Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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amandaschilSep 18, 2015
CruBee44Jun 16, 2014
melanielangeApr 23, 2014
hanabatakeMar 27, 2014
HeiferlyBlankFeb 24, 2011
8
By CruBee44 Blank
Hello! I am a 26 year old female with inappropriate sinus tachycardia (IST), displaying all symptoms. I recently had ...
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rjfairweatherSep 17, 2015
HeiferlyBlankJan 16, 2011
mrjnJan 15, 2011
somemonkeyJul 06, 2009
halbashesJul 01, 2009
7
By halbashes Blank
Last year, a member of our community started a thread called "What is your treatment? How well controlled are your s...
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NradfordSep 09, 2015
1
By whittle Blank
Hi my name is Lynne and I live in London England. I have been suffering with Marfans Syndrom since I was a child and...
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By CatheyP
Hello, I believe I may have a form of Dysautonomia, but it is not diagnosed yet. Has anyone found a good doctor to ...
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dcdmitchAug 21, 2015
1
By LynseyT Blank
Hello, Me and my Partner are caught up in a nightmare at the moment and don't know where to turn. 8 weeks ago in M...
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By lasel22
I posted this question in the Chiari forum but I thought it might be a good idea for me to post here as well. Sinc...
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KarendalAug 16, 2015
arpita124Mar 03, 2011
patient915Mar 03, 2011
mtgardnerMar 03, 2011
patient915Feb 28, 2011
5
By arpita124 Blank
I live in the Monterey Bay area of CA and I'm looking for a physician who has some knowledge and experience in treati...
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cougpharmAug 14, 2015
techiemom64Feb 07, 2014
reannacnDec 13, 2013
uniquelybeccaDec 12, 2013
uniquelybeccaDec 12, 2013
5
By techiemom64 Blank
HI I am new to this forum, and looking for a neurologist close to me that has experience or expertise in dysautonomia...
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Rocko230Aug 12, 2015
ahmedhassAug 04, 2015
2
By ahmedhass Blank
hello I'm 36 y male suffering from horrible symptoms since 6 months, I have got a POTS syndrome with heart rate jum...
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By tandwstone Blank
Diagnosed with: Gallbladder removed - 2005 Polysystic Ovary Syndrome - 2006 Diverticulosis - 2010 Stomach ulcers ...
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MottecAug 09, 2015
SethraJun 28, 2015
2
By ahmedhass Blank
I'm 35 years living in a hell since 6 months. I have many unexplained symptoms but I'm sure it is either POTS or Afib...
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By Jimsrv Blank
I proceed to look up information on. DYSAUTONOMIA and I get multiple references to POTS????? Please explain.. ...
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By MichaelDul Blank
Hi there, reading about the diagnosis of Postural Orthostatic Tachycardia Syndrome I got a little bit confused abo...
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cmmdAug 01, 2015
HeiferlyBlankJul 25, 2015
2
By rrva1 Blank
I'm not sure what direction to go now. My daughter has been passing out for over 2 yrs. She recently had a EMU study ...
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cmmdAug 01, 2015
martinutrechtJul 25, 2015
HeiferlyBlankJul 25, 2015
3
By martinutrecht Blank
Hello, I'm a 45y old man, living in the Netherlands. I have serious fatigue problems for more than 10 years. Since...
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Midas31Jul 29, 2015
paulcarignanMay 19, 2015
KellyGottMay 19, 2015
HeiferlyBlankJan 14, 2015
dosheeJan 14, 2015
19
By HeiferlyBlank Blank
I know many of us agonize over the decision of whether to rely on local doctors, travel perhaps hundreds upon hundred...
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By Syershov Blank
Does anyone know how I can best cope with the physical demands of the job? Also, does anyone know exactly what the ph...
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meliaaJul 26, 2015
HeiferlyBlankJul 25, 2015
CHRISTYDRAKEJul 24, 2015
3
By meliaa Blank
I was wondering if anyone else with pots experiences excruciating chest pain? Not just tightness or discomfort, but ...
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LilyminJul 25, 2015
HeiferlyBlankJul 25, 2015
2
By Lilymin Blank
Does anyone know a Doctor that specializes in POTS in Michigan they can recommend?
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HeiferlyBlankJul 25, 2015
1
By anewsyd Blank
Today I saw my primary care physician. I suspect that I have POTS. I've been dealing with chest pain, shortness of br...
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