Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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pritchagNov 18, 2013
pritchagNov 18, 2013
LivingInHopeAug 24, 2012
TX35Aug 24, 2012
LivingInHopeAug 23, 2012
6
By TX35 Blank
Since a while, i'm dealing with extreme anxiety (panic with agoraphobia, OCD, GAD, social phobia), in the past it was...
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vedadharNov 17, 2013
1
By perla141
My daughter had ablation to cure ventricular tachycardia the surgon wrote to me saying non inducibility of her tachyc...
6765167_tn?1384568778
By Nikki92984
My mother was diagnosed with Dysautonomia AKA POTS in January 2013. We need help with resources for her. She has lost...
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gjensenNov 15, 2013
HeiferlyBlankNov 14, 2013
gjensenNov 03, 2013
gjensenNov 03, 2013
gjensenNov 03, 2013
6
By gjensen
I have been bouncing among specialist for some time. It has become obvious that I have some form of autonomic dysfun...
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HeiferlyBlankNov 14, 2013
1
By Jellybean1986
Hi there, So in 2007 I was diagnosed with POTS. I took Thermotabs for about 1yr and the symptoms stopped. Now, I h...
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HeiferlyBlankNov 14, 2013
sn88Nov 04, 2013
HeiferlyBlankOct 25, 2013
3
By sn88
I am now 19weeks pregnant and have had quite a few complications with this pregnancy, i was feeling very unwell and t...
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CHRISTYDRAKENov 11, 2013
CHRISTYDRAKENov 11, 2013
lindafitnessNov 11, 2013
lindafitnessNov 11, 2013
CHRISTYDRAKENov 10, 2013
6
By lindafitness
I have been taking 30mg of cymbalta for POTS for 2.5 years. It solved my rapid heart rate but recently my dizziness a...
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hkburkeNov 10, 2013
eddie936Sep 26, 2013
marthad2uApr 12, 2010
LivingInHopeApr 05, 2010
evo123Apr 05, 2010
7
By moodya15 Blank
I am 13 years old, and in the 7th grade. A couple days ago I was diagnosed with dysautonomia. No one in my family has...
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By noodle23
Does midodrine have adverse effects if taken when you also have the disease cmt, charcot marie tooth?
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intendtobeoff02Nov 05, 2013
LivingInHopeApr 15, 2013
intendtobeoff02Apr 14, 2013
LivingInHopeApr 12, 2013
JCappielloApr 12, 2013
5
By intendtobeoff02 Blank
I am a 22 year old female and 15 weeks pregnant. Since I was about 10 weeks, I would get these dizzy spells, nasuea, ...
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mom50071Nov 05, 2013
angelab1105Aug 05, 2013
theonewhosleepsJul 02, 2013
mhop111Aug 16, 2011
4
By LaLa4 Blank
Hi all, I donated blood last night and have been feeling really POTSy (my term for when I'm really experiencing my s...
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HeiferlyBlankNov 02, 2013
Rainmist12Oct 26, 2013
HeiferlyBlankOct 25, 2013
3
By Rainmist12
I've had POTS for 3 years and managed, but this week had the flare from hell. Haven't eaten or slept, severely dizzy,...
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sisterGOct 26, 2013
DebDrakeAug 20, 2012
dyskidAug 17, 2012
dkj1Aug 05, 2012
jbr850Nov 09, 2011
8
By canady2009 Blank
Hi, I am a 23 year old female, I have been diagnosed with POTS (by a tilt table test) since December, but I have had ...
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HeiferlyBlankOct 25, 2013
1
By mommyto3girlies
Any input on it or stories you would like to relate??
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HeiferlyBlankOct 25, 2013
CHRISTYDRAKEOct 23, 2013
CHRISTYDRAKEOct 23, 2013
3
By JustMeHeeHee
Hello! I am fairly new to this forum, and have only asked one question so far. Mostly I just wanted to share an updat...
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Rainmist12Oct 25, 2013
CHRISTYDRAKEOct 25, 2013
2
By Rainmist12
I have managed POTS for 3 years, this last week have had the flare from hell and it won't quit. When things are bad m...
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sunkOct 20, 2013
LivingInHopeSep 27, 2012
js24Sep 25, 2012
DancingGiraffeSep 20, 2012
LivingInHopeSep 18, 2012
11
By js24 Blank
Hi there. I was recently 'diagnosed' with dysautonomia - really, it was just the doctor saying I have IST and POTS an...
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KisekiShiawaseOct 18, 2013
HeiferlyBlankOct 17, 2013
KisekiShiawaseOct 04, 2013
3
By KisekiShiawase Blank
Hello i hope i get some shed of light here :( I have a history of heart problem (tachycardia palpitation) since i wa...
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Sara_Jane19Oct 17, 2013
1
By Gabby0000 Blank
Hi all, my 15 year old was just diagnosed with dysautonomia. We have been fighting for an answer to her morning sick...
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HeiferlyBlankOct 17, 2013
1
By BG456 Blank
Does anyone have these symptoms? I was diagnosed with MVP when I was ~12 years old after having a sudden sharp chest ...
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