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Dysautonomia (Autonomic Dysfunction) Community
This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.
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Avatar universal
I'm a 28 year old female, and have been living with these unexplain symptoms, I do a lot of research and have came across POTS quite a bi...
1 answer |
1933354 tn?1323366434
Hello. I am really hoping someone or a doctor can provide feedback. I am experiencing some terrifying things and am at a loss. I have had...
4 answers |
612876 tn?1355518095
How far along are you in getting a diagnosis? (Note that the option of "I've been told a specific subtype of dysautonomia, but the under...
16 answers | 1 comment |
Avatar universal
My son is being treated for autonomic dysfunction. He is taking fludrocortisone for the dizziness. Every day since February, he has had...
27 answers |
986162 tn?1297442041
My trip to Rochester, MN was a rough one for me. I fell in the DFW airport because they didn't get a wheelchair for me in time to get on ...
9 answers |
Avatar universal
Hello! Do you have big flare-ups of dysautonomia symptoms? Does anyone have these issues more in cold weather? I have been diagno...
9 answers |
Avatar universal
I am a POTS patient. I was diagnosed when I was 18 by the Mayo clinic. Since then my symptoms would get better and worse, but mostly bett...
Avatar universal
Just had ANSAR testing and it showed PPS in response to sympathetic stimulation. Does anyone know what this is? It says I also have inc...
Avatar universal
My daughter has just been diagnosed with dysautonomia. We have been going to a gastroenterologist for months and had endoscopy's and a co...
4 answers | 1 comment |
Avatar universal
I'm a 28 year old that recently started having syncope. Preceding that I had EKG changes, mild mitral valve regurg, chest pain/SOB. I...
2 answers |
Avatar universal
Hi there, My daughter has severe gastroparesis...now they are wondering about automonic instability......does anyone else out there wi...
3 answers |
Avatar universal
I have had dysautonomia for about a year now,and I'm looking for people who dysautonomia in or near Charlotte.
Avatar universal
I can't stay focused on anything. It's like my mind just goes blank in the middle of work, talking, everything. Feeling afraid and depr...
1 answer |
16502957 tn?1448576185
Heya guys, I was just wondering if any of you would be willing to do an interview over Skype or Facebook about what effects PoTS has on y...
1 answer |
Avatar universal
Would anyone know of a "decent" dr. in preferably south Florida dealing with autonomic issues. I really do not want to travel to Vanderb...
11 answers |
Avatar universal
My tilt table test results showed severe and chronic dysautonomia but the doctor didn't say which kind. From what I read MSA, PAF, and P...
1510006 tn?1305086486
I am 22 weeks pregnant with my son and I have been diagnosed with POTS/Hypotension for almost 4 years now. I have been researching POTS ...
7 answers |
Avatar universal
Hi everyone. Just got tested but my neuro not an autonomic neuro. During Vasalva, they noted a normal sympathetic increased AND a para...
1 answer |
Avatar universal
My 34-year-old son recently fainted -- not his first time, it has happened every so many years -- but it was concerning because he was ju...
1 answer |
Avatar universal
I am 26 and newly diagnosed with POTS. It first hit me three months ago after a bad case of what I thought was food poisoning. Since then...
1 answer |
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