Incontinentia Pigmenti Community
About This Community:

This patient support community is for discussions relating to incontinentia pigmenti, genetics, and breast, dental, eye, hair, nail, nervous system and skin problems.

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ksaamsOct 18, 2010
liddy87Oct 18, 2010
LoveofHunterJun 20, 2010
ksaamsApr 14, 2010
4
By astrila Blank
Has anyone else whose child has IP done an NT scan during the first trimester of your pregnancy? Did you get a norma...
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liddy87Oct 18, 2010
sara_492Aug 28, 2009
missmercyAug 02, 2009
carlotavFeb 27, 2009
jenn3177Feb 26, 2009
15
By babechristian Blank
My grandson has had preliminary diagnosis that he has IP. He was born with some small blisters on the back of his cal...
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puzzzlepieceSep 16, 2010
1
By JT852010 Blank
Hi. I have noticed a skin rash or fungus that seems to have recently gotten worse. I have never gone to the doctor to...
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By ronnie550 Blank
My daughter is 11 years old and her skin on her face is getting blotchy. She is Italian,Filipino,Irish and Swedish. ...
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By arpitabong Blank
i'v dark discolouration on neck, underarm, elbow, genital area, knee. does anyone know wat it s and how to get rid of...
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By pompy92 Blank
hello, i have dark skin surrounding my knee area,the dark skin doesn't match the rest of skin.(legs)..the knee area i...
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By candicemichele Blank
large shaped dark pigment on hand...resembled a singe or burn at first..watched to see if it scabbed or flaked. smoo...
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LoveofHunterJun 20, 2010
LaylasmomMar 04, 2009
2
By pammigliore Blank
I have read that one of the side-effects of IP are developmental issues with the breasts. Can someone please describ...
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By ritzk Blank
WITH DUE RESPECT I WANT TO GET ANSWER ABOUT MY PROBLEM.. I AM 24 YRS OLD FEMALE.. I HAVE RED HANDS AND FEET EVER SI...
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By Sweetpea0224 Blank
My arms and hands turn really red lately. Comes and goes throughout the day. No itching. My arms and hands are dry...
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doraemoonApr 22, 2010
ksaamsApr 18, 2010
2
IP?
By doraemoon Blank
Hi everyone, My now 15 months old daughter has been diagnosed with IP by her dermatologist a month ago. However, s...
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Jesse143Apr 21, 2010
ayo90Mar 30, 2010
ksaamsJan 23, 2010
srstevensJan 21, 2010
4
By mishmash123 Blank
Hi My name is Michelle I was born in Canada and now live in London UK, I’m 27yrs I was diagnosed with IP at birth, I ...
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By Jesse143 Blank
I was born with IP, mild blisters on my knuckles and streaks of discoloration on legs and arms. I am currently in my...
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By geomart1969 Blank
All my life I've had a dark mole at the base of my penis. Over the past couple of years it has lost its dark color an...
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ksaamsApr 10, 2010
astrilaMar 26, 2010
LoveofHunterMar 09, 2010
ksaamsMar 08, 2010
LoveofHunterFeb 25, 2010
5
CVS
By ksaams Blank
To anyone who has had CVS to diagnose IP during pregnancy, how long did it take to get your results back? Thank you!
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astrilaMar 26, 2010
LoveofHunterFeb 25, 2010
2
By sv1991 Blank
I'm an 18 year old female.. A few weeks after birth I was diagnosed with IP but didn't even know the name for what I ...
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kerri72Feb 15, 2010
delethawintersJan 23, 2010
2
By Jomara Blank
Hello all, Am just wondering if there is anyone out there dealing with IP in the South East Queensland area. Woul...
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By SunshineSandy Blank
I have a four and a half year old daughter with IP. She was two when she walked for the first time, has been very sl...
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delethawintersJan 23, 2010
new_dadSep 30, 2009
2
By Carenmp Blank
My 11 week old granddaughter was diagnosed with IP last week (through biopsy). She was born with a few sores on her ...
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samsparkyJan 12, 2010
Rachaels_momOct 19, 2009
2
By em_ebs Blank
Hi I have not used this forum before. I have IP, and my 1year old daughter has it as well. I have been anxiously wai...
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