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Dysautonomia (Autonomic Dysfunction) Community

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

101 - 120 (of 1823) questions
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Avatar universal
Hi, my 13 year old has been recently tentatively diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome). She is unable to be upright long enough to attend school. She also has developed hyperinsulinemia/hypoglycemia which we ar...
  Posted
Avatar universal
I was writing to see if anybody on this blog has Chiari and POTS? I was diagnosed with Chiari one year ago and had decompression surgery in 9 months ago. I was still having some issues so they recommend to have autonomic testing done. I...
  Posted
1434905 tn?1283648703
Hi has anybody on here found any meds that help with the stomach problems of POTS. I feel like I have a lead cookie in my stomach all the time . I become full after only a couple of bites of food . I feel sick all day right now Im taking...
  Posted
Avatar universal
About a year ago I had lyme disease in my spinal fluid and brain and at the same time developed Tackycardia and Vasovegal Sncope and nerological problems. Doctors have told me that usually a virus will cause neurocardiogenic syncope but...
  Posted
Avatar universal
Hi, My name is joey and i am 26 years old. I fell ill with a myriad of horrible symptoms almost 2 years ago (20months). I had had postural tachy, still do; horrible adrenaline surges, feeling like I had the flu and adrenaline, but litera...
  Posted
Avatar universal
Im scared and unsure what im supposed to expect with this. Its been a bad weekend, anxiety, blood pressure up and down, nausea,hot then cold, pain different parts of the body, stiffness in my neck, chest pains. Plaese help, is this normal?
  Posted
Avatar universal
Hi I am dignosed with IST(inapropriate sinus tachycardi), a similar condition to POTS, or at least overlapping. My diagnosis process has been lackluster taking many months, and requring me to seek private specialists, in a country of sta...
  Posted
Avatar universal
This has been ongoing and worsening for 10 years now, every time I eat and stand up I feel like I am going to pass out with string head and neck pressure. It's so bad that I cannot eat out for fear blacken out and I get tunnel vision and...
  Posted
Avatar universal
This will be long so please bare with me. I am a 30 year old married, female with no children that has not found ANY relief over the last 20 years of doctors visits and investigations. When I was 11, I started showing symptoms of seve...
  Posted
Avatar universal
My son was just recently diagnosed with dysautonomia a couple weeks ago. We had been seeing a regular neurologist for migraines and headaches and then went to see a pediatric neurologist that diagnosed my son with dysautonomia. She sai...
  Posted
Avatar universal
I posted this under neurocardiogenic, as one of my son's doctors mentioned vasovagol, but we are not really sure what he has. I have posted other stuff here and you all have been very helpful, so here gpes. My son - 16, was an athlete...
  Posted
1471920 tn?1286831137
Do nerves repair themselves? My ANS is not quite right as I am susceptable to low blood pressure from dehydration and orthostatic hypotension. This seemed to start this past June when I had a vasovagal syncope while on the commode. I fel...
  Posted
Avatar universal
Hi all. I was diagnosed with POTS last year, and through my own research I am very confident that that is my issue, despite having found no knowledgeable doctors to help me treat it. Through my own research I have adopted beneficial life...
  Posted
Avatar universal
I have not been diagnosed with POTS; however, after reading some of the symptoms, I feel as if I have some type of OI. What I thought were drops in blood pressure; spells of near-syncope, dizziness, palpitations, breathlessness, etc., I ...
  Posted
Avatar universal
How many of you are dealing with this disorder ?
  Posted
Avatar universal
I had infusion for strengthenng.my bones last Thursday. Ever since my heart beat while resting has gone up into the high 70's to 80's and when walking to the bathroom and back has gone as high as 122. Has anyone had this before? Will ...
  Posted
Avatar universal
Sadly I seem to have developed a major autonomic dysfunction - been in and out of hospital every other day for the past 6 weeks but still no firm way forward. 6 weeks ago I developed a left flank pain towards the back beneath the ribs...
  Posted
Avatar universal
I'm brand new to this site. Do you know about these interent resources? http://www.dysautonomiainternational.org/page.php?ID=34 http://www.ninds.nih.gov/disorders/dysautonomia/dysautonomia.htm http://www.ndrf.org/ http://www....
  Posted
Avatar universal
Hi, I'm new here. I'm 25, have 2 kids and wonderful supportive husband and way to may weird medical issues. I've been having symptoms for a few years but brushed them off as normal and me being a wimp or I would go to my dr and nothing...
  Posted
Avatar universal
Hi everyone. I know I am new and I know this is a long story, so I hope you will read. A few months ago, I woke up in the middle of the night, and basically was covered in a cold sweat, and passed out in my bathroom, or at least they...
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