Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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fattrobbMar 30
fattrobbMar 30
Ball123Mar 30
fattrobbMar 30
Poppy7402Mar 30
8
By fattrobb Blank
I am a 43 year old male, overweight and pre-diabetic. My health has been deteriorating over the past couple of years...
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3
By Ball123 Blank
POTS sufferers don't necessarily have associated headaches but POTS is known for sometimes creating weird headaches. ...
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HeiferlyBlankOct 15, 2013
beautifulrainbowOct 07, 2013
kkryleeDec 17, 2011
28
By kkrylee Blank
My 16 yr old daughter has had numerous symptoms since Oct 4th, 2007: Continuous headache at base of skull, con...
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ChessurMar 22
Ashmarie101Aug 16, 2013
Ashmarie101Aug 16, 2013
HeiferlyBlankAug 11, 2013
6
By Ashmarie101 Blank
I hope today is going well for all you! After every blood test and MRI and CR scans coming back normal, I found out I...
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By SeanMichael24 Blank
Can you die from POTs ? Another question is can it cause long term health concerns such as heart failure etc.. ?
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scotti562Mar 23
Mian01Mar 22
scotti562Mar 03
scotti562Mar 03
laurab63Mar 03
15
By scotti562 Blank
I have a 13yr old son with POTS, does anybody else find in the summer months, symptoms are so....... much worse? Even...
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By jen201041 Blank
I have POTS and am supposed to go to the Mayo Clinic in Minnesota this winter. I'm curious who has been to Mayo befor...
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By Niko_Saka Blank
Let me start by saying thank you for taking you time to read this. I started having Shoulder pain about 8 months a...
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fattrobbMar 19
1
By MadiBogden Blank
I believe I have dysautonomia. The first symptoms that have shown up are digestive related. In one day ill go from be...
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fattrobbMar 19
2
By AlishaDanae Blank
Hello all, I was just diagnosed at the MAYO clinic with POTS. One of my symptoms is muscle twitching. Anyone else...
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2
By laurab63 Blank
I am having an upset stomach when I drink Gatorade. Am guessing it is the sugar. Anyone else have this problem and/...
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bean418Mar 18
SuezqpotsMar 14
SuezqpotsMar 14
Ball123Feb 07
6
By Ball123 Blank
Does anyone else feel like fainting in the shower? Warm shower; my heart rate goes up as hell and I start to feel nau...
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By Suezqpots Blank
Does anyone have an internist/PCP &/or EP in the N burbs who knows pots & related conditions & who likes sick ppl (lo...
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Skmtkm01Mar 13
ball8016Feb 25, 2013
HeiferlyBlankJan 06, 2013
LittleTicker_no1Jan 06, 2013
ladymleeJan 06, 2013
16
By MJ968 Blank
I passed out in 2007 and started getting lightheaded in 2009. Since then and till now the lightheadedness is gettin...
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By khull90 Blank
My 7 weeks pregnant and I have POTS and NCS. My OB (who knows nothing about Dysautonomia) wants me to start exercisin...
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By maeriley Blank
Hello I have been here before. Ok I have had a upper Endoscopy and everything was normal. Now I have these burning fe...
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By StephLBaker Blank
I 25 years old and I need help with POTS I was diagnosed Aug. 2013. I experience a lot of near fainting and sometimes...
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achilleaMar 04
1
By san635 Blank
Has anyone ever had their drivers license cancelled because of syncope episodes ? My daughter has lost consciousness ...
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By Nyttja Blank
My son, 15, an active athletic basketball player and A student has been "sick" for 6 weeks. The Paediatrician is sayi...
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NyttjaMar 04
LivingInHopeJan 18, 2012
concernedkate600Jan 07, 2012
octobermom0103Mar 07, 2011
sonikaurJan 24, 2011
11
By octobermom0103 Blank
My daughter out of the blue, starting having sever symptoms at 5 (now 7). She would just drop and have a seizure and...
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