post my open heart surgery last year I developped dysautonomia and now im ...
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HeiferlyBlankFeb 20
limonteeFeb 20
LaLa4Sep 27, 2010
CHRISTYDRAKESep 26, 2010
10
By laurab2818 Blank
Halbashes' recent post about her latest concussion made me think about something I have been meaning to ask. Do othe...
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By queenofhearts316 Blank
Hi everyone, I am only 22 and while the Doctors here are unfamiliar I have the symptoms of Pots.My heart rate increas...
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HeiferlyBlankFeb 19
HeiferlyBlankFeb 17
HeiferlyBlankNov 29, 2014
4
By HeiferlyBlank Blank
Hi. I'm Heiferly and I'm the CL (Community Leader) here in the Dysautonomia forum. (I'm also co-CL of the ostomy foru...
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HeiferlyBlankFeb 15
1
By queenofhearts316 Blank
Hi everyone just wondering if anyone has had luck with helping symptoms by taking magnesium? I will try anything to h...
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HeiferlyBlankFeb 15
HeiferlyBlankFeb 13
3
By anonymous1717 Blank
I've had a myriad of seemingly random symptoms -- lightheadedness, almost blacking out, intermittent palpitations, co...
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HeiferlyBlankFeb 05
HeiferlyBlankFeb 04
4
By markiemark92 Blank
For about two years now, my GP and several specialist have been trying to figure out what is wrong with me. I have da...
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HeiferlyBlankFeb 04
PamOJJan 22
HeiferlyBlankNov 29, 2014
Leena425Nov 29, 2014
dotty9947Aug 15, 2013
14
By Richard1030 Blank
I have been feeling pretty bad since June. I have had nausea, shortness of breath, dizziness, fatigue, weakness, chi...
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HeiferlyBlankFeb 04
1
By pottypauline Blank
i have just started on midodrine to help with my POTs condition I have been on it 3 weeks now but since starting it I...
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HeiferlyBlankFeb 04
1
By nitegracie23 Blank
Hello everyone, I'm sure many of you are in the middle of your long road to a diagnosis or can at least remember t...
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HeiferlyBlankJan 20
AmmobJan 20
HeiferlyBlankJan 19
AmmobJan 19
HeiferlyBlankJan 19
5
By Ammob Blank
Hi all, I need some help and advice regarding my symptom. Over the last couple of months, I have been having the fol...
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Godsgirl5Jan 08
tonyadApr 13, 2010
kelly1258Apr 13, 2010
3
By tonyad Blank
I have been thinking about you and your daughter. I hope that she is getting better w/ each day. Take Care, ~...
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78kellDec 26, 2014
HeiferlyBlankDec 22, 2014
2
By 78kell Blank
Hi everyone my name is Kell this is my first time posting anywhere. I was diagnosed with POTS early this year..... f...
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HeiferlyBlankDec 23, 2014
1
By BendyClutz Blank
The short version:Adrenergic POTS is assosciated with Postural Hypertension. But Ehlers Danlos-related POTS is not us...
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HeiferlyBlankDec 23, 2014
ScouticusDec 21, 2014
78kellDec 19, 2014
3
By Scouticus Blank
Hello there, would just love some perspective. I have CFS and POTS, due to a viral infection I had in 2009. Over ...
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