Incontinentia Pigmenti Community
About This Community:

This patient support community is for discussions relating to incontinentia pigmenti, genetics, and breast, dental, eye, hair, nail, nervous system and skin problems.

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Ju1ietAug 22, 2012
1
By Ju1iet Blank
Our son was born with a rash on his leg, the doctors immediately diagnosed him with IP and took a biopsy and his bloo...
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kierasmumAug 18, 2012
kierasmumAug 18, 2012
NathalyLorraineAug 18, 2012
seattlemom2plusNov 04, 2011
4
By kierasmum Blank
anybody in uk with ip
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NathalyLorraineAug 17, 2012
S. Kaul, MD May 07, 2012
2
By 310571 Blank
can men pass ip on to there children
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NathalyLorraineAug 17, 2012
1
By proud_ma2002 Blank
Does any one know what makes the rash progress through the four stages? I through first it was hormonal or chemical, ...
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NathalyLorraineAug 17, 2012
Penny1059May 28, 2012
delilah966Mar 20, 2012
AmelieMariaSaylesNov 21, 2011
seattlemom2plusNov 20, 2011
7
By AmelieMariaSayles Blank
My newborn baby girl has been diagnosed with IP. She appears to have the worst type of IP - the extremely rare form o...
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By klind Blank
Hi, I have IP. I found out November of 2011 I was expecting, but delivered at 16wks on January 21, due to passing it ...
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By cygnusx1963 Blank
I would like to know if there is a way I can know the statistics concerning male survivor rate with this disorder
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Samantha_HudsonJun 27, 2012
rruthSep 27, 2011
astrilaMar 26, 2010
sara_492Mar 19, 2010
4
By lanekmb Blank
My daughter is 13yo with IP. I am wondering how long we should be watchful of eye problems developing due to IP. She ...
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Penny1059May 28, 2012
Nina1119Feb 17, 2012
seattlemom2plusNov 04, 2011
3
By MissMyra1984 Blank
Hi there my daughter who is 4 was diagnosed with IP @ birth! I live in in Winnipeg, Manitoba and just wondering if an...
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bek34May 08, 2012
deanna976Feb 25, 2012
clare1972Mar 19, 2011
carlotavFeb 12, 2009
carlotavFeb 11, 2009
9
By Moosespb Blank
Anyone here had multi miscarrages related to IP or at least feel that they are IP related? Im pregnant with twins but...
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S. Kaul, MD May 07, 2012
1
By deanna976 Blank
I have had a child with IP and have been trying to get pregnant again and i havent had any luck could IP affect me ge...
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alexiaaidenmommaMar 08, 2012
DeeD74May 15, 2009
nuggetoneMar 15, 2009
3
By britsmom288 Blank
My daughter stopped menstrating, for about 4 years now. Found that she is hypothyroid. Doctors we have seen do not kn...
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Nina1119Feb 17, 2012
rruthSep 27, 2011
IPIFSENov 02, 2008
3
By mono87 Blank
twice now i heard of babies with ip getting mri why is this? what are they looking for and do all kids with ip have t...
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Nina1119Feb 17, 2012
garrettandelsasmomJan 11, 2012
EmaBJan 02, 2012
rruthSep 26, 2011
cassidy217Dec 17, 2010
14
By lorim321 Blank
We have 3 generations of IP.. my mom has it, I have it and 1 of my daughters have it.. Anyone else out there that hav...
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seattlemom2plusDec 31, 2011
1
By AmelieMariaSayles Blank
I wanted to share with you all, how my life was touched by IP. A little over 5 months ago I was full of hopes and dr...
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seattlemom2plusNov 04, 2011
1
By lanekmb Blank
My 14yo daughter has IP. She has the classic hypo pigmented streaks on the back of her legs, missing teeth, and frizz...
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seattlemom2plusNov 04, 2011
1
By me_aastha Blank
Hi A 29yrs guy has approached my sis for marriage proposal. She liked him very much but in his first meeting he to...
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seattlemom2plusNov 04, 2011
1
By soldout123 Blank
Hi, For the past 8 months there has been this really dark (dirt like) area on the skin of my neck. I tried scrubbi...
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seattlemom2plusNov 04, 2011
1
By LASSIECB Blank
I'VE HAD THIS "STYE" (SUPPOSELY) SINCE 1/10 AND IT HAS GONE DOWN ALOT BUT I STILL HAVE A SMALL BUMP ON THE LOWER EYEL...
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seattlemom2plusNov 04, 2011
1
By jaimes326 Blank
Hello My Name is James and i have a question for you today, I noticed that i have a Discoloration Spot on My Penis an...
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