281?1253674568
Ehlers-Danlos Syndrome User Group
About This Group:

This group is for members with any form of Ehlers-Danlos Syndrome.We have this group to share info and support for each other. Ehlers-Danlos syndrome (EDS) is a heterogeneous group of heritable connective tissue disorders characterized by articular hypermobility, skin extensibility and tissue fragility. Individuals with EDS have a defect in their connective tissue. It is this tissue that provides support to many body parts such as the skin, muscles, ligaments and organs. The fragile skin and unstable joints found in EDS are due to faulty collagen. Collagen is a protein that acts like glue in the body adding strength and elasticity to connective tissue.

Founded by somemonkey on September 22, 2009
158 members
Font Size:
A
A
A
Sort by:
Last Post
Date Started
Background:
Blank
Blank
Blank
620923_tn?1416285879
By selmaS Blank
those with type 3 EDS (vascular) should not be given plavix as treatment. Has neone else heard about this? Please ...
4481194_tn?1355338138
Bella62190Jan 29, 2013
selmaSJan 28, 2013
2
By Bella62190 Blank
Hello- Does anyone else with EDS/Marfan have a Social Anxiety disorder? I dropped out of college because i am having...
Avatar_f_tn
selmaSJan 17, 2013
Trisha222Jan 17, 2013
selmaSJan 17, 2013
Trisha222Jan 17, 2013
selmaSJan 16, 2013
11
By Trisha222 Blank
Hi there, I am a 27 yo mom of two and I was diagnosed with EDS recently and it was so nice to finally unders...
Avatar_f_tn
SpokaneRoseJan 14, 2013
RylanesmomDec 08, 2012
selmaSNov 16, 2012
Belle95765Nov 15, 2012
Belle95765Nov 15, 2012
6
By Belle95765 Blank
I have Hypermobilty Syndrome (9/9) and several other issues that let my doctor believe I might have EDS. He ordered a...
979826_tn?1389039958
selmaSJan 08, 2013
1
By soccero Blank
https://sphotos-a.xx.fbcdn.net/hphotos-ash4/206059_4052871846335_479882940_n.jpg
4481194_tn?1355338138
selmaSDec 17, 2012
Bella62190Dec 15, 2012
selmaSDec 14, 2012
Bella62190Dec 13, 2012
Bella62190Dec 13, 2012
10
EDS
By Bella62190 Blank
Hi, i am 22 years old and have recently been diagnosed with EDS. i have always had aches and pains, stomach aches, an...
4353362_tn?1353268935
dumisaniDec 09, 2012
RylanesmomDec 07, 2012
dumisaniNov 21, 2012
selmaSNov 19, 2012
4
By dumisani Blank
Hi. have always suffered aches and pain, but only last week, at the grand age of 42 i was diagnosed by the geneticis...
1903798_tn?1333908888
RylanesmomDec 08, 2012
selmaSDec 07, 2012
2
By Rylanesmom Blank
I am posting on here so that my information may be of help to others. My DD 14 years old was recently diagnosed with...
1903798_tn?1333908888
selmaSNov 11, 2012
RylanesmomNov 10, 2012
selmaSNov 10, 2012
RylanesmomNov 09, 2012
selmaSNov 09, 2012
25
By Rylanesmom Blank
I just went to see my rheum Dr. I haven't seen him since January and it was preop for Chiari Surgery. Really I left...
Avatar_f_tn
selmaSNov 06, 2012
stretchybettyNov 05, 2012
selmaSOct 26, 2012
3
By stretchybetty Blank
Hi all, just wondering how a doctor differentiates between hypermobility and EDS? I was diagnosed several years ag...
1823499_tn?1370093889
selmaSNov 06, 2012
RylanesmomNov 04, 2012
2
By Sexybare Blank
my nl is pretty sure that i have eds type 3. im seeing a rheumatologist this mon and if he confirms it than i will be...
1903798_tn?1333908888
selmaSOct 26, 2012
RylanesmomOct 25, 2012
selmaSOct 25, 2012
RylanesmomOct 24, 2012
RylanesmomOct 16, 2012
6
By Rylanesmom Blank
My daughter was diagnosed with cranial instability and we get to see the spine Dr at the Children's Hospital next wee...
620923_tn?1416285879
selmaSOct 25, 2012
RylanesmomOct 24, 2012
selmaSOct 24, 2012
RylanesmomOct 24, 2012
4
By selmaS Blank
The New York Times reported on this disturbing account of deaths from this energy drink also citing a 14 yr olds heal...
1903798_tn?1333908888
selmaSOct 24, 2012
RylanesmomOct 24, 2012
selmaSOct 23, 2012
RylanesmomOct 22, 2012
selmaSOct 22, 2012
7
By Rylanesmom Blank
Hmmm.... Just another I did not know that was EDS. I was doing some more reading about EDS because in my NL appointm...
1903798_tn?1333908888
selmaSOct 24, 2012
1
By Rylanesmom Blank
Well my research led me to think maybe epsom salt would help.... I don't think it does yet I think I should be a mer...
1903798_tn?1333908888
selmaSOct 22, 2012
RylanesmomOct 21, 2012
selmaSOct 21, 2012
RylanesmomOct 17, 2012
selmaSOct 17, 2012
8
By Rylanesmom Blank
The children's hospital was good today! They were very thorough and even knew what EDS was:) They even commented on...
Avatar_f_tn
selmaSOct 16, 2012
1
By Dicon Blank
I need your advice.......I really think that my daughter (7 yo) might have some chiari sx going on along with possibl...
Avatar_f_tn
selmaSOct 04, 2012
CaliforniaSkinOct 02, 2012
selmaSSep 30, 2012
3
By CaliforniaSkin Blank
Hello! I've been diagnosed with EDS for a few years now... I was wondering does anyone know if its possible for pe...
1903798_tn?1333908888
selmaSSep 19, 2012
RylanesmomSep 18, 2012
selmaSSep 17, 2012
RylanesmomSep 16, 2012
selmaSSep 16, 2012
7
By Rylanesmom Blank
Yesterday went to the Dr and... Olecranin bursitis and trochanteric bursitis (hips) Retrocalcaneal bursitis heels ...
1903798_tn?1333908888
selmaSSep 19, 2012
RylanesmomSep 17, 2012
selmaSSep 17, 2012
RylanesmomSep 16, 2012
selmaSSep 16, 2012
11
EDS
By Rylanesmom Blank
My DD was diagnosed with EDS today... Did you know that hyper mobility type has a 50% chance of being passed on?
Recent Activity
979826_tn?1389039958
Blank
soccero commented on photo
Dec 16
620923_tn?1416285879
Blank
selmaS commented on Flycaster305's status
Dec 16
620923_tn?1416285879
Blank
selmaS commented on photo
Dec 15
MedHelp Health Answers