Incontinentia Pigmenti Community
About This Community:

This patient support community is for discussions relating to incontinentia pigmenti, genetics, and breast, dental, eye, hair, nail, nervous system and skin problems.

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seattlemom2plusNov 04, 2011
1
By tnt78427 Blank
I need to find anyone who has or knows someone dealing with a boy with Incontinentia Pigmenti. My boy has just be dio...
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seattlemom2plusNov 04, 2011
1
By lukeh2009 Blank
hi im a 21year old boy with ip and im just wondering isit possible for me to have a baby? thanks
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seattlemom2plusNov 04, 2011
1
By khadijah668 Blank
My name is Khadijah an I'm 28yrs old with a 6-yr old daughter who was diagnosed with incontinentia pigmemti at 2 mont...
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Dr J Singh Oct 28, 2011
1
By Kinwah Blank
Hi Doctor, Can you help me to solve my problem on face itchy red spot come and go. My age is 50. This problems w...
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Dr J Singh Oct 28, 2011
1
By dr1234 Blank
what the last treatment to Vitiligo? Thank you
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rruthSep 27, 2011
IPIFSESep 24, 2008
DNVSep 24, 2008
3
By Maddys_Mom Blank
Is there anything you can do in the middle of a seizure if you know that is what they are having.
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rruthSep 27, 2011
delethawintersOct 26, 2008
IPIFSESep 24, 2008
3
By Maddys_Mom Blank
The dermatologist that dx my daughter with IP has never seen it before and she is trying to refer us to another Ped. ...
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rruthSep 27, 2011
IPIFSENov 02, 2008
mono87Oct 29, 2008
3
By niter80 Blank
My nerves are about shot after going to see several specialist and being told very little. My daughter( 18 months) ha...
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rruthSep 27, 2011
ksaamsJun 01, 2011
Miss_D_2010May 31, 2011
AWilhelmusMay 24, 2011
4
By Miss_D_2010 Blank
I have IP and my husband and I are contemplating having a child, but we're worried about the potential medical issues...
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rruthSep 27, 2011
DNVSep 23, 2008
2
By hand01012 Blank
If my baby is having skin problems, how can I treat it? It's called Incontinentia pigmenti!!!!!!!!!!!!!!!!!!!!!!!!!...
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slyGuurSep 15, 2011
1
By ashley_1395 Blank
I've had this thin brown line under my bottom lip (on my chin) for around three years now. My doctor first said it ...
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Miss_D_2010Mar 01, 2011
sjgk1213Feb 09, 2011
2
By abhaysachdev Blank
HI I have a 4 months old daughter who was diagnosed with IP within first few days of her birth. I just wanted to c...
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jford889Feb 15, 2011
1
By mizz420 Blank
hi i have a really serious problem my problem is that i am 24 years old asian my neack is almost black in colour b...
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sjgk1213Feb 09, 2011
1
By almataa Blank
So im fifteen, and i started being sexually active two months ago. with "the love of my life" he's older and has been...
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Rachaels_momDec 07, 2010
zirNov 03, 2010
pammiglioreSep 16, 2009
ksaamsSep 14, 2009
4
By Kel1026 Blank
Hi All.... I have a 17 month old daughter who was diagnosed with IP at 6 weeks of age. We are very blessed in that h...
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SLadylaniNov 28, 2010
1
By tiny168 Blank
hey i am a male and just noticed two white bumps where my pubic hair is and one on my penis. i shave my hair down the...
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mistersNov 19, 2010
1
By cancerrain Blank
Dear sir, Could you please tell me regarding occurence of light white patch above the lips.... It has come few week...
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zirOct 20, 2010
combergaOct 17, 2010
Rachaels_momNov 26, 2009
new_dadNov 26, 2009
Rachaels_momOct 19, 2009
6
By missmercy Blank
when my daughter was born she had a skin condition that the doctors did not recognise. after a lot of blood test wer...
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ksaamsOct 18, 2010
liddy87Oct 18, 2010
LoveofHunterJun 20, 2010
ksaamsApr 14, 2010
4
By astrila Blank
Has anyone else whose child has IP done an NT scan during the first trimester of your pregnancy? Did you get a norma...
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liddy87Oct 18, 2010
sara_492Aug 28, 2009
missmercyAug 02, 2009
carlotavFeb 27, 2009
jenn3177Feb 26, 2009
15
By babechristian Blank
My grandson has had preliminary diagnosis that he has IP. He was born with some small blisters on the back of his cal...
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