Incontinentia Pigmenti Community
About This Community:

This patient support community is for discussions relating to incontinentia pigmenti, genetics, and breast, dental, eye, hair, nail, nervous system and skin problems.

Font Size:
A
A
A
Sort by:
Last Post
Date Started
Background:
Blank
Blank
Blank
Avatar_f_tn
S. Kaul, MD Mar 31
1
By michelemomof3
Hi my daughter was diagnosed with IP at 2 weeks old, she is now 8 weeks. She had the blisters the day after she was b...
Avatar_f_tn
1
By PreemieMom2002
I never heard of IP until 2012 when my 10 yr old daughter had to go see a Cranifacial Clinic at the local Children's ...
Avatar_n_tn
ksaamsJul 29, 2012
Jazz86Jul 16, 2012
Jazz86Jul 16, 2012
ksaamsApr 14, 2010
16
By shadyridr Blank
We told our doctor we wanted to get an amnio to determine if the baby has IP. My wife already got tested and the muta...
463897_tn?1342704822
By MH Community Mgr
If you or someone you know may be interested in becoming a Community Leader for the Incontinentia Pigmenti community,...
Avatar_m_tn
new_dadFeb 17
new_dadFeb 17
syd2002Jan 30
new_dadDec 19, 2010
zirOct 20, 2010
17
By new_dad Blank
We just had our first baby and she was diagnosed with IP She was born on 09/22. She's a lovely girl, and we really fe...
Avatar_f_tn
1
By syd2002
My daughter was diagnosed with IP about 4 weeks after being born due to the discoloration of her skin. My question,...
Avatar_f_tn
1
By Car_B
Hi Just found this site and I am so gratefully to read other peoples experiences and get advise. My beautiful ...
Avatar_m_tn
deanna976Feb 25, 2012
ksaamsFeb 14, 2010
aquillen87Feb 10, 2010
acoats02Jan 31, 2010
24
By smashrck Blank
I am 26 and I have IP. I was diagnosed at birth, due to the rashes. My parents and I participated in a medical study ...
Avatar_f_tn
lounorAug 19, 2009
ksaamsJul 31, 2009
carlotavJul 28, 2009
LaylasmomJul 28, 2009
6
By lounor Blank
I am 29 year old female with IP. I have no major symptoms other that a patch on the back of my head, some brown swir...
2207528_tn?1338950118
kayleigh1906Dec 02, 2012
amithia24Dec 02, 2012
Julee2Aug 14, 2012
ksaamsJul 12, 2012
IsoquitaJun 14, 2012
5
By amithia24 Blank
Was diagnosed at birth with IP, only have a few symptoms now. Frizzy hair, cone teeth, and the marble like swirls on ...
Avatar_f_tn
By kayleigh1906
Hi im 21 years old i have IP, i was diagnosed when I was a day old. As i got old i got blood clocks behind my eyes i ...
658757_tn?1348580539
By delethawinters Blank
does anyone with incontentia pigmenti have gastroparesis as well? and if so, do you know if its related to the ip?
Avatar_f_tn
NathalyLorraineOct 12, 2012
delethawintersSep 27, 2012
2
By NathalyLorraine Blank
Hi! I have a 2 year old little girl who was born with IP. I had my daughter at 18 in January 2010. I took her home t...
Avatar_n_tn
delethawintersOct 12, 2012
rruthSep 27, 2011
IPIFSEAug 17, 2008
3
By shashe34 Blank
Hi, I'm just wondering if anyone out there with IP or an IP affected child has family members without IP whom have I...
658757_tn?1348580539
By delethawinters Blank
does anyone on here have a child that has incontentia pigmenti and was born with group b strep as well?
Avatar_f_tn
ksaamsSep 08, 2012
ChirpbirdSep 05, 2012
IsoquitaJun 14, 2012
AWilhelmusMay 24, 2011
LoveofHunterFeb 25, 2010
6
By veronica2104 Blank
Hi, I'm a 23 year old with IP. I think this forum is great, I'm actually glad to know that there are many people with...
Avatar_n_tn
texas1989Aug 31, 2012
BinksehAug 19, 2012
roca770May 22, 2012
sfafsdgMar 05, 2011
cml285Apr 27, 2010
5
By dyldyl Blank
For the past 7 years or since I started puberty, i noticed a single brown spot appear on the right tip of my penis he...
Avatar_f_tn
Ju1ietAug 22, 2012
1
By Ju1iet Blank
Our son was born with a rash on his leg, the doctors immediately diagnosed him with IP and took a biopsy and his bloo...
Avatar_f_tn
kierasmumAug 18, 2012
kierasmumAug 18, 2012
NathalyLorraineAug 18, 2012
seattlemom2plusNov 04, 2011
4
By kierasmum Blank
anybody in uk with ip
Avatar_m_tn
NathalyLorraineAug 17, 2012
S. Kaul, MD May 07, 2012
2
By 310571 Blank
can men pass ip on to there children
Blank
Weight Tracker
Reach your weight goal faster
Start Tracking Now
Incontinentia Pigmenti Community Resources
RSS Expert Activity
1741471_tn?1349564002
Blank
Parkinson Awareness Month: Parkinso... Blank
May 10 by Michael Gonzalez-WallaceBlank
233488_tn?1310696703
Blank
NEW STUDIES ON PREVENTING PROGRESSI...
May 08 by John C Hagan III, MD, FACS, FAAOBlank
2126606_tn?1346348724
Blank
Heroin Use in the U.S.
May 08 by Clare Waismann Kavin, Blank