Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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laurab63Feb 05
inkwell82Feb 04
2
By ablanken Blank
My daughter was seeing a doctor at Cleveland Clinic who retired. It took a long time to get an appointment there. Cur...
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oklara23Feb 05
PlevarioFeb 05
3
By oklara23
Hello everyone I am a 14 year old female. I was recently admitted to the hospital & got told I have vasovagal syncope...
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By Fkilpatrick
Can anyone recommend a qualified physician/neurologist in the Atlanta, Ga area experienced in treating autonomic dysf...
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sacox88May 28, 2012
HeiferlyBlankOct 28, 2011
26
By rhonda1017 Blank
Hi, I just came back from Cleveland Clinic and I tested positive on the tilt table for POTS, but they also to...
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Zoe5710Jan 26
JLS_23Jan 25
Dorn82Nov 16, 2013
JCBFanClubSep 20, 2013
LivingInHopeJan 02, 2012
8
By Zoe5710 Blank
Hello! Do you have big flare-ups of dysautonomia symptoms? Does anyone have these issues more in cold weather? ...
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By colleen344 Blank
Hi - does anyone know if abilify is safe to take with POTs? I have pretty bad anxiety/depression that has been drug r...
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By SyedMashor Blank
I have Ankylosing Spondylitis (AS) or Seronegative Spondyloarthropathy. Suffering for 7 years now. Disease progressio...
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mgam3131Jan 15
KittieBeeJan 11
HeiferlyBlankSep 30, 2011
Loopy_emmSep 27, 2011
GilserJul 19, 2010
6
By larrygav1962 Blank
My daughter was diagnosed with POTS in 2007 and is concerned after reading an internet web article that women with PO...
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mgam3131Jan 15
ts_mommy123Sep 22, 2013
ts_mommy123Sep 22, 2013
ashspenc21Nov 11, 2012
tape49Sep 18, 2012
33
By junbug52704 Blank
I was wondering if anyone has delt with POTS while pregnant. I am now 21 weeks, the symptoms have started a very long...
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Ball123Jan 12
NlgaJan 11
HeiferlyBlankAug 08, 2013
hallie4roseAug 07, 2013
caseytoneyAug 06, 2013
11
By fbrodya Blank
I'm new to the group, and this is my first post. I'm a member of several dysautonomia-related FB pages, and it always...
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Ball123Jan 08
TiffanyM88Nov 23, 2013
meeeeeeeeeeeNov 22, 2013
TiffanyM88Nov 22, 2013
5
By TiffanyM88 Blank
Hello- I recently found out about POTS and I'm wondering if I have it.. Since early 2002, I've had problems with my...
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honor1978Jan 07
LivingInHopeJun 28, 2011
outdoor_jenJun 22, 2011
3
By SMW65 Blank
Just had a TTT on Monday and was diagnosed with Hyperadrenergic pots. Dr. put me on a SSRI and I didn't tolerate it a...
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By Clash0501 Blank
I had 3 tachycardia events starting about 10 weeks ago. 2 of them were while lying down the other after being in a re...
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HeiferlyBlankJan 05
1
By davisea8 Blank
I live in Maine and my symptoms are getting worse and worse. Does anyone know any great POT specialist even in new E...
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jjdec8Jan 04
gjensenDec 18, 2013
redsleekDec 18, 2013
3
By Pyr2 Blank
Hi. I am thinking I may have found what is wrong with me. To begin with I MVP that required a heart repair 5 year...
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gjensenJan 04
ablankenJan 04
ablankenJan 04
AraseveraFeb 10, 2013
HeiferlyBlankJan 06, 2013
9
By ablanken Blank
My daughter is scheduled for autonomic testing at the Cleveland Clinic. We will be coming from Virginia..I am wonderi...
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passionpinkDec 29, 2013
enzymeloverDec 28, 2013
gjensenDec 11, 2013
passionpinkDec 11, 2013
gjensenDec 10, 2013
9
By passionpink Blank
I saw three different neurologists for my multiple neurological symptoms and eventually gave up after they all basica...
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gjensenDec 11, 2013
JustMeHeeHeeDec 11, 2013
gjensenDec 11, 2013
3
By JustMeHeeHee Blank
Hey, POTSies! I'm trying to join the DINET Forum. I signed up earlier this week, but I can't seem to post anything. I...
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By Loulou0728 Blank
Hi all. I've been dealing with dysautonomia for years and am sick of being sick. I want to be more proactive in findi...
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mick645Dec 10, 2013
mick645Nov 20, 2013
jayjay1983Nov 18, 2013
mick645Nov 09, 2013
jayjay1983Nov 07, 2013
12
By mick645 Blank
I have night time bradycardia where my heart slows way down when I am in REM sleep. Night time monitoring of my hear...
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