Aa
A
A
Close
Ehlers-Danlos Syndrome Group
This group is for members with any form of Ehlers-Danlos Syndrome.We have this group to share info and support for each other. Ehlers-Danlos syndrome (EDS) is a heterogeneous group of heritable connective tissue disorders characterized by articular hypermobility, skin extensibility and tissue fragility. Individuals with EDS have a defect in their connective tissue. It is this tissue that provides support to many body parts such as the skin, muscles, ligaments and organs. The fragile skin and unstable joints found in EDS are due to faulty collagen. Collagen is a protein that acts like glue in the body adding strength and elasticity to connective tissue.
41 - 60 (of 131) questions
NEWEST
ACTIVE
1903798 tn?1333908888
The children's hospital was good today! They were very thorough and even knew what EDS was:) They even commented on her loose kneecaps....
8 answers |
Avatar universal
I need your advice.......I really think that my daughter (7 yo) might have some chiari sx going on along with possibly hypermobility and ...
1 answer |
Avatar universal
Hello! I've been diagnosed with EDS for a few years now... I was wondering does anyone know if its possible for people with our condit...
3 answers |
1903798 tn?1333908888
Yesterday went to the Dr and... Olecranin bursitis and trochanteric bursitis (hips) Retrocalcaneal bursitis heels Costochondritis ribs...
7 answers |
1903798 tn?1333908888
EDS
My DD was diagnosed with EDS today... Did you know that hyper mobility type has a 50% chance of being passed on?
11 answers |
Avatar universal
I know Ehlers-Danlos is genetic, but is it possible to have hyper-mobility type without family history of it? Most of my family members o...
4 answers |
3109210 tn?1342664082
I am 19 yrs old and looking into EDS type 3 (hyper mobile type) as my neurologist suggested to get checked out for it because Of my seve...
3 answers |
620923 tn?1452919248
U should be taking this list to ur eye Dr to make sure u have had a complete exam. https://www.evernote.com/shard/s200/sh/cf2b0028-8f1...
1 answer |
3109210 tn?1342664082
hey everyone, I am sure many of you can relate to what I'm feeling but sometimes i just feel so alone. I feel like searching for answers...
3 answers |
Avatar universal
My son has recently been diagnosed with Elhers-Danlos hypermobility type. I have so many questions especially since we are expecting anot...
1 answer |
620923 tn?1452919248
We all have questions regarding EDS and could I have it here is a link to a check list of all the types of things to consider...I hope t...
Avatar universal
Hi i'm new. I have a long list of problems including Ehler-Danlos and have 17 doctors and have read thousands of pages of medical text. ...
1 answer |
1448748 tn?1312959808
I now know that I fit the criteria for EDS, I scored a 5 on the beightons scale and I have had joint and muscular pain for 3 or more mont...
3 answers |
700067 tn?1332992883
Just recently diagnosed and still waiting to get in to see the rheumatologist. It's going to be a few weeks. In the meantime, I am going ...
4 answers |
Avatar universal
Hi, I've been wondering if EDS patients could have plastic surgery. I'm sorry if this is a stupid question. I just feel incredibly self ...
1 answer |
Avatar universal
Last year I had both my knees replaced and they both failed due to stretched tendons. I then went to Mayo Clinic and had them both repai...
1 answer |
Avatar universal
My neurosurgeon said I don't have EDS because I couldn't bend my hand all the way to my arm. It's not possible for my right hand because ...
1 answer |
2192667 tn?1338321405
The more I read, the more I think I might have EDS. I've always been rather flexible. I think I score about a 7 on the beighton scale. ...
6 answers |
Avatar universal
Hi - I suspect I may have EDS hypermobility syndrome but the rheumatologist dismissed me completely - kept saying I didnt have it but cou...
1 answer |
1340519 tn?1305170302
This is more for support of others with EDS and/or other rare diseases... created for May since its EDS awareness month Called: Face o...
1 answer |
A
A
Recent Activity
Avatar universal
Blank
embee24 commented on Headache Note
May 24
Avatar universal
Blank
Ball123 commented on The more intense you ...
May 22
Avatar universal
Blank
Bonita_62 joined this group
Welcome them!
May 02