Dysautonomia (Autonomic Dysfunction) Community
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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CHRISTYDRAKEAug 28, 2014
justine911Aug 28, 2014
potsinflSep 17, 2010
mtgardnerSep 17, 2010
NoFluxesSep 16, 2010
39
By NoFluxes Blank
Hey, I'm new here and need help and advice on my condition, I'm 16 years old and this disease has taken over my life....
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brainfriedAug 19, 2014
HeiferlyBlankAug 18, 2014
2
By AWDRG0096 Blank
I didn't really know where to post this. Perhaps someone here can help. This is a kind of odd phenomenon I've noticed...
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Lucia2844Aug 07, 2014
LivingInHopeApr 29, 2012
OnTheFence142Apr 14, 2012
DNP47Apr 13, 2012
OnTheFence142Apr 10, 2012
6
By OnTheFence142 Blank
Hi All, I have recently been diagnosed w/POTS after a + TTT. It didn't induce syncope but rather the diagnosis wa...
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ava2Jun 03, 2012
Family2011Sep 18, 2011
LivingInHopeMar 28, 2011
HeiferlyBlankMar 28, 2011
arpita124Mar 28, 2011
6
By arpita124 Blank
I haven't been given a diagnosis and I went to a neurologist because after researching my symptoms I suspected autono...
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naomisilvAug 19, 2014
HeiferlyBlankAug 18, 2014
2
By naomisilv Blank
Hi All I have been diagnosed with POTS and Neurally mediated dysautonomia My GP has suggested that I get 8 liters o...
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HeiferlyBlankAug 18, 2014
1
By Tiffiny76 Blank
I have been experiencing issues since I was a teenager. I am now 38 & still undiagnosed. I should find out on Monda...
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HeiferlyBlankAug 04, 2014
HeiferlyBlankAug 04, 2014
2
By Dynaverse Blank
To all you POTSIES out there, to what degree do you get shortness of breath if at all? When I walk more than 2kms ...
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HeiferlyBlankAug 04, 2014
HeiferlyBlankAug 04, 2014
2
By denisef_0324 Blank
I have been diagnosed with Neurocardiogenic Syncope for about 7 years, but I always knew there was something wrong wi...
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HeiferlyBlankAug 04, 2014
Ball123Jul 27, 2014
MadiBogdenJul 27, 2014
HeiferlyBlankJul 26, 2014
4
By MadiBogden Blank
Okay I'm 16 and I can't remember how long but for the longest time I would pass out. I would pass out from getting up...
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HeiferlyBlankAug 04, 2014
1
By Dynaverse Blank
So, I had orthostatic intollerance for about 4 years, and I was living a very normal life and dealing with all the sy...
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Ball123Jul 27, 2014
NotgoingdownyetJul 25, 2014
DynaverseJul 24, 2014
HeiferlyBlankJul 23, 2014
4
By sam_amilia Blank
Hi all, I am just wondering if you could please go I to detail about your POTS symptoms. My story is, about 11 ye...
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Kai_spJul 26, 2014
HeiferlyBlankJul 26, 2014
Kai_spJul 23, 2014
HeiferlyBlankJul 23, 2014
nanasandy2Jul 19, 2014
5
By Kai_sp Blank
I am 16 wks pregnant and in my 30s. No health issues except for anxiety for 3 about years now. Recently, I had hypert...
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HeiferlyBlankJul 26, 2014
1
By Notgoingdownyet Blank
Hello everyone. I just found out I have dysautonomia. I've been bedridden since December 2013. I tested positive for ...
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By TRAVELERSUNITE Blank
I was recently diagnosed w/ autonomic dysfunction, so I haven't had a lot of discussion time w/ a doctor yet. I'm tra...
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By Dynaverse Blank
So.. I need some help figuring out what's going. Please read and give me your thoughts. Basically, 4 years ago, I ...
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HeiferlyBlankJul 23, 2014
AdamqtnzJul 09, 2014
est_sunshineOct 17, 2012
LivingInHopeSep 21, 2012
DancingGiraffeSep 21, 2012
11
By DancingGiraffe Blank
Hi, I recently saw a neurologist who said I have pandysautonomia. He also said there are tests to see if this is aut...
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HeiferlyBlankJul 23, 2014
1
By pots123 Blank
I am 40 y.o female who has been battling POTS for at least 5 years. Tried numerous meds. Currently taking midodrine...
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HeiferlyBlankJul 23, 2014
1
By mellyXbby Blank
I have autonomic dysfunction yet the doctor never directly determined the exact type in general. I have had this for ...
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HeiferlyBlankJul 23, 2014
1
By Amyschi Blank
Hello. I am very interested and would appreciate hearing from anyone who has been seen at the University of Toledo b...
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By GMays Blank
Someone i love was diagnosed with Dysautonomia and am looking for a doctor for her. We live in Fort Worth and want ...
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