Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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HeiferlyBlankJul 06, 2014
joylinkJul 06, 2014
robin5232Mar 12, 2014
elisha79Nov 20, 2013
halesred1Sep 17, 2013
32
By pepito6 Blank
Does anyone know of a good Dr.that treats dysautonomia (POTS) in South Florida?? I have been to the Cleveland clinic...
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MomTo2NicsJun 29, 2014
HeiferlyBlankJun 28, 2014
2
By MomTo2Nics Blank
This is a complicated question. I hope someone can help. My Son had a malformation removed from his spinal cord abo...
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CorieAJun 29, 2014
HeiferlyBlankJun 28, 2014
2
By CorieA Blank
A study came out earlier this year showing a connection between autoantibodies and pots. http://www.dysautonomiainte...
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HeiferlyBlankJun 22, 2014
CorieAJun 22, 2014
HeiferlyBlankMay 26, 2014
tmama007May 16, 2014
CorieAMay 16, 2014
5
By tmama007 Blank
I am wondering if someone can direct me. In October of 2013 out of the blue I started having trouble getting my breat...
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HeiferlyBlankJun 20, 2014
1
By jennir54 Blank
My daughter-in law has POTS. She and my son have been looking for a doctor in California, preferrably So. Cal. who sp...
886699_tn?1270783344
itsthebmanAug 01, 2010
KavbearJul 21, 2010
laurab2818Jul 19, 2010
LivingInHopeJul 19, 2010
HeiferlyBlankJul 19, 2010
25
By pepito6 Blank
The dr. told me that I need to drink a lot of water and electrolyte's drink. I have been, drinking gatorade 2, but I...
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AmyschiJun 18, 2014
techiemom64Jun 18, 2014
HeiferlyBlankJun 17, 2014
RissM1994Jun 16, 2014
4
By RissM1994 Blank
Hello everyone, my name is Riss and I'm 19 years old. The past week or so has been a whirlwind for me. My story start...
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Freefran5Jun 16, 2014
morenachulaJun 07, 2014
hbw1Jun 11, 2012
Fellowpatient513Jun 06, 2012
LivingInHopeJun 03, 2012
11
By lfreem02 Blank
I have been on Midodrine for a few weeks. My dose was increased from 5mg three times a day to 10 mg three times a da...
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CruBee44Jun 16, 2014
melanielangeApr 23, 2014
hanabatakeMar 27, 2014
HeiferlyBlankFeb 24, 2011
CruBee44Feb 23, 2011
7
By CruBee44 Blank
Hello! I am a 26 year old female with inappropriate sinus tachycardia (IST), displaying all symptoms. I recently had ...
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jjnycJun 15, 2014
Ball123Jun 08, 2014
2
By jjnyc Blank
So great to read other people's posts and realized I'm not alone on this bizarre journey. I'm a 40 year old female wh...
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CHRISTYDRAKEJun 11, 2014
1
By mnichthompson Blank
I was diagnosed with POTS 2 years ago, but i've never had to have a hospital visit. Past few days, i've been feeling ...
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Ball123Jun 08, 2014
Pooyan01Jun 08, 2014
2
By Ball123 Blank
I have trouble bending down. Like tying my shoes etc. It feels like all my blood rushes to my head and making it expl...
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Ball123Jun 08, 2014
1
By ronbelladog Blank
My heartrate drops into the low 40s while asleep as per holter monitor. It runs high 50s low 60s during the day. I do...
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meggsmomJun 03, 2014
HeiferlyBlankOct 07, 2009
2
By nancyannetaylor Blank
Two weeks ago I had my first episode of Harlequin's Syndrome. Does it progress, debilitate, or stay the same?
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By Ball123 Blank
I think that hyperadrenergic POTS should really be differed from other kinds of POTS. To me they seem to stem from co...
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By Dynaverse Blank
Hey, I have POTS (postoral orthostatic tachycardia snydrome) and my doctor needs to put me on Coumadin for 6 months. ...
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Ball123Jun 01, 2014
1
By Kndfree Blank
I am newly diagnosed with Low Vitamin D and I am also being tested for Autonomic Nervous System Disorder specifically...
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lmfromtexasMay 22, 2014
rdhrntobeSep 17, 2012
lollol3May 09, 2011
enzymeloverSep 26, 2010
21
By lovemydowncomforter Blank
I am a 24 year old female. I've been told after having "unexplained" tachycardia for the last 6 years, that I have In...
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Jewelsday68May 22, 2014
JamiebroMay 17, 2014
DejiboMay 28, 2010
halbashesJan 07, 2010
cathystDec 04, 2009
12
By cathyst Blank
Just checking to see who all is dealing with gastroparesis, your symptoms and treatment. I would also like to know i...
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Jewelsday68May 22, 2014
Jewelsday68May 21, 2014
Jewelsday68May 21, 2014
Jewelsday68May 21, 2014
Sleepy_ladyMay 11, 2014
7
By Sleepy_lady Blank
I went to the ER, my resting heart rate was 90-110 because I was nervous at the doctor, they suspect I have pots and ...
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