Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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lyza13Sep 28, 2014
lladridoFeb 27, 2010
CHRISTYDRAKEFeb 10, 2010
3
By pepito6 Blank
I have POTS and might have to get a colonoscopy, has anyone ever done one while suffering with POTS, I am afraid to g...
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HeiferlyBlankSep 07, 2014
1
By PraxxtorCruel Blank
I feel I may have some form of orthostatic intolerance based on the fact that I get a whole variety of symptoms when ...
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HeiferlyBlankSep 07, 2014
1
By RioM Blank
Hi Around 5 months ago, I was at work one day when suddenly my heart skipped a few beats, my body then went in...
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HeiferlyBlankSep 07, 2014
HeiferlyBlankSep 07, 2014
naomisilvAug 20, 2014
naomisilvAug 19, 2014
HeiferlyBlankAug 18, 2014
6
By naomisilv Blank
Hi I have been diagnosed with Dysautonomia and POTS. I was very happy to get the diagnosis after 8 years of weakne...
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HeiferlyBlankSep 07, 2014
EEustisAug 19, 2014
HeiferlyBlankAug 18, 2014
3
By EEustis Blank
Hello everyone, Question, especially for POTS folks: I recently developed a polyneuropathy after vaccination. It is...
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TCRyderAug 29, 2014
LowMacJul 31, 2010
mtgardnerJul 30, 2010
LowMacJul 22, 2010
LivingInHopeJul 18, 2010
13
By LowMac Blank
Hey Everyone, I'm a longtime member of MedHelp forums, actually longer than my current member name (since 2004) bu...
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CHRISTYDRAKEAug 28, 2014
justine911Aug 28, 2014
potsinflSep 17, 2010
mtgardnerSep 17, 2010
NoFluxesSep 16, 2010
39
By NoFluxes Blank
Hey, I'm new here and need help and advice on my condition, I'm 16 years old and this disease has taken over my life....
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brainfriedAug 19, 2014
HeiferlyBlankAug 18, 2014
2
By AWDRG0096 Blank
I didn't really know where to post this. Perhaps someone here can help. This is a kind of odd phenomenon I've noticed...
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Lucia2844Aug 07, 2014
LivingInHopeApr 29, 2012
OnTheFence142Apr 14, 2012
DNP47Apr 13, 2012
OnTheFence142Apr 10, 2012
6
By OnTheFence142 Blank
Hi All, I have recently been diagnosed w/POTS after a + TTT. It didn't induce syncope but rather the diagnosis wa...
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ava2Jun 03, 2012
Family2011Sep 18, 2011
LivingInHopeMar 28, 2011
HeiferlyBlankMar 28, 2011
arpita124Mar 28, 2011
6
By arpita124 Blank
I haven't been given a diagnosis and I went to a neurologist because after researching my symptoms I suspected autono...
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naomisilvAug 19, 2014
HeiferlyBlankAug 18, 2014
2
By naomisilv Blank
Hi All I have been diagnosed with POTS and Neurally mediated dysautonomia My GP has suggested that I get 8 liters o...
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HeiferlyBlankAug 18, 2014
1
By Tiffiny76 Blank
I have been experiencing issues since I was a teenager. I am now 38 & still undiagnosed. I should find out on Monda...
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HeiferlyBlankAug 04, 2014
HeiferlyBlankAug 04, 2014
2
By Dynaverse Blank
To all you POTSIES out there, to what degree do you get shortness of breath if at all? When I walk more than 2kms ...
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HeiferlyBlankAug 04, 2014
HeiferlyBlankAug 04, 2014
2
By denisef_0324 Blank
I have been diagnosed with Neurocardiogenic Syncope for about 7 years, but I always knew there was something wrong wi...
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HeiferlyBlankAug 04, 2014
Ball123Jul 27, 2014
MadiBogdenJul 27, 2014
HeiferlyBlankJul 26, 2014
4
By MadiBogden Blank
Okay I'm 16 and I can't remember how long but for the longest time I would pass out. I would pass out from getting up...
1115123_tn?1406285283
HeiferlyBlankAug 04, 2014
1
By Dynaverse Blank
So, I had orthostatic intollerance for about 4 years, and I was living a very normal life and dealing with all the sy...
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Ball123Jul 27, 2014
NotgoingdownyetJul 25, 2014
DynaverseJul 24, 2014
HeiferlyBlankJul 23, 2014
4
By sam_amilia Blank
Hi all, I am just wondering if you could please go I to detail about your POTS symptoms. My story is, about 11 ye...
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Kai_spJul 26, 2014
HeiferlyBlankJul 26, 2014
Kai_spJul 23, 2014
HeiferlyBlankJul 23, 2014
nanasandy2Jul 19, 2014
5
By Kai_sp Blank
I am 16 wks pregnant and in my 30s. No health issues except for anxiety for 3 about years now. Recently, I had hypert...
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HeiferlyBlankJul 26, 2014
1
By Notgoingdownyet Blank
Hello everyone. I just found out I have dysautonomia. I've been bedridden since December 2013. I tested positive for ...
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By TRAVELERSUNITE Blank
I was recently diagnosed w/ autonomic dysfunction, so I haven't had a lot of discussion time w/ a doctor yet. I'm tra...
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