Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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jjnycJun 15, 2014
Ball123Jun 08, 2014
2
By jjnyc Blank
So great to read other people's posts and realized I'm not alone on this bizarre journey. I'm a 40 year old female wh...
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CHRISTYDRAKEJun 11, 2014
1
By mnichthompson Blank
I was diagnosed with POTS 2 years ago, but i've never had to have a hospital visit. Past few days, i've been feeling ...
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Ball123Jun 08, 2014
Pooyan01Jun 08, 2014
2
By Ball123 Blank
I have trouble bending down. Like tying my shoes etc. It feels like all my blood rushes to my head and making it expl...
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Ball123Jun 08, 2014
1
By ronbelladog Blank
My heartrate drops into the low 40s while asleep as per holter monitor. It runs high 50s low 60s during the day. I do...
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meggsmomJun 03, 2014
HeiferlyBlankOct 07, 2009
2
By nancyannetaylor Blank
Two weeks ago I had my first episode of Harlequin's Syndrome. Does it progress, debilitate, or stay the same?
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By Ball123 Blank
I think that hyperadrenergic POTS should really be differed from other kinds of POTS. To me they seem to stem from co...
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By Dynaverse Blank
Hey, I have POTS (postoral orthostatic tachycardia snydrome) and my doctor needs to put me on Coumadin for 6 months. ...
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Ball123Jun 01, 2014
1
By Kndfree Blank
I am newly diagnosed with Low Vitamin D and I am also being tested for Autonomic Nervous System Disorder specifically...
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lmfromtexasMay 22, 2014
rdhrntobeSep 17, 2012
lollol3May 09, 2011
enzymeloverSep 26, 2010
21
By lovemydowncomforter Blank
I am a 24 year old female. I've been told after having "unexplained" tachycardia for the last 6 years, that I have In...
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Jewelsday68May 22, 2014
JamiebroMay 17, 2014
DejiboMay 28, 2010
halbashesJan 07, 2010
cathystDec 04, 2009
12
By cathyst Blank
Just checking to see who all is dealing with gastroparesis, your symptoms and treatment. I would also like to know i...
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Jewelsday68May 22, 2014
Jewelsday68May 21, 2014
Jewelsday68May 21, 2014
Jewelsday68May 21, 2014
Sleepy_ladyMay 11, 2014
7
By Sleepy_lady Blank
I went to the ER, my resting heart rate was 90-110 because I was nervous at the doctor, they suspect I have pots and ...
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By Jewelsday68 Blank
I have dysautonomia. I often have abnormal ECG readings when I'm feeling very bad. Today's reading is moderate r...
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deanna178May 16, 2014
steve947Dec 09, 2011
HeiferlyBlankNov 22, 2011
KellysavedbygraceNov 17, 2011
4
By steve947 Blank
Everytime I eat, my blood pressure drops 25 to 35 points, with fatigue and weekness folowing. I know the medical name...
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bean418May 16, 2014
CorieAMay 16, 2014
bean418May 14, 2014
CorieAMay 14, 2014
bean418May 13, 2014
9
By brienh05 Blank
I recently was diagnosed with dysautonomia and was first given metropylol(spelling) and my symptoms worsened so the c...
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CorieAMay 16, 2014
1
By sconesail Blank
Hi All, Does anyone else have really tight muscles with dysautonomia? I faint quite a bit ( about 5-10 times a day...
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CorieAMay 16, 2014
The_beat_goes_onApr 24, 2014
CorieAApr 24, 2014
Ball123Apr 23, 2014
5
By CorieA Blank
My 15 y.o. daughter has been diagnosed with dysautonomia. She identifies as asexual. I've read that dysautonomia ca...
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bean418May 16, 2014
Ball123May 04, 2014
bean418Apr 30, 2014
Ball123Apr 30, 2014
bean418Apr 30, 2014
27
By Ball123 Blank
Does anyone know anything about valsalva headaches and POTS? Can POTS cause headaches associated with straining, coug...
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By CorieA Blank
My 15 y.o. child has been dx with dysautonomia. My understanding is that chronic lyme can be one cause but there can...
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By pudsmal Blank
My son who just turned 18, and has had a series of health challenges including congenital heart(2 open heart repairs,...
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By madprig Blank
Has anyone had vasovagal therapy done for brain fog? Was it successful?
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Heiferly
Columbus, OH