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Ehlers-Danlos Syndrome Group
This group is for members with any form of Ehlers-Danlos Syndrome.We have this group to share info and support for each other. Ehlers-Danlos syndrome (EDS) is a heterogeneous group of heritable connective tissue disorders characterized by articular hypermobility, skin extensibility and tissue fragility. Individuals with EDS have a defect in their connective tissue. It is this tissue that provides support to many body parts such as the skin, muscles, ligaments and organs. The fragile skin and unstable joints found in EDS are due to faulty collagen. Collagen is a protein that acts like glue in the body adding strength and elasticity to connective tissue.
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Hi there, I'm not sure yet if I have EDS or not, but I'm having a hard time finding support forums and places on the internet where I can...
3 answers |
Avatar universal
Ok I need some clarification...it seems from what I read online there ultimately isn't much difference between Hyper mobility syndrome an...
1 answer |
Avatar universal
So my skin is quite stretchy. Most noticeable on my face/neck. I don't bruise easily, I don't have any joint pain, I don't cut easily. So...
1 answer |
Avatar universal
Selma showed me the link to this page from the Chiari forum. I'm not a hundred percent sure I have eds. I do know that I am double jointe...
1 answer |
Avatar universal
I am a mid 30's mother of a 6 year old boy and after a very long life of ignorant doctors and hospitals, I have been diagnosed with Ehler...
3 answers |
1427565 tn?1327433809
Hi after never hearing of my HMS condition, i decided to research and see if there was a book that could inform me more and in simple ter...
1 answer |
1427565 tn?1327433809
Hi there, Just before Christmas i was diagnosed with hypermobility syndrome, and after 13 years of looking for answers i finally have ...
8 answers |
1427565 tn?1327433809
Hi there, I have HMS and have been newly diagnosed, now i know what i have i am trying to help myself as much as possible (which after...
3 answers |
Avatar universal
I am 15 and my mom refuses to belive there is something wrong with me, but my doctor says i may have Ehlers Danlos although my skin is no...
7 answers |
1823499 tn?1370093889
Was wondering if some of ya'll could give me some info. How were you diagnosed and what are different symptoms? Im just tryin to learn if...
3 answers |
1903798 tn?1333908888
I meet with my EDS Dr tomorrow:)
2 answers |
1427565 tn?1327433809
Hi there, I have been newly dignosed with HMS after 13 years! I am 25 and i am thinking about starting a family in the near future but...
1 answer |
1168938 tn?1327157832
Just wanted to wish you all the best for 2012. Suz
2 answers |
620923 tn?1452919248
http://www.medhelp.org/health_pages/Neurological-Disorders/-What-is-Ehlers-Danlos-Syndrome-EDS/show/730?cid=186 Please post here anyth...
2 answers |
1903798 tn?1333908888
Selma is there a list of Drs for EDS?
6 answers |
620923 tn?1452919248
Hi All... what type of joint pains do u have... .how long does it last... does it flare?
9 answers |
1168938 tn?1327157832
I've just found out I have joint hypermobility. What tests should I have to find out which type I have? So far I've done Beighton's scori...
9 answers |
1168938 tn?1327157832
I was at the rheumatologist yesterday and I wasn't referred to a specialist for tests, the hospital I was at used to have a clinic for ED...
1 answer |
Avatar universal
I had a few questions about swelling. I have no been diagnosed by a dr for EDS but my mother was and well I am 100% sure i have it i just...
3 answers |
Avatar universal
I have been sick since September 10th. It started off with a sinus flu type sickness which eventually turned respiratory. About 3 weeks...
2 answers |
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