Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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HeiferlyBlankNov 26, 2015
1
By RibbitMD Blank
My 34-year-old son recently fainted -- not his first time, it has happened every so many years -- but it was concerni...
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HeiferlyBlankNov 26, 2015
1
By AROD08 Blank
I am 26 and newly diagnosed with POTS. It first hit me three months ago after a bad case of what I thought was food p...
5915303 tn?1376609886
0224Nov 25, 2015
ittai1987Nov 02, 2015
ittai1987Nov 02, 2015
CHRISTYDRAKEAug 22, 2013
4
By redbuell1203 Blank
Does anyone on here have trouble with their legs being heavy or just down right hurt. Since I have been on midodrine ...
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cjo3Nov 15, 2015
CalusoNov 11, 2015
a_c_82Nov 05, 2015
CalusoJun 16, 2015
paulcarignanMay 19, 2015
23
By Caluso Blank
Please help, has anyone seen severe mood swings in pots? My son is now 18 years old and was diagnosed 9 months ago w...
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lindakayfrenchNov 08, 2015
thyquestionsJul 22, 2010
HeiferlyBlankJul 21, 2010
LivingInHopeJul 21, 2010
thyquestionsJul 20, 2010
6
By thyquestions Blank
I posted this question in the Neurology forum before seeing this Dysautonomia forum. I was recently diagnosed with a...
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gogetter7Nov 07, 2015
1
By potssyndrome1 Blank
I am a 34 year old with a history of chest pain, PVCs, lightheadedness, tremors, migraines, heat/cold intolerance. I ...
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elainejpughNov 06, 2015
LivingInHopeNov 15, 2012
mtgardnerNov 02, 2012
3
By mandysmom26 Blank
Hello..My 26 y.o. daughter has been going through autonomic dysfunction or neuro storms as they have also been termed...
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By gogetter7 Blank
I would like to know if anyone out there has taken Cardizem for POTS also what side effects if any did you have after...
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gogetter7Nov 05, 2015
1
By mosley89 Blank
I really want to make this short & sweet, but that may be difficult because I've been through so much. It's been thre...
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tmachoOct 26, 2015
paindoc38Oct 25, 2015
funlivingOct 19, 2015
3
By tmacho Blank
I have just been through a series of testing at Cleveland Clinic to rule out MS and then with the electrophysiology c...
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By rje11 Blank
I have appts at Mayo in early December and have been reading about autonomic testing. One of the tests seems real si...
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By charbelnjeim Blank
ive had dysautonomia since i had mitral valve repair 2 years ago . My symptoms were POTS and effort induced inappropr...
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By Afranco82 Blank
Hello, I was recently diagnosed with postural orthostatic techycardia syndrome and I need to find a Dr. Who knows ...
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By AdanRi Blank
Hi there, My Girlfriend was diagnosed with POTS in 2012 after beeing tested in a clinic for 2 weeks. Now we feel l...
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By BMcCann Blank
Is there a good POTS doctor in the northwest? Preferably the Spokane, WA area? Nobody I have seen knows much about it...
5851092 tn?1404137064
hefner33Oct 05, 2015
TiredMomma1988Oct 05, 2015
2
By hefner33 Blank
So has anyone else had this. If I stand completely still. My hr gradually raises and will get to around 100-110s. And...
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By TiredMomma1988 Blank
Hey y'all! Question, I'm wondering if I was misdiagnosed with pots when it really should have been deconditioning. It...
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jtol946100Oct 04, 2015
jtol946100Oct 04, 2015
Larobin76Jul 26, 2015
HeiferlyBlankJul 25, 2015
4
By jtol946100 Blank
Did the medication help relieve your symptoms. I debating whether I should try it. My high heart rate is very uncomfo...
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By franceisbakn Blank
I was in hospital few weeks back because my heart was racing all the time for no apparent reason. Had abnormal ecgs ...
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dysautomomSep 26, 2015
HeiferlyBlankMar 15, 2015
Nanna48Mar 15, 2015
HeiferlyBlankMar 04, 2015
dysautomomMar 04, 2015
8
By cjvision Blank
I am inquiring to see if anyone has had their wisdom teeth pulled while under the influence of POTTS disease? And if ...
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