Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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HeiferlyBlankJul 25, 2015
greglhJul 16, 2015
2
By myjanelle Blank
I have been diagnosed with vasovagel syncope which is a fainting when your blood pressure lowers. This fainting seems...
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runnerlover2323Jul 23, 2015
TiredMomma1988Jun 16, 2015
2
By TiredMomma1988 Blank
Sorry but this will be long but please respond if you have any info or same symptoms. I feel so alone with this illne...
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Mhamp17Jul 23, 2015
1
By kayhill8 Blank
Hi, my 13 year old has been recently tentatively diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome). She...
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By 0224 Blank
I was writing to see if anybody on this blog has Chiari and POTS? I was diagnosed with Chiari one year ago and had d...
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DaninMNJul 02, 2015
binder58Sep 22, 2010
lj9803Sep 10, 2010
globalhikingSep 09, 2010
NYCpotsSep 08, 2010
11
By lj9803 Blank
Hi has anybody on here found any meds that help with the stomach problems of POTS. I feel like I have a lead cookie i...
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All5SpeedsJul 02, 2015
JenniferWATLOct 15, 2012
globalhikingSep 09, 2010
Marinella82Sep 08, 2010
vbc2000Sep 08, 2010
7
By Marinella82 Blank
About a year ago I had lyme disease in my spinal fluid and brain and at the same time developed Tackycardia and Vasov...
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kfailoniJun 23, 2015
HeiferlyBlankFeb 15, 2015
queenofhearts316Jan 30, 2015
Raisin1Jan 24, 2015
4
By Joey2324 Blank
Hi, My name is joey and i am 26 years old. I fell ill with a myriad of horrible symptoms almost 2 years ago (20months...
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JoWorrallJun 22, 2015
ladygirl24Jun 11, 2015
paulcarignanMay 19, 2015
3
By steph1108 Blank
Im scared and unsure what im supposed to expect with this. Its been a bad weekend, anxiety, blood pressure up and dow...
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TiredMomma1988Jun 16, 2015
MottecJun 16, 2015
TiredMomma1988Jun 16, 2015
3
By Mottec Blank
Hi I am dignosed with IST(inapropriate sinus tachycardi), a similar condition to POTS, or at least overlapping. My di...
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By rosered44 Blank
This has been ongoing and worsening for 10 years now, every time I eat and stand up I feel like I am going to pass ou...
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JoWorrallJun 11, 2015
1
By kristenuh44 Blank
This will be long so please bare with me. I am a 30 year old married, female with no children that has not found ANY ...
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ladygirl24Jun 11, 2015
paulcarignanJun 01, 2015
2
By Cookie3221 Blank
My son was just recently diagnosed with dysautonomia a couple weeks ago. We had been seeing a regular neurologist fo...
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BeverlyzJun 09, 2015
lucy189Apr 25, 2013
BeverlyzApr 22, 2013
lucy189Sep 04, 2011
Marie4586Sep 04, 2011
13
By lucy189 Blank
I posted this under neurocardiogenic, as one of my son's doctors mentioned vasovagol, but we are not really sure what...
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snoopmindyJun 07, 2015
Swim43pcflJan 02, 2015
KavbearOct 14, 2010
DysautonomiaPrisonOct 14, 2010
highflyinOct 14, 2010
9
By highflyin Blank
Do nerves repair themselves? My ANS is not quite right as I am susceptable to low blood pressure from dehydration and...
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DelinaCaldwellJun 05, 2015
paulcarignanMay 19, 2015
HeiferlyBlankApr 14, 2015
3
By ellpea Blank
Hi all. I was diagnosed with POTS last year, and through my own research I am very confident that that is my issue, d...
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DelinaCaldwellJun 03, 2015
LivingInHopeJul 30, 2012
Kristine1961Jul 29, 2012
dawnsc78Jul 29, 2012
Kristine1961Jul 27, 2012
9
By Kristine1961 Blank
I have not been diagnosed with POTS; however, after reading some of the symptoms, I feel as if I have some type of OI...
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paulcarignanJun 01, 2015
1
By Harrafvr1 Blank
I had infusion for strengthenng.my bones last Thursday. Ever since my heart beat while resting has gone up into the ...
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Gordon73May 20, 2015
paulcarignanMay 19, 2015
2
By Gordon73 Blank
Sadly I seem to have developed a major autonomic dysfunction - been in and out of hospital every other day for the pa...
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By paulcarignan Blank
I'm brand new to this site. Do you know about these interent resources? http://www.dysautonomiainternational.org/p...
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paulcarignanMay 19, 2015
delia311Apr 25, 2015
HeiferlyBlankApr 14, 2015
delia311Apr 09, 2015
4
By delia311 Blank
Hi, I'm new here. I'm 25, have 2 kids and wonderful supportive husband and way to may weird medical issues. I've be...
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