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Incontinentia Pigmenti Community
This patient support community is for discussions relating to incontinentia pigmenti, genetics, and breast, dental, eye, hair, nail, nervous system and skin problems.
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Avatar universal
My 14yo daughter has IP. She has the classic hypo pigmented streaks on the back of her legs, missing teeth, and frizzy hair. She has prob...
1 answer |
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Hi A 29yrs guy has approached my sis for marriage proposal. She liked him very much but in his first meeting he told her that he has "...
1 answer |
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Hi, For the past 8 months there has been this really dark (dirt like) area on the skin of my neck. I tried scrubbing it with soap and ...
1 answer |
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I'VE HAD THIS "STYE" (SUPPOSELY) SINCE 1/10 AND IT HAS GONE DOWN ALOT BUT I STILL HAVE A SMALL BUMP ON THE LOWER EYELID AND SOMETIME WHEN...
1 answer |
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Hello My Name is James and i have a question for you today, I noticed that i have a Discoloration Spot on My Penis and it Looks Kind of W...
1 answer |
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my daughter had a lesion removed from her ear in oct.the path report came back melanocytic tumor of uncertain malignant potential under c...
1 answer |
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what i can do for my ichy red sorr bummps under my aerms pitts
1 answer |
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hiya i have a four year old daughter age 4 who was diagnosed at 3 weeks with ip, the doctors had never seen before ,and was just wonderin...
1 answer |
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I need to find anyone who has or knows someone dealing with a boy with Incontinentia Pigmenti. My boy has just be diognosed and i am scar...
1 answer |
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hi im a 21year old boy with ip and im just wondering isit possible for me to have a baby? thanks
1 answer |
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My name is Khadijah an I'm 28yrs old with a 6-yr old daughter who was diagnosed with incontinentia pigmemti at 2 months old. I am looking...
1 answer |
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Hi Doctor, Can you help me to solve my problem on face itchy red spot come and go. My age is 50. This problems with me almost 1 year...
1 answer |
Avatar universal
what the last treatment to Vitiligo? Thank you
1 answer |
626983 tn?1229570741
Is there anything you can do in the middle of a seizure if you know that is what they are having.
3 answers |
626983 tn?1229570741
The dermatologist that dx my daughter with IP has never seen it before and she is trying to refer us to another Ped. Dermatologist but he...
3 answers |
Avatar universal
My nerves are about shot after going to see several specialist and being told very little. My daughter( 18 months) has a MRI scheduled in...
3 answers |
Avatar universal
I have IP and my husband and I are contemplating having a child, but we're worried about the potential medical issues that may arise. Do...
4 answers |
Avatar universal
If my baby is having skin problems, how can I treat it? It's called Incontinentia pigmenti!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
2 answers |
Avatar universal
I've had this thin brown line under my bottom lip (on my chin) for around three years now. My doctor first said it would disappear but ...
1 answer |
Avatar universal
HI I have a 4 months old daughter who was diagnosed with IP within first few days of her birth. I just wanted to check if in the Unite...
2 answers |
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