Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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By GMays
Someone i love was diagnosed with Dysautonomia and am looking for a doctor for her. We live in Fort Worth and want ...
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madprigMay 01
lia_joyApr 24
3
By madprig Blank
I have felt like I have been in a dream since October 2013, after months of not knowing what was wrong I was diagnose...
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HeiferlyBlankJul 06
joylinkJul 06
robin5232Mar 12
elisha79Nov 20, 2013
halesred1Sep 17, 2013
32
By pepito6 Blank
Does anyone know of a good Dr.that treats dysautonomia (POTS) in South Florida?? I have been to the Cleveland clinic...
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HeiferlyBlankJun 28
2
By MomTo2Nics
This is a complicated question. I hope someone can help. My Son had a malformation removed from his spinal cord abo...
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CorieAJun 29
HeiferlyBlankJun 28
2
By CorieA
A study came out earlier this year showing a connection between autoantibodies and pots. http://www.dysautonomiainte...
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HeiferlyBlankJun 22
CorieAJun 22
HeiferlyBlankMay 26
tmama007May 16
CorieAMay 16
5
By tmama007 Blank
I am wondering if someone can direct me. In October of 2013 out of the blue I started having trouble getting my breat...
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HeiferlyBlankJun 20
1
By jennir54
My daughter-in law has POTS. She and my son have been looking for a doctor in California, preferrably So. Cal. who sp...
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itsthebmanAug 01, 2010
KavbearJul 21, 2010
laurab2818Jul 19, 2010
LivingInHopeJul 19, 2010
HeiferlyBlankJul 19, 2010
25
By pepito6 Blank
The dr. told me that I need to drink a lot of water and electrolyte's drink. I have been, drinking gatorade 2, but I...
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AmyschiJun 18
HeiferlyBlankJun 17
RissM1994Jun 16
4
By RissM1994
Hello everyone, my name is Riss and I'm 19 years old. The past week or so has been a whirlwind for me. My story start...
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Freefran5Jun 16
hbw1Jun 11, 2012
Fellowpatient513Jun 06, 2012
LivingInHopeJun 03, 2012
11
By lfreem02 Blank
I have been on Midodrine for a few weeks. My dose was increased from 5mg three times a day to 10 mg three times a da...
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CruBee44Jun 16
HeiferlyBlankFeb 24, 2011
CruBee44Feb 23, 2011
7
By CruBee44 Blank
Hello! I am a 26 year old female with inappropriate sinus tachycardia (IST), displaying all symptoms. I recently had ...
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jjnycJun 15
Ball123Jun 08
2
By jjnyc Blank
So great to read other people's posts and realized I'm not alone on this bizarre journey. I'm a 40 year old female wh...
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1
By mnichthompson Blank
I was diagnosed with POTS 2 years ago, but i've never had to have a hospital visit. Past few days, i've been feeling ...
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Ball123Jun 08
Pooyan01Jun 08
2
By Ball123 Blank
I have trouble bending down. Like tying my shoes etc. It feels like all my blood rushes to my head and making it expl...
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Ball123Jun 08
1
By ronbelladog Blank
My heartrate drops into the low 40s while asleep as per holter monitor. It runs high 50s low 60s during the day. I do...
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meggsmomJun 03
HeiferlyBlankOct 07, 2009
2
By nancyannetaylor Blank
Two weeks ago I had my first episode of Harlequin's Syndrome. Does it progress, debilitate, or stay the same?
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By Ball123 Blank
I think that hyperadrenergic POTS should really be differed from other kinds of POTS. To me they seem to stem from co...
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By Dynaverse Blank
Hey, I have POTS (postoral orthostatic tachycardia snydrome) and my doctor needs to put me on Coumadin for 6 months. ...
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Ball123Jun 01
1
By Kndfree Blank
I am newly diagnosed with Low Vitamin D and I am also being tested for Autonomic Nervous System Disorder specifically...
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rdhrntobeSep 17, 2012
lollol3May 09, 2011
enzymeloverSep 26, 2010
21
By lovemydowncomforter Blank
I am a 24 year old female. I've been told after having "unexplained" tachycardia for the last 6 years, that I have In...
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Heiferly
Columbus, OH