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Ehlers-Danlos Syndrome Group

This group is for members with any form of Ehlers-Danlos Syndrome.We have this group to share info and support for each other. Ehlers-Danlos syndrome (EDS) is a heterogeneous group of heritable connective tissue disorders characterized by articular hypermobility, skin extensibility and tissue fragility. Individuals with EDS have a defect in their connective tissue. It is this tissue that provides support to many body parts such as the skin, muscles, ligaments and organs. The fragile skin and unstable joints found in EDS are due to faulty collagen. Collagen is a protein that acts like glue in the body adding strength and elasticity to connective tissue.
I am a mid 30's mother of a 6 year old boy and after a very long life of ignorant doctors and hospitals, I have been diagnosed with Ehler...
Hi there, Just before Christmas i was diagnosed with hypermobility syndrome, and after 13 years of looking for answers i finally have ...
Hi there, I have HMS and have been newly diagnosed, now i know what i have i am trying to help myself as much as possible (which after...
I am 15 and my mom refuses to belive there is something wrong with me, but my doctor says i may have Ehlers Danlos although my skin is no...
Was wondering if some of ya'll could give me some info. How were you diagnosed and what are different symptoms? Im just tryin to learn if...
I meet with my EDS Dr tomorrow:)
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