Incontinentia Pigmenti Community
About This Community:

This patient support community is for discussions relating to incontinentia pigmenti, genetics, and breast, dental, eye, hair, nail, nervous system and skin problems.

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By Griffy82
Interested to find out the outcome
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By busywrkrbee Blank
About about to deliver my baby girl that has IP and I'm scared about the caring for blistering and diapering her. Any...
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JenniMay80May 01, 2015
kayleigh1906Dec 02, 2012
amithia24Dec 02, 2012
Julee2Aug 14, 2012
ksaamsJul 12, 2012
6
By amithia24 Blank
Was diagnosed at birth with IP, only have a few symptoms now. Frizzy hair, cone teeth, and the marble like swirls on ...
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ksaamsFeb 10, 2015
ksaamsApr 10, 2010
astrilaMar 26, 2010
LoveofHunterMar 09, 2010
ksaamsMar 08, 2010
6
CVS
By ksaams Blank
To anyone who has had CVS to diagnose IP during pregnancy, how long did it take to get your results back? Thank you!
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By Lajdc Blank
Hi i am 19 and have IP i have a little girl who is three and is not a sufferer she has no signs of it what so ever i ...
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LajdcNov 17, 2014
BeckymattNov 05, 2014
zatladyOct 15, 2014
ksaamsSep 08, 2012
ChirpbirdSep 05, 2012
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By veronica2104 Blank
Hi, I'm a 23 year old with IP. I think this forum is great, I'm actually glad to know that there are many people with...
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By Beckymatt Blank
My daughter was born in April 2015. Around 3 days old I noticed a blister like rash under her armpit after a pediatr...
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By chocolateswirls Blank
hello everyone! :) my name is Wendy, I am 23 years old. I just now left the dermatologist and was properly diagnosed ...
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By lutefisk51 Blank
My daughter in law and granddaughter both have IP. The baby is now 14 months and has yet to show any baby teeth. They...
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KrystingentryDec 27, 2013
krysgentryJan 26, 2013
deanna976Feb 25, 2012
ksaamsFeb 14, 2010
aquillen87Feb 10, 2010
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By smashrck Blank
I am 26 and I have IP. I was diagnosed at birth, due to the rashes. My parents and I participated in a medical study ...
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Arti Sharma, M.D. Dec 13, 2013
1
By Ang623 Blank
I have 1 healthy son that is now 12, had 1 miscarriage at 9 weeks, and 1 stillbirth of a male at 20 weeks. Does anyon...
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Ang623Oct 09, 2013
Ang623Oct 09, 2013
vickycanadaMar 17, 2013
ksaamsJul 29, 2012
Jazz86Jul 16, 2012
18
By shadyridr Blank
We told our doctor we wanted to get an amnio to determine if the baby has IP. My wife already got tested and the muta...
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MarysMom61Sep 14, 2013
NathalyLorraineOct 12, 2012
delethawintersSep 27, 2012
3
By NathalyLorraine Blank
Hi! I have a 2 year old little girl who was born with IP. I had my daughter at 18 in January 2010. I took her home t...
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indy5258Aug 04, 2013
IPIFSEOct 15, 2008
2
By eveesmom Blank
My dr said my baby has hypomelanosis of ito. I was told not to worry about it, then a week ago she started having wha...
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S. Kaul, MD Mar 31, 2013
1
By michelemomof3 Blank
Hi my daughter was diagnosed with IP at 2 weeks old, she is now 8 weeks. She had the blisters the day after she was b...
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Dr. Kokil Mathur Mar 22, 2013
1
By PreemieMom2002 Blank
I never heard of IP until 2012 when my 10 yr old daughter had to go see a Cranifacial Clinic at the local Children's ...
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By MH Community Mgr Blank
If you or someone you know may be interested in becoming a Community Leader for the Incontinentia Pigmenti community,...
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new_dadFeb 17, 2013
new_dadFeb 17, 2013
syd2002Jan 30, 2013
new_dadDec 19, 2010
zirOct 20, 2010
17
By new_dad Blank
We just had our first baby and she was diagnosed with IP She was born on 09/22. She's a lovely girl, and we really fe...
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Dr. Kokil Mathur Feb 14, 2013
1
By syd2002 Blank
My daughter was diagnosed with IP about 4 weeks after being born due to the discoloration of her skin. My question,...
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Dr. Kokil Mathur Feb 14, 2013
1
By Car_B Blank
Hi Just found this site and I am so gratefully to read other peoples experiences and get advise. My beautiful ...
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