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Frontal Temporal Lobe Disease, Picks Degeneration Sufferers Group

This is a group primarily for people who have frontal temporal lobe degeneration. Caregivers are also welcome but I especially encourage people to come to this group who have FTD symptoms who do not have a firm diagnosis yet, people who have an FTD diagnosis but are still able to communicate and realize that they do have FTD. One of the main reasons for starting this group is to provide information and support to people like me who suffer from FTD but do not have the typical early symptoms that prevent them from communicating and discussing information abtout the disease

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DOES ANYONE KNOW IF PEOPLE WITH FTD CAN GET SEIZURES? AND DO THEY HAVE INVOLUNTARY JERKNIG? AND SOUNDS? DOCTORS HERE IN SAN DIEGO CA THEY ALL GIVE ME A DIFFERENT DIAGNOSIS FOR MY HUSBAND AND A LOT OF MEDICINES THANK YOU
gdra777 | Last answer
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I am 57 and was diagnosed a few years ago, with temporal lobe epilepsy partial complex seizures. I believe it was because of vaccines. Epilepsy is on the rise in seniors and so are vaccines pushed. I no longer got them after the diagnosi...
teflonbrain57 | Posted
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Hello, I am new to this forum, my hb was diagnosed with bvFTD 11/08 and of all the symptoms I have read about with this, he has had most of them with the exception of anger and difficulty eating foods. He is still very verbal and can ta...
motherhen08 | Posted
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Hi, Yesterday my family recieved the news that my father has FTD.He is 65 yrs old. This is not what we expected or the type of thing one can even prepare for. We are just devastated. My father is still very active and with not too many ...
StormyRenee | Posted
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Hi, Welcome to those of you who have joined this group. I have been distracted and haven't made it over here in awhile. When I saw that other people had joined I thought I should post a note. For those of you who have joined, please ...
mersilkee | Posted
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Do you think I sound like I have FTD? I was diagnosed with lupus 10 years ago. I am also hypothyroid and have siezure disorder that seems to mostly become active during flares. I run a seasonal greenhouse and this year at the end of the ...
heeler50 | Posted
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Hi everyone, I am just getting use to setting up this forum. I have tried to do a post to the group twice but I do not see where it is located. If someone finds it, let me know. So I am using this first post as a welcome. If you do ...
mersilkee | Last answer
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I have two blogs in which I write about my illnesses, dealing with issues of death and loss, health issues, my "soapbox" posts on health issues, treatment, research and some artistic expression. Please feel free to visit me at these blo...
mersilkee | Posted
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Here is a website which talks about research done regarding oxytocin use for FTD sufferers. I made the mistake of putting oxicontin in my multiple introduction messages and haven't figured a way to be able to edit the messages so I apo...
mersilkee | Posted
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