Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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Ball123Jul 27, 2014
NotgoingdownyetJul 25, 2014
DynaverseJul 24, 2014
HeiferlyBlankJul 23, 2014
4
By sam_amilia Blank
Hi all, I am just wondering if you could please go I to detail about your POTS symptoms. My story is, about 11 ye...
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Kai_spJul 26, 2014
HeiferlyBlankJul 26, 2014
Kai_spJul 23, 2014
HeiferlyBlankJul 23, 2014
nanasandy2Jul 19, 2014
5
By Kai_sp Blank
I am 16 wks pregnant and in my 30s. No health issues except for anxiety for 3 about years now. Recently, I had hypert...
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HeiferlyBlankJul 26, 2014
1
By Notgoingdownyet Blank
Hello everyone. I just found out I have dysautonomia. I've been bedridden since December 2013. I tested positive for ...
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By TRAVELERSUNITE Blank
I was recently diagnosed w/ autonomic dysfunction, so I haven't had a lot of discussion time w/ a doctor yet. I'm tra...
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By Dynaverse Blank
So.. I need some help figuring out what's going. Please read and give me your thoughts. Basically, 4 years ago, I ...
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HeiferlyBlankJul 23, 2014
AdamqtnzJul 09, 2014
est_sunshineOct 17, 2012
LivingInHopeSep 21, 2012
DancingGiraffeSep 21, 2012
11
By DancingGiraffe Blank
Hi, I recently saw a neurologist who said I have pandysautonomia. He also said there are tests to see if this is aut...
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HeiferlyBlankJul 23, 2014
1
By pots123 Blank
I am 40 y.o female who has been battling POTS for at least 5 years. Tried numerous meds. Currently taking midodrine...
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HeiferlyBlankJul 23, 2014
1
By mellyXbby Blank
I have autonomic dysfunction yet the doctor never directly determined the exact type in general. I have had this for ...
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HeiferlyBlankJul 23, 2014
1
By Amyschi Blank
Hello. I am very interested and would appreciate hearing from anyone who has been seen at the University of Toledo b...
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By GMays Blank
Someone i love was diagnosed with Dysautonomia and am looking for a doctor for her. We live in Fort Worth and want ...
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sam_amiliaJul 09, 2014
madprigMay 01, 2014
lia_joyApr 24, 2014
3
By madprig Blank
I have felt like I have been in a dream since October 2013, after months of not knowing what was wrong I was diagnose...
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HeiferlyBlankJul 06, 2014
joylinkJul 06, 2014
robin5232Mar 12, 2014
elisha79Nov 20, 2013
halesred1Sep 17, 2013
32
By pepito6 Blank
Does anyone know of a good Dr.that treats dysautonomia (POTS) in South Florida?? I have been to the Cleveland clinic...
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MomTo2NicsJun 29, 2014
HeiferlyBlankJun 28, 2014
2
By MomTo2Nics Blank
This is a complicated question. I hope someone can help. My Son had a malformation removed from his spinal cord abo...
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CorieAJun 29, 2014
HeiferlyBlankJun 28, 2014
2
By CorieA Blank
A study came out earlier this year showing a connection between autoantibodies and pots. http://www.dysautonomiainte...
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HeiferlyBlankJun 22, 2014
CorieAJun 22, 2014
HeiferlyBlankMay 26, 2014
tmama007May 16, 2014
CorieAMay 16, 2014
5
By tmama007 Blank
I am wondering if someone can direct me. In October of 2013 out of the blue I started having trouble getting my breat...
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HeiferlyBlankJun 20, 2014
1
By jennir54 Blank
My daughter-in law has POTS. She and my son have been looking for a doctor in California, preferrably So. Cal. who sp...
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itsthebmanAug 01, 2010
KavbearJul 21, 2010
laurab2818Jul 19, 2010
LivingInHopeJul 19, 2010
HeiferlyBlankJul 19, 2010
25
By pepito6 Blank
The dr. told me that I need to drink a lot of water and electrolyte's drink. I have been, drinking gatorade 2, but I...
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AmyschiJun 18, 2014
techiemom64Jun 18, 2014
HeiferlyBlankJun 17, 2014
RissM1994Jun 16, 2014
4
By RissM1994 Blank
Hello everyone, my name is Riss and I'm 19 years old. The past week or so has been a whirlwind for me. My story start...
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Freefran5Jun 16, 2014
morenachulaJun 07, 2014
hbw1Jun 11, 2012
Fellowpatient513Jun 06, 2012
LivingInHopeJun 03, 2012
11
By lfreem02 Blank
I have been on Midodrine for a few weeks. My dose was increased from 5mg three times a day to 10 mg three times a da...
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CruBee44Jun 16, 2014
melanielangeApr 23, 2014
hanabatakeMar 27, 2014
HeiferlyBlankFeb 24, 2011
CruBee44Feb 23, 2011
7
By CruBee44 Blank
Hello! I am a 26 year old female with inappropriate sinus tachycardia (IST), displaying all symptoms. I recently had ...
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Heiferly
Columbus, OH