Incontinentia Pigmenti Community
About This Community:

This patient support community is for discussions relating to incontinentia pigmenti, genetics, and breast, dental, eye, hair, nail, nervous system and skin problems.

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Spanner1988Jan 25, 2013
lounorAug 19, 2009
ksaamsJul 31, 2009
carlotavJul 28, 2009
LaylasmomJul 28, 2009
6
By lounor Blank
I am 29 year old female with IP. I have no major symptoms other that a patch on the back of my head, some brown swir...
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By kayleigh1906 Blank
Hi im 21 years old i have IP, i was diagnosed when I was a day old. As i got old i got blood clocks behind my eyes i ...
658757 tn?1397800478
By delethawinters Blank
does anyone with incontentia pigmenti have gastroparesis as well? and if so, do you know if its related to the ip?
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delethawintersOct 12, 2012
rruthSep 27, 2011
IPIFSEAug 17, 2008
3
By shashe34 Blank
Hi, I'm just wondering if anyone out there with IP or an IP affected child has family members without IP whom have I...
658757 tn?1397800478
By delethawinters Blank
does anyone on here have a child that has incontentia pigmenti and was born with group b strep as well?
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texas1989Aug 31, 2012
BinksehAug 19, 2012
roca770May 22, 2012
sfafsdgMar 05, 2011
cml285Apr 27, 2010
5
By dyldyl Blank
For the past 7 years or since I started puberty, i noticed a single brown spot appear on the right tip of my penis he...
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Ju1ietAug 22, 2012
1
By Ju1iet Blank
Our son was born with a rash on his leg, the doctors immediately diagnosed him with IP and took a biopsy and his bloo...
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kierasmumAug 18, 2012
kierasmumAug 18, 2012
NathalyLorraineAug 18, 2012
seattlemom2plusNov 04, 2011
4
By kierasmum Blank
anybody in uk with ip
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NathalyLorraineAug 17, 2012
S. Kaul, MD May 07, 2012
2
By 310571 Blank
can men pass ip on to there children
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NathalyLorraineAug 17, 2012
1
By proud_ma2002 Blank
Does any one know what makes the rash progress through the four stages? I through first it was hormonal or chemical, ...
1737603 tn?1310671904
NathalyLorraineAug 17, 2012
Penny1059May 28, 2012
delilah966Mar 20, 2012
AmelieMariaSaylesNov 21, 2011
seattlemom2plusNov 20, 2011
7
By AmelieMariaSayles Blank
My newborn baby girl has been diagnosed with IP. She appears to have the worst type of IP - the extremely rare form o...
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By klind Blank
Hi, I have IP. I found out November of 2011 I was expecting, but delivered at 16wks on January 21, due to passing it ...
3098272 tn?1341149793
By cygnusx1963 Blank
I would like to know if there is a way I can know the statistics concerning male survivor rate with this disorder
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Samantha_HudsonJun 27, 2012
rruthSep 27, 2011
astrilaMar 26, 2010
sara_492Mar 19, 2010
4
By lanekmb Blank
My daughter is 13yo with IP. I am wondering how long we should be watchful of eye problems developing due to IP. She ...
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Penny1059May 28, 2012
Nina1119Feb 17, 2012
seattlemom2plusNov 04, 2011
3
By MissMyra1984 Blank
Hi there my daughter who is 4 was diagnosed with IP @ birth! I live in in Winnipeg, Manitoba and just wondering if an...
482672 tn?1217111872
bek34May 08, 2012
deanna976Feb 25, 2012
clare1972Mar 19, 2011
carlotavFeb 12, 2009
carlotavFeb 11, 2009
9
By Moosespb Blank
Anyone here had multi miscarrages related to IP or at least feel that they are IP related? Im pregnant with twins but...
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S. Kaul, MD May 07, 2012
1
By deanna976 Blank
I have had a child with IP and have been trying to get pregnant again and i havent had any luck could IP affect me ge...
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alexiaaidenmommaMar 08, 2012
DeeD74May 15, 2009
nuggetoneMar 15, 2009
3
By britsmom288 Blank
My daughter stopped menstrating, for about 4 years now. Found that she is hypothyroid. Doctors we have seen do not kn...
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Nina1119Feb 17, 2012
rruthSep 27, 2011
IPIFSENov 02, 2008
3
By mono87 Blank
twice now i heard of babies with ip getting mri why is this? what are they looking for and do all kids with ip have t...
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Nina1119Feb 17, 2012
garrettandelsasmomJan 11, 2012
EmaBJan 02, 2012
rruthSep 26, 2011
cassidy217Dec 17, 2010
14
By lorim321 Blank
We have 3 generations of IP.. my mom has it, I have it and 1 of my daughters have it.. Anyone else out there that hav...
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