Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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cmmdAug 01, 2015
HeiferlyBlankJul 25, 2015
2
By rrva1 Blank
I'm not sure what direction to go now. My daughter has been passing out for over 2 yrs. She recently had a EMU study ...
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cmmdAug 01, 2015
martinutrechtJul 25, 2015
HeiferlyBlankJul 25, 2015
3
By martinutrecht Blank
Hello, I'm a 45y old man, living in the Netherlands. I have serious fatigue problems for more than 10 years. Since...
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Midas31Jul 29, 2015
paulcarignanMay 19, 2015
KellyGottMay 19, 2015
HeiferlyBlankJan 14, 2015
dosheeJan 14, 2015
19
By HeiferlyBlank Blank
I know many of us agonize over the decision of whether to rely on local doctors, travel perhaps hundreds upon hundred...
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By Syershov Blank
Does anyone know how I can best cope with the physical demands of the job? Also, does anyone know exactly what the ph...
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meliaaJul 26, 2015
HeiferlyBlankJul 25, 2015
CHRISTYDRAKEJul 24, 2015
3
By meliaa Blank
I was wondering if anyone else with pots experiences excruciating chest pain? Not just tightness or discomfort, but ...
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LilyminJul 25, 2015
HeiferlyBlankJul 25, 2015
2
By Lilymin Blank
Does anyone know a Doctor that specializes in POTS in Michigan they can recommend?
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HeiferlyBlankJul 25, 2015
1
By anewsyd Blank
Today I saw my primary care physician. I suspect that I have POTS. I've been dealing with chest pain, shortness of br...
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HeiferlyBlankJul 25, 2015
greglhJul 16, 2015
2
By myjanelle Blank
I have been diagnosed with vasovagel syncope which is a fainting when your blood pressure lowers. This fainting seems...
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runnerlover2323Jul 23, 2015
TiredMomma1988Jun 16, 2015
2
By TiredMomma1988 Blank
Sorry but this will be long but please respond if you have any info or same symptoms. I feel so alone with this illne...
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Mhamp17Jul 23, 2015
1
By kayhill8 Blank
Hi, my 13 year old has been recently tentatively diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome). She...
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By 0224 Blank
I was writing to see if anybody on this blog has Chiari and POTS? I was diagnosed with Chiari one year ago and had d...
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DaninMNJul 02, 2015
binder58Sep 22, 2010
lj9803Sep 10, 2010
globalhikingSep 09, 2010
NYCpotsSep 08, 2010
11
By lj9803 Blank
Hi has anybody on here found any meds that help with the stomach problems of POTS. I feel like I have a lead cookie i...
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All5SpeedsJul 02, 2015
JenniferWATLOct 15, 2012
globalhikingSep 09, 2010
Marinella82Sep 08, 2010
vbc2000Sep 08, 2010
7
By Marinella82 Blank
About a year ago I had lyme disease in my spinal fluid and brain and at the same time developed Tackycardia and Vasov...
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kfailoniJun 23, 2015
HeiferlyBlankFeb 15, 2015
queenofhearts316Jan 30, 2015
Raisin1Jan 24, 2015
4
By Joey2324 Blank
Hi, My name is joey and i am 26 years old. I fell ill with a myriad of horrible symptoms almost 2 years ago (20months...
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JoWorrallJun 22, 2015
ladygirl24Jun 11, 2015
paulcarignanMay 19, 2015
3
By steph1108 Blank
Im scared and unsure what im supposed to expect with this. Its been a bad weekend, anxiety, blood pressure up and dow...
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TiredMomma1988Jun 16, 2015
MottecJun 16, 2015
TiredMomma1988Jun 16, 2015
3
By Mottec Blank
Hi I am dignosed with IST(inapropriate sinus tachycardi), a similar condition to POTS, or at least overlapping. My di...
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By rosered44 Blank
This has been ongoing and worsening for 10 years now, every time I eat and stand up I feel like I am going to pass ou...
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JoWorrallJun 11, 2015
1
By kristenuh44 Blank
This will be long so please bare with me. I am a 30 year old married, female with no children that has not found ANY ...
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ladygirl24Jun 11, 2015
paulcarignanJun 01, 2015
2
By Cookie3221 Blank
My son was just recently diagnosed with dysautonomia a couple weeks ago. We had been seeing a regular neurologist fo...
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BeverlyzJun 09, 2015
lucy189Apr 25, 2013
BeverlyzApr 22, 2013
lucy189Sep 04, 2011
Marie4586Sep 04, 2011
13
By lucy189 Blank
I posted this under neurocardiogenic, as one of my son's doctors mentioned vasovagol, but we are not really sure what...
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