Incontinentia Pigmenti Community
About This Community:

This patient support community is for discussions relating to incontinentia pigmenti, genetics, and breast, dental, eye, hair, nail, nervous system and skin problems.

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DeeD74May 17, 2009
LaylasmomMay 16, 2009
DeeD74May 15, 2009
3
By Laylasmom Blank
Hello, my daughter is 6 months now and her eye checks have been fine til now. Her doctor told me to use an eye patch ...
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jojo421Apr 21, 2009
jojo421Apr 20, 2009
LaylasmomApr 19, 2009
JennLynn23Apr 15, 2009
veronica2104Apr 11, 2009
5
By nishamom Blank
My daughter is 5 weeks old and i have just been told that she has IP and that i need to see all these diffrent doctor...
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By stephanie___ Blank
For as long as i can remember ive had these purplish blotches covering my legs. When im in the sun, or my legs get ho...
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veronica2104Apr 11, 2009
veronica2104Apr 11, 2009
appleblossom7Nov 12, 2008
IPMomOct 24, 2008
IPIFSESep 16, 2008
5
By palmetto25 Blank
Our dentist said that our daughter could get dentures at age four and then implants as an adult. Has anyone dealt wi...
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By mammame3 Blank
I work in a nursing home and we have had a problem with residents breaking out into a contagious rash. Some test has ...
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sososmommyApr 08, 2009
JennLynn23Apr 03, 2009
pauie25Mar 11, 2009
Rachaels_momMar 06, 2009
4
By pauie25 Blank
Our daughter is 2 months old and has has a strange rash for the past 6 weeks. It now looks like brownish lines and s...
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sososmommyApr 08, 2009
1
By Sonja513 Blank
my 4yr old grandaughter has linear whorled nevoid hyper melanosis. Can you explain what this is in laymans terms and ...
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By Dizzy1940 Blank
I have just noticed a pink mark about 7 inches across just under my left breat, is doesnt itch. Over the years I have...
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By sszmom Blank
My 7 year old son all of a sudden has a raised dark red/brown spot or almost like a skin tag near his scrotum. It is ...
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By godfreyl Blank
iknow you might think i am realy stupid. but people take the mick out of my supily freckaly face. when i have no ma...
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nuggetoneMar 15, 2009
1
By Sonja513 Blank
I have always had an oily skin which I must have inherited from my dad. Are there any new treatments available?
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pammiglioreMar 10, 2009
1
By britsmom288 Blank
Does anyone know of Doctors in Nj who specialize in IP. My daughter is 16. Has hypothyroid. Also she stopped getting ...
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By Danny4455 Blank
I have these tiny, hard, ingrown hair looking places on my thighs. What are these called and how do you get rid of th...
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By toejoe Blank
I have a problem with incontinance and I am to have a procedure done call baulking. I just want to know more about it...
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pammiglioreFeb 12, 2009
mom2mmlJan 05, 2009
2
By Rachaels_mom Blank
I am just wondering when it comes to daycare--how much/what should I tell our daycare provider? I am not going back ...
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pregnantwithIPDec 22, 2008
IPIFSEDec 21, 2008
2
By may1220 Blank
I am 33 and would like to explore the option of having children. I live in Dallas, which isn't far from Baylor in Ho...
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IPIFSENov 30, 2008
mono87Nov 29, 2008
2
By Laylasmom Blank
When my daughter was a few days old she started having seizures, they gave her an MRI and found blood clots in her br...
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IPIFSENov 30, 2008
ksaamsNov 15, 2008
mono87Nov 14, 2008
BbswimgrlNov 12, 2008
4
By Bbswimgrl Blank
I was the first person diagnosed with IP, although it is believe my Great Grandma had it as well. I am a healthy, 24 ...
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IPIFSEFeb 06, 2009
1
By MelanieMarshall Blank
My daughter has just been diagnosed as having ip at 11 months old intend to start swimming lessons in january worried...
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IPIFSEFeb 06, 2009
1
By mom2mml Blank
I have an 8 mo. old daughter that has IP. She is doing amazingly well. Praise God! To my knowledge, it has never b...
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