Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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78kellDec 26, 2014
HeiferlyBlankDec 22, 2014
2
By 78kell Blank
Hi everyone my name is Kell this is my first time posting anywhere. I was diagnosed with POTS early this year..... f...
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HeiferlyBlankDec 23, 2014
1
By BendyClutz Blank
The short version:Adrenergic POTS is assosciated with Postural Hypertension. But Ehlers Danlos-related POTS is not us...
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HeiferlyBlankDec 23, 2014
ScouticusDec 21, 2014
78kellDec 19, 2014
3
By Scouticus Blank
Hello there, would just love some perspective. I have CFS and POTS, due to a viral infection I had in 2009. Over ...
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HeiferlyBlankDec 22, 2014
ScouticusDec 21, 2014
2
By limontee Blank
Hello. I was diagnosed with hyperadrenergic dysautonimia two years ago and put on beta blockers to control the tachy...
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HeiferlyBlankDec 22, 2014
valerielarsenDec 21, 2014
kelligreenMay 01, 2013
AgnesPNov 19, 2011
HeiferlyBlankMay 08, 2011
20
By Zoe5710 Blank
Hello! I was excited to find out that there is a dysautonomia forum out there! Isn't it great that we can be connecte...
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HeiferlyBlankDec 22, 2014
1
By Scouticus Blank
Hey there. This year I have de-conditioned quite a lot. A couple of years ago, and after having POTS for a while,...
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limonteeDec 10, 2014
HeiferlyBlankNov 29, 2014
Treefrog67Nov 28, 2014
AireScottieApr 27, 2009
Gabby116Apr 26, 2009
14
By Gabby116 Blank
I was diagnosed with Dysautonomia in 2006 by a doctor at Mayo Clinic, the diagnosis was in the back of my mind untill...
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AndreaBerlinDec 03, 2014
HeiferlyBlankDec 02, 2014
2
By AndreaBerlin Blank
Hi at all, my name ist Andrea, Im 37 years old and I have a little sweet son. I live in Germany and I hope you ca...
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HeiferlyBlankNov 29, 2014
1
By Leena425 Blank
How much water must I drink daily to prevent orthostatic hypotension?
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Treefrog67Nov 28, 2014
DonnaBugsNov 05, 2014
sue_1234Dec 22, 2011
sue_1234Nov 04, 2010
sue_1234Nov 04, 2010
8
By TXflutterby Blank
Hi everyone. I live in Nacogodoches, TX and I am looking for a specialist in Houston. I was raised in Houston ...
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pottsmomNov 26, 2014
Marinella82Oct 01, 2013
enzymeloverOct 27, 2010
Marinella82Oct 26, 2010
enzymeloverOct 15, 2010
12
By Marinella82 Blank
Just wanted to let you guys know I saw a specialist recently and there is a connection with Dysautonomia and Lyme. If...
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HeiferlyBlankNov 26, 2014
HeiferlyBlankNov 26, 2014
2
By kbahler Blank
I am having edema in my legs and knees and my doctor wants me to use compression stockings. I have neuropathy in my t...
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HeiferlyBlankNov 26, 2014
SheriLynn1980Nov 22, 2014
HeiferlyBlankNov 22, 2014
SheriLynn1980Nov 21, 2014
HeiferlyBlankNov 20, 2014
5
By SheriLynn1980 Blank
I've been sick for about 6 months. Pcp mentioned pots but I think it's a endocrine issue. History of reactive hyp...
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HeiferlyBlankNov 26, 2014
SheriLynn1980Nov 22, 2014
HeiferlyBlankNov 22, 2014
3
By SheriLynn1980 Blank
For about 6 months I've experienced the following symptoms : Lightheaded, dizzy Can't stay awake, constant fatigue...
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HeiferlyBlankNov 20, 2014
GirlGhostNov 17, 2014
2
By GirlGhost Blank
Hi all! My question isn't for me but rather my son. He is 20 years old, currently in the military and stationed ov...
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Leelee12345Nov 18, 2014
HeiferlyBlankJul 23, 2014
2
By EveNida Blank
Hello, my name is Eve, and I'm new to this forum. A little background on me: I'm 22 years old, was diagnosed with POT...
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OdyvanchkNov 17, 2014
abmascarenasSep 25, 2014
abmascarenasSep 25, 2014
abmascarenasSep 25, 2014
TraceyechoFeb 02, 2014
30
By rhonda1017 Blank
Hi, I just came back from Cleveland Clinic and I tested positive on the tilt table for POTS, but they also to...
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HeiferlyBlankNov 09, 2014
1
By IngallsFan Blank
Hello all! I am new to this site. After a very abnormal Tilt Table Test, my Cardiologist told me that I have a very c...
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HeiferlyBlankNov 09, 2014
68SurvivorNov 06, 2014
2
By ShweeMcD Blank
Hi, my daughter was just diagnosed less than a week ago with DA. I am heavily in the research phase and would love al...
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HeiferlyBlankNov 09, 2014
IcannotNov 06, 2014
maithNov 05, 2014
HeiferlyBlankOct 10, 2013
HeiferlyBlankOct 10, 2013
14
By the_mighty_gooch Blank
Does anyone know of a Dysautonomia Clinic in California? I heard there is one at UC Davis but couldn't find it online...
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