Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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LivingInHopeDec 24, 2012
LivingInHopeDec 24, 2012
CHRISTYDRAKEDec 22, 2012
3
By deperatemom
My daughter has been diagnosed with POTS and it is accompanied by an 8-month migraine. She is now having multiple wee...
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kenny1728Dec 23, 2012
LivingInHopeAug 23, 2012
kamil_anAug 23, 2012
LivingInHopeMay 17, 2012
patty863May 12, 2012
12
By elainef814 Blank
Would anyone know a dysautonomia specialist in the Philippines or in Asia? I've been confined twice and have had 6 do...
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By HeiferlyBlank Blank
We've had great success with the "weekly update" thread that Tonya has so generously started and kept going for us he...
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Kristin28282828Dec 15, 2012
LivingInHopeDec 07, 2012
CurrerBellDec 06, 2012
LivingInHopeDec 06, 2012
4
By CurrerBell
Hi there, I have just been diagnosed with pots and am so scared about the impact this will have on my life. I am ...
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Kristin28282828Dec 15, 2012
CHRISTYDRAKEDec 08, 2012
LivingInHopeDec 06, 2012
CurrerBellDec 06, 2012
LivingInHopeDec 06, 2012
5
By CurrerBell
Hello everyone, I am new here.. New to the world of pots. I was diagnosed just a couple of days ago. While rese...
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zmklmom9Dec 13, 2012
twilightmom2491May 14, 2009
AireScottieMay 14, 2009
halbashesMay 13, 2009
4
By twilightmom2491 Blank
My daughter was diagnosed with dysautonomia one year ago. She had viral meningitis in 07 and has not been in good hea...
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LivingInHopeDec 11, 2012
den2094Dec 10, 2012
auntissieJun 07, 2010
bethilouJun 07, 2010
HeiferlyBlankMar 28, 2010
7
By Nurse2b1982 Blank
Hello everyone! I am a member of the heart rhythm community on here and I heard that my POTS could have something to ...
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LivingInHopeNov 27, 2012
sarahbsnNov 22, 2012
RN06Nov 15, 2012
3
By sarahbsn Blank
I have never had any issues with my heart before till I was 18 weeks pregnant. I have now been to the Emergency room...
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LivingInHopeNov 27, 2012
1
By katie3939
Hi, I have POTS and live in Orlando. Does anyone know of a good doctor in Orlando who treats dysautonomia? Thank ...
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LivingInHopeNov 21, 2012
dani35Nov 20, 2012
LivingInHopeNov 18, 2012
dani35Nov 18, 2012
LivingInHopeNov 17, 2012
18
By dani35 Blank
Hi there I was diagnosed with hypothyroidism in March 2011. I have not been feeling well since. I have had optimal ...
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flowerpower384Nov 16, 2012
1
By CrystalFaith Blank
Hey, this is a totally random question, but does anyone know of any Dysautonomia/POTS support groups in the Reno-Spar...
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LivingInHopeNov 15, 2012
mtgardnerNov 02, 2012
2
By mandysmom26 Blank
Hello..My 26 y.o. daughter has been going through autonomic dysfunction or neuro storms as they have also been termed...
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LivingInHopeNov 15, 2012
Mom2four85Nov 07, 2012
2
By Shellbot17 Blank
I was recently diagnosed with dysautonomia, after having several fainting episodes and other issues. My doctor put me...
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LivingInHopeNov 15, 2012
1
By charlie9946 Blank
Hi, am a male aged 29 diagnosed with high blood pressure ranging around 146-165/89-98. I also experience tremors (sha...
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LivingInHopeNov 15, 2012
1
By bulletineditor Blank
My compression knees are to tight around the back of my knee. What can I do to stretch that part ?
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southernlightsNov 12, 2012
LivingInHopeMay 29, 2012
invisiblymeMay 27, 2012
LivingInHopeMay 26, 2012
4
By invisiblyme Blank
I have had POTS for many years and also Hidradenitis Suppurativa for about 12 years. I am just wondering if anyone e...
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ashspenc21Nov 11, 2012
tape49Sep 18, 2012
hbshrrlAug 07, 2012
whitney13Nov 06, 2011
miab428Aug 13, 2011
30
By junbug52704 Blank
I was wondering if anyone has delt with POTS while pregnant. I am now 21 weeks, the symptoms have started a very long...
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Proud2bmommyNov 04, 2012
LivingInHopeJul 07, 2012
apPOTSJun 24, 2012
enzymeloverMar 07, 2012
4
By HeiferlyBlank Blank
Somehow the original journal article (see URL below) slipped my attention, but it definitely didn't slip the attentio...
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Mom2four85Nov 04, 2012
techiemom64Nov 02, 2012
Ashley198230Oct 19, 2012
3
By sonya12 Blank
Hi, I'm new to this forum. I hope someone can help. Has anyone been going through this?? I've been dealing with anxi...
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techiemom64Nov 02, 2012
1
By invisiblyme Blank
I have had POTS for over 10 years. I of my symptoms that I have had off and on for years is twitching especially in ...
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