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Incontinentia Pigmenti Community

This patient support community is for discussions relating to incontinentia pigmenti, genetics, and breast, dental, eye, hair, nail, nervous system and skin problems.

41 - 60 (of 206) questions
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Avatar_universal
My 14yo daughter has IP. She has the classic hypo pigmented streaks on the back of her legs, missing teeth, and frizzy hair. She has problems with her nails off and on. Both of her index fingers are sore and red; they have a rounded look...
lanekmb | Last answer
Avatar_universal
Hi A 29yrs guy has approached my sis for marriage proposal. She liked him very much but in his first meeting he told her that he has "LEUKODERMA" VITILIGO on inner side of left arm. I want to ask that - whether it can spread to his...
me_aastha | Last answer
Avatar_universal
Hi, For the past 8 months there has been this really dark (dirt like) area on the skin of my neck. I tried scrubbing it with soap and a face towel for weeks (everyday) yet it hasn't removed. It wasn't always like this and I'm start...
soldout123 | Last answer
Avatar_universal
I'VE HAD THIS "STYE" (SUPPOSELY) SINCE 1/10 AND IT HAS GONE DOWN ALOT BUT I STILL HAVE A SMALL BUMP ON THE LOWER EYELID AND SOMETIME WHEN I CRY IT INCREASES IN SIZE BUT GOES BACK DOWN.....MY QUESTION IS "IS THIS REALLY A STYE OR CAN IT B...
LASSIECB | Last answer
Avatar_universal
Hello My Name is James and i have a question for you today, I noticed that i have a Discoloration Spot on My Penis and it Looks Kind of Wrinkled up and Dry? It Doesnt Hurt or anything. It has me a Little worried to know whats going on s...
jaimes326 | Last answer
Avatar_universal
my daughter had a lesion removed from her ear in oct.the path report came back melanocytic tumor of uncertain malignant potential under comments it said this lesion has characteristics of what has been termed pigmented epithelioid melano...
dafad123 | Last answer
Avatar_universal
what i can do for my ichy red sorr bummps under my aerms pitts
sweetangal2011 | Last answer
Avatar_universal
hiya i have a four year old daughter age 4 who was diagnosed at 3 weeks with ip, the doctors had never seen before ,and was just wondering if anybody else in scotland has got this condition,***@****
kierasmum | Last answer
Avatar_universal
I need to find anyone who has or knows someone dealing with a boy with Incontinentia Pigmenti. My boy has just be diognosed and i am scared for what is ahead of my family.
tnt78427 | Last answer
Avatar_universal
hi im a 21year old boy with ip and im just wondering isit possible for me to have a baby? thanks
lukeh2009 | Last answer
Avatar_universal
My name is Khadijah an I'm 28yrs old with a 6-yr old daughter who was diagnosed with incontinentia pigmemti at 2 months old. I am looking for parents and/or support groups who's willing to talk and share information on this diagnoses.
khadijah668 | Last answer
Avatar_universal
Hi Doctor, Can you help me to solve my problem on face itchy red spot come and go. My age is 50. This problems with me almost 1 year. Feeling very sad and uncomfortable Hope u can help me ... Thank you
Kinwah | Last answer
Avatar_universal
what the last treatment to Vitiligo? Thank you
dr1234 | Last answer
626983_tn?1229570741
Is there anything you can do in the middle of a seizure if you know that is what they are having.
Maddys_Mom | Last answer
626983_tn?1229570741
The dermatologist that dx my daughter with IP has never seen it before and she is trying to refer us to another Ped. Dermatologist but her office is telling they cant find a doctor who is both a Peds. Dermatologist and that will take our...
Maddys_Mom | Last answer
Avatar_universal
My nerves are about shot after going to see several specialist and being told very little. My daughter( 18 months) has a MRI scheduled in Dec. but the only thing the doctors will tell me is that the tests are for a baseline. I feel that ...
niter80 | Last answer
Avatar_universal
I have IP and my husband and I are contemplating having a child, but we're worried about the potential medical issues that may arise. Does anyone have comments or suggestions?
Miss_D_2010 | Last answer
Avatar_universal
If my baby is having skin problems, how can I treat it? It's called Incontinentia pigmenti!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
hand01012 | Last answer
Avatar_universal
I've had this thin brown line under my bottom lip (on my chin) for around three years now. My doctor first said it would disappear but it hasn't. Does anyone know what i can do?
ashley_1395 | Last answer
Avatar_universal
HI I have a 4 months old daughter who was diagnosed with IP within first few days of her birth. I just wanted to check if in the United States, patients with IP are covered under any medical insurance plans or let me rephrase it...are...
abhaysachdev | Last answer
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