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Dysautonomia (Autonomic Dysfunction) Community

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

101 - 120 (of 1813) questions
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Avatar_universal
Hi My 24 year old daughter living in NYC is looking for a dr who knows how to treat POTS that is caused by EDS. Her GI dr wants to treat her GI issues with a beta blocker in conjunction with another dr who has dysautonomia experience. ...
EDSPOTS | Posted
Avatar_universal
Hi, I've been diagnosed with right side Harlequin syndrome. I'm interested in talking with others who have this rare condition and/or people that have familiarity with my symptoms. I know that harlequin syndrome can have many causes, m...
melipnyc | Last answer
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Hey everyone, your fearless leader (ha!) here. I just wanted to post a message and let everyone in our community know that I've had to take a brief break to focus on my own health for a moment, but I will be back just as soon as I'm able...
Heiferly | Posted
Avatar_universal
Does anyone with POTS or HYPER POTS or autoimmune dysautonomia have demyelinating periphreal neuropathy? Doctors have me all over the place now Doc says I am a zebra. Please share if you know if this has to with POTS.
Rocko230 | Last answer
Avatar_universal
Hello all. My name is Maddie and I am 17 years old. I am a female living in Oregon. I have been expiriencing dizziness, grey outs (pre-syncope), loss of breath, rapid heart rate as well as loss of vision when I walk up stairs or get up f...
MaddieC12321 | Last answer
Avatar_universal
I have bradycardia. I was having blackout spells. My doctor put me on my the drain would work great about six months later my blackout spells came back again. My Doctor put me on .1 mg two tablets twice daily. I was getting swelling ...
VIVECAH | Last answer
Avatar_universal
It is supposed to read my doctor put me on midodrine
VIVECAH | Last answer
Avatar_universal
I have been poked, prodded, and darn near disected..My symptoms started 9 years ago and I have had unexplained severe anxiety attacks, irregular heart rate, all of a sudden low blood pressure, digestive problems, dizziness, and the diffe...
princess4969 | Last answer
Avatar_universal
Hello. Am new to medhelp. Is there anyone that can help with the names of physicians that can treat, diagnose, or help in any way whatsoever with this in adults? Thanks.
ParrotPal | Last answer
Avatar_universal
Has anyone gone to to Vanderbilt for evaluation and treatment? I'm considering trying to get into the clinic or also may volunteer for the two week research program. Can someone tell me about the research, what to expect, and especiall...
laurab2818 | Last answer
Avatar_universal
I am looking for a Dr. who treats POTS in Illinois. My daughter was diagnosed with POTS at Mayo Clinic in MN several years ago. She has been to one Dr. in Chicago who is supposed to be a specialist in POTS. This Dr. was no help at all. M...
Joyce0218 | Last answer
Avatar_universal
My 21 yo athletic daughter began feeling tired, had some dizziness, difficulty concentrating, occasional headache, began feeling heart pounding and racing at times. Athletic trainer suspected POTS. She had activity intolerance that was s...
ablanken | Last answer
Avatar_universal
does anyone know of a dr--cardiologist or other--in Ocala Fl area who is familiar with POTS?
LausDeo | Last answer
Avatar_universal
I was diagnosed with dysautonomia almost a year ago. I recently found out I am pregnant. I am 10 weeks. My doctor has told me that I will start feeling better in the second trimester. I am just wondering if anyone else has/is pregnant an...
Seely7 | Last answer
Avatar_universal
I have dysautonomia and have intermittent spasticity and weakness in arms and especially legs. I sometimes get contracture in my hands. Today, I woke up to it all! My arms and legs feel like lead and jelly at the same time, My arms a...
mamiJ | Last answer
Avatar_universal
A great discussion here! Does anyone else think they may have sacral dysfunction? An important topic, as this is so much more common in women and in EDS people. The sacrum is held in place with only ligaments. Once these are compromised ...
Nanna48 | Last answer
Avatar_universal
For 13 years I have been dealing with a mystery illness and I've been checked for nearly everything imaginable, but still no answer's. I was hoping you guys could give me some advice if I told you my symptoms, my PCP suggested dysautonom...
crowmedicus | Last answer
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A few community members have expressed interest in hearing about what my experience was like getting testing done at Cleveland Clinic, so I'll try to give a brief overview here. They vary the testing depending on how the results of thin...
Heiferly | Last answer
Avatar_universal
Hi, I am new to this site, just recently diagnosed. Does anyone have any specialist, besides UCLA to go for testing for dysatuonomia? Am having a communication problem with UCLA. After waiting over a month for an appointment and trying...
tkimber | Last answer
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I have been home bound for nearly 3 years. If I am exposed to any heat, or much activity, I go into what I call heat stroke. I sweat PERFUSLLY, unbelievable, I feel as though I have to throw up and defecate at the same time. I become v...
GAreb169 | Last answer
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