Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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HeiferlyBlankNov 20, 2014
GirlGhostNov 17, 2014
2
By GirlGhost Blank
Hi all! My question isn't for me but rather my son. He is 20 years old, currently in the military and stationed ov...
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Leelee12345Nov 18, 2014
HeiferlyBlankJul 23, 2014
2
By EveNida Blank
Hello, my name is Eve, and I'm new to this forum. A little background on me: I'm 22 years old, was diagnosed with POT...
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OdyvanchkNov 17, 2014
abmascarenasSep 25, 2014
abmascarenasSep 25, 2014
abmascarenasSep 25, 2014
TraceyechoFeb 02, 2014
30
By rhonda1017 Blank
Hi, I just came back from Cleveland Clinic and I tested positive on the tilt table for POTS, but they also to...
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HeiferlyBlankNov 09, 2014
1
By IngallsFan Blank
Hello all! I am new to this site. After a very abnormal Tilt Table Test, my Cardiologist told me that I have a very c...
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HeiferlyBlankNov 09, 2014
68SurvivorNov 06, 2014
2
By ShweeMcD Blank
Hi, my daughter was just diagnosed less than a week ago with DA. I am heavily in the research phase and would love al...
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HeiferlyBlankNov 09, 2014
IcannotNov 06, 2014
maithNov 05, 2014
HeiferlyBlankOct 10, 2013
HeiferlyBlankOct 10, 2013
14
By the_mighty_gooch Blank
Does anyone know of a Dysautonomia Clinic in California? I heard there is one at UC Davis but couldn't find it online...
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HeiferlyBlankNov 09, 2014
IcannotNov 06, 2014
2
By Despairjam Blank
Does anybody suffer nausea gastrointestinal problems severe fatigue tremors trouble sleeping headaches? I have a hiat...
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HeiferlyBlankNov 09, 2014
Red_StarOct 20, 2014
2
By Bamboozlem Blank
Hi, I have EDS Hypermobile (diagnosed last year) and POTs (diagnosed this Summer). First question: understand...
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By curiousmom13 Blank
I live in Clay County, Florida. My 16 year old daughter has been diagnosed with Dysautonomia after years of misdiagno...
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Shirts3414Jul 11, 2014
Shirts3414Jul 11, 2014
HeiferlyBlankJan 18, 2013
lizzy222Jan 17, 2013
cathystNov 30, 2009
10
By cathyst Blank
Would anyone know of a "decent" dr. in preferably south Florida dealing with autonomic issues. I really do not want ...
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HeiferlyBlankOct 08, 2014
JMOgdenOct 04, 2014
anomaleJun 28, 2014
Hannah_Marie13Jan 05, 2012
AsthmaPOTSNov 01, 2011
7
By laurab2818 Blank
Anyone else have asthma and POTS? I went to Cleveland Clinic and they recommended beta blocker, calcium channel bloc...
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HeiferlyBlankOct 08, 2014
68SurvivorOct 05, 2014
2
By gemme771 Blank
this happened a few times to me i am laying down and i feel that i am going to faint things look a little dim and my...
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drocnodiagnosisOct 05, 2014
HeiferlyBlankSep 26, 2014
2
By drocnodiagnosis Blank
I have a provision dx of dysautonomia based on an understanding PCP's observance of an episode of bradycardia in his ...
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Steve6Oct 30, 2014
AireScottieSep 23, 2009
evo123Sep 22, 2009
supineallthetimeSep 22, 2009
evo123Sep 22, 2009
8
By evo123 Blank
Has anyone had any problems whilst being weaned off Fludrocortisone (florinef)? I have been getting terrible flank p...
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hp0416Oct 29, 2014
mgam3131Jan 15, 2014
ts_mommy123Sep 22, 2013
ts_mommy123Sep 22, 2013
ashspenc21Nov 11, 2012
34
By junbug52704 Blank
I was wondering if anyone has delt with POTS while pregnant. I am now 21 weeks, the symptoms have started a very long...
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kelcee333Oct 29, 2014
HeiferlyBlankJul 06, 2014
lashleylynnJun 29, 2014
HeiferlyBlankJun 28, 2014
lashleylynnJun 22, 2014
24
By JSkrill Blank
Does anyone here know of any relationship with autonomic dysfunction and cervical stenosis? I have found a little bi...
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amit123456789Oct 08, 2014
HeiferlyBlankApr 28, 2010
2
By karinosa Blank
I went to my appointment earlier today and this is what was said. He thinks that my on/off swelling of hands/feet/an...
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RiddleyOct 01, 2014
laurab63Sep 08, 2014
RiddleySep 08, 2014
HeiferlyBlankSep 07, 2014
RiddleyAug 16, 2014
6
By Riddley Blank
Four months ago, I began to have these episodes, mostly in the late morning or late at night, which began with tachyc...
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lyza13Sep 28, 2014
lladridoFeb 27, 2010
CHRISTYDRAKEFeb 10, 2010
3
By pepito6 Blank
I have POTS and might have to get a colonoscopy, has anyone ever done one while suffering with POTS, I am afraid to g...
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HeiferlyBlankSep 07, 2014
1
By PraxxtorCruel Blank
I feel I may have some form of orthostatic intolerance based on the fact that I get a whole variety of symptoms when ...
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